Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Hi Georgie, just to say that there's someone else here who really sympathises with you and longs to get their life back.What you said about missing your friend's wedding really rang bells. I've missed my nephew's wedding and all sorts of family and social things. It's especially hard when you hear friends going away on wonderful holidays - I don't begrudge them that but like you, I long to get my life back.And it sort of helps - hearing someone else having a good old rant! I hope you get well soon.Best wishes, Alison>> Sometimes I wonder to myself if this is 'all in my head' - the way I get treated by the doctor it's like she's sure I'm some kind of hypochondriac who spends all day googling diseases in order to annoy her!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 Thanks Alison, that means a lot to me. I hope you are well soon, too, and that we both get to have a lot more fun!! Georgie > > > > Sometimes I wonder to myself if this is 'all in my head' - the way I > get treated by the doctor it's like she's sure I'm some kind of > hypochondriac who spends all day googling diseases in order to annoy > her! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2011 Report Share Posted May 9, 2011 I consider it my job to challenge the GP as they get far to much respect and undeserved reverence from too many patients!! Keep them on their toes and annoy the hell out of them, lol!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Lol! Actually I am so nervous and het-up every time I see the doctor, it is really hard for me to say anything to her at all. I have to force myself! My blood pressure goes through the roof! In my daily life I'm a teacher and a writer, so everything I do is about communication, but when I see a GP I kind of fall apart. I probably come across as sounding more aggressive than I intend to, but my sophisticated communication skills stop working as soon as I see the stethoscope! I agree with you, though - they get an easy life from most of us patients and they need to be shaken up a bit and perhaps some of them will realise the terrible harm that they cause... > > I consider it my job to challenge the GP as they get far to much respect and undeserved reverence from too many patients!! Keep them on their toes and annoy the hell out of them, lol!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Well done for sticking up for yourself and trying to educate your doctor. It seems to me that you handled the situation very well. Miriam > I told her, " yes I am overweight. I have hypothyroidism and PCOS, both of which are well known to make weight loss extremely difficult. If these conditions were properly treated, I would lose weight. It doesn't work the other way round - my problems are not caused by being overweight, my weight gain is a symptom of my health problems. " > > She didn't have anything to say to that, just said " well let's wait until we get the results. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Dear Georgie, Your TSH is too high. Your T3 should be in the top 25% of the range and the T4 is abysmal. I had T4 like that once when I stopped taking T4 for 6 months! Your doctor should have recognised all this. The Iodine Protocol is good for Hashi and PCOS. Go to www.optimox.com/iodine_research and find out some more. There is a group for people doing this protocol. Dr Flechas seems to have done most work on PCOS. Gluten free diet is good for Hashis. You say you have adrenal problems. If gluten is causing a reaction in your body it will stress your adrenals. If you are thinking of self medicating go to www.stopthethyroidmadness.com and find out about how to dose HC. It is difficult to test for cortisol. You may have too much cortisol, too little or too much or too little at different moments of the day. I did a urinary cortisol test because that is all that is available where I live in France. The STTM site recommends doing salivary cortisol four times a day to trace the circadian curve i.e. how cortisol is secreted during the day. There are also other tests like, do you have lightheadeness when you get out of a chair? Go to the site and have a good read. It's a real mine of information. Well having done the urine cortisol test, I found out that I was secreting enough cortisol through the day but nevertheless having a low in the afternoon and end of the morning. So I deduced that my curve was messed up. I was also having problems getting up without it making me lightheaded. I decided on my own that there was something wrong and started taking HC and lo and behold the pains in my arms improved. I was not expecting this. I had had extreme fatigue in my arms for years. I got it just from holding the telephone! I am not quite sure why they improved, but I believe that connective tissue is made of the same sort of things and has the same needs as adrenals. So my knackered adrenals were stealing all the nutrients they needed to work from the other parts of my body that needed them such as the ligaments in my arms. After a year of taking HC I started weaning off very slowly. It is possible to take HC for a year and wean off. This freaks most doctors, they think your adrenals will pack up altogether. I have heard of people successfully