Letter

[Guest guest]

In a message dated 8/7/00 3:07:05 PM Pacific Daylight Time,

egroups writes:

CK:

What a wonderful letter! I, too, had felt compelled to write a letter to the

Editor of our local paper here in Texas, when some close minded kindergarden

teacher was blasting parents and doctors for medicating young children who

are diagnosed with ADHD....she says instead of the parents taking

responsibility, they are drugging our young people!! Can you imagine this

from a so called intelligent person?

My rebuttal was printed in the paper....never heard a word from that

teacher....until she walks in my shoes........

[Guest guest]

I to have what you have and you put my thoughts and my frustrations to

words that I have been trying to help friends understand what we go through

and now some if the doc I deal with think I am crazy how fun. .

at times I just feel " Leave Me Alone " What else Can YOU do to me that YOU

have not done!! " Your letter really hit home and it my heart thank you for

being here and sharing what I feel to!

I am happy to know you. Never give up tho no matter how hard they beat you.

M

letter

> I don't remember where I got this, but if you replace " auto-immune

> hepatitis " with any other disease, I think it says it quite well.

> ne

>

> Letter to People Without Hepatitis

>

> Authored by Bek Oberin

>

> Having Hepatitis means many things change, and a lot of them are

invisible.

>

> Unlike having cancer or being hurt in an accident, most people do not

> understand even a little about chronic hepatitis and its effects, and of

> those that think they know, many are actually mis-informed. In the spirit

of

> informing those who wish to understand ... These are the things that I

would

> like you to understand about me before you judge me...

>

> Please understand that being sick doesn't mean I'm not still a human

being.

> I have to spend most of my day in considerable pain and exhaustion, and if

> you visit I probably don't seem like much fun to be with, but I'm still me

> stuck inside this body. I still worry about life and work and my family

and

> friends, and most of the time I'd still like to hear you talk about yours

> too.

>

> Please understand the difference between " happy " and " healthy " . When

you've

> got the flu you probably feel miserable with it, but I've been sick

> foryears. I can't be miserable all the time, in fact I work hard at not

> being miserable. So if you're talking to me and I sound happy, it means

I'm

> happy. That's all. It doesn't mean that I'm not in a lot of pain, or

> extremely tired, or that I'm getting better, or any of those things.

Please,

> don't say " Oh, you're sounding better! " . I am not sounding better, I am

> sounding happy. If you want to comment on that, you're welcome.

>

> Please understand that being able to stand up for ten minutes, doesn't

> necessarily mean that I can stand up for twenty minutes, or an hour. And,

> just because I managed to stand up for thirty minutes yesterday doesn't

mean

> that I can do the same today. With a lot of diseases you're either

> paralyzed, or you can move. With this one it gets more confusing.

>

> Please repeat the above paragraph substituting, " sitting " , " walking " ,

> " thinking " , " being sociable " and so on ... it applies to everything.

That's

> what Hepatitis does to you. Please understand that hepatitis is variable.

> It's quite possible (for me, it's common) that one day I am able to walk

to

> the park and back, while the next day I'll have trouble getting to the

> kitchen. Please don't attack me when I'm ill by saying, " But you did it

> before! " , if you want me to do something then ask if I can. In a similar

> vein, I may need to cancel an invitation at the last minute, if this

happens

> please do not take it personally.

>

> Please understand that " getting out and doing things " does not make me

feel

> better. Telling me that I need a treadmill, or that I just need to loose

(or

> gain) weight, get this exercise machine, join this gym, try these

classes...

> may frustrate me to tears, and is not correct... if I was capable of doing

> thesethings, don't you know that I would? I am working with my doctor

> andphysical therapist and am already doing the excercise and diet that I

am

> suppose to do.

> Another statement that hurts is, " You just need to push yourself more,

> exercise harder... " Obviously hepatitis deals directly with muscles, and

> because our muscles don't repair themselves the way your muscles do, this

> does far more damage than good and could result in recovery time in days

or

> weeks or months from a single activity.

>

> Also, Hepatitis may cause secondary depression ( wouldn't you get

> depressed if you were hurting and exhausted for years on end!?) but it is

> not created by depression. Please understand that if I say I have to sit

> down/lie down/take these pills now, that I do have to do it right now - it

> can't be put off or forgotten just because I'm out for the day (or

> whatever). Hepatitis does not forgive.

