Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 My son would be perfect. He is 14 and was diagnosed at the age of 8. It took 3 years before I could even get them to treat him and then it was only with Synthroid until the last 18 months and while he has Hashi's and will forever need to be adjusted, he is back to playing sports and being a normal teenager after introducing T3 meds to his regime. However, sadly, I am on the wrong side of the pond. So sorry. ~Mari~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 The Editor of a very popular National Newspaper (which shall remain nameless for the moment) has at last, promised to publish our story. I have been sending lots of information to a journalist who telephoned me this morning. He has 'MY' story and knows of the frustration that such organisations as the BTA and RCP are causing sufferers of the symptoms of hypothyroidism because of their insistence that doctors should not give a diagnosis of hypothyroidism if their TSH is within their reference range of 0.5 to 10.0, or give any other form of thyroid hormone replacement other than levothyroxine for sufferers of primary hypothyroidism. Unfortunately, doctors are believing that levothyroxine-only is the ONLY medication they are ALLOWED to give for ALL sufferers of the symptoms of hypothyroidism WHATEVER THE CAUSE, and therefore are refusing to treat those who have TYPE 2 HYPOTHYROIDISM, defined as peripheral resistance to thyroid hormones at the cellular level. This is not due to a lack of thyroid hormones secreted by the thyroid gland. Normal amounts of thyroid hormones and TSH are usually detected by blood tests; therefore BLOOD TESTS DO NOT DETECT TYPE 2 HYPOTHYROIDISM. Type 2 is usually inherited. However, environmental toxins may also cause or exacerbate the problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised by mainstream medicine, but already it is in epidemic proportions. Levothyroxine-only does not work for people suffering TYPE 2 Hypothyroidism and they need some form of T3, either synthetic in combination with T4, T3 alone or natural porcine thyroid extract. The Journalist in question is needing good, dramatic stories from some of our younger members who remained ill on levothyroxine only, but who regained their normal health when starting with a T3 containing product. He wants somebody who is photogenic (sorry about this, but apparently this is what attracts the readers and he already has this 'Great-Grandma' representing the older generation afflicted with this disease, and wants to cover the full scope to show that this disease can strike at any age. I have told him how many of my members have been forced into self-treating because their doctors are too afraid to go outside of the BTA, RCP 'guidance' as they will not put their career and livelihood at risk, so instead, dole out antidepressants to get their patients out of their door. I also told him that the ex-President of the BTA (Professor Weetman) had written an article published in 2 online medical journals 'Medscape' and 'Clinical Endocrinology' where he said that those patients treated with levothyroxine, who had normal thyroid function test results, yet who still complained of symptoms, are suffering with a 'functional somatoform disorder' - meaning, it's all in our head. This…from the Dean of Sheffield University and who is over every Head of each of the UK Medical Schools - and that doctors in general, listen to what he says, and will not go against him. So, if you are reasonably young, photogenic, have a horror story to tell about your remaining symptoms when taking T4-only, but regained your optimal health when given some form of T3 and would like to be featured with me in what might prove to be the break-through we have been waiting for, then please get in touch with me. He is telephoning me again tomorrow morning, so this needs to be done urgently. Also, if any of you know of a doctor who remembers what it was like when natural thyroid extract was prescribed before levothyroxine - or you have an endocrinologist who prescribes using either synthetic T3 or natural thyroid extract, and who would be willing to talk to this reporter, please let me know. If you have any photographs of what you looked like before becoming hypothyroid, one when you were on levothyroxine alone (hopefully looking terrible and fat) and one 'after' you started some form of T3 - this would be even better. I would advise that if you are one that is picked, to tell your story in as simple a way as possible, so that the 'man in the street' is able to understand and grasp what exactly what we are having to put up with. This is not easy, as I found this morning. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 SheilaI would love to be able to help but I have never been on T4 only. Sorry:(SueFrom: SheilaT <sheila@...