Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 I'm running the Levothyroxine down in my system for 10 days (I'm on day 8 today) & then I'm going to take Nutri's Adrenal Extra for one week before re-introducing Levothyroxine. I decided to try this approach as I'm concerned I may have become T4 toxic. I've felt better without the Levothyroxine. I am still feeling unwell, very tired etc, etc, but I can get out of bed now & am sleeping better, hurrah! The only odd thing that has happened is I'm getting a bad pressure pain in the glands either side of my neck ((just under the ears) & this is worsened when I lean over...not sure if anyone thinks this could be a withdrawal effect from Levothyroxine or perhaps completely unrelated?! Have you been tested to see whether or not you have antibodies to your thyroid? If not, ask for these tests. Does your lump appear to be a large thyroid gland or does this mean nodules on your thyroid gland? When I re-introduce the Levothyroxine, Dr. P mentions start off with half your original dose. Thing is, I take 75 Levothyroxine & it only comes in 50 & 25 tablets so not sure if I should take 50 or 25 to start with? I would take the 50mcgs dose When is it worth getting my TSH, free T4 & free T3 tested after re-introducing Levothyroxine? A month down the line? This would work well if this is the case as I have a test booked in for that time along with a Synacthen test. It takes up to 6 weeks for thyroxine to be fully utilised in the body, so best to wait for this long before getting tested again. Won't your GP do the TSH, free T4, free T3 blood test for you? I read on another note to a member that you need to run down the NAX in your system two weeks before a Synacthen test or it will influence the test. I'm not keen on doing this as I'm worried it will interrupt my recovery rate....The only reason I am having the Synacthen test is because I hadn't had my Adrenal 24hour Saliva test results before this was booked & they refuse to 'just do the bloods' for me on their own at the hospital. Presumably though.....if I feel better after taken NAX I can keeping taking NAX in the knowledge that I know it will affect the Synacthen test but don't really mind if I am feeling better anyway....? My results for the Adrenal saliva test doesn't look as bad as it does for some people on this forum (see below) so perhaps this is an option for me? The NHS will ONLY test your adrenals to see whether you are suffering with 's disease (too little or no cortisol secretion) or Cushing's Syndrome (too high a level of cortisol secretion). Taking NAX 2 weeks prior to your synacthen test would only skew the results, so again. Certainly your Cortisol levels are not good, but taking the right supplements may help boost your adrenals. Are you increasing your NAE by one tablet every 10 days to 2 weeks or so? You can take up to 6 NAX daily if necessary, but if you still have symptoms after taking this much, it is usually an indication you need a short course of hydrocortisone. Take also high doses of vitamin C (4/5000mgs daily) to help with absorption, Siberian Ginseng and Liquorice Tincture. Sorry to be in such a tizz but I'm terrified of becoming very ill again. I'm also wondering when it might be optimum to see Dr. S re whether he thinks I should be on T4 only anyway? i.e. how long should I self treat the adrenals before I get Dr. S to look at my hypothyroid treatment? I'm already booked into see Dr. P at the end of May for the holistic picture. My adrenal saliva test results are below, thanks again for any advice received, it really is very much appreciated! I doubt Dr S could help any more than Dr P and Dr S certainly won't help re adrenals. As you are seeing Dr P at the end of May, I would recommend that you be guided by him. He will recommend thyroid hormone replacement and set you out a plan to treat your hypothyroidism and any other associated conditions. Being under the care of too many doctors is what will cause you confusion Kerry. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 I'll say you're in a tizz, Seeing 3 doctors, taking NAX then stopping it for a synathcen test when you are making cortisol ok, though in the wrong amounts at the wrong times...... Did you miss breakfast on the day of the saliva test? So you're stopping t4, starting NAX, stopping NAX taking a test, then seeing a couple of different doctors...... NO!... STOP! NOW!!!! You need to slow down, think out a path and stick to it. You say you think you are suffering fropm T4 toxicosis, this happens when you have too much unused T4 and are not making enough reverse t3 to get rid of the t4. So why do you think you have unused T4 and why do you think you are not making enought reverse t3 to get rid of the t4? What signs and syptoms do you have which tell you you have T4 toxicosis? What were your last blood test result? Do you know your free T3 result? This will tell you whether you are converting the T4. If you have a synathcen test booked for a couple of weeks time, why are you going to skew the reult by taking NAX? Better to not start it until after the test. Or start it and cancel the test. But make a decision either way. The NAX will probably sort out the adrenals, but it takes a while, there are no fast results. In the mean time, find out whether you are converting the t4 and if not, then consider t3. If you are converting the t4 then consider cellular uptake. It's really not rocket science and if it was we could do that It's a big and confusing crossword and you have to take your time and think through each bit. How are your B12, Folate, Iron Saturation, D3? Are you taking plenty of Vitamin C to help those adrenals? Are you sleeping in a very dark room? And getting to bed early? Running thyroxine down for a week isn't going to make a very big difference. It's a storage hormone and is designed to stay in the blood for a couple of months. The pain you mention could even be due to you clenching your jaw at night through anxiety.... This certainly happens to me and I have to wear a mouth guard to spread the pressure, otherwise I end up with dental absesses. I can tell when I've been doing it because I wake up with neck ache and a pain in my temples. I know this probably isn't what you want to hear, but just rushing in, stopping meds, starting meds, taking tests, seeing docs - never going to work..... and it'll cost you a fortune. x > > I'm starting to really confuse myself!!!.....I hope someone can help calm me down & point me in the right direction! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 Hi Sheila, The only odd thing that has happened is I'm getting a bad pressure pain in the glands either side of my neck ((just under the ears) & this is worsened when I lean over...not sure if anyone thinks this could be a withdrawal effect from Levothyroxine or perhaps completely unrelated?! Have you been tested to see whether or not you have antibodies to your thyroid? If not, ask for these tests. Does your lump appear to be a large thyroid gland or does this mean nodules on your thyroid gland? The pain either side of my neck seems to have decreased over the past two days so I'm not as worried about it as I was. I Don't know if I've been tested for antibodies to my thyroid?!....here are my test results: (Sorry there are no reference ranges, I now have these from my GP but haven't had time to add them in. Let me know if you need any in particular to answer the antibodies question) 16/09//2010 - Serum TSH level = 0.06mu/ L Low16/09/2010 - Serum free T4 level = 20.9 pmol/L 28/09/2010 - Eosinophill count = 0.18 10*9/L28/09/2010 - Haemoglobin estimation = 12.2 g/dl28/09/2010 - Mean corpusc. haemoglobin (MCH) = 29.7 pg 28/09/2010 - Mean corpusc. Hb. conc. (MCHC) = 33 g/dl28/09/2010 - Mean corpuscular volume (MCV) = 90 fL28/09/2010 - Monocyte count = 0.39 10*9/L28/09/2010 - Neutrophil count = 4.06 10*9/L28/09/2010 - Platelet count = 227 10*9/L 28/09/2010 - Red blood cell (RBC) count = 4.11 10*12/L28/09/2010 - Total white cell count = 6.06 10*9/L28/09/2010 - Lymphocyte count = 1.4 10*9/L28/09/2010 - Erythrocyte sedimentation rate = 2 mm/h28/09/2010 - Haematocrit = 0.37 28/09/2010 - Basophil count = 0.03 10*9/L28/09/2010 - Serum vitamin B12 = 342 ng/L28/09/2010 - Serum folate = 12.3 ug/L28/09/2010 - Serum albumin = 47 g/L28/09/2010 - Serum alkaline phosphatase = 74 iu/L 28/09/2010 - ALT/SGPT serum level = 17 iu/L28/09/2010 - Serum bilirubin level = 6 umol/L28/09/2010 - Serum calcium = 2.3 mmol/L28/09/2010 - Corrected serum calcium level = 2.15 mmol/L28/09/2010 - Serum creatinine = 55 umol/L 28/09/2010 - Serum ferritin = 27 ug/L28/09/2010 - Serum FSH level = 3 u/L28/09/2010 - Serum LH level = 2.8 u/L28/09/2010 - Serum oestradiol level = 200 pmol/L28/09/2010 - Serum inorganic phosphate = 1.04 mmol/L 28/09/2010 - Serum potassium = 4.2 mmol/L28/09/2010 - Serum sodium = 140 mmol/L28/09/2010 - Serum testosterone = 0.5 nmol/L28/09/2010 - Serum total protein = 71 g/L28/09/2010 - Serum TSH level = 0.13 mu/L low 28/09/2010 - Serum urea level = n2.4 mmol/L28/09/2010 - Serum globulin = 24 g/L28/09/2010 - Serum free T4 level = 20.7 pmol/L10/12/2010 - Serum TSH level = 0.35 mu/L25/02/2011 - Eosinophil count = 0.18 10*9/L 25/02/2011 - Haemoglobin estimation = 12.3 g/dL25/02/2011 - Mean corpusc. haemoglobin(MCH) = 30.3 pg25/02/2011 - Mean corpusc. Hb. conc. (MCHC) = 33.2 g/dL25/02/2011 - Mean corpuscular volume (MCV) = 91.4 fL 25/02/2011 - Monocyte count = 0.57 10*9/L25/02/2011 - Neutrophil count = 5.67 10*9/L25/02/2011 - Platelet count = 263 10*9/L25/02/2011 - Red blood cell (RBC) count = 4.06 10*12/L25/02/2011 - Total whie cell count = 8.29 10*9/L 25/02/2011 - Lymphocyte count = 1.85 10*9/L25/02/2011 - Haematocrit = 0.37125/02/2011 - Basophil count = 0.02 10*9/L25/02/2011 - Serum albumin = 46 g/L25/02/2011 - Serum alkaline phosphatase = 58 iu/L 25/02/2011 - ALT/SGPT serum level = 23 iu/L 25/02/2011 - Serum bilirubin level = 4 umol/L25/02/2011 - Serum creatinine = 65 umol/L25/02/2011 - Serum potassium = 4.2 mmol/L25/02/2011 - Serum sodium = 143 mmol/L25/02/2011 - Serum total protein = 73 g/L 25/02/2011 - Serum TSH level = 0.52 mu/L25/02/2011 - Serum urea level = 3.9 mmol/L25/02/2011 - Serum C reactive protein level = 5.2 mg/L25/02/2011 - Serum globulin = 27 g/L It takes up to 6 weeks for thyroxine to be fully utilised in the body, so best to wait for this long before getting tested again. Won't your GP do the TSH, free T4, free T3 blood test for you?I will request my GP to test my TSH, free T3 & free T4 at least six weeks down the line after re-introducing thyroid hormone as you have suggested. The NHS will ONLY test your adrenals to see whether you are suffering with 's disease (too little or no cortisol secretion) or Cushing's Syndrome (too high a level of cortisol secretion). Taking NAX 2 weeks prior to your synacthen test would only skew the results, so again. Certainly your Cortisol levels are not good, but taking the right supplements may help boost your adrenals. Are you increasing your NAE by one tablet every 10 days to 2 weeks or so? You can take up to 6 NAX daily if necessary, but if you still have symptoms after taking this much, it is usually an indication you need a short course of hydrocortisone. Take also high doses of vitamin C (4/5000mgs daily) to help with absorption, Siberian Ginseng and Liquorice Tincture.Sheila, I was planning on increasing my NAX gradually as you have suggested. However, I am now thinking of waiting until after my synacthen test before starting NAX (as of a response from which I will reply to separately). Presumably the synacthen test will show whether or not I need Hydrocortisone? I'm taking 4000mg of Vitamin C daily & will investigate Gingseng & Liquorice Tincture - is this one supplement or two separate ones? Where is the best place to get them from? Being under the care of too many doctors is what will cause you confusion Kerry. Sheila, I will take your advice & just see Dr. P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 Kerry, Whats been done about the B12? Level looks low, you really need it to be 7 or 800, you would be treated in Japan for levels below 600, but not in this country until you get to 200. (Sub lingual solgar B12 is available) The ferritin is low too..... needs to be well over 70. until you get these two sorted it doesn't matter what thyroid mmeds you take, they probably won't work properly...... . > > 28/09/2010 - Serum vitamin B12 = 342 ng/L > > 28/09/2010 - Serum ferritin = 27 ug/L > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 Hi , Thanks very much for your reply, my answers are below.....I'll say you're in a tizz, Seeing 3 doctors, taking NAX then stopping it for a synathcen test when you are making cortisol ok, though in the wrong amounts at the wrong times...... Did you miss breakfast on the day of the saliva test?No I didn't skip breakfast. The only odd think about the day I did the test was that I just happened to feel better than I normally had been doing (for weeks) but that's just the way it worked out for that day. You need to slow down, think out a path and stick to it. You say you think you are suffering fropm T4 toxicosis, this happens when you have too much unused T4 and are not making enough reverse t3 to get rid of the t4. So why do you think you have unused T4 and why do you think you are not making enought reverse t3 to get rid of the t4? I may have unused T4 as of my blood test results below (but imagine they are inconclusive without the T3 test - this is being done 16th May): 16/09//2010 - Serum TSH level = 0.06mu/ L Low16/09/2010 - Serum free T4 level = 20.9 