>

> If you want to suggest a cure to me, don't. It's not because I don't

> appreciate the thought, and it's not because I don't want to get well.

It's

> because I have had almost every single one of my friends suggest one at

one

> point or another. At first I tried them all, but then I realized that I

was

> using up so much energy trying things that I was making myself sicker, not

> better. If there was something that cured, or even helped, all people with

> Hepaititis then we'd know about it. This is not a drug-company conspiracy,

> there is worldwide networking (both on and off he Internet) between people

> with Hepatitis if something worked we would KNOW.

>

> If after reading that, you still want to suggest a cure, then do it, but

> don't expect me to rush out and try it. I'll take what you said and

discuss

> it with my doctor.

>

> In many ways I depend on you - people who are not sick - I need you to

visit

> me when I am too sick to go out... Sometimes I need you help me with the

> shopping, cooking or cleaning. I may need you to take me to the doctor, or

> to the physical therapist. I need you on a different level too ... you're

my

> link to the outsideworld... if you don't come to visit me, then I might

not

> get to see you... and, as much as it's possible, I need you to understand

> me.

>

> ________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

>

>

>

>

> The Being Sick Community

>

> Sharing our resources:-

> Add a website URL you think may help another, or even add a link to your

own webpage.

>

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> http://www.elderwyn.com/members/chat.html

>

> Egroups JAVA based chatroom for your use anytime:-

> chat/

> (Anyone on web-tv will not be able to access java and it is very slow

compared to IRC.)

>

> Memorial Page:-

> http://www.elderwyn.com/members/inlovingmemory.html

>

> Members Lounge:-

> Medical resources, counselling via email, information on the daily chat

times, free psychic readings and the cartoon of the day.

http://www.elderwyn.com/members

>

> Members Profiles, pictures, and birthdays:-

>

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Promoting This Community:-

> Would you like people to be able to join from your webpage?

> promote/

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to

browse. This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into eGroups at your

convenience and receive no email.

>

> To modify your subscription settings please visit

mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> " Hold on to what is good, even if it's a handful of earth. Hold on to what

you believe, even if it's a tree that stands by itself. Hold on to what you

must do even, if it's a long way from here. Hold on to your life, even if

it's easier to let go. " - Pueblo Prayer

[Guest guest]

The following is a response to an article that appeared in the Washington

Times. My son forwarded it to me from his base. I thought you would enjoy

it.

Joyce

Subject: MILITARY IS OVERPAID

Author: at WASHINGTON

Date: 6/22/00 12:25 PM

Subject: MILITARY IS OVERPAID

On 12 Jan, Ms wrote a piece for the Washington Times denouncing

the pay raise(s) coming service members way

this year, citing that the stated 13% wage gap was bogus. A young airman from

Hill AFB responds to her article below. He ought

to get a bonus for this.

Ms. :

I just had the pleasure of reading your column of 12 Jan 00, " Our GIs Earn

Enough, " and I am a bit confused. ly, I'm

wondering where this vaunted overpayment is going, because as far as I can tell,

it disappears every month between DFAS

(The Defense Finance and Accounting Service) and my bank account. Checking my

latest leave and earnings statement (LES),

I see that I make $1,117.80, before taxes.

After taxes, I take home $874.20. When I run that through Windows Calculator, I

come up with an annual salary of

$13,413.60 before taxes, and $10,490.40 after. I work in the Air Force Network

Control Center (AFNCC),

where I am part of the team responsible for the administration of a 25,000 host

computer network. I am involved with

infrastructure segement, specifically with Cisco Systems equipment. A quick

check of http://www.monster.com under

jobs for Network Technicians in the Washington,D.C. area reveals a position in

my career field, requiring three years

experience with my job. Amazingly, this job does NOTpay $13,413.60 a year, nor

does it pay less than this. No, this job is

being offered at $70,000 to $80,000 per annum. I'm sure you can draw the

obvious conclusions. Also, you tout increases to Basic

Allowance for Housing and Basic Allowance for Sustenance (housing and food

allowances, respectively) as being a further boon to

an already-overcompensated force. Again, I'm curious as to where this money has

gone, as BAH and BAS were both

slashed 15% in the Hill AFB area effective in January 00.

