Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi Chalet, Can I ask you what were your recent blood results? Am I right in thinking you are in the Edinburgh area? If you are interested I can give you details of a private doc I have been seeing in Edinburgh.No referral required.He charges about the same as Dr S for a consultation but obviously all other blood test investigations are extra. I have been very pleased with him so far.He is more holistically minded and not overly keen on prescribing medications but I think he would.He wrote me a script for purified thyroxine even though he had never heard of it.Pity I can't afford the bloody stuff! But,my point is...he's willing to try and help and thats what's important. Just PM me if you're interested. Peary>> So the Doc phones me back this morning. Tells me she spoke to the endo and that he agreed with her - no treatment with current blood tests.> > So she won't refer me elsewhere as she doesn't think I need treatment. And she said she had mentioned my horrendous cold feelings and BBT and that it was with "normal" range. I felt particularly aggrevied at that having sat since 8:30 this morning until about 11:30am shivering in the office wearing my outdoor coat. I am only NOW warm enough to take it off.> > So what does she think i'm supposed to do? Just SUFFER it? > > So what next? I can't get a referral from her so that rules out Skinner and the Falkirk Endo.> > Peatfield is the only one that doesn't need a referral - am I right?> > Sickening that one person can have such a huge influence on your quality of life. They should be ashamed of themselves. No word of an idea how to help my symptoms!!> > :-(> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi peary it might be the only option. either way i will have to pay. if it turns out i am diagnosed by a private doc - can i sue the NHS for negligence to cover the cost of my private care? anyway - i had the same tests done within a month (why i don't know) March - TSH 1.5 April - TSH 2.1 2008 - Freet4 - 10 March - Freet4 - 11 April - Freet4 - 12 the lab wouldn't do Freet3 Had a raft of the pituitary hormones done too - all came out in " range " The other option is as mentioned - although I would like to at least talk to a doc who understands. Her route would involve treating adrenals first as my BBT is all over the shop and looks like a seismograph. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Dear Twisted While this is poor consolation, you are hardly alone. Apparently, with your symptoms and blood work, you may well have euthyroid (your thyroid is OK) hypometabolism (you are cold, lethargic, etc.). Endocrinology has ignored euthyroid hypometabolism because it is quite short sighted and can not see beyond the boarders of the classic endocrine system, which in this case, stops just after the thyroid gland. In fact, there is a 1960 paper by Dr. Marshall Goldberg on euthyroid hypometabolism, which allegedly affects 6% of the population. It is treated with T3. His 1961 paper describes the diagnostic measures. My mother-in-law has euthyroid hypometabolism so severely that she was planning her own funeral about 40 years ago. However, instead of going into a myxedema coma, she merely fainted and broke her leg in the fall. She was so weak from the lack of T3 that she could not lift her cast and could not be released from the hospital. An internist of the old school saw her and recognized her problem by sight. He actually used her as a demonstration to the interns as an example of what features to look for. In a mere 10 days on T3 she was able to lift her cast and was discharged. My wife describes her, now in her 80's, as the energizer bunny... My wife has some combination of hypothyroidism and hypometabolism. The T4 that she was prescribed was simply quite inadequate. However, by a " mistake " by each of two endocrinologists produced a prescription for an adequate amount of T3 to give her life back to her. Somewhere on the TPA website is a schematic of the Greater Thyroid System. It is divided into two parts, that which is inside of the classical endocrine system and that which is not. The part outside of the endocrine system is more complicated but is routinely not tested per recommendations by endocrinology, the American Association of Clinical Endocrinology, the American Thyroid Association, the British Thyroid Association, and the Royal College of Physicians. I find it quite incredible that so many, so highly trained people would ignore what is plainly written in medical science. In this niche of medicine, we are wading in a sea of negligence. The most profound evidence of this negligence is the experiences of patient counterexamples like my wife and her mother and the approximate thousand who have registered with TPA. I find it quite incredible that medicine holds its observational studies in such high regard when such studies are inherently subject to counterexamples. But medicine discounts counterexamples as mere anecdotes. However, counterexamples are special anecdotes. They fit the premise of endocrinology's hypothyroidism conjecture, but disagree with its conclusion. Sir Karl Popper, who was knighted by Her Majesty, found that science is not so well proven by confirming studies as by the lack of counterexamples. Logically, only one counterexample is necessary to disprove a conjecture. Undoubtedly, there are thousands. But there are millions who would like to be counterexamples. Thus, endocrinology's paradigm on the symptoms of hypothyroidism