pmol/L 28/09/2010 - Serum TSH level = 0.13 mu/L low 28/09/2010 - Serum free T4 level = 20.7 pmol/L10/12/2010 - Serum TSH level = 0.35 mu/LI've no idea if I'm not making enough reverse T3 to get rid of the T4.....I'm having my TSH, free T3 & free T4 tested 16th May...presumably this will tell us? Or will I need another test? What signs and symptoms do you have which tell you you have T4 toxicosis?I'm not sure what T4 toxicosis symptons are but I could hardly get out of bed, felt nauseas all day, very bad headaches, slept very, very badly & felt very, very fatigued (like it was 4am in the morning, permanently or I'd been out on the lash the night before - except I hadn't!) Absolutely no appetite & kept losing weight, down to eight stone 2. Whenever I had my period (when on Levothyroxine) I felt very ill indeed, the worse I have ever felt & this includes when I was suffering from viral encephalitis (infection in the brain). All that has happened since I've stopped taking Levothyroxine is that I've felt better & even when I had my period I didn't need to spend days in bed for the first time in over six months. If you have a synathcen test booked for a couple of weeks time, why are you going to skew the reult by taking NAX? Better to not start it until after the test. Or start it and cancel the test. But make a decision either way., I'm thinking now that I perhaps won't start my NAX until after the synacthen test so it won't skew the results. The test is 16th May. Do you think it would also be OK for me not to take my Levothyroxine for this long? I stopped taking it 10 days ago.I'm extremely concerned about re-starting Levothyroxine as I became so ill whilst taking it. The NAX will probably sort out the adrenals, but it takes a while, there are no fast results. In the mean time, find out whether you are converting the t4 and if not, then consider t3. If you are converting the t4 then consider cellular uptake.Sorry, what do you mean by 'cellular uptake'? Is this NAX? It's really not rocket science and if it was we could do that It's a big and confusing crossword and you have to take your time and think through each bit. How are your B12, Folate, Iron Saturation, D3? Are you taking plenty of Vitamin C to help those adrenals? Are you sleeping in a very dark room? And getting to bed early?My B12 is low & Ferritin very low (as picked up by Sheila) & i'm currently treating these issues. My folate is fine. I don't know about my D3, its being tested 16th May. I'm taking 4000 Viatmin C daily. I'm normally in bed by 9:30pm (or 8pm on a bad day). Running thyroxine down for a week isn't going to make a very big difference. It's a storage hormone and is designed to stay in the blood for a couple of months. The pain you mention could even be due to you clenching your jaw at night through anxiety.... This certainly happens to me and I have to wear a mouth guard to spread the pressure, otherwise I end up with dental absesses. I can tell when I've been doing it because I wake up with neck ache and a pain in my temples. It could be anxiety, I hadn't thought about that. My father sadly died on Monday night, so this could be a possibility. I know this probably isn't what you want to hear, but just rushing in, stopping meds, starting meds, taking tests, seeing docs - never going to work..... and it'll cost you a fortune. No, it is what I want to hear & I'm extremely grateful, thank you! I'm just in a tizz because I felt so ill whilst taking Levothyroxine & worried about what I should do with regards to re-strating it, or not! I never want to feel that bad again if I can help it. Kerry x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Hi Kerry - as stated previously, blood test results don't mean a single thing to anybody without the reference range. There is no way we can tell whether your results are at the bottom, the middle or the top of the range. We NEED the reference ranges, especially for your thyroid tests. However, I can see that the reason you are probably feeling so bad is that your free T4 is FAR too high - which means it is not converting to the active thyroid hormone T3. T3 is needed by every cell in your body and brain to make the function. You need to start taking 1000mcgs B12 (Solgar sublingual are excellent) daily as your B12 at 342ng/L is FAR too low. A normal B12 result should be right at the top of the reference range (which is around 175 to 800). Also your ferritin is FAR too low at 27ug/L. The reference range for women is normally around 20 to 200 and a 'normal' result