Given the tenor of your column, I would assume that you have never had the

pleasure of serving your country in her armed

forces. Before you take it upon yourself to once more castigate congressional

and DOD leadership for attempting to get the

families in the military's lowest pay brackets off AFDC, WIC, and food stamps, I

suggest that you join a group of deploying soldiers

headed for Saudi. I leave the choice of service branch up to you. Whatever

choice you make, though, opt for the six-month rotation:

It will guarantee you the longest possible time away from your family and

friends, thus give you the full " deployment experience. "

As your group prepares to board the plane, make sure to note the spouses and

children who are saying goodbye to their loved ones.

Also take care to note that several families are still unsure of how they'll be

able to make ends meet while the primary breadwinner is

gone. Obviously, they've been squandering the vast piles of cash the DoD has

been giving them. Try to deploy over a major holiday;

Christmas and Thanksgiving are perennial favorites. And when you're actually

over there, sitting in a DFP (Defensive Fire Position, the

modern-day foxhole), shivering against the cold desert night, and the flight

sergeant tells you that there aren't enough people on shift

to relieve you for chow, remember this: Trade whatever MRE you manage to get

for the tuna noodle casserole or cheese tortellini, and

add Tabasco to everything. Talk to your loved ones as often as you are

permitted; it won't nearly be long enough or often enough, but

take what you can get and be thankful for it.

You may have picked up on the fact that I disagree with most of the points you

present in your op-ed piece. But, to

borrow from Voltaire, I will defend to the death your right to say it. You

see, I am an American fighting man, a guarantor of your

First Amendment rights and every other right you cherish. On a daily basis, my

brother and sister soldiers worldwide ensure that you

and people like you can thumb your collective nose at us, all on a salary that

is nothing short of pitiful and under conditions that

would make most people cringe. We hemorrhage our best and brightest into the

private sector because we can't offer the stability and

pay of civilian companies.

And you, Ms. , have the gall to say that we make more than we deserve?

Rubbish.

A1C Bragg

Hill AFB AFNCC

_____________

PLEASE PASS THIS ALONG TO AS MANY PEOPLE AS POSSIBLE

AND SHOW OUR SUPPORT FOR AMERICAN FIGHTING MEN & WOMEN.

IF YOU HAPPEN TO OBTAIN AN E-MAIL ADDRESS FOR THE

WASHINGTON TIMES'

PUBLISHER, EDITOR, OR REPORTER CINDY WILLIAMS, PLEASE

ADD IT WHEN YOU PASS THIS ON, THEN SEND IT BACK ALONG THE LINE TO THE

PERSON FROM WHOM THIS CAME. PERHAPS WE EACH OUGHT TO FOLLOW AIRMAN

FIRST CLASS BRAGG'S EXAMPLE, AND RESPOND TO MS. WILLIAMS' ARTICLE.

_____________

Peace may cost far less than war, or infinitely more: for war cannot cost more

than one's life.

-- Klingon proverb

One last note, l let us do the math (remember these math questions)

If Airman Bragg makes $10, 490.00 per year (after taxes); working 50 of the 52

weeks each year, working an average 5 day

work week, each day working 12 hours per shift, how many pennies does Airman

Bragg earn per hour ?

.......................................................................

.......................................................................

Answer: Based upon Ms. ' view point, an " over

paid " 300 pennies (a whole $3.00 per hour).

[Guest guest]

Terrific response. Kudos to your son. Craig M. Uhl, MD

> The following is a response to an article that appeared in the

Washington

> Times. My son forwarded it to me from his base. I thought you

would enjoy

> it.

> Joyce

>

> Subject: MILITARY IS OVERPAID

> Author: at WASHINGTON

> Date: 6/22/00 12:25 PM

>

> Subject: MILITARY IS OVERPAID

[Guest guest]

Tell me what you think about this, what if I go to the high school that my

son just graduated from, which by the way was a Blue Ribbon School and talk

to the principal about the different branches of the service coming to the

schools to try and get the kids to join the service to also may them aware

of the fact that they will have to take the Anthrax Vaccine and watch how

many people become aware and how the numbers keep dropping on the enlists. I

know the school real well and if word of mouth could be passed on then some

good could come of this. These kids need to be aware of what will happen when

they join. Everybody needs to be aware. Believe me, when my son gets home he

will go back to his old High School and tell everyone. My son thinks either

his recruiter is so misinformed that the recruiter just doesn't really know.