>thyroid treatment Sent: Tue, 10 May, 2011 12:43:23Subject: CASE STUDY - WANTED URGENTLY The Editor of a very popular National Newspaper (which shall remain nameless for the moment) has at last, promised to publish our story. I have been sending lots of information to a journalist who telephoned me this morning. He has 'MY' story and knows of the frustration that such organisations as the BTA and RCP are causing sufferers of the symptoms of hypothyroidism because of their insistence that doctors should not give a diagnosis of hypothyroidism if their TSH is within their reference range of 0.5 to 10.0, or give any other form of thyroid hormone replacement other than levothyroxine for sufferers of primary hypothyroidism. Unfortunately, doctors are believing that levothyroxine-only is the ONLY medication they are ALLOWED to give for ALL sufferers of the symptoms of hypothyroidism WHATEVER THE CAUSE, and therefore are refusing to treat those who have TYPE 2 HYPOTHYROIDISM, defined as peripheral resistance to thyroid hormones at the cellular level. This is not due to a lack of thyroid hormones secreted by the thyroid gland. Normal amounts of thyroid hormones and TSH are usually detected by blood tests; therefore BLOOD TESTS DO NOT DETECT TYPE 2 HYPOTHYROIDISM. Type 2 is usually inherited. However, environmental toxins may also cause or exacerbate the problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised by mainstream medicine, but already it is in epidemic proportions. Levothyroxine-only does not work for people suffering TYPE 2 Hypothyroidism and they need some form of T3, either synthetic in combination with T4, T3 alone or natural porcine thyroid extract. The Journalist in question is needing good, dramatic stories from some of our younger members who remained ill on levothyroxine only, but who regained their normal health when starting with a T3 containing product. He wants somebody who is photogenic (sorry about this, but apparently this is what attracts the readers and he already has this 'Great-Grandma' representing the older generation afflicted with this disease, and wants to cover the full scope to show that this disease can strike at any age. I have told him how many of my members have been forced into self-treating because their doctors are too afraid to go outside of the BTA, RCP 'guidance' as they will not put their career and livelihood at risk, so instead, dole out antidepressants to get their patients out of their door. I also told him that the ex-President of the BTA (Professor Weetman) had written an article published in 2 online medical journals 'Medscape' and 'Clinical Endocrinology' where he said that those patients treated with levothyroxine, who had normal thyroid function test results, yet who still complained of symptoms, are suffering with a 'functional somatoform disorder' - meaning, it's all in our head. This…from the Dean of Sheffield University and who is over every Head of each of the UK Medical Schools - and that doctors in general, listen to what he says, and will not go against him. So, if you are reasonably young, photogenic, have a horror story to tell about your remaining symptoms when taking T4-only, but regained your optimal health when given some form of T3 and would like to be featured with me in what might prove to be the break-through we have been waiting for, then please get in touch with me. He is telephoning me again tomorrow morning, so this needs to be done urgently. Also, if any of you know of a doctor who remembers what it was like when natural thyroid extract was prescribed before levothyroxine - or you have an endocrinologist who prescribes using either synthetic T3 or natural thyroid extract, and who would be willing to talk to this reporter, please let me know. If you have any photographs of what you looked like before becoming hypothyroid, one when you were on levothyroxine alone (hopefully looking terrible and fat) and one 'after' you started some form of T3 - this would be even better. I would advise that if you are one that is picked, to tell your story in as simple a way as possible, so that the 'man in the street' is able to understand and grasp what exactly what we are having to put up with. This is not easy, as I found this morning. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi Sheila,I am not your ideal case study, but would like to wish you good luck and hope that this will generate some interest in our condition, Best wishes, JanetFrom: SheilaT <sheila@...>Subject: CASE STUDY - WANTED URGENTLYthyroid treatment Date: Tuesday, 10 May, 2011, 12:43 The Editor of a very popular National Newspaper (which shall remain nameless for the moment) has at last, promised to publish our story. I have been sending lots of information to a journalist who telephoned me this morning. He has 'MY' story and knows of the frustration that such organisations as the BTA and RCP are causing sufferers of the symptoms of hypothyroidism because of their insistence that doctors should not give a diagnosis of hypothyroidism if their TSH is within their reference range of 0.5 to 10.0, or give any other form of thyroid hormone replacement other than levothyroxine for sufferers of primary hypothyroidism. Unfortunately, doctors are believing that levothyroxine-only is the ONLY medication they are ALLOWED to give for ALL sufferers of the symptoms of hypothyroidism WHATEVER THE CAUSE, and therefore are refusing to treat those who have TYPE 2 HYPOTHYROIDISM, defined as peripheral resistance to thyroid hormones at the cellular level. This is not due to a lack of thyroid hormones secreted by the thyroid gland. Normal amounts of thyroid hormones and TSH are usually detected by blood tests; therefore BLOOD TESTS DO NOT DETECT TYPE 2 HYPOTHYROIDISM. Type 2 is usually inherited. However, environmental