weaning after three years. It had made me put on weight so I went on the HCG diet that Sheila recommends and lost 10 kilos. This is a very good diet for people with adrenal fatigue and thyroid problems. You don't feel hungry or suffer from hypoglycemia. Many people with Hashis have and RT3 problem. Go to www.thyroid-rt3.com and find out about RT3 and how you can get rid of it. It is possible to have low ferritin and high readings for the other tests in the iron panel. Your doctor should know this. It happened to me. Go to www.ithyroid.com and read the iron, copper and zinc pages. This will explain in detail what happens with iron and it's relationship with copper. Not having enough ferritin is a BIG impediment to getting better from thyroid disease. If I were you I would first try and get myself stabilised with a hormone treatment that contains T3. This will stabilise your emotions, get rid of any brain fog and give you a breather so that you can think clearly about what to do next. It might not make you lose weight and probably won't iron out all problems but you will perhaps live day to day life feeling better. I live in France and going to see my family was a real bind for years because of all this. I could not drive long distances without my arms hurting. Even sitting with my arms bent in the passenger seat was painful. As well as that my husband needs an operation on each of his feet so driving is painful for him too. We have done some trips but it is difficult because it takes us both about two days to recover from the driving and if it is just for the weekend we never get to recover before we have to go back. Well you seem to have had a lot of answers to your questions from other people and I hope you are reassured that you are not crazy or at fault in any way. And I hope you have found some answers to your health problems too. I used to be someone who always did what the doctor said. But I must say the various forums and health groups I belong to have been far more helpful both morally and practically. Each forum has a different slant on things but it is my observation that thyroid disease has many different manifestations and there is no "off the peg" solution. You have to dig around and find out what is right for you. Hope this is of some use to you, MacGilchrist From: littleeggcups <littleeggcups@...>thyroid treatment Sent: Mon, 9 May, 2011 20:27:14Subject: Am I crazy?!!!?!?!? Sometimes I wonder to myself if this is 'all in my head' - the way I get treated by the doctor it's like she's sure I'm some kind of hypochondriac who spends all day googling diseases in order to annoy her!My TSH is 9.22 (0.27 - 4.20) - Gp described this as 'slightly underactive'.T3 she said was normal: 4.2 (range 3.1 - 6.8)T4 is described as normal: 12 (range 12 - 22)I asked her to test for vitamins/minerals etc, but she said I definitely wasn't anaemic because she'd tested for that, so there was no need to do ferritin, and as for the others she thought it better to eliminate other possible problems first. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi , Thanks for all the info. I have already looked into the iodine protocol and will be starting this soon. Have been gluten-free for years anyway (both my sisters are coeliac). Have already started on Erfa too, and I'm just waiting for my serum cortisol to come back before I start HC! I had the saliva test done and it showed very low levels, but the GP wants to do serum cortisol and if that's low she'll send me for SST. So I want to just jump through those hoops before I start HC. Think I will probably try to see Dr P, just to help me get a handle on some of this stuff. I don't think most doctors have a clue about thyroid and related conditions. And even when she was talking about diabetes, saying 'what you eat doesn't matter, it's how much'- that's not true at all! For diabetics it's all about the no-carbing. Amazing that anyone can be so ignorant of current research and so arrogant as to talk as if it's god-given fact. Thanks for all the suggestions, I am slowly finding my way around and learning a bit about all this stuff. It is a lot of information to take in, but I'm getting there! I'm sure you're right that everyone needs to find what works for them. Georgie > > Dear Georgie, > Your TSH is too high. Your T3 should be in the top 25% of the range and the T4 > is abysmal. I had T4 like that once when I stopped taking T4 for 6 months! > Your doctor should have recognised all this. > Hope this is of some use to you, > MacGilchrist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Thanks Miriam I handled it the best I could under the circumstances, I guess. Maybe one day I'll be a bit more fearless! Georgie > > I told her, " yes I am overweight. I have hypothyroidism and PCOS, both of which are well known to make weight loss extremely difficult. If these conditions were properly treated, I would lose weight. It doesn't work the other way round - my problems are not caused by being overweight, my weight gain is a symptom of my health problems. " > > > > She didn't have anything to say to that, just said " well let's wait until we get the results. " > Quote Link to comment Share on other sites More sharing options...
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