Re: RAI /surgury for Graves and effect on blood tests

[Guest guest]

Hi Pat I would be very interested if you can locate this research-I'm sure i am

not the only one ! My blood tests post surgery are virtually useless.Perhaps Dr

P knows about it and it can be located that way . Was it put on Medscape and if

so when ? There must be some way of locating it .Its time they did this sort of

research again .Best wishes

[Guest guest]

I haven't time to check it out Pat, but could it be somewhere in

this lot http://www.hotthyroidology.com/downloads/abstractbook.pdf

Oh how i wish i could locate the Swedish research the

Endo in Surrey told me about well over 20 years ago

In which they showed that Graves patients bodies are so

sensitised to such incredibly high levels of thyroid hormone that after RAI

or Surgury the so called " normal parameters on Thyroid tests will no

longer apply

My husband is proof of this since written right across his

notes at Charing Cross Hospital is " treat on symptoms not on blood tests

"

I also think that Thyroid Hormone Resistance

or damage to thyroid hormone receptors plays a part

in the problems so my patients experience post RAI or surgury

Pat

[Guest guest]

Just to add my voice to this. My endo said

only doctors who do not know what they are doing with Graves

/ Thyroid are obsessed with normal blood results. He told me that hyper

patients are used to being run high – at the top or just over normal

range. Any doctor worth their salt will tell you the same. In fact

even my GP told me that he deliberately overdoses some ex hyper patients on

thyroxine as they are happier at the top of or just over normal range.

I hope this helps. I have Graves

too and am currently contemplating my treatment options after a few months of

feeling like I’m losing my mind on CBZ. Emailed my endo today to

say, that’s it, I’m at my limit, we need to do something else as I

can’t carry on like this. Unfortunately, the options are not

looking that tempting either!!

You will probably find references to treating on

symptoms not on bloods on someone like Elaine ’s website or in her

book on Graves. If I get a sec I’ll

have a look for you.

Good luck with everything.

Best wishes

My husband is proof of this since written right

across his notes at Charing

Cross Hospital is " treat on symptoms not on blood tests "

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