He doesn't think his recruiter is a liar, just misinformed. ( I have to laugh

at that one, but that's what he thinks). He wants to go and tell him like it

really is and to quit telling them things that aren't true. He said just

about all the kids he has been in contact with have not been told the truth

from their recruiter. Well just wanted to get some feedback on this issue.

concerned Mom

[Guest guest]

In a message dated 3/9/01 6:36:33 PM Pacific Standard Time,

writes:

> If anyone would like to write an email to this woman that I can print and

> enclose in a letter, write me privately. She is feeling very isolated and

>

Joan, why not ask her to join the group??

[Guest guest]

Yes !!! Two sounded terrible on the phone...Bre was vomitting...None of them feel very well about this at all...Sorry to hear of Aprils Foot !!! Let her know I am thinking of her and Praying for a Quick recovery..Is there anything he is going to do about the difference in size.

{{{ Many Healthy Hugs }}}

Helen from Ohio

Helen, so, they all have colds now?? What a bummer.  Hope they get well quick. We had a long day and did not get back till 8 PM tonite. The Pedi Ortho was so nice, he listened, and did not blow us off. He said left ankle injury, well duh.LOL Anyway, he put her in a velcro brace to wear while up and about, PT twice a week, Naprosyn twice aday, follow up in six weeks. He said her left lower leg was 1/2 inch smaller in diameter than the right one. She really should have had PT two years ago after the removal of that cast. What can I say. Poor April has had the suckieist Dr.'s, up until now. Hope you are feeling ok. Talk to you soon. Marsha

HELEN

[Guest guest]

Helen, I am assuming that with PT twice a week for six weeks will help build up the muscle, and get it equal, huh? You know, this just makes me so angry, she should have had PT two years ago, I asked the Ortho after the cast was removed he said oh no, she is young she will be fine, I asked the Pedi both of them, they said no, she even walked with a limp for weeks after, the blasted Pedi said it was normal, man Helen, I could just cry when I think how many dr.'s she has been blown off by. It just makes me sooo mad.This morning when I dropped her off and met her PE assisst, I offered my hand and introduced my self and preceded to tell her about April, well, she all but walked off without listening. I just feel like crying, I know I should not let things get to me dealing with assholes, but, right now I just feel like crying, so over whelmed by it all, I am just thankful that her new GP referred her, now Apil has a great PP, Pedi Ortho and GP. Just maybe things will change, it already has, but something about her being neglected by all these Dr.'s causing her years of pain, not being like other kids just wants to make me cry and even bust heads open. Thanks for listening and for caring. It really means alot to me to know that someone cares. . Marsha

[Guest guest]

Hi Marsha ! I will Always Care !!!!!!!!!!!!!!! And Yes, I do know all about Dr's that will not listen !!!! The Girls and I all have Doc's like that ! Then ya come across the Good ones that are a Jem to have and you say, Where have you been hiding ??? )

Cry ??? YES !!! It does Help to let the pressure off at times !!! We have feelings that have to be taken care of too !!!!

As for her gym assistant, If she was that nasty, REPORT her !!! You have to protect your child from Jerks !!! If you don't, who will ??? Loving Parents Always worry about their Children !!! You are Normal ;o)

I hope the exercise with it does strengthen it. When Ross was five years old he got hit by a car, given 10% chance to live ! Well as you see he did survive ! But after getting out of his body cast after 6 months, they noticed his legs were not growing the same anymore. By the time they did something about it, his one leg was 2" longer than the other. So they had to put a pin in his fast growing leg so the other one could catch up... They are the same now !!! But he has Arthritis in them bad (

Did they say Why one is longer than the other ??? Or it is just a Limp, cause of weakness ???

Keep me posted !!!!