is NOT reliable. So long as people see this problem as individual patients seeing the incompetence of individual physicians, nothing will get done. However, those physicians are kept in the dark by a medical education system that ignores the part of the Greater Thyroid System that is outside of the boundaries of the classic endocrine system. This is negligence on a massive scale. Millions are systematically abused when they do not need to be. The physiology is known. The therapies are available, safe, effective, and indicated. There is no valid excuse for your suffering and the suffering of millions. This condition continues because individual physicians are generally too afraid of their board of medicine or medical council to properly care for their patients even if they know the science. This condition continues because the masters of medicine don't care. This condition continues because our governments don't care or can't care. This condition continues because we, the people, have given up our medical sovereignty to the medical profession and their human frailties. This condition continues because we have not united sufficiently to combat these human frailties that forbid the mitigation of our chronic symptoms. Have a better day, > > So the Doc phones me back this morning. Tells me she spoke to the endo and that he agreed with her - no treatment with current blood tests. > > So she won't refer me elsewhere as she doesn't think I need treatment. And she said she had mentioned my horrendous cold feelings and BBT and that it was with " normal " range. I felt particularly aggrevied at that having sat since 8:30 this morning until about 11:30am shivering in the office wearing my outdoor coat. I am only NOW warm enough to take it off. > > So what does she think i'm supposed to do? Just SUFFER it? > > So what next? I can't get a referral from her so that rules out Skinner and the Falkirk Endo. > > Peatfield is the only one that doesn't need a referral - am I right? > > Sickening that one person can have such a huge influence on your quality of life. They should be ashamed of themselves. No word of an idea how to help my symptoms!! > > :-( > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Your test results are very unlikely to change within a month. Insist that you have free T3 done and tests to check whether or not you have thyroid antibodies. These are TPO and TgAb. A good point about whether or not we can claim from the NHS who have refused to give us a proper diagnosis and left us without treatment so we have had to go privately to see specialists in thyroid disease and got a diagnosis, only been left with having to pay private prescription charges every month for the rest of our lives. If you did manage to get an official diagnosis and prescriptions privately, it might be something you could discuss with a solicitor. You do get half an hours free advice from the solicitor at your local Citizens Advice Bureau. I would add in any letter that you write to your doctor that the blood tests ONLY test the level of thyroid hormone secreted by the thyroid GLAND. The blood tests DO NOT show whether you have peripheral resistance to thyroid hormones in the cells (Type 2 hypothyroidism or euthyroid hypometabolism). This is not due to a lack of thyroid hormones. Environmental toxins may cause or exacerbate this problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised by mainstream medicine but already is in epidemic proportions. Fight your corner and don't let them get away with dismissing you so easily. Luv - Sheila it might be the only option. either way i will have to pay. if it turns out i am diagnosed by a private doc - can i sue the NHS for negligence to cover the cost of my private care? anyway - i had the same tests done within a month (why i don't know) March - TSH 1.5 April - TSH 2.1 2008 - Freet4 - 10 March - Freet4 - 11 April - Freet4 - 12 the lab wouldn't do Freet3 Had a raft of the pituitary hormones done too - all came out in " range " The other option is as mentioned - although I would like to at least talk to a doc who understands. Her route would involve treating adrenals first as my BBT is all over the shop and looks like a seismograph. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 You need to write to the GP and say that as both she and the endocrinologists have agreed that you do not have a problem with your thyroid, you are no longer prepared to sit back and suffer when you know there is something going on that needs further investigation and therefore, would she now arrange further investigations into the cause of your present symptoms and your very low temperature. Suggest that she refers you to the different specialities for the different symptoms you have. It is well known fact that doctors should NOT try to diagnose through the results of blood tests alone. Your story needs to be listened to, your blood needs to be checked to see whether you have antibodies to your thyroid. You need to let her know whether there are any members of your family with a thyroid or autoimmune disease. You need a thorough clinical investigation by somebody specialising in thyroid disease. Check out the message I have just posted, and I see that has posted exceptional information regarding the possibility of further investigations as you may be suffering with peripheral resistance to thyroid hormone that is unable to get into the cells. Luv - Sheila So the Doc phones me back this morning. Tells me she spoke to the endo and that he agreed