Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Unfortunately I have been forced to temporarily remove the Facebook page as I discovered anyone could post onto the page without authorisation an inherant security flaw ! I'm now in the process of setting TPA up as a full blown user and not a page, therefore people will have to request to be " friends " and only they will be allowed to post on the Wall. Apologies for the confusion and hope to have it up at the weekend and to welcome those who already " liked " us there. Cheers Neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Wouldn't it be better as a page instead of a user, no need to mess around with friend requests then. There must be a setting somewhere as most of the time I can't post on a wall unless I have " liked " it. > > Unfortunately I have been forced to temporarily remove the Facebook page as I discovered anyone could post onto the page without authorisation an inherant security flaw ! > > I'm now in the process of setting TPA up as a full blown user and not a page, therefore people will have to request to be " friends " and only they will be allowed to post on the Wall. > > Apologies for the confusion and hope to have it up at the weekend and to welcome those who already " liked " us there. > > Cheers > Neil > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Unfortunately the setting only allows all to post or none, so means any random " like " could post stuff on the wall. Like this forum we need to be able to control the " quality " of stuff posting to keep the good name of the TPA. Cheers neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 So is anybody willing to volunteer their services to help monitor and moderate what is allowed on our Facebook? I do not have time to do this as our forum is too busy and other stuff that needs to be done in the background. Luv - Sheila > > Unfortunately the setting only allows all to post or none, so means any random " like " could post stuff on the wall. > > Like this forum we need to be able to control the " quality " of stuff posting to keep the good name of the TPA. > > Cheers > neil > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Hello, is TPA adding freinds, or having a page or a private group. The page with 'likes' is the one where random people can post. The friends only one means that TPA would have to add before they could post and the private group is for groups who only want member of that group to be able to see their posts, not even friends who are not members would see them. I use Face Book for a lot of special needs support groups, to get up to date information. I find it extremely useful. Jan x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Hi Janine Which do you think would be more useful ? I am concerned following the recent posts that were randomly posted to the wall of the group, this is why i've taken it down. I would have thought a closed group where you add " friend " would ensure that the group stays safe and secure ? Neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 I want to get up to date information and to give out up to date information, along with our petitions, surveys, meeting dates etc. Luv - Sheila Hello, is TPA adding freinds, or having a page or a private group. The page with 'likes' is the one where random people can post. The friends only one means that TPA would have to add before they could post and the private group is for groups who only want member of that group to be able to see their posts, not even friends who are not members would see them. I use Face Book for a lot of special needs support groups, to get up to date information. I find it extremely useful. Jan x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Can you make Facebook so that only those can be approved as 'friends' who write a couple of lines to say what their thyroid problem is - like they do when registering to join our forum before we will approve them. Luv - Sheila Unfortunately the setting only allows all to post or none, so means any random " like " could post stuff on the wall. Like this forum we need to be able to control the " quality " of stuff posting to keep the good name of the TPA. Cheers neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Sure will Sheila I think it's the safest way. It's already there, people should be able to find it if they search for Thyroid Patient Advocacy. Cheers neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 I've just recently joined a group on facebook and it seems to be a lot more 'selective' regarding people who can join, rather than a page with 'likes' that seems to be a lot more open, as Jan mentioned. I also set up a closed group so my family members can look at old family photographs and comment on them (or at least I HOPE they are the only people who can view the photographs, but who knows these days???) My other 'friends' cannot see the photographs as they are not members of the group. I think a group is the way to go on facebook if you want to confine content viewing to certain people. P ....................... > Hello, is TPA adding freinds, or having a page or a private group. The page with 'likes' is the one where random people can post. The friends only one means that TPA would have to add before they could post and the private group is for groups who only want member of that group to be able to see their posts, not even friends who are not members would see them. I use Face Book for a lot of special needs support groups, to get up to date information. I find it extremely useful. Jan x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 Hi Neil Just a little thing... it says 'Thyroid joined Facebook'. TPA will be call 'Thyroid' every time you respond to posts. Could you possibly change that to TPA. Perhaps this is caused by the title (I'm not sure)... perhaps we could be called 'TPA' (Thyroid Patient Advocacy), which is already in the logo. Just a thought! Jacquie _______________________________________ > Sure will Sheila > > I think it's the safest way. > > It's already there, people should be able to find it if they search for Thyroid Patient Advocacy. > > Cheers neil > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 How do I join - how do I get to the page please? Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 Here's the link, Lillian... http://www.facebook.com/profile.php?id=100002414622198 & sk=info Love Jacquie _______________________________ > How do I join - how do I get to the page please? > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 A 'Fan' page is better, you have control over that. Glynis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 What is the point of TPA's Facebook page if members cannot write on it at all? I wanted to add TPA's Conference on 11 June and also the Register of counterexample links but cannot. This seems to be set up as a PERSONAL page and NOT a GROUP page! If NEW people cannot see what we are about, they won't join, as it is not visible to the public! Another issue is that some people do not want to have everyone in their friends list knowing that they have a thyroid or other condition. The only way to join TPA on Facebook is to become a Friend. This is NOT how it is done with STTM and other thyroid groups. Please, please can this be rectified immediately. It would be better to have a Fan or Group page AND having MORE than one person in moderating may be the best way forward. To NOT be able to communicate at all on TPA's Facebook page is pointless to everyone who has joined, and self defeating! Jot and I have both offered our services and would be more than happy to help. Perhaps the best way forward would be to start again with a Fan page or Group page and Jot, I and whoever else can monitor it! Love Jacquie > > Here's the link, Lillian... > http://www.facebook.com/profile.php?id=100002414622198 & sk=info > > Love > Jacquie > _______________________________ > > How do I join - how do I get to the page please? > > > > Lilian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 The Facebook page that I set up is set up as a " Personal " page to allow Sheila and myself to control what information is put there and is Sheila's wishes that users are not able to post anything they wish. The purpose is to raise awareness and not to replace the Group. I have Sheila's full authority to do so and don't appreciate the negative feedback that has been going round lately. Neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 Hi Jacquie! Neil is in the process of finding what is best for our TPA Facebook page at the moment, and we need positive feedback. I understand that Neil has used Facebook for many years and the one thing we have decided is that we do not want anybody and everybody to come on board and to write exactly what they want, without some form of moderation. I speak from the bottom of my heart when I tell you that in the past, we have experience of what can happen to an unmoderated thyroid forum and we will never risk our good name and reputation by going down such a road again. The most important thing about a Facebook page is that we guard the good name, reputation, respect and integrity of Thyroid Patient Advocacy. To keep these, we cannot and allow open access to all. There are people/organisations out there in the ether who are waiting for the opportunity to rubbish our work and my name in particular, and by giving them an open page to write on, could easily do this. I think there was a misunderstanding between Neil and myself about what I need posting and what I do not, so it is incorrect in that the only information to be posted must come direct from me. I know nothing about Facebook or even how to use it, and am too busy to spare time so we need somebody like Neil to administer it and look after it for us. What I would like to see is a moderated page so any messages posted have first to be approved by chosen moderators - in the same way our Thyroid Forum messages are moderated. The Facebook page should be open to all those interested in getting out information regarding our own specific thyroid problems and lots of the information we are finding, and if anybody wants to discuss other topics, they should go elsewhere. Jacquie, thank you for stating that you wished to post the information I sent out to members this morning on to our Facebook page - that is exactly the kind of message we need to get out. However, I see that since this morning, you have put up a new Facebook page for TPA yourself, but as this has not been authorised by the Trustees, please would you remove this with immediate effect. Let's all be patient, this will sort itself out eventually. We need Neil, along with yourself and others with experience, to give appropriate feedback, to enable us to find what is the best way to go to meet our particular circumstances. Now that we are a Registered Charity, permission by the Trustees is needed, before any changes can be made. We are holding a Meeting on 12th June and this topic will be placed onto the Agenda to be discussed at that time. If JOT, yourself and Neil would like to help monitor the Facebook page, please let me know. Luv - Sheila What is the point of TPA's Facebook page if members cannot write on it at all? I wanted to add TPA's Conference on 11 June and also the Register of counterexample links but cannot. This seems to be set up as a PERSONAL page and NOT a GROUP page! If NEW people cannot see what we are about, they won't join, as it is not visible to the public! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 My fault I guess, but you got this mixed up Neil - see message that I have just posted to the forum. Sorry if I didn't make it clear, but it is a 'moderated' Facebook page we need in order to stop those who do not wish to discuss thyroid problems from taking it over and writing what they wish. Luv - Sheila The Facebook page that I set up is set up as a " Personal " page to allow Sheila and myself to control what information is put there and is Sheila's wishes that users are not able to post anything they wish. The purpose is to raise awareness and not to replace the Group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 Hi Sheila Thank you for sorting this out. I have also been on Facebook for many years and what I did was set up a TPA Facebook Group page a few hours ago which is moderated by myself and Jot so far, ie, no one can write down ANYTHING without joining first and if they write anything inflammatory it can be deleted with immediate effect, and they can be removed from the Group. It has three choice of permissions: OPEN - Anyone can see the group, who's in it and what members post. CLOSED - Anyone can see the group and who's in it. Only members see posts. SECRET - Only members see the group, who's in it and what members post. At the moment it is on OPEN so that people can see events, register of counterexamples etc. but they cannot write anything on the page at all until they have been approved to join the group by a moderator. Once approved, they can be removed just as easily. This is how Janie and the other thyroid groups operate. If you want, I can put it on SECRET until after the meeting with the trustees (this means that any events etc will not be advertised openly) and you can decide whether you want to keep it or not at a later stage; or, if you prefer, to delete it entirely. To be honest, it is not a job for one or two people as it is very time consuming, so having more admin would be necessary. I have been sending out the tweets you requested on Twitter for some time now and felt that TPA on Facebook was not being utilised to it's full potential, as it was being represented as a Person, and not a business/charity. Please advise if you would like it to go SECRET, or for me to delete it entirely. Thank you, Sheila. Love Jacquie > > The most important thing about a Facebook page is that we guard the good > name, reputation, respect and integrity of Thyroid Patient Advocacy. To keep > these, we cannot and allow open access to all. There are > people/organisations out there in the ether who are waiting for the > opportunity to rubbish our work and my name in particular, and by giving > them an open page to write on, could easily do this. > > I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 May I add that the link so you can view it. Unfortunately, we will not escape any moderators picture being shown. The TPA logo only applies to one person, not all. http://www.facebook.com/home.php?sk=group_229651577048409 & ap=1 Love Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 I posted " hello, looking forward to the TPA meeting " that didn't go on, I've unfriended the page, if it gets sorted out. Even a page let's you see posts, its useless as it is now and I've recommended it to people too- a shame. On Sun May 29th, 2011 12:46 PM EDT Sheila wrote: >My fault I guess, but you got this mixed up Neil - see message that I have >just posted to the forum. Sorry if I didn't make it clear, but it is a >'moderated' Facebook page we need in order to stop those who do not wish to >discuss thyroid problems from taking it over and writing what they wish. > >Luv - Sheila > > > > > >The Facebook page that I set up is set up as a " Personal " page to allow >Sheila and myself to control what information is put there and is Sheila's >wishes that users are not able to post anything they wish. > >The purpose is to raise awareness and not to replace the Group. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 Jacquie As Sheila has already stated, I've been involved in setting this up for some time and exploring the appropriate options for TPA. Therefore I would appreciate your support in the efforts I have already undertaken and remove the group that you have created. There is no need to duplicate and confuse the situation any longer. As per Sheila's wishes I've created a " group " within the primary TPA membership on Facebook. It was always the intention to have such a group, I had to be sure the necessary security precautions could be made before opening it up to the world. I have added you and Jot to the " Admin " group so that you can both help me moderate the content. Neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 Hi Janine Your message actually came through directly to me via personal message, therefore would not display on the main wall. I have made adjustments to the page to allow all group members to interact with each other and have assigned some further moderators to help keep the content clean and useful. I hope that you come back to enjoy the site for youself soon. Neil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 I am happy to help out wherever I can be of assistance. Cheers, JOT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 Anyone wishing to be a part of TPA on Facebook can do so by visiting us at http://www.facebook.com/home.php?sk=group_148535325220241 Once your group membership has been confirmed you will be able to benefit from a host of features exclusive to Facebook and to spread the word of the TPA. Hope to see you all there. Neil Quote Link to comment Share on other sites More sharing options...
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