{{{ Crying Hugs }}}

Helen

 

Helen, I am assuming that with PT twice a week for six weeks will help build up the muscle, and get it equal, huh? You know, this just makes me so angry, she should have had PT two years ago, I asked the Ortho after the cast was removed he said oh no, she is young she will be fine, I asked the Pedi both of them, they said no, she even walked with a limp for weeks after, the blasted Pedi said it was normal, man Helen, I could just cry when I think how many dr.'s she has been blown off by. It just makes me sooo mad.This morning when I dropped her off and met her PE assisst, I offered my hand and introduced my self and preceded to tell her about April, well, she all but walked off without listening. I just feel like crying, I know I should not let things get to me dealing with assholes, but, right now I just feel like crying, so over whelmed by it all, I am just thankful that her new GP referred her, now Apil has a great PP, Pedi Ortho and GP. Just maybe things will change, it already has, but something about her being neglected by all these Dr.'s causing her years of pain, not being like other kids just wants to make me cry and even bust heads open. Thanks for listening and for caring. It really means alot to me to know that someone cares. . Marsha

HELEN

[Guest guest]

Helen, Good Morning, April's leg is smaller is width, the lower leg,the muscle is smaller, I assume it is from not using it like the other leg. She start PT this afternoon, or at least eval. The Naprosyn is working much better, it lasts for about 11 hours, I give it with breakfast and supper. She really had a pretty good day at school, her teachers were so glad to see her up and about and they will continue working with me to keep a handle on her.LOL. It will get harder to keep her under wrap, now that she is mobile. Everyone else is sooo nice at school, that assissst is the only one that I have ran across that was such a jerk, so that makes me happy, one jerk out of all the others, not bad. I am in a better frame of mind this morning, thanks for caring and being there, sometimes it just is a bit overwhelming.

Has your granddaughter had reflux as a baby?? What would happen if you would take her to the Dr. when you have them?? Just wondering,,, hint, hint.

How are you feeling??? Talk to you soon. Marsha

[Guest guest]

Why hadn't she been using it like the other??? From a previous injury??? Glad the med is helping her so... That is Great that she is up and about !!!!! That's Good that everyone ( except one, there Always has to be an exception ! ) is trying to work with you in her care !!!

Glad you are Feeling Better ) Mom has the Right to be down too !!! We do worry so about our Children don't we ? )

Bre has been vomitting since Birth !!! They have Never done anything about it. Just keep saying she will get over it ( Well she is now 6 and she still vomits... Stress causes it also!!! No, I can't take them to the docs when I have them. He has Completely tied my hands... I have to go through the jerk for everything medical or otherwise ( Their lawyer said that is ridiculous !!! So we have to wait till this thing is settled, in the meantime the children suffer (

I have caught the cold that Cassandra and Bre have, now I know just how miserable they are... Am hoarse can hardly talk, the dry cough, runny nose, aches, low fever, you get the picture...

Am still sewing halloween costumes though for my sons friends as they are having a Halloween Party next Sat. One of his friends decided they aren't getting their costume done in time hinself, so he wanted to send it over here Monday for Me to get started on it!!! My son told him to go in rags or something, cause my Mom's sick and she is already still trying to get done the ones that she had already promised she would get done...Yeah Son !!!!

I think they bombarded me with all these costumes to make this year just to keep me over busy ) It is helping as long as I am busy...

How are you doing ??? How'd April do in therapy ???

{{{ Therapy Hugs }}}

Helen

Helen, Good Morning, April's leg is smaller is width, the lower leg,the muscle is smaller, I assume it is from not using it like the other leg. She start PT this afternoon, or at least eval. The Naprosyn is working much better, it lasts for about 11 hours, I give it with breakfast and supper. She really had a pretty good day at school, her teachers were so glad to see her up and about and they will continue working with me to keep a handle on her.LOL. It will get harder to keep her under wrap, now that she is mobile. Everyone else is sooo nice at school, that assissst is the only one that I have ran across that was such a jerk, so that makes me happy, one jerk out of all the others, not bad. I am in a better frame of mind this morning, thanks for caring and being there, sometimes it just is a bit overwhelming.

Has your granddaughter had reflux as a baby?? What would happen if you would take her to the Dr. when you have them?? Just wondering,,, hint, hint.

How are you feeling??? Talk to you soon. Marsha

Sig's By: Softly Whispers

[Guest guest]

Good Morning Helen, How are you feeling?? getting over your cold?? How are the girls?? I read where your mom in law does not have cancer?? How great!!!