with her - no treatment with current blood tests. So she won't refer me elsewhere as she doesn't think I need treatment. And she said she had mentioned my horrendous cold feelings and BBT and that it was with " normal " range. I felt particularly aggrevied at that having sat since 8:30 this morning until about 11:30am shivering in the office wearing my outdoor coat. I am only NOW warm enough to take it off. So what does she think i'm supposed to do? Just SUFFER it? So what next? I can't get a referral from her so that rules out Skinner and the Falkirk Endo. Peatfield is the only one that doesn't need a referral - am I right? Sickening that one person can have such a huge influence on your quality of life. They should be ashamed of themselves. No word of an idea how to help my symptoms!! :-( Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi Sheila The Labs WILL NOT test for ft3 despite being asked for my both the doctors that took those March and April tests. I have asked THREE GP's in the last two months for freet3 - First one asked for it - they gave back total, 2nd one refused to order it and 3rd one asked for it clearly on the slip but they did total AGAIN. I don't know what else to do that isn't going to cost me hundreds of pounds. There was a lady on here that said you could " loosley " tell from the Total t3 whether the ft3 was out of whack. Although let's not even get started on Reverse t3. GP referred to it (ft3) being done by a " secondary care provider " which I think she meant the " endos " I need to work out what to do next and what I can afford. I am pretty sure my adrenals need some kind of support so my next step will be to get the NAX. Then start saving to either; See a private doc - possibly the " holistic " one indicated in pearypeary's post See peatfield or get the tests done myself and medicate with levo or NDT depending on the results of the blood tests and how my small amounts of ft4 is converting! Of course will take more guidance on it from you lovely people and will look at this new thing that has been mentioned of the metabolism. However - the pituitary angle still hasn't been ruled out yet and I do have a lot of the other classic hypo symptoms...so that's why I would like to consult with someone who knows what the heck they are talking about! ( i mean a doctor like....) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Ps - sorry was in a last post of mine from the other day - antibodies done and ruled out - results were 16 (0-50) and I hear from another forum that is a good result. I will send a letter but she doesn't think there is anything wrong with my thyroid, hence thereforth will not refer me to a thyroid specialist. I cannot spend my time going back and forward to go through all the stupid tests for chronic fatigue, sleep apnea and other rubbish when she hasn't even bothered to thoroughly investigate the obvious thyroid connection. She is just being stubborn and following the exact guidelines because she is unwilling to take a risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Attached for everybody to print off and take to your doctor is 's table of 'The Greater Thyroid System'. THIS IS MOST IMPORTANT AND YOU MUST MAKE YOUR DOCTOR/ENDOCRINOLOGISTS AWARE OF THIS, BECAUSE AT THIS POINT IN TIME, THEY ARE NOT. Show your doctors that they are not doing all the testing they should be as we need to know whether or not the thyroid hormone being produced by the thyroid gland or the thyroid hormone replacement we are taking is being fully utilised at the cellular level, and for a lot of us, it is not. Luv - Sheila Somewhere on the TPA website is a schematic of the Greater Thyroid System. It is divided into two parts, that which is inside of the classical endocrine system and that which is not. The part outside of the endocrine system is more complicated but is routinely not tested per recommendations by endocrinology, the American Association of Clinical Endocrinology, the American Thyroid Association, the British Thyroid Association, and the Royal College of Physicians. I find it quite incredible that so many, so highly trained people would ignore what is plainly written in medical science. In this niche of medicine, we are wading in a sea of negligence. The most profound evidence of this negligence is the experiences of patient counterexamples like my wife and her mother and the approximate thousand who have registered with TPA. ,_._,___ 1 of 1 File(s) The Greater Thyroid System.doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi Chalet, if it turns out i am diagnosed by a private doc - can i sue the NHS for negligence to cover thecost of my private care?You could try and get some advice, but frankly, in my opinion that will be a pointless and energy zapping exercise. What it would come down to is medical opinion.... and your GP has the RCP and BTA behind her, confirming that for as long as the TSH is in the ref range, there is no need for a diagnosis of hypothyroidism L - You would not win that argument. March - TSH 1.5April - TSH 2.12008 - Freet4 - 10March - Freet4 - 11April - Freet4 - 12 If you look at the above figures – to me it looks like hypothyroidism, but a hardened NHS doctor would argue that with non-thyroidal illnesses (NTI) the TSH stays within the norm range, and the FT4 might have gotten low because of some other underlying factor – therefore whatever it is that's bugging you, it ain't low thyroid L - to which I would say.... if it looks like a duck, walks like a duck, quacks like a duck – chances are that is IS a duck .... but my opinion does not count here. Had a raft of the pituitary hormones done too - all came out in "range" Well, that's good – but it still does not mean you are not hypothyroid. (have you asked for copies of those results, btw – including ref ranges !!!) – I read that your autoantibody count was negative – but even that does not hold water.... your count was low, but that could have any number of reasons.... on another occasion your count may be positive. After all, blood tests are just a snap shot in time !The other option is as mentioned - although I would like to at leasttalk to a doc who understands. Her route would involve treating adrenals firstas my BBT is all over the shop and looks like a seismograph. If your adrenals are "shot", then you will have to strengthen them anyway before you do anything else. It is likely that no doctor in the UK - other than Dr. Peatfield – will tell you to do this, but just put your blind trust in Dr. P. – he is right..... before treating the thyroid, look at the adrenal function and support it. As for your BBT – there are only 4 conditions other than Hypothyroidism that will give you persistent subnormal body temps – Hypothermia, Alcoholism, Liver disease or Anorexia .... if you haven't got any of those, you suffer from low thyroid. I do understand that you would like to at least speak to a doctor before resulting to self treatment, but perhaps Dr. Peatfield's comments will help to put your mind at rest ? http://www.tpa-uk.org.uk/self_medication.php What he is saying here is no different from what he would tell you face to face. Botton line – it is not `dangerous' to put yourself on a 6 week trial of thyroid hormone of your choice and although you are the one who'd have to actually `do it'- you are not alone....we are all here to help you through it. If you were not hypothyroid, you would soon know, because you would become hyper. If you have read Dr. P's book and have digested what he is saying, you will be equipped to give yourself a trial run, but if you still need more encouragement, a 24 hour urinary thyroid screen with Genova would give you certainty. It is the most reliable thyroid test there is – even if the NHS does not "approve" it. With best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Why not get a free t3 from lab 21 for £17.50? plus the cost of getting the blood drawn - usually £15 from a private clinic... unless you wait for a diy accident, or you know a friendly nurse http://www.lab21.com/ClinicLab/Services/HealthcareProfessionals/CLINICALBIOCHEMI\ STRY/Thyroid.aspx amanda x > > Hi Sheila > > The Labs WILL NOT test for ft3 despite being asked for my both the doctors that took those March and April tests. I have asked THREE GP's in the last two months for freet3 - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Well, if you leave all of this in the hands of your present GP and endoprat, you are not going to move forward. I would get my  Total T3 tested through Lab21 (£17) - at least it would put your mind at rest one way or another http://www.lab21.com/ClinicLab/Services/HealthcareProfessionals/CLINICALBIOCHEMISTRY/Thyroid.aspx You could forget about your own GP and find a private GP to give you a referral. Just type 'private GP' and the area where you live and you should get a list of them. It would be a one-off visit. And you wouldn't go far wrong by seeing Dr Peatfield. He is the best. Luv - Sheila So what does she think i'm supposed to do? Just SUFFER it? So what next? I can't get a referral from her so that rules out Skinner and the Falkirk Endo. Peatfield is the only one that doesn't need a referral - am I right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Just because antibodies were ruled out at one test does not necessarily mean you don't have them. Antibodies see the thyroid gland as public enemy number one and set about its gradual destruction - but they are not active all the time. The antibodies will show if you have your blood drawn when they are attacking, but will not necessarily show when they are not active. When people go to get their blood drawn for an antibody test and they have been given plenty of notice, they should eat lots and lots of gluten for at least 2 weeks before the test as antibodies thrive on gluten. Don't assume that because this test showed you didn't have antibodies, that you might not test positive on another day. As your doctor appears to be an absolute idiot - there are other doctors out there who are really excellent and care about their patients. Luv - Sheila Ps - sorry was in a last post of mine from the other day - antibodies done and ruled out - results were 16 (0-50) and I hear from another forum that is a good result. I will send a letter but she doesn't think there is anything wrong with my thyroid, hence thereforth will not refer me to a thyroid specialist. I cannot spend my time going back and forward to go through all the stupid tests for chronic fatigue, sleep apnea and other rubbish when she hasn't even bothered to thoroughly investigate the obvious thyroid connection. She is just being stubborn and following the exact guidelines because she is unwilling to take a risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 " antibodies thrive on gluten " Yes but sadly I don't. I'd be doubled over in pain most days eating that stuff. I don't eat any wheat or gluten currently and haven't done for several years. " Don't assume that because this test showed you didn't have antibodies, that you