toxins may also cause or exacerbate the problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised by mainstream medicine, but already it is in epidemic proportions. Levothyroxine-only does not work for people suffering TYPE 2 Hypothyroidism and they need some form of T3, either synthetic in combination with T4, T3 alone or natural porcine thyroid extract. The Journalist in question is needing good, dramatic stories from some of our younger members who remained ill on levothyroxine only, but who regained their normal health when starting with a T3 containing product. He wants somebody who is photogenic (sorry about this, but apparently this is what attracts the readers and he already has this 'Great-Grandma' representing the older generation afflicted with this disease, and wants to cover the full scope to show that this disease can strike at any age. I have told him how many of my members have been forced into self-treating because their doctors are too afraid to go outside of the BTA, RCP 'guidance' as they will not put their career and livelihood at risk, so instead, dole out antidepressants to get their patients out of their door. I also told him that the ex-President of the BTA (Professor Weetman) had written an article published in 2 online medical journals 'Medscape' and 'Clinical Endocrinology' where he said that those patients treated with levothyroxine, who had normal thyroid function test results, yet who still complained of symptoms, are suffering with a 'functional somatoform disorder' - meaning, it's all in our head. This…from the Dean of Sheffield University and who is over every Head of each of the UK Medical Schools - and that doctors in general, listen to what he says, and will not go against him. So, if you are reasonably young, photogenic, have a horror story to tell about your remaining symptoms when taking T4-only, but regained your optimal health when given some form of T3 and would like to be featured with me in what might prove to be the break-through we have been waiting for, then please get in touch with me. He is telephoning me again tomorrow morning, so this needs to be done urgently. Also, if any of you know of a doctor who remembers what it was like when natural thyroid extract was prescribed before levothyroxine - or you have an endocrinologist who prescribes using either synthetic T3 or natural thyroid extract, and who would be willing to talk to this reporter, please let me know. If you have any photographs of what you looked like before becoming hypothyroid, one when you were on levothyroxine alone (hopefully looking terrible and fat) and one 'after' you started some form of T3 - this would be even better. I would advise that if you are one that is picked, to tell your story in as simple a way as possible, so that the 'man in the street' is able to understand and grasp what exactly what we are having to put up with. This is not easy, as I found this morning. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Sheila i may fit with what you are looking for but im not 100% sure. Im 24 and started becoming ill around the age of 18. Im also not sure if i want my story with published with pictures for the whole world to see lol (but if it helps in the long run then maybe) Can i name and shame a doctor who wasted aroudn 2 years of my life as the TSH and T4 were " normal " and i was " over analysing my smptoms " his words. He would not refer me to an endo because my tsh and T4 were " normal " i had to refer myself, which i was then put on T4 for around 2 months, it made NO difference what so ever, didnt feel toxic either it was as if i was taking nothing lol. The thing is now that im on T3 only im still not fully recovered id say im around 70% but still have quite bad gi problems which did improve on T3 only but have not subsided yet, so it would not be a full recovery story. Also my pictures are probably the opposite of what you asked for, when i was at my illest i became the skinniest and pale and now ive started to look at bit more healthy in my face with colour and my cheeks not so skeleton like. So maybe its not quite what your after, but just thought id see. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 I would be happy to help. I am only 31 (apparently I dont look old enough to have 3 kids!) And I was diagnosed when only 25. My story is still ongoing, but does have some interesting twists...let me know if you want me to expand, or pass my details on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 HI SHEILA First I would like to congratulate you on managing to get a newspaper interested in publishing an article, but make sure they get things correct this time. If there is anything I can do to help let me know. My experiance with T4 has not been good, and when prescibed T3 it was not prescribed as it should have been, hence an upset stomach, which is enough to put anyone off. I could provide a photo after my children were born showing I was not fat and so not hypothyroid. This in turn was before I was ever put on antidepressants or antisychotic drugs. I can provide a photo showing what Pimozide did with all the weight put on despite being on 150mcg T4. I have also had an email arrive from BREAKTHROUGH BREAST CANCER, to say that they have found three more genes next to the oestrogen receptor, but although linked they work seperately. They have also had some luck in treating some breast cancer patients with a diabetes drug "metformin" which cuts of the supply of "ketones and lactate" which these cancer cells thrive on in turn spreading the disease. I am not sure at present which foods have these "ketones and lactate" in , but they are high energy foods, and this seens to be in keeping with what my cancer specialist said that breast cancer is caused by too richer food. I hope also that the publication brings something interesting to the conference in SKIPTON, and have you given the Publisher an invite to it. I HOPE SO. Best Wishes From Kathleen From: SheilaT <sheila@...