Re: Mother with Hypo symptoms..please recommend NHS tests.

[Guest guest]

I would take a letter with her and ask the GP to read it and

then to put it into your Mum's medical notes. In that letter, list all of her

present symptoms and signs (signs are things the doctor should be able to see,

which are often quite obvious). Check these against those in our web site www.tpa-uk.org.uk under 'Hypothyroidism'.

Tell y our Mum to take her temperature 4 or 5 days before getting out of bed in

a morning and write these down in the letter. Normal temp. is 98.6. If your

Mum's temp. is 97.8 (and it could be much less) this is an indication she is

suffering with hypothyroidism as her metabolism is running too low.

List every member of the family who has a thyroid or autoimmune

disease as thyroid and autoimmunity runs in families.

List all the blood tests she needs - ferritin, vitamin B12,

vitamin D3, magnesium, folate, copper and zinc. Tell the doctor that you know

if any of these levels are low in the range, her thyroid hormone cannot be

properly utilised at cellular level until whatever is low has been treated with

supplements. Ask also for her levels of thyroid antibodies to be tested (this

is IMPORTANT). Thyroid antibodies see the thyroid gland as public enemy number

one and set about its gradual destruction.

Ask for her to be referred to an endocrinologist who knows about

the functioning of the thyroid gland and not one who specialises in diabetes. I

will send you a list of doctors recommended by our members privately and if you

choose one from the NHS, you will need a referral, if you choose a private one,

you don't. Your Mum can be referred outside of the area.

Putting everything down in writing and presenting it to your

doctor makes a difference - honestly. Doctors don't like the written word. Send

a copy to the Head of Practice and ensure that you keep a copy yourself just in

case your doctor doesn't follow up the requests you have made. At the end of

your letter, ask for all the blood results to be sent to you together with the

reference range for each of the tests done and we can then help with their

interpretation.

Good luck

I would definitely get the private testing to see how much T4

and T3 her body is using by doing the 24 hour Genova urine test. Also, is it

possible to get her adrenal function tested at the same time with the 24 hour

salivary profile by Genova?

Luv - Sheila

I've convinced her of the necessity of further testing..she's seeing her GP in

the next few days due to increased fatigue,dizziness,brain fog etc...I'm going

to supply her with a list of tests she needs to ask her doctor to perform..so far

that list includes Thyroid panel,iron panel including ferritin,B12,folate,Vit

D,magnesium,copper,zinc..as she cannot tolerate wheat I believe a test for

possible coeliac is also necessary..are there any other NHS tests essential to

have done at this stage,she had a total hysterectomy 25 years ago so would

estrogen/progesterone be a good idea?

I'd appreciate your thoughts...

Thanks for your time~Andy~

[Guest guest]

EDITED TO REMOVE MOST OF PREVIOUS MESSAGE. PLEASE DELETE MESSAGES PREVIOUSLY

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RESPONDING TO. LUV - SHEILA

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Hi Andy,

I also have CFS diagnosis. I was tested for Coeliac when I went to see a

Neurologist prior to diagnosis. The test came back negative, however, what I

have found out since is that the test will come back negative if the person

being tested has already given up eating gluten and is free of GI symptoms. I

had told this guy that I had quit eating gluten @ one year previously.. You'd

think they'd get something basic like that right, wouldn't you? So anyway your

mother would need to resume eating gluten for at least 6 weeks before getting

tested for Coeliac. Also she would need to be eating as a major ingredient in

at least one meal a day e.g pasta.

An NHS Magnesium test only shows up magnesium levels in the blood supply. As

far as I understand things, your body will deplete stores of magnesium from

everywhere else before it lowers blood levels. By the time levels of magnesium

in the blood are testing low, your heart isn't going to be very happy.

I think you get a more accurate reading by getting an intracellular test done of

the sort Dr Myhill can arrange. Can't remember which lab does it, maybe Acumen.

Whether someone in the NHS will pay attention to private test results is another

matter entirely as I'm sure you're probably well aware.

Regards,

Sue

Regards,

Sue

>

> Hi..my 70 year young mother has numerous HypoT symptoms dating back at least

30 years,the severity of symptoms worsening over time..her sister was diagnosed

HypoT 40+ years ago..NHS docs always insist bloodwork is normal,nothing

wrong,just your age ma dear & send her on her not so merry way.

>