RE: Signed off form endo/hosp.

[Guest guest]

Hi Stacey

Considering that your GP has acknowledged that you may know more

about the thyroid than he does, and the NHS endo has wiped you off his books

because your blood tests say that your thyroid gland is secreting sufficient thyroid

hormone, I would ask your GP to refer you to an endocrinologist of your choice

(I will send you the list of recommended doctors privately). I would also take

great pleasure in letting your GP know that you are appalled that he is happy

to " bow to the knowledge of the 'experts' without first checking to find

out where these so called 'experts' got their knowledge in the first place,

because it is an absolute FACT that the RCP and BTA cite no references to the

scientific evidence to back up one single statement in their thyroid guidelines/guidance/statement

on the diagnosing and management of hypothyroidism. Let him know that even

though they have been sent hundreds of references, they refuse to even

acknowledge receipt, never mind amending their often incorrect and misleading statements.

Such doctors are causing their patients great harm - and never once do they

acknowledge that the symptoms their patient is suffering are probably caused

because the thyroid hormone is not being utilised at the cellular level.

I think most of the people with symptoms of hypothyroidism who

are getting their optimal health back are those who have been forced by NHS

doctors into self diagnosing, self treating and self monitoring, and reading

everything they can to help them understand how the metabolic system works. It

is a disgrace. And I would tell him so.

I would also ask for the results (in numbers with the reference

range for each test done) from the endocrinologist - he has no right to tell

your doctor your results were " normal " without giving these figures.

Luv - Sheila

Last week saw GP - one I hadn;t seen before and we went through the letter and

I was keen to let him know that I was self treating with T3.

He agreed to disagree - his words and said that although I may well know more

about the thyroid than he does, he has to bow to the knowledge of the 'experts'

as in the specialists at the hosp. So, no official diagnosis means no exemption

for the thyroxine which means I will have to pay. I have asked for some more

bloods and will be interested to see if my cholesterol has gone down as it was

quite high.

Last year was hard battling to get myself sorted and now that I am in control

of my health and have successfully managed to improve it I am not willing to

put myself through the stress of pursuing it. I hope that one day when this

register of counterexamples is published and maybe more med profs will be

willing to look further than the lab results we will get more listened to.

Until then I am happy to self treat and take care of my own health and just use

the NHS for anything else that may come up at any point.

This is why it is important that we all complete the register as Sheila keeps

reminding us. The more evidence the better.