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How long had you stopped the Erfa thyroid before your blood was

drawn Glynis? Your endocrinologist should know that thyroid stimulating hormone

(TSH) is just that - it is a hormone secreted by the pituitary gland when it

recognises there is insufficient thyroid hormone in your body, telling the

thyroid to send out more. When you are taking ALL the thyroid hormones your

body requires, it has absolutely no need too secrete any TSH so of course, your

TSH will be suppressed. Your free T4 is fine, even at the bottom of the range,

though you might benefit by adding 25mcgs T4 to your Erfa. Your free T3 is too

low for anybody on natural thyroid extract and this shows you need an increase

by half a grain (30mgs) of Erfa - unless you had stopped your Erfa for more

than 24 hours before the test - in which case, it would look lower than normal.

I have seen it happen too many times that when endocrinologists

tell their patients to reduce their medication because they are looking at the laboratory

numbers only, their patients have become quite ill and needed a long time to

fully recover again. Go by how you feel Glynis and tell the endocrinologist you

will be doing this as you do not have any symptoms or signs of hyperthyroidism.

How you feel is what you are going to follow.

Did he even ask you whether you had any symptoms or signs?

Luv - Sheila

and he has recommended that I reduce my Erfa to 2 1/2 grains every other day.

(I'm on 2 grains a day at present)

I'm not getting any hyPERthyroid

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  • 1 month later...
Guest guest

Thankyou for your reply x it was on my left side, i get it in my chest

alot,not always in my arm but was havin it like that for several days!

my hand was painful and numb both at the same time,if that makes sence,

Gets lots of sytoms some seem to be getting worse,my memory! is awful, i

can even be talking and compleatly for get what im saying

midsentance,tiredness, pain in my joints makes an already painful

backproblem worse,

>

> Describe the pain in arm/hand/chest Anita and is this on the right

side or

> the left.

*********************Old messages deleted by moderator........ Please try to

remember to delete most of the message you are replying to, it makes life

easier for everyone!!!*****************************

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  • 3 weeks later...
Guest guest

Hello

So, a few weeks ago I requested a blood test as I have Hypo symptoms again(I

gained 3 kgs in one week back in Feb, and have had to go running every day just

to maintain my weight but have been unable to lose the 3 kg. I also have been

feeling increasingly depressed and getting suicidal thoughts, which I only ever

get if my thyroid hormone levels are too low. Also my pulse has been 45 bpm)

Today I saw my Gp and got the results

Free T3= 4.1 (range - 3.8 - 6.8)

Free T4= 9.8 (7 - 21.1)

TSH 0.03 (0.1-4.0)

Reverse T3 test refused

Quite alarming since my Ft4 was 21 in Sept and my FT3 was 5.1

So, my Dr's advice was to increase my levo by 50mcg a day. Meaning I would be

on 250mcg levo, 20mcg liothyronine.

Basically in the last 12mths my dose has doubled. So the attack on my thyroid

has become viscious and fast this year (between 2005-2010 I had been on 125 levo

the whole time!)

What do you think? Shall I get referred back to my Endo? Shall I see if I can

try taking Erfra instead of levo?

Thanks

Suzanne.

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  • 1 month later...
Guest guest

Hmmm.... a high powered nurse that I'd like to slap!! There is nothing what so

ever 'fine' about your TSH which is steadily rising year after year. You are

plainly hypothyroid and as such, should be on medication by now.

Levels of over 4 are putting you at extra risk of heart problems according to

the press release last year by the society for endocrinology.

http://www.endocrinology.org/press/pressreleases/2010-03-16_Thyroxine.pdf

TSH levels over 3 are treated in most countries and the range in this country

recommends treatment over 5 if there are thyroid antibodies and treatment over

10 if there are no antibodies.

A normal TSH is 1 and people on meds are generally aiming to get to this or

below. Suggest your nurse reads the article by Proff A Toft in Pulse

magazine, and then asnwers the questions on it.... She can gain a continueing

professional development credit for taking it, and sh might even learn

something.... it's in our files.... here

thyroid treatment/files/ scroll down

until you get to Pulse article.

In the meantime, you are plainly not being treated correctly. You need to look

at the symptoms of hypothyroidism, write a letter to your doc listing your

symptoms, request a trail of medication and a referal to an endocrinologist

specialising in Thyroid.

How do you feel?

Just leaving you with a tsh which is rising is, frankly, negligent.

GRRRRRRR makes me mad :(

xx

:

>

> Finally getting to post some of the test results for someone to kindly

explain. ,

>

> My friend who has been on thyroxine has a high powered nurse/daughter and she

took a look and thought my thyroid levels were fine??? She quoted 4.5 to 14.5

to be " normal " ? I am wondering!

..

>

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