Hi im new here.

[Guest guest]

Hi, my name is Suzy. I was diagnosed with graves disease last year in october

although i had been suffering alot longer before being diagnosed. Found out i

was allergic to carbimazole so they decided i either had rai or remove my whole

thyroid straight away as i couldnt have no more medication. I opted for the

total thyroidectomy which i had done on the 14th Jan this year. I was put om

100mcg levothyroxine and the hospital told me to take my calcium supplement at

the same time. ( which i now realise you have to wait 4 hours after to take

other supplements because of the absorbtion). After 6 to 8 weeks my body was

feeling horrible and cramping all the time, muscles aching all the time and i

was sleeping all the time as well.Had my blood test and was told it was ok ft4

was 16.0 the range 7.5 to 21.0 tsh was 0.02.I told him my symptoms and he

suggested anti depressants which i told him " i dont feel depressed even tho i

have the odd day of cryin, im crying because my body is achin and i cant do

nothin, NOT because i feel suicidal because i dont " .He told me to take them

anyway as it will help with my muscles. I did NOT take them. I contacted the

hospital and asked if i could speak to the endocrinologist i saw before my

operation and he called me back and told me to increase my levothyroxine to

150mcg every day and see him in 4 weeks. I decided to try 125mcg and saw the

endo 4 weeks later. blood results were..

ft4 12.4 range 7.5 to 21.0

ft3 3.3 range 3.5 to 5.6

tsh 0.04 range 0.34 to 5.6

I was then told to take 150mcg levothyroxine a day and see him in July and my

blood request form for July is for ft4 and tsh only.

Ive been to the doctor last week and asked about t3 replacement and was told to

go away. Ive also been back this mornin as my heart has been playin up over the

weekend and im struggling to get up the stairs because im getting out of breath

so i only took 125mcg levo this mornin incase my levels had maybe risen to much

and just wanted to no if i had done the rite thing. I got to the doctor and he

said how about you not having any levothyroxine for a few days, i will do a

blood test now and then i will decide a dose for you then. I said NOOOOOO. He

said ok then i want you to take a 100mcg till i call you wednesday. He then told

me he goes by the TSH. Well my jaw dropped to the floor, had my bloods done and

walked out. Im so confused. I know he is gonna take my mediction down and im

gonna be left worse than i am now. I cant swap doctors either because the only

other one in my catchment area i was with a few years ago and that one even

refused to look at my thyroid when it was chokin me so i left. Does anyone know

of any private doctors in the south of england who i could see? Sorry if i have

bored anyone to tears with my moanin. Suzy.