Signed off form endo/hosp.

April 24, 2011

Hi all,

I was signed off by the endo in a letter to my GP stating that the dexa bone

scan and synacthen tests were all clear - as I expected - and that the other

blood tests were 'normal' except that my tsh was now 0.70 - and as such being

suppressed although I could continue taking the T4 through personal choice I

should reduce to 25 every other day!!??

I have since I was at the hosp last Nov, started on T3 in Feb and now only take

25/50 thyroxine and 25 T3 and this suits me very well - most of my symptoms have

been alleviated and I have had the energy to be more active and diet and have so

far lost 17lbs!

Last week saw GP - one I hadn;t seen before and we went through the letter and I

was keen to let him know that I was self treating with T3.

He agreed to disagree - his words and said that although I may well know more

about the thyroid than he does, he has to bow to the knowledge of the 'experts'

as in the specialists at the hosp. So, no official diagnosis means no exemption

for the thyroxine which means I will have to pay. I have asked for some more

bloods and will be interested to see if my cholesterol has gone down as it was

quite high.

Last year was hard battling to get myself sorted and now that I am in control of

my health and have successfully managed to improve it I am not willing to put

myself through the stress of pursuing it. I hope that one day when this register

of counterexamples is published and maybe more med profs will be willing to look

further than the lab results we will get more listened to. Until then I am

happy to self treat and take care of my own health and just use the NHS for

anything else that may come up at any point.

This is why it is important that we all complete the register as Sheila keeps

reminding us. The more evidence the better.

Stacey

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