Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 Hey Gail, Next week would be good also. The Pow-Wow you are talking about is the event they hold at Otsiningo Park, right? We have been wanting to go to that, but haven't been able to. Last year we made a spur of the moment trip to NYC and ended up on TV, but that is another story. We are planning our first VACATION for 5 years middle of May :-), and I am hoping we won't miss it this year...Margaret, just let us know when your next visit will be, and we will DEFINITELY all get together. Deb --- smilinggail@... wrote: > In a message dated 4/27/01 7:23:04 AM Eastern > Daylight Time, > Deb, > Next week is full with appointments and we are going > to Newark on Friday and > Philly on Saturday. Can we make it the next week. > We will be home the night > of the 9th, so anytime after that. The Pow -Wow is > held every summer. Lot's > of Native American tribes are there and it's really > cool for the kids. They > do music and dancing and have really good > food...buffalo burgers, white bean > and corn wraps and stuff like that. > Gail > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 It depends where the bar is! Xena Dion wrote: > I think it would be great to meet within the party on Friday evening, perhaps Senate members can identify themselves with a white carnation, flower in hair or something equally amusing and 'different' although I suspect we will graduate towards each other anyway, would that work? > Regards, Xena Dion > > >>> Toity.Deave@... 10/12/01 12:27pm >>> > Yes, I was mentioning it to at the beginning of the week that we ought ot > meet. Just a matter of when and where! > > Toity > > On Thu, 11 Oct 2001 19:59:37 +0100 > Bidmead <christine@...> wrote: > > > Good idea Ruth, perhaps we could all arrange to meet somewhere. Watch the > > messages/notice board at conference. Let's see if we can arrange something. > > > > Conference > > > > > > > Are Senate members intending to meet at CPHVA conference? It would be > > > good to put faces to names. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Good idea Ruth, perhaps we could all arrange to meet somewhere. Watch the messages/notice board at conference. Let's see if we can arrange something. Conference > Are Senate members intending to meet at CPHVA conference? It would be > good to put faces to names. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Ruth, I don't know why this message only came through to me today, but you are right: we should try to meet up. I am definitely going to be there on Friday; might get there for Thursday if only to hear Alan Milburn (If he dares to show his face, unless he has been convinced about the statute by then!). Last time secretary of state appeared at the then HVA conference, she (Virginia Bottomley) was booed: I can't remember the exact context, perhaps Margaret can. I do recall that a student health visitor asking her why she was only talking about illnesses and lifestyles, when everyone else in the conference was talking about how housing, income etc affected health; to which the minister replied that she was here to talk only about health, because that was her brief; other departments dealt with those other issues! After that incident, though, she became a very good of friend of health visiting: which goes to show that you don't need to be obsequious to get respect (soemone should tell Spiller). Four years ago, we ruthngrant wrote: > Are Senate members intending to meet at CPHVA conference? It would be > good to put faces to names. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 Yes, I was mentioning it to at the beginning of the week that we ought ot meet. Just a matter of when and where! Toity On Thu, 11 Oct 2001 19:59:37 +0100 Bidmead <christine@...> wrote: > Good idea Ruth, perhaps we could all arrange to meet somewhere. Watch the > messages/notice board at conference. Let's see if we can arrange something. > > Conference > > > > Are Senate members intending to meet at CPHVA conference? It would be > > good to put faces to names. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 I can't remember the context of VB at conference but I di remember that she was allocated double time and still managed to overrun by 30 mins or so and had not got round to answering any of the questions she was asked with a proper answer! No surprise, I know but very frustrating. Toity On Thu, 11 Oct 2001 20:44:25 +0100 Cowley <sarah@...> wrote: > Ruth, I don't know why this message only came through to me today, but you > are right: we should try to meet up. > > I am definitely going to be there on Friday; might get there for Thursday if > only to hear Alan Milburn (If he dares to show his face, unless he has been > convinced about the statute by then!). Last time secretary of state > appeared at the then HVA conference, she (Virginia Bottomley) was booed: I > can't remember the exact context, perhaps Margaret can. I do recall that a > student health visitor asking her why she was only talking about illnesses > and lifestyles, when everyone else in the conference was talking about how > housing, income etc affected health; to which the minister replied that she > was here to talk only about health, because that was her brief; other > departments dealt with those other issues! After that incident, though, she > became a very good of friend of health visiting: which goes to show that > you don't need to be obsequious to get respect (soemone should tell > Spiller). > > > > Four years ago, we > > > ruthngrant wrote: > > > Are Senate members intending to meet at CPHVA conference? It would be > > good to put faces to names. