Re: Dr. Drucker and Zero club

[Guest guest]

O!!! YIPPEEE!!!

Number 1006 in the Zero Club

Zavie

I believe that I assigned this number to you on the Asian site.

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

PCRU 5/02 at RVH

2.8 log reduction Sep/05

3.0 log reduction Jan/06

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

[ ] Dr. Drucker and Zero club

Dear Zavie

I am 73 years young and was dx'd in June 2006. Started on 400mgs of

Gleevec mid June. In October I had a cytogenetic test. Interpertation:

Fish analysis using BCR/ABL probe showed no evidence of clonal

abnormality. Consistent with complete cytogenetic remission in blood.

Does that qualify me for your zero club?

I took your suggestion and went to the Appreciation Album for Dr.

Drucker and left a comment.

I am happy to be part of this group. It has been very informative and

has given me the confidence to push through despite the edema, nausau

and bone pain. I am suppossed to have another cytogenetic test in

March, but last week my coumadin and liver enzymes level was too high.

Am going to have another blood test this coming Tuesday. I go to a

great doctor at NY Presbyterian Hospital, so I am only a little

concerned. Will keep you all updated. You are all great morale boosters.

Thank you

Ceil dx 6/06

New York City

[Guest guest]

Hi there everybody

On 1 February I was on Gleevec for 1 year. 2 days ago I got my latest BMB

results and they couldn’t find any of those little Philly suckers!!

It has been a strange year but the one constant has been this website. I

have found all the conversations really interesting. Some very pertinent to

me and some less so…. and some that I thought were not pertinent and then a

few months down the line they became pertinent.

I so much appreciate the people on this site who take the time and trouble

to make things easier for the rest of us to understand – I know how hard it

sometimes is to marshal one’s thoughts on Gleevec but they still take the

trouble. So - I have been saddened by the bickering that has gone on –

especially as I don’t really understand what it is all about. The only

thing I am sure about is that it is not healthy and a waste of energy so I

hope that it has ended and that we can all just get on with dealing with

this disease and putting in its place.

OK..that’s my 5c worth. Use it – don’t use it.

Have a great year and if any of you come to South Africa, let me know.

Would love to put some faces to the names.

Love

Jane

[Guest guest]

Yes, I agree the bickering is not only unnecessary but counterproductive. It

takes away from feeling positive about the weath of information available on

this site e.g. sometimes I don't want to read the posts because it might be more

bickering.

Is it possible we can be a little kind to each other?

Margaret

Hudson <merlinh@...> wrote:

Hi there everybody

On 1 February I was on Gleevec for 1 year. 2 days ago I got my latest BMB

results and they couldn’t find any of those little Philly suckers!!

It has been a strange year but the one constant has been this website. I

have found all the conversations really interesting. Some very pertinent to

me and some less so…. and some that I thought were not pertinent and then a

few months down the line they became pertinent.

I so much appreciate the people on this site who take the time and trouble

to make things easier for the rest of us to understand – I know how hard it

sometimes is to marshal one’s thoughts on Gleevec but they still take the

trouble. So - I have been saddened by the bickering that has gone on –

especially as I don’t really understand what it is all about. The only

thing I am sure about is that it is not healthy and a waste of energy so I

hope that it has ended and that we can all just get on with dealing with

this disease and putting in its place.

OK..that’s my 5c worth. Use it – don’t use it.

Have a great year and if any of you come to South Africa, let me know.

Would love to put some faces to the names.

Love

Jane

[Guest guest]

Jane, I absolutely love South Africa and have had a fascination with

it for years. ny Clegg is one of my favorite musical artists--I

have all his albums and always go see him when he is in the states,

but he hasn't been here for quite some time. We miss him! Also, the

pastor of my church is from South Africa--he emigrated to this

country when he was 17 and went to college here and then met his wife

and stayed on. His father was a pastor in South Africa as well, and

I believe he still has family there--a brother who is also a pastor.

I can't tell you the name of the town where he is from, but I will

try to find out. My husband and I have talked about our dream trip

which would be to South Africa to see absolutely everything! Maybe

we'll meet you one of these days! Best wishes to you. Hope all is

well with your CML treatment.

Vicki from Lynnwood WA (north of Seattle)

> Hi there everybody

>

> On 1 February I was on Gleevec for 1 year. 2 days ago I got my

latest BMB

> results and they couldn't find any of those little Philly suckers!!

>

> It has been a strange year but the one constant has been this

website. I

> have found all the conversations really interesting. Some very

pertinent to

> me and some less so…. and some that I thought were not pertinent

and then a

> few months down the line they became pertinent.

>

> I so much appreciate the people on this site who take the time and

trouble

> to make things easier for the rest of us to understand – I know how

hard it

> sometimes is to marshal one's thoughts on Gleevec but they still

take the

> trouble. So - I have been saddened by the bickering that has gone

on –

> especially as I don't really understand what it is all about. The

only

> thing I am sure about is that it is not healthy and a waste of

energy so I

> hope that it has ended and that we can all just get on with dealing

with

> this disease and putting in its place.

>

> OK..that's my 5c worth. Use it – don't use it.

>

> Have a great year and if any of you come to South Africa, let me

know.

> Would love to put some faces to the names.

>

> Love

>

> Jane

>

>

[Guest guest]

Hi there Vic.

Well - as one CMLer to another I hereby guarantee you free

accommodation and a tour guide when you come to Cape Town! South

Africa is truly beautiful. Tell all the South Africans you know to

come home - we need them.

I also love ny Clegg and as a true " scatterling of Africa " I urge

you to come and see what Africa has to offer.

Regards

Jane

> > Hi there everybody

> >

> > On 1 February I was on Gleevec for 1 year. 2 days ago I got my

> latest BMB

> > results and they couldn't find any of those little Philly

suckers!!

> >

> > It has been a strange year but the one constant has been this

> website. I

> > have found all the conversations really interesting. Some very

> pertinent to

> > me and some less so…. and some that I thought were not pertinent

> and then a

> > few months down the line they became pertinent.

> >

> > I so much appreciate the people on this site who take the time

and

> trouble

> > to make things easier for the rest of us to understand – I know

how

> hard it

> > sometimes is to marshal one's thoughts on Gleevec but they still

> take the

> > trouble. So - I have been saddened by the bickering that has gone

> on –

> > especially as I don't really understand what it is all about. The

> only

> > thing I am sure about is that it is not healthy and a waste of

> energy so I

> > hope that it has ended and that we can all just get on with

dealing

> with

> > this disease and putting in its place.

> >

> > OK..that's my 5c worth. Use it – don't use it.

> >

> > Have a great year and if any of you come to South Africa, let me

> know.

> > Would love to put some faces to the names.

> >

> > Love

> >

> > Jane

> >

> >