is considered to be between 70 to 90. It is an absolute FACT that doctors do not know how to interpret blood results, because they have not been taught how to, so they rely on the laboratory report. Laboratory technicians understand how the reference ranges are made up and know how to measure the hormone values in the blood, but if a patient's result is returned in the normal range, s/he writes on the slip that is sent back to the GP " NORMAL " . Doctors often misinterprets this. S/he thinks that the laboratory is indicating the patient has no thyroid problem. On the other hand, if the biochemist really means that the patient does NOT have a thyroid problem, how can s/he interpret the blood test result when s/he has neither seen, nor knows the patient - certainly knows nothing about their family or past medical history. We need the reference range for Folate please. You are right to stop the Nutri Adrenal Extra until after your short synacthen test. Siberian Ginseng and Liquorice Tincture are two separate supplements. See the 33% discount you can get from Nutri Ltd in the FILES section of this forum. Scroll down the list of FILES to the one entitled 'Discounts on Tests and Supplements' - then open the Nutri Ltd document. Luv - Sheila The only odd thing that has happened is I'm getting a bad pressure pain in the glands either side of my neck ((just under the ears) & this is worsened when I lean over...not sure if anyone thinks this could be a withdrawal effect from Levothyroxine or perhaps completely unrelated?! 16/09//2010 - Serum TSH level = 0.06mu/ L Low 16/09/2010 - Serum free T4 level = 20.9 pmol/L 28/09/2010 - Serum vitamin B12 = 342 ng/L 28/09/2010 - Serum folate = 12.3 ug/L 28/09/2010 - Serum ferritin = 27 ug/L 28/09/2010 - Serum TSH level = 0.13 mu/L low 28/09/2010 - Serum free T4 level = 20.7 pmol/L 10/12/2010 - Serum TSH level = 0.35 mu/L Sheila, I was planning on increasing my NAX gradually as you have suggested. However, I am now thinking of waiting until after my synacthen test before starting NAX (as of a response from which I will reply to separately). Presumably the synacthen test will show whether or not I need Hydrocortisone? I'm taking 4000mg of Vitamin C daily & will investigate Gingseng & Liquorice Tincture - is this one supplement or two separate ones? Where is the best place to get them from? _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Hi ,Thanks so much for your reply.I'm taking 2 x 1000 Solgar sublingual B12 tablets daily for two weeks & then I was going to drop it to just one tablet daily. This is what the lady at Solgar suggested, do you think this is ok? For Iron, I am taking 2 spatone sachet's daily followed by 4000 Vit C with breakfast.I think part of my confusion dawned on me around 4:30am this morning when I realised that although the thyroid & adrenals are related, they need to be treated separately. Because I am suffering from both, I was floundering really on where to start! After hearing from both you & Sheila I've firmed up my adrenals plan which is to not take NAX, have the synacthen test & take it from there. As far as my hyperthyroidism goes.......as you know, I have stopped taking Levothyroxine some 11 days ago now & although I feel much better not taking it...I have my next TSH, Free T4 & Free T3 test booked for 16th May & I suppose I really ought to start re-taking Levothyroxine to understand if I have a T3 conversion problem? It's also possible I presume that I could be starting to feel a bit better because I've been supplementing with Spatone & B12? I started Spatone on 24th March & B12 on 1st April. Or do you think its too soon for me to be feeling any benefit? Thanks again for helping to get me out of a tizz.....I'm starting to feel less tizzy & will be un-tizzed when I know what I'm doing with my Levothyroxine for now. ;O)Kerry x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Hi Sheila,Thanks so much for support again, much appreciated. I'm sorry about the lack of reference ranges, I've recently got them from my GP & need to find the time to add them all in. In the meantime, I can see that my folate was 12.3 in Sept & the ref range is 4.6 - 18.7. So I'm presuming that this is OK? Kerry x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Kerry, don't bother posting them now, but remember next time as they are so important. I checked through all of the results and they all appear to be fine apart from the exceptions I noted in my previous response. Check the attached document - which you might keep safe, in case