might not test positive on another day " okay so how do I know when to get it checked? And even if it was positive, don't they still have the " high TSH low ft4 " mindset? I mean convicing this woman that I have to be tested again is going to be pretty difficult. she's made up her mind that I am not having thyroid problems and to antagonise her again by questioning her and providing all this evidence will not get me anywhere... I think I'm going to get the Adrenal support product next week when I get paid. Then I will get the ft3, rt3 done end of June, see how we are doing regarding which hormones are missing, do a trial of something (depending on results) and then start saving up for a consultation - either with Peary's edinburgh holistic doc or Peatfield in October-ish time? (perhaps you can advise me of 2011's dates Sheila?) That's my best option really. hateful doctors. I don't see how they think they are helping people by not actually thoroughly investigating each possible cause. If she did all the tests, everything came back at the correct and OPTIMUM levels - I would concede that it's not perhaps that....however she has given up at the first hurdle as it doesn't match her rigid and archiac views. thanks ya'll Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 " Don't assume that because this test showed you didn't have antibodies, that you might not test positive on another day " okay so how do I know when to get it checked? Read the following, this should help. http://www.wrongdiagnosis.com/h/hashimotos_thyroiditis/symptoms.htm. If you have any members of your family with an autoimmune disorder and your symptoms are getting worse, ask for further thyroid function testing to include TPO and TgAb. And even if it was positive, don't they still have the " high TSH low ft4 " mindset? High TSH and low fT4 could indeed indicate hypothyroidism, but blood tests do not detect whether the T4 is converting to the active hormone T3 or whether this is being fully utilised at the cellular level. I mean convicing this woman that I have to be tested again is going to be pretty difficult. she's made up her mind that I am not having thyroid problems and to antagonise her again by questioning her and providing all this evidence will not get me anywhere... Does it matter whether you convince this women or not? If she has made up her mind she has made up her mind and from what you say, she will not be moved - so why are you even calling her your GP. Get out of there and find somebody who cares. Why are you worrying about antagonising her by your asking questions? If she chooses to get upset - that's her choice. This is YOUR health and you really shouldn't be worrying about upsetting her - you should be worrying about NOT getting your health back under her lack of care or treatment. Boo Sucks to her! Get writing that letter and show her you are not prepared to put up with her lack of education in the greater thyroid system. I think I'm going to get the Adrenal support product next week when I get paid. Then I will get the ft3, rt3 done end of June, see how we are doing regarding which hormones are missing, do a trial of something (depending on results) and then start saving up for a consultation - either with Peary's edinburgh holistic doc or Peatfield in October-ish time? (perhaps you can advise me of 2011's dates Sheila?) You can find all his clinic dates on our web site www.tpa-uk.org.uk - On the Home Page, check the right hand column under TPA News and you will see 'Dr Peatfield's Clinic Updates' - open that and you will see where he is in October. That's my best option really. hateful doctors. I don't see how they think they are helping people by not actually thoroughly investigating each possible cause. If she did all the tests, everything came back at the correct and OPTIMUM levels - I would concede that it's not perhaps that....however she has given up at the first hurdle as it doesn't match her rigid and archiac views. What you need to remember at all times is that if a doctor says your thyroid function tests show that you don't have a problem with your thyroid, yet you still suffer symptoms, then ask her to do whatever investigations are necessary to find the CAUSE of your symptoms. Call her bluff! Sheila thanks ya'll Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 " or whether this is being fully utilised at the cellular level " Oh right - er..what does? I know you get the reverse t3 for conversion but how do you tell if it's getting into your cells? http://www.wrongdiagnosis.com/h/hashimotos_thyroiditis/symptoms.htm. I'm a bit confused by this website though - it just seems to be a series of more links to other sites...I can't make head nor tail of it... Get out of there and find somebody who cares. Yes i'd love to. This is the 3rd GP in two months. I managed to explain this one by saying i'd moved house into the area. I've only just moved to them in the last month. then ask her to do whatever investigations are necessary to find the CAUSE of your symptoms. Call her bluff! ly, Sheila - I don't have the time to be going backwards and forwards for her to indulge in various unnessesary tests and potentially unrequired drugs when I could be getting on with treatment and getting better. I need to keep my employer on side as it's bad enough me falling asleep in the office a couple of times a day.... She's made her decision - that's fine - moving on - I need to focus on getting me better... :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 please excuse me butting in, Sheila, why total T3 and not FT3? I know theres a reason and its bound to be important. thanks Carole > > Well, if you leave all of this in the hands of your present GP and endoprat, > you are not going to move forward. I would get my Total T3 tested through > Lab21 (£17) - at least it would put your mind at rest one way or another > http://www.lab21.com/ClinicLab/Services/HealthcareProfessionals/CLINICALBIOC > HEMISTRY/Thyroid.