Thankyou

[Guest guest]

Hello to all.

I do want to thank all who have e-mailed me in private

and those who left such kind remarks in the guest

book. I was reluctant to put my history up but after I

talked with a few I did and now I am happy I did. so

once again thanks

I added todays counts and comments

http://easyskip.tripod.com

SkipD

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[Guest guest]

I don't think that Tasagna is any different then Gleevec when it comes to

weight gain. I gained 20 lbs after starting Tasigna a year ago.

I lost weight on gleevec and on sprycel due to all the stomach problems I

had.

If I can continue to feel as good as I do on Tasigna I say hats off to

Tasigna.

Sharon T

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From: [mailto: ] On Behalf Of

Barbara Meunier

Sent: Tuesday, June 16, 2009 12:44 PM

Subject: [ ] Thankyou

I'd like to thank all of you for taking the time to give your point of view

with regards to my question. I must say that your answers echo exactly what

I was thinking. Dr N. is a good dr - there must be a good reason for him

accepting to do this trial.

Maybe they're worried about Glivec not giving really long lasting

remissions, maybe they think that Tasigna gives deeper remissions; having

said that I'm PCR-U most of the time.

He told me today that Tasignia is generally better tolerated by patients,

but I'm very sensitive to all drugs (look what happened with my Ara-C) &

from what i've heard about rashes & pancreatitis, low blood counts, I think

I'd prefer to stick with the devil I know.

I took a while to accept it - but I suppose it's better to be fat & healthy

than slim & sick.

I will ask Dr N. why he was so suggested this trial to me - it's not as if i

could do any better than PCR-U.

I will be seeing him in September, but will mail him before to ask him.

I feel kind of guilty having brought up this subject as i know that many

patients have no choice & don't get the results they were hoping for or get

really bad side effects with glivec or other drugs, but I can't help

thinking that in the months or years to come, more & more of us will find

ourselves faced with such choices; whether to sick with Glivec or try a

second or 3rd generation drug,

thanks again,

best wishes,

Barbara