your GP ever gives you more results that do not have reference ranges. Luv - Sheila Hi Sheila, Thanks so much for support again, much appreciated. I'm sorry about the lack of reference ranges, I've recently got them from my GP & need to find the time to add them all in. In the meantime, I can see that my folate was 12.3 in Sept & the ref range is 4.6 - 18.7. So I'm presuming that this is OK? Kerry x 1 of 1 File(s) LIST OF NORMAL REFERENCE RANGES.doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Kerry, The plan for the solgar B12 sounds reasonable to me, but I really have no idea,, when my levels were found to be down I decided to take one solgar a day and do an injection once a month... on the grounds that if this is overdosing, it will just pass through.... I seem to have done ok with it but haven't had a follow up test yet as I've only been doing it about 4 mnths...... The rule with adrenals and thyroid, is that you get the adrenals sorted first, because if they are not working, the thyroid meds won't work either. Feeling better without taking the meds doesn't exactly suggest that they were doing you any good. However, having the TSH, T3 and T4 tested on 16th may, when you won't have been taking them for quite a few weeks, seems pretty daft.... If you take them it makes you feel bad because your adrenals need sorting..... I can see the quandary..... Personally I think that the synathcen test will show you as OK because you were making some cortisol, albeit at the wrong time and the wrong amount. I suppose the best you can do is hang on till the test, then do the adrenal support and re introduce the T4 for your Hypothyroidism (not Hyperthyroidism?). The 4000 Vit C, unless it's slow release, will not be doing as much good in one lot , you really need to split it through the day as all that happens with a big dose is that it gets passed out of the body as it can't all be dealt with at once..... Glad you're feeling a little un tizzed!! Cellular resistance? - this is when you make the T3 ok and there is some in the blood, but it is not being taken up by the cells. This can be for a variety of reasons - things like low B12, low iron, too much reverse t3.... don't go there, the B12 and Iron will hopefully help you a lot.. xx > > Hi , > > Thanks so much for your reply. > > I'm taking 2 x 1000 Solgar sublingual B12 tablets daily for two weeks & then Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 I would try for at least a couple of months the 2000mcgs B12 daily. NDDT is Natural Desiccated Thyroid - or more properly known as natural desiccated porcine thyroid gland extract. Luv - Sheila Do you think I should continue taking 2 of the B12 tablets for longer than two weeks then? Shall I try a couple of months at this level? One more question, from your email, (sorry!), what is NDT? Is it Natural Dessicated Thyroid?? Kerry x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 Hi Sheila,Will continue the 20000 B12, this makes more sense to me. Thanks so much everyone for your help on this forum, I really don't know what I would do without it! Well, I would, I'd continue to feel ill for a very long time...... x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 Hi ,Thanks so much for your email. It's hypothyroidism that I have & after much thinking I've decided to re-start my Levothyroxine (since last night). I know it makes me feel terrible (as you say, perhaps because of my adrenals) but as of the 16th May TSH, free T3 & free T4 test I kind of need to do it for a proof of concept thing. i.e. 'I don't think this medication is working for me'. Hopefully the test will show why. I can (hopefully) hold on until then, I guess having an end date to feeling quite so ill will help a little. Regarding the vitamin C, I hadn't thought about that & fully take your point on board. I will try taking 2000 with breakfast, 1000 with lunch & 1000 with dinner. Anyone is welcome to email & this is silly & try 'X' but if I don't hear back I will assume this is just fine! Thanks again for your help, always very much appreciated )Kerry x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 Don't take 20000mcgs Kerry - take 2000mcgs B12. LOL! Luv - Sheila Will continue the 20000 B12, this makes more sense to me. Thanks so much everyone for your help on this forum, I really don't know what I would do without it! Well, I would, I'd continue to feel ill for a very long time...... Quote Link to comment Share on other sites More sharing options...
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