>thyroid treatment Sent: Tuesday, 10 May, 2011 12:43:23Subject: CASE STUDY - WANTED URGENTLY The Editor of a very popular National Newspaper (which shall remain nameless for the moment) has at last, promised to publish our story. I have been sending lots of information to a journalist who telephoned me this morning. He has 'MY' story and knows of the frustration that such organisations as the BTA and RCP are causing sufferers of the symptoms of hypothyroidism because of their insistence that doctors should not give a diagnosis of hypothyroidism if their TSH is within their reference range of 0.5 to 10.0, or give any other form of thyroid hormone replacement other than levothyroxine for sufferers of primary hypothyroidism. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi Sheila, My story probably isn't the most compelling and in all honesty I'm not even sure what i'm taking but I'm on loads since meeting with Doctor P and he's been amazing!!! For 16months after being diagnosed with Hypothyroidism I had my dosage increased, got told I was normal and sent to an endo who just doubled my dose and suggested I go to a sleep clinic. I was also pointed towards chronic fatigue. For that entire time I like most people in these cases became more withdrawn, or some days simply couldn't go to work or move from the sofa, purely for being too tired. I lost my social life as I would be asleep by 8/8:30pm and sleep for over 12hours and my relationship with my boyfriend deteriorated as I didn't have the energy to do anything. It was soul destroying to not be able to hold a conversation without sounding slurred because I was so tired, having to write down everything because of my memory being so bad and having to explain to people why I couldn't go and see anyone or do anything because if I did I'd fall asleep wherever I went or have to leave early or be too exhausted to get involved, it wasn't the desire that wasn't present it was my energy levels. If I did force myself to go out or do somethingto try and feel normal I paid for it the next week by being worse than before. Not only that but I was going to the doctors every month with an illness, a simple cold or cough would develop to a chest infection. Urine infections, asthma as well as other repeated problems, I've never been to the doctors that much in my life. The doctors ran loads of blood tests even when they had diagonsed me with hypothyroidism but both GP and Endo would do nothing more than increase my dose or sugegst sleep disorders (To someone that sleeps 13hours a day!) or CFC. I went to doctor Peatfield and afetr a few simple tests and a adrenal stress profile test said because of my Thyroid I have depleted adrenal reserves and so my body wasn't absorbing the thyroxine from my levothyroxine. He put me on Nutri Adrenal Extract and Nutri Thyroid for an initial 6weeks to then monitor and repeat as needed, staying in contact with diaries, calls and visits IF necessary. I'm still taking this but tryin gto reduce the adrenal extra a little. Since then - September 2010 I have been to the doctors once, firstly, I don't get ill anymore like I was, my immune system is back up to normal, I have had 1sick day off work since then. I've got most of my energy back and can socialise and be nearer my normal bouncy self. I am finally able to be a normal fiancee for my other half that had to look after me when i didn't have the energy to go to work or do anything other than sleep. I can make it into work now rather and when I'm there I can work without becoming so exhasuted from concentrating that I have to leave early . I've still got a bit of a way to go but i'm getting there because of the help and advice of TPA and Dr P. On an extra note - whilst I haven't informed my GP of all Doctor Peatfields work with me for fear of their reaction (I've seen other TPA members experiences with threats of being struck off), when I showed my GP the results from my adrenal stress profile they said they would keep them on file and there was nothing these would help them do, they only treat overactive adrenals. Since the start I have had to spend money I don't have but I would have spent anything to feel normal again. Like most within the TPA I've had to see a private doctor and self medicate in order to feel like a normal 30year old rather than get help from my GP (I've seen three different doctors at my surgery as well as an endo in total who also didn't believe in T3 treatment). If this is any good Sheila you are welcome to use it, it's far from the most dramatic but it had a massive impact on my life for over a year, and i'm sure i'm one of the more lucky ones. If you no longer need this