Re: My census form (how are you all getting on with yours) advice needed.

[Guest guest]

> YES LIMITED A LOT

> YES LIMITED A LITTLE

> NO

> Could any one advise which one I should tick.

Kathleen I have put myself down as limited a lot. Qn 13 very bad as my health in

general.

It is quite sad that I had to put 2005 as the year I last worked. It does hit

home doesn't it.

At the end of the day, between my ME/CFS diagnosis and persistent annual

decline, to adrenal and thyroid problems. I still have a thyroid story to tell

and like so many of us here it's only with adequate T3 and supplements that has

been effective.

Having been so ill, I was bed-ridden in winter of 2006/7, out of bed doing two

ten mins tasks a day and feeling ill and dizzy then. Being pushed around in a

wheelchair when going out and about. At the end of the day, without T3, we are

talking about real suffering, a lot of pain, very limited and using mobility

scooter. Even then there is no peace of mind you can sort all this on NHS in the

long term.

So bearing in mind all that has gone on the past few years and my story isn't

complete, I had no problems as scoring myself as I did.

In my opinion, limited a little would be if you get back in work part-time and

still struggling on with everyday tasks. No doubt it all depends on your

circumstances, where you are with your thyroid meds, and what you have got back

to. Plus symptoms can fluctuate and is a certain activity level sustainable

throughout the weeks, or just on a couple of isolated days.

They are getting a vague understanding of the health of the nation, but not

people's circumstances. You could assume it is to do with directing NHS

resources, but they are not aware of what people are ill/limited with.

It seems to be a general guide anyway. There are times in the past few years,

you might have scored yourself at any of the above options (depending on when

you fell ill and how it has happened).

Fiona

[Guest guest]

HI FIONA and ALL

I also rang the surgery up to ask what I should put, but could not get an

answer, but I put the same as you in the end even though Prednisolone has helped

with my mobility it may well not be lasting.

I have also put a letter in with it to cover two other questions which were

difficult.Why for instance did they not simply ask you if you were retired and

unfit for work, and stop at that instead of asking all those other bits on where

you worked and the last time you worked etc. How could any of that have been

relevent.

I have also had a private FREE T3 Test done today, so hopefully I will get the

results in the next two days.

I have not got as far down as being pushed around in a wheelchair, but have not

been able to use my mobiity scooter either, which I enjoyed, but I hope that I

will soon.

I also think my energy reserves went down on having to do my flat up as it was

in a bad state, so this year is going to be spent in a more relaxing way.

The two things I am plagued with most is that the trains should have been made

to fit the platforms, and taxi cabs made to transport a wheelchair are difficult

for me to get into and out of. I can get into the front seat of a car,but taxi's

are not like that around here.

Kathleen

>

> Kathleen I have put myself down as limited a lot. Qn 13 very bad as my health

in general.

Fiona

>

[Guest guest]

Can I just say that you are not supposed to be completing the

Census Forms until the date mentioned in the Census Form. The information

needed is for that particular day ONLY. Who knows, your details may have

changed from today to that day!

Also, please discuss this on the CHAT forum.

Luv - Sheila

> YES LIMITED A LOT

> YES LIMITED A LITTLE

> NO

> Could any one advise which one I should tick.

Kathleen I have put myself down as limited a lot. Qn 13 very bad as my health

in general.

It is quite sad that I had to put 2005 as the year I last worked. It does hit

home doesn't it.

At the end of the day, between my ME/CFS diagnosis and persistent annual

decline, to adrenal and thyroid problems. I still have a thyroid story to tell

and like so many of us here it's only with adequate T3 and supplements that has

been effective.

_._,___

[Guest guest]

Again, you feel in the form on the particular day specified and

you answer such questions as to how you are feeling on that particular day. You

might feel differently on that day to what you are feeling today.

Luv - Sheila

HI ALL

I have received my census form and I am stuck at question 23 which asks if my

day to day activities are limited because of a health problem or disability

which is expected to has lasted or is expected to last at least 12 months. My

GP has clearly got rid of my pain with prednislone, but how do I know this is

going to last to enable me to fill in this question. There are 3 boxes as

follows-----

[Guest guest]

Aren't you the lucky one? I last worked in 1996

Glynis

> It is quite sad that I had to put 2005 as the year I last worked. It does

> hit home doesn't it.