April had injured her left leg on a slide two years ago at PE, lower leg struck the steel bar of the slide, of course no one saw it. Too busy talking among theirselves. Well, anyway, had a large hematoma over the leg bone on top, sprained ankle at that time, was in cast for three weeks and the blasted Ortho did not do PT on her after the cast was removed and the muscle in that leg never got built up. So, it just kept getting repeated sprains, now it will take six weeks of PT, the removal cast, to build it back up.I even asked the ortho and two pedis about PT at that time, oh no not needed. Man, what can I say, she is in great hands now so that is all that matters. Anytime anyone has a cast on they need PT to rebuild that muscle so everyone who reads this remeber that so you too or your family will not be screwed.

I just have so much anger towards all the Dr.'s and other grownups who have not believed April in the past, I know I have to get over it and go on and in time I will, I just am so thankful after all these years finally she is getting the help she needs and they are listening to her.

So, what kind of customes are you making?

April had a geat first day of PT. She really likes her PT. He is really nice and patient and jokes alot with her. She will go on Wed and fri after school. Plus he has her doing exercises at home three times a day.

Talk to you soon. Marsha

[Guest guest]

Yes, Great news about Virginia !!!! I still have my sinus cold, I feel yucky (

Yes, it is a shame that grown people do not listen to the little ones... They too have a mind and feelings that need to be paid attention too!!!!!!!!!!!!!! That's why they have a mouth and can Talk !!!!!! Me, Too, I get so frustrated with Dr's. that won't listen ( You are not alone in that feeling, it is all too common (

I am so Glad she is getting the help that she so needs right now... Its Good she like's to do her P.T.. That makes it easier on her too ...It is a shame it was let go for so long (

Keep me posted as to how she is doing !!!!

{{{ Mothers Hugs }}}

Helen

Good Morning Helen, How are you feeling?? getting over your cold?? How are the girls?? I read where your mom in law does not have cancer?? How great!!!

April had injured her left leg on a slide two years ago at PE, lower leg struck the steel bar of the slide, of course no one saw it. Too busy talking among theirselves. Well, anyway, had a large hematoma over the leg bone on top, sprained ankle at that time, was in cast for three weeks and the blasted Ortho did not do PT on her after the cast was removed and the muscle in that leg never got built up. So, it just kept getting repeated sprains, now it will take six weeks of PT, the removal cast, to build it back up.I even asked the ortho and two pedis about PT at that time, oh no not needed. Man, what can I say, she is in great hands now so that is all that matters. Anytime anyone has a cast on they need PT to rebuild that muscle so everyone who reads this remeber that so you too or your family will not be screwed.

I just have so much anger towards all the Dr.'s and other grownups who have not believed April in the past, I know I have to get over it and go on and in time I will, I just am so thankful after all these years finally she is getting the help she needs and they are listening to her.

So, what kind of customes are you making?

April had a geat first day of PT. She really likes her PT. He is really nice and patient and jokes alot with her. She will go on Wed and fri after school. Plus he has her doing exercises at home three times a day.

Talk to you soon. Marsha

[Guest guest]

What I will do is give her the contact details of the arthritis association

who should put her in touch with the best doctor for her in her area. It

would be quite a way for her to travel to Newcastle from Norfolk...well

quite a way for an appointment anyhow. What do you think? I really hope she

can find a good doctor to help her. Is the address on her original letter

her home address?, i will write to her. Kate xxx

>From: " Carver " <cc@...>

>Reply-Stillsdisease

> " stills " <stillsdisease >

>Subject: letter

>Date: Sun, 12 May 2002 22:15:22 +0100

>

>dear all

> just a quick update on that letter , I did actually speak to Liz today

>and yes she is in a bit of a state , apperaently the doctors are giving her

>a rough time and if I could ask Kate to possibly give her , her rhuemy's

>name she may contact her and have a chat about her stills ,.She understands

>that we are NOT drs or clinics etc and hopefully she will be online soon

>she was grateful for the contact and just to be able to talk about things

>her son committed suicide last year on top of everything else I will phone

>her later in the week unfortunately it is a bad time for me as I will be

>away a lot soon and I start the EBREL this week but I will pass on

>everything to her and your selves as much as possible

>hope everyone else is ok as they can be

>

>Chris

>

>

>

>

[Guest guest]

Thank you very much Chris. I am so glad that we got to her before she committed

herself to a plane ticket or something like that. Please keep us informed. I

know you are going to be busy, so take care and be PAIN FREE!