no problem. Anything I can do to help! If it's ok I've attached a photo for you! love xx 1 of 1 Photo(s) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 When I spoke to the journalist this morning Mari, I did tell him that this was not just a UK problem, it was an International problem regarding the diagnosing and treatment of hypothyroidism, whatever the cause. He might want to use this as an example of how wide this problem is. So I have forwarded your message to him for him to decide. Do you have a photo of your son? Luv - Sheila My son would be perfect. He is 14 and was diagnosed at the age of 8. It took 3 years before I could even get them to treat him and then it was only with Synthroid until the last 18 months and while he has Hashi's and will forever need to be adjusted, he is back to playing sports and being a normal teenager after introducing T3 meds to his regime. However, sadly, I am on the wrong side of the pond. So sorry. ~Mari~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Expand please Suzanne and if possible, send me a photograph too. Luv - Sheila I would be happy to help. I am only 31 (apparently I dont look old enough to have 3 kids!) And I was diagnosed when only 25. My story is still ongoing, but does have some interesting twists...let me know if you want me to expand, or pass my details on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 DRAT! I forgot to mention our TPA conference - could have got some free publicity there. Never mind, I have a pile of stuff he wants me to send him and he is telephoning me in the morning so I will get the message through then. Thanks Kathleen. Luv - sheila I hope also that the publication brings something interesting to the conference in SKIPTON, and have you given the Publisher an invite to it. I HOPE SO. Best Wishes From Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi Steve Your story could also help, but we will leave it to the journalist to see if this helps his 'story' which I personally think it would, but you would have to be prepared to have your picture published. It is stories like this that will help us make a breakthrough, at least, endocrinologists are going to have to sit up and take notice. Send your picture to me privately and I will pass it on to see if this would help. You cannot name and shame a doctor unfortunately. Doctors being named and shamed in such a way could sue you, and I am sure you don't want that. Luv - Sheila Sheila i may fit with what you are looking for but im not 100% sure. Im 24 and started becoming ill around the age of 18. Im also not sure if i want my story with published with pictures for the whole world to see lol (but if it helps in the long run then maybe) Can i name and shame a doctor who wasted aroudn 2 years of my life as the TSH and T4 were " normal " and i was " over analysing my smptoms " his words. He would not refer me to an endo because my tsh and T4 were " normal " i had to refer myself, which i was then put on T4 for around 2 months, it made NO difference what so ever, didnt feel toxic either it was as if i was taking nothing lol. The thing is now that im on T3 only im still not fully recovered id say im around 70% but still have quite bad gi problems which did improve on T3 only but have not subsided yet, so it would not be a full recovery story. Also my pictures are probably the opposite of what you asked for, when i was at my illest i became the skinniest and pale and now ive started to look at bit more healthy in my face with colour and my cheeks not so skeleton like. So maybe its not quite what your after, but just thought id see. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 In your message Sheila you point out that Prof. W has published a couple of articles on line. Perhaps proof positive that doctors are right when they say that some things on the internet are indeed a load of rubbish Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Absolutely Lilian - here it is for everybody to read - and see - he even honours Thyroid Patient Advocacy with a mention - boy, he must be worried http://www.medscape.com/viewarticle/524955 Luv - Sheila In your message Sheila you point out that Prof. W has published a couple of articles on line. Perhaps proof positive that doctors are right when they say that some things on the internet are indeed a load of rubbish Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi Sheila, I am a silent person of the type that has had to endure the T4 only scenario that has led to me being severly morbidly obese leading now to a gastic bypass. I had papiliary/folliculary cancer and only into month 3 of T4 and T3 combined and certainly know the difference,, if I am considered I am quite happy to be with you. Regards Sheila From: SheilaT <sheila@...