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 I'm sure Sheila meant FT3. I've had total done anyway - I was told it was a useless test - however there was a girl on here with Graves that commented that FT3 figure wasn't too far off the Total t3 figure - although not sure how you would work it out. My Total t3 was 1.6/1.8. If you are reading -girl with Graves! ( i think?) I'm just wondering how you work out if your cells are taking up the ft3? (and possibly the other freet's? that we know little about) Is there a test for that? Something is certainly wrong anyway - just want to be better! I have a plan in place now so it's just working on what I can afford and when. thanksx. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 " or whether this is being fully utilised at the cellular level " Oh right - er..what does? I know you get the reverse t3 for conversion but how do you tell if it's getting into your cells? Thyroxine (T4) is mainly INACTIVE. It is the main hormone the thyroid gland secretes. The thyroid gland also secretes a tiny amount of T3 but not sufficient to keep the engine working. T4 is of little use to the body until it has converted to the ACTIVE thyroid hormone Triiodothyronine (T3). T3 is the hormone needed to make every cell in your body and brain function - NOT T4. Conversion takes place through the liver, kidneys, brain, skin and other thyroid hormone receptors throughout the body, but for a large minority of us, for many and varied reasons, we are unable to convert. This means the thyroxine builds up in our blood causing symptoms of toxicity. So many of us need some form of T3, either synthetic or through taking natural thyroid extract. http://www.wrongdiagnosis.com/h/hashimotos_thyroiditis/symptoms.htm. I'm a bit confused by this website though - it just seems to be a series of more links to other sites...I can't make head nor tail of it...If one web site causes you confusion, then go and look at others that might not. Just type in Hashimoto's into Google or whatever search engine you use http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htm ly, Sheila - I don't have the time to be going backwards and forwards for her to indulge in various unnessesary tests and potentially unrequired drugs when I could be getting on with treatment and getting better. I need to keep my employer on side as it's bad enough me falling asleep in the office a couple of times a day.... I agree, you should not be wasting either your GP's time or your time in getting unnecessary testing or unrequired drugs, but the tests we are recommending you get done by your GP ARE quite necessary and if you are going to start to look after your thyroid health yourself, you will need to know first, whether your levels of ferritin, vitamin B12, vitamin D3, magnesium, folate, copper or zinc are low in the reference range. You cannot guess at these. If any are low, you must supplement with what's low before thyroid hormone can work at the cellular level. This is one of the reasons thousands in the UK remain ill on thyroxine only therapy. As stated previously, if your GP refuses these tests or says there is no association between these minerals/vitamins being low and low thyroid, then give her the attached document to show the science that shows there is. She's made her decision - that's fine - moving on - I need to focus on getting me better... That's the right attitude, but make sure you know exactly what you are doing, and if unsure, shout and somebody will be along to help you. Luv - Sheila __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Hi Carole Yes, I meant TOTAL T3. If you have already had your FREE T3 tested, you can use both TOTAL and FREE T3 to see whether you have a possible Reverse T3 problem. This works out cheaper than getting the Reverse T3 test through Genova Diagnostics. In this case, the Free T3 has already been tested. is the person who is a dab hand at interpreting such results. Luv - Sheila please excuse me butting in, Sheila, why total T3 and not FT3? I know theres a reason and its bound to be important. > > Well, if you leave all of this in the hands of your present GP and endoprat, > you are not going to move forward. I would get my Total T3 tested through > Lab21 (£17) - at least it would put your mind at rest one way or another > http://www.lab21.com/ClinicLab/Services/HealthcareProfessionals/CLINICALBIOC > HEMISTRY/Thyroid.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Thanks for explaining Sheila, see the point now, Carole x " Sheila " <sheila@...> wrote: > > Hi Carole > > Yes, I meant TOTAL T3. If you have already had your FREE T3 tested, you can > use both TOTAL and FREE T3 to see whether you have a possible Reverse T3 > problem. This works out cheaper than getting the Reverse T3 test through > Genova Diagnostics. In this case, the Free T3 has already been tested. > > is the person who is a dab hand at interpreting such results. > > Luv - Sheila > > Quote Link to comment Share on other sites More sharing options...
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