We Will Win

Love Y'all

Bob & Carole

Please visit the Stills Disease web site

www.stillsdisease.org

[Guest guest]

I do believe that is her home address Kate and thank you so much for the

help also. Take care now and be PAIN FREE!.

We Will Win

Love Y'all

Bob & Carole

Please visit the Stills Disease web site

www.stillsdisease.org

[Guest guest]

Hi

Glad you managed to contact the lady in Norfolk. I was really worried about

her but also surprised regarding her diagnosis of 'Mental Illness'. Perhaps

this diagnosis could come from the fact of her son committing suicide so the

diagnosis is perhaps a separate issue to the 'Stills'.

I was worried for bob and Carole that this lady would just turn up out of the

blue as she sounded so desperate bless her.

Whilst I do not live near her, (live in the New Forest) if I can help in any

way, please let me know.

Love, Hugs, Health and Happiness,

a, Oliver and the clan

[Guest guest]

Hi Kate,

I was wondering if the 'mental illness' diagnosis this lady has been given is

perhaps related to the suicide of her son. Its possible isn't it? It could

therefore be a seperate issue to the 'Stills' that she has.

There must be a good medical person in her area surely. Thing is from the

latter, she sounds really confused. The poor love sounds as though she could

do with just chatting with someone first to try and sort her out.

Well had better go. I've loads to do as Oliver has not been too good of late

making it almost impossible for me to study for university. On saturday Dave

and I bought Oliver a copy of 'Harry Potter' video and left him watching it

with whilst we took off in the forest to chat and blow the cobwebs

away. I've decided that as aince christmas, I've really struggled with 40 hrs

of uni work, oliver and the family plus working fridays, I'm going to bank my

year at uni and go back to work in the office. I've contacted some firms of

solicitors who have said they will give me work and I hope to work three

weeks a month and fit in hospital appointments etc on the fourth week. I

dont know whether it will work out that way, but will give it a try. I'm

also looking into perhaps carrying on with uni via Open University but we

shall see. It was always my dream to go to uni but then Oliver and the

family come first and I must confess to looking forward to having my evenings

and weekends back to spend more time with the clan. Ofcourse it will also

mean we won't be so skint all the time which will be kinda nice really. I'm

not looking forward to getting suited and booted again ha ha, it took me a

while to get used to dressing down for uni but I like it now. I'll have to

dig out the ole suits again and hope I still fit into them ha ha.

Take care and hope you are well

Love, hugs, health and happiness

a, Oliver and the clan xx

[Guest guest]

Department Of Education

Region VIII

Federal Office Building

1244 Speer BLVD, suite 310 june 2, 2002

Denver Colorado80204-3582

Ms. Charlene Port

13013 county road 67.3

Trinidad Colorado 81082

Re: South Central Boces

Case Number 08021143

Dear Ms. Port:

On May 31, 2002 the US. Department of Education, Office for Civil Rights

(OCR) received your complaint against South Central Boces (BOCES). We also

received additional information from you on june 11, 2002. You alleged that

the BOCES discriminates against your disabled son in a BOCES preschool

program.

OCR is responsible for enforcing:

Section 504 of the Rehabilitation Act of 1973, which prohibits

discrimination on the basis of disability in programs and activities funded

by the US Department of Education:and

Title II of the americans with Disabilities Act of 1990, which

prohibits discrimination on the basis of disability by public elementary and

secondary educational systems and institutions, public institutions of

higher education and vocational education and public libraries.

In your complaint you indicate your dissatisfaction with the level of

services on your sons IEP. Your advocate is also asking that BOCES perform

particular assessments of your son. at the preschool level, the above

regulations require only that recipients of funds from the US Department of

Education do not exclude disabled students from their program and shall take

the preschool students disability into account in determining the aid,

benefits, or services to be provided at the preschool. There is no

requirement for a free appropriate public education, including evaluation

and placement, at the preschool level within the regulations we enforce.