>thyroid treatment Sent: Tuesday, 10 May, 2011 12:43:23Subject: CASE STUDY - WANTED URGENTLY The Editor of a very popular National Newspaper (which shall remain nameless for the moment) has at last, promised to publish our story. I have been sending lots of information to a journalist who telephoned me this morning. He has 'MY' story and knows of the frustration that such organisations as the BTA and RCP are causing sufferers of the symptoms of hypothyroidism because of their insistence that doctors should not give a diagnosis of hypothyroidism if their TSH is within their reference range of 0.5 to 10.0, or give any other form of thyroid hormone replacement other than levothyroxine for sufferers of primary hypothyroidism. Unfortunately, doctors are believing that levothyroxine-only is the ONLY medication they are ALLOWED to give for ALL sufferers of the symptoms of hypothyroidism WHATEVER THE CAUSE, and therefore are refusing to treat those who have TYPE 2 HYPOTHYROIDISM, defined as peripheral resistance to thyroid hormones at the cellular level. This is not due to a lack of thyroid hormones secreted by the thyroid gland. Normal amounts of thyroid hormones and TSH are usually detected by blood tests; therefore BLOOD TESTS DO NOT DETECT TYPE 2 HYPOTHYROIDISM. Type 2 is usually inherited. However, environmental toxins may also cause or exacerbate the problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised by mainstream medicine, but already it is in epidemic proportions. Levothyroxine-only does not work for people suffering TYPE 2 Hypothyroidism and they need some form of T3, either synthetic in combination with T4, T3 alone or natural porcine thyroid extract. The Journalist in question is needing good, dramatic stories from some of our younger members who remained ill on levothyroxine only, but who regained their normal health when starting with a T3 containing product. He wants somebody who is photogenic (sorry about this, but apparently this is what attracts the readers and he already has this 'Great-Grandma' representing the older generation afflicted with this disease, and wants to cover the full scope to show that this disease can strike at any age. I have told him how many of my members have been forced into self-treating because their doctors are too afraid to go outside of the BTA, RCP 'guidance' as they will not put their career and livelihood at risk, so instead, dole out antidepressants to get their patients out of their door. I also told him that the ex-President of the BTA (Professor Weetman) had written an article published in 2 online medical journals 'Medscape' and 'Clinical Endocrinology' where he said that those patients treated with levothyroxine, who had normal thyroid function test results, yet who still complained of symptoms, are suffering with a 'functional somatoform disorder' - meaning, it's all in our head. This…from the Dean of Sheffield University and who is over every Head of each of the UK Medical Schools - and that doctors in general, listen to what he says, and will not go against him. So, if you are reasonably young, photogenic, have a horror story to tell about your remaining symptoms when taking T4-only, but regained your optimal health when given some form of T3 and would like to be featured with me in what might prove to be the break-through we have been waiting for, then please get in touch with me. He is telephoning me again tomorrow morning, so this needs to be done urgently. Also, if any of you know of a doctor who remembers what it was like when natural thyroid extract was prescribed before levothyroxine - or you have an endocrinologist who prescribes using either synthetic T3 or natural thyroid extract, and who would be willing to talk to this reporter, please let me know. If you have any photographs of what you looked like before becoming hypothyroid, one when you were on levothyroxine alone (hopefully looking terrible and fat) and one 'after' you started some form of T3 - this would be even better. I would advise that if you are one that is picked, to tell your story in as simple a way as possible, so that the 'man in the street' is able to understand and grasp what exactly what we are having to put up with. This is not easy, as I found this morning. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2011 Report Share Posted May 11, 2011 Thanks Sheila, can you let me have a photograph of yourself as a matter of urgency please. I have forwarded your message to the journalist and if he needs to contact you I have asked him to do this direct. Luv - Sheila Hi Sheila, I am a silent person of the type that has had to endure the T4 only scenario that has led to me being severly morbidly obese leading now to a gastic bypass. I had papiliary/folliculary cancer and only into month 3 of T4 and T3 combined and certainly know the difference,, if I am considered I am quite happy to be with you. Regards Sheila ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 Hi Sheila Would it be possible to provide an update? Has everything gone according to plan and should we expect an article on Sunday? I truly hope so - we so need to get our story out! Love Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 the Journalist is talking to Dr Peatfield this morning and then it will be passed to the editor. I have not been given a publication date for the article, but they will let me know when this is to happen. Just pray hard that another VITAL story doesn't come up that they need to publish and is given priority over our article - this has happened before. Luv - Sheila Hi Sheila Would it be possible to provide an update? Has everything gone according to plan and should we expect an article on Sunday? I truly hope so - we so need to get our story out! Love Jacquie Quote Link to comment Share on other sites More sharing options...
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