Re:trial/bone metabolism

[Guest guest]

Hi Tracey,

I did have my urine tested for protein. I was not losing protein into my

urine. My kidneys were working fine. I just checked my blood report, and the

ALT, AST, and total bilirubin were also fine. My total protein was 4.4 and

my albumin was 2.9. Like I mentioned, I already had an endoscopy/colonoscopy

and a kidney workup. I was sent to a dietician for a high protein diet. I

find it absolutely impossible to eat the high amount of protein that the

gastroenterologist prescribed. I did try. I think my protein intake is within

the normal range. I have " protein losing enteropathy " ...losing protein

somewhere...who knows where? Phosphorous was also within the normal range.

Everything on the Hepatic Function report was normal except total protein and

albumin. Should I still be worried about the liver?

I'm also glad they're doing this clinical trial on bone metabolism at MSKCC.

My dr., Ellin Berman, was the first author on the paper published in the

New Eng. Journal of Med. last May. Therefore, she's following it up with the

trial. It doesn't require more visits to the dr. than normal for me, so

joining the study was a " no brainer " . I'll let you know how it goes.

in NY

[Guest guest]

Hi ,

Well it sure sounds like they're taking good care of you and

exploring all the areas that could be involved.

I'm not a doctor but I can't see how you'd have a compromised liver

if all your LFT's are good so please try not to worry about that.

One thing I would ask the doctor though, is if having diarreah could

cause this....assuming you have Gleevec diarreah like so many of us

do. If you don't, then I guess that's not the issue either.

Let us know how you do,

Tracey

>

> Hi Tracey,

> I did have my urine tested for protein. I was not losing protein

into my

> urine. My kidneys were working fine. I just checked my blood

report, and the

> ALT, AST, and total bilirubin were also fine. My total protein

was 4.4 and

> my albumin was 2.9. Like I mentioned, I already had an

endoscopy/colonoscopy

> and a kidney workup. I was sent to a dietician for a high protein

diet. I

> find it absolutely impossible to eat the high amount of protein

that the

> gastroenterologist prescribed. I did try. I think my protein

intake is within

> the normal range. I have " protein losing enteropathy " ...losing

protein

> somewhere...who knows where? Phosphorous was also within the

normal range.

> Everything on the Hepatic Function report was normal except total

protein and

> albumin. Should I still be worried about the liver?

>

> I'm also glad they're doing this clinical trial on bone metabolism

at MSKCC.

> My dr., Ellin Berman, was the first author on the paper published

in the

> New Eng. Journal of Med. last May. Therefore, she's following it

up with the

> trial. It doesn't require more visits to the dr. than normal for

me, so

> joining the study was a " no brainer " . I'll let you know how it

goes.

>

> in NY

>

>

>