Specifically you alleged violations of Individuals with Disabilities

Education Act (idea). OCR is not responsible for enforcing IDEA. You may

wish to contact the Colorado State Department of Education, 201 East Colfax

Avenue, Denver Colorado 80203. Main telephone number (303) 866-6600 for

action as appropriate. We are therefore administratively closing case

number 08021143 effective the date of this letter.

In a telephone contact with this office june 11. 2002, you indicated that

the district is somehow discriminating against your family based upon income

level. It is our understanding that you may not qualify for a service or a

program based upon your income being too high. Even if true this does not

rise to a compliance concern under the above statutes. If you believe that

you are being denied access to a program or are being treated differently

based upon your sons disability you may file such a complaint. If you do

you must explain the reasons for your belief that the denial or different

treatment is based upon your sons disability and not for some other reason.

Such a complaint if received will be assigned a new case number.

Under the Freedom of Information Act it may be necessary to release this

document and related correspondence and records upon request. In the event

that OCR receives such a request we will seek to protect to the extent

provided by law personal information which if released could constitute an

unwarranted invasion of privacy.

If you have any questions you may contact me at (303) 844-4822

Sincerely

Pamela Nemeth

Equal Opportunity Specialist

[Guest guest]

, I'd just like to say that I totally agree with that

your message is inappropriate to this list, which should be concerned

solely with our children with DS/ASD and their problems. I

understand your desire to help your soldiers in their misguided task but

perhaps NO messages on this subject would be better than either positive

or negative ones. :-)

Regards

>I don't see any other person complanning. It's my way of saying

positive that

America military are fighting military are fighting and that we're

thinking of them daily. It's better then a negative message. Sorry

that you thought of it differently.

rebecca

>I don't think this kind of message is appropriate to put in this list

!!!!

Kind regards from EUROPE

Kuehne with Tanja 14, Fabio ds/asd 12 and Elena 9

[Guest guest]

wrote:

<Go USA military, all the way during, the WAR.>

I don't think this kind of message is appropriate to put in this list !!!!

Kind regards from EUROPE

Kuehne with Tanja 14, Fabio ds/asd 12 and Elena 9

[Guest guest]

I don't see any other person complanning. It's my way of saying positive that

America military are fighting military are fighting and that we're thinking of

them daily. It's better then a negative message. Sorry that you thought of it

differently.

rebecca

I don't think this kind of message is appropriate to put in this list !!!!

Kind regards from EUROPE

Kuehne with Tanja 14, Fabio ds/asd 12 and Elena 9

--

__________________________________________________________

Sign-up for your own FREE Personalized E-mail at Mail.com

http://www.mail.com/?sr=signup

[Guest guest]

,

Alright you made the poing and it's true. This group is to be about Autism/ds

so I'll make sure that I erase that message before I send any e-mails out to the

group.

,   I'd just like to say that I totally agree with that

your message is  inappropriate to this list, which should be concerned

solely with our children with DS/ASD and their problems.     I

understand your desire to help your soldiers in their misguided task but

perhaps NO messages on this subject would be better than either positive

or negative ones. :-)

Regards

>

--

__________________________________________________________

Sign-up for your own FREE Personalized E-mail at Mail.com

http://www.mail.com/?sr=signup

[Guest guest]

,

you meant well and that is what counts!!!!!!!

Kathy

Re: Re: letter

,

Alright you made the poing and it's true. This group is to be about Autism/ds

so I'll make sure that I erase that message before I send any e-mails out to the

group.

, I'd just like to say that I totally agree with that

your message is inappropriate to this list, which should be concerned

solely with our children with DS/ASD and their problems. I

understand your desire to help your soldiers in their misguided task but

perhaps NO messages on this subject would be better than either positive

or negative ones. :-)

Regards

>

--

__________________________________________________________

Sign-up for your own FREE Personalized E-mail at Mail.com

http://www.mail.com/?sr=signup

[Guest guest]

Kathy,

Yeah I meant well, thanks though!!

,

you meant well and that is what counts!!!!!!!

Kathy

 

  ,

  Alright you made the poing and it's true.  This group is to be about Autism/ds

so I'll make sure that I erase that message before I send any e-mails out to the

group. 

 

--

__________________________________________________________

Sign-up for your own FREE Personalized E-mail at Mail.com

http://www.mail.com/?sr=signup