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Just to make sure a message on notice board does not get lost, maybe we should arrange a time and place before hand!! Charlene Conference > > > > > > > Are Senate members intending to meet at CPHVA conference? It would be > > > good to put faces to names. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 I think it would be great to meet within the party on Friday evening, perhaps Senate members can identify themselves with a white carnation, flower in hair or something equally amusing and 'different' although I suspect we will graduate towards each other anyway, would that work? Regards, Xena Dion >>> Toity.Deave@... 10/12/01 12:27pm >>> Yes, I was mentioning it to at the beginning of the week that we ought ot meet. Just a matter of when and where! Toity On Thu, 11 Oct 2001 19:59:37 +0100 Bidmead <christine@...> wrote: > Good idea Ruth, perhaps we could all arrange to meet somewhere. Watch the > messages/notice board at conference. Let's see if we can arrange something. > > Conference > > > > Are Senate members intending to meet at CPHVA conference? It would be > > good to put faces to names. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 I think it would be great to meet within the party on Friday evening, perhaps Senate members can identify themselves with a white carnation, flower in hair or something equally amusing and 'different' although I suspect we will graduate towards each other anyway, would that work? Regards, Xena Dion >>> Toity.Deave@... 10/12/01 12:27pm >>> Yes, I was mentioning it to at the beginning of the week that we ought ot meet. Just a matter of when and where! Toity On Thu, 11 Oct 2001 19:59:37 +0100 Bidmead <christine@...> wrote: > Good idea Ruth, perhaps we could all arrange to meet somewhere. Watch the > messages/notice board at conference. Let's see if we can arrange something. > > Conference > > > > Are Senate members intending to meet at CPHVA conference? It would be > > good to put faces to names. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Cardigans i thibk Xena!! Margaret Conference > > > > > > > Are Senate members intending to meet at CPHVA conference? It would be > > > good to put faces to names. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Some of us will not be staying for it - am I the only party pooper??? On Thu, 27 Sep 2001 19:50:07 +0100 ruthngrant <ruthngrant@...> wrote: > It depends where the bar is! > > Xena Dion wrote: > > > I think it would be great to meet within the party on Friday evening, perhaps > Senate members can identify themselves with a white carnation, flower in hair or > something equally amusing and 'different' although I suspect we will graduate > towards each other anyway, would that work? > > Regards, Xena Dion > > > > >>> Toity.Deave@... 10/12/01 12:27pm >>> > > Yes, I was mentioning it to at the beginning of the week that we ought ot > > meet. Just a matter of when and where! > > > > Toity > > > > On Thu, 11 Oct 2001 19:59:37 +0100 > > Bidmead <christine@...> wrote: > > > > > Good idea Ruth, perhaps we could all arrange to meet somewhere. Watch the > > > messages/notice board at conference. Let's see if we can arrange something. > > > > > > Conference > > > > > > > > > > Are Senate members intending to meet at CPHVA conference? It would be > > > > good to put faces to names. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2001 Report Share Posted November 16, 2001 good site as I glanced at it --- leah leah <okieleah@...> wrote: > http://www.mcleanbible.org/ministries/access/flyer-020302-workshops-02.html > > hi all, > above is a link to a two day conference at McLean > bible church in the dc > area. the reason i sent the link is because its a > great affordable > conference with daycare... > > the main reason is they have phenominal speakers and > touch on topics like > including children with special needs in sunday > school, how to teach the > word to them and modify it, they are also having > famous speakers there > too....if anyone wants the information, i can mail > it to you directly or > email it, but you must email me privately as i am > " no mail " status on the > list serv...i know alot of us have had major issues > with the our > congregation's accepting our kids and not scorning > down their noses at > us.....this would be forever helpful.... take care > all, leah > > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com/intl.asp > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 It is still in my diary nne. Are you able to come? Charlene is organising it, and I am sure will respond. Is the final agenda ready for circulation, yet, Charlene? Best wishes Cowpe M (SoCS) wrote: >Is the conference going ahead on the 14th June? >nne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2002 Report Share Posted May 8, 2002 Yes Attached is the agenda etc. agenda is not completely final as we will change one workshop to accomadate Maureen if she will facilitate. still awaiting confirmation from facilitators. Charlene conference Is the conference going ahead on the 14th June?nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Not yet . I have not been able to download anything from the site yet. It was suppose to be available in the fall but I have not seen it yet. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2003 Report Share Posted February 1, 2003 From: Beth, Mom to Wade, 16 (CVID,etc.) Hey Ursula, I might be going solo. Art can't go & I'm not sure what Wade's summer school/work plans will be yet. Is Macey going with you? Did she go last year? The ribbon thing sounds like a good idea. I'll keep you posted on whether I'm " flying solo " or not....of course with a 16 year old along, I'm considered solo anyway! I have an off-topic request: I just got word that my son-in-law,(who is a Huey pilot in The Marines) who is currently stationed in Woodbridge,Va. attending a school at Quantico, has been pulled from school & will be deployed this next week to Ca. & then on to the middle east somewhere. Please say a prayer for his safety & for peace & patience for my daughter & 2 grandsons, ages 3 & 2. Thanks! Hope all the pumpkins & their " tenders " are warm & as well as can be this weekend. Love & Hugs to all, Beth >From: <uahollem1@...> >Reply- > " " < > >Subject: conference >Date: Sat, 1 Feb 2003 15:09:11 -0500 > >Anyone going to the conference solo? We are scheduled to go to Myrtle >Beach at the end of May and Les can not get off >work again so soon to be able to go in mid-June. has an academic >program that winds up that week. So I'm on my >own. I hope to be able to come up with some type of ribbon or sticker for >the parents to wear if they want to so >we can all recognize each other. > >Ursula Holleman >mom to (10 yrs old) and Macey (7 yr. old with CVID, asthma, sinus >disease, GERD, Diabetes Insipidus, colonic >inertia) >http://members.cox.net/maceyh > >Immune Deficiency Foundation's 2003 National Conference >http://www.execinc.com/idf/ > >Immune Deficiency Foundation - Peer Contact for GA >http://www.primaryimmune.org > >/ > _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2003 Report Share Posted February 1, 2003 Ursula: Last year we wore green ribbons to signify . One of the moms (sorry, I forget who) thoughtfully brought lots of extra for those who couldn't find any to wear. I took my mom last year... Jeff stayed home with as I didn't want to bring her and expose her to so many people, she had never traveled at that point. Plus I wanted it to be a getaway weekend where I could concentrate on the event instead of chasing after her. Well, my mom is a heavy smoker with the beginning stages of emphysema, so suffice it to say she was not the best companion, she couldn't walk anywhere and I would have liked to have explored the nearby area more, plus she was barfing up a lung every morning and then proceeding to light up some more. Sigh. Anyway, there were plenty of people that went solo. I am not planning to go this year, but I'm torn because it was really well-done. It was really, really, really neat to meet so many members of this group though -- that was the best part about going. (mom to Kate, born 9/19/02; and , age 4 -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 We will try to wear green ribbons also, it is getting so close! Amy J Re: CONFERENCE >Hi Dale, we will have green ribbons as well. >Wish you were coming, we will miss you but understand about family and health. Hope you are well. >, Mom to - CVID, asthma, GERD > Re: CONFERENCE > > > Dayna Fladhammer wrote: > > Just a question - > > > > was anything ever decided about a ribbon at the confrence? > > > > for the past 2 conferences, we have used green ribbons around our name > tag. Other groups use other colors. That's what Katy will be wearing. > Don't know about anyone else. > > In His service, > dale > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribe@groups<mailto:-unsubscribe@groups>. > To search group archives go to: /messages< /messages> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 We will try to wear green ribbons also, it is getting so close! Amy J Re: CONFERENCE >Hi Dale, we will have green ribbons as well. >Wish you were coming, we will miss you but understand about family and health. Hope you are well. >, Mom to - CVID, asthma, GERD > Re: CONFERENCE > > > Dayna Fladhammer wrote: > > Just a question - > > > > was anything ever decided about a ribbon at the confrence? > > > > for the past 2 conferences, we have used green ribbons around our name > tag. Other groups use other colors. That's what Katy will be wearing. > Don't know about anyone else. > > In His service, > dale > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribe@groups<mailto:-unsubscribe@groups>. > To search group archives go to: /messages< /messages> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Dayna Fladhammer wrote: > Just a question - > > was anything ever decided about a ribbon at the confrence? > for the past 2 conferences, we have used green ribbons around our name tag. Other groups use other colors. That's what Katy will be wearing. Don't know about anyone else. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Hi Dale, we will have green ribbons as well. Wish you were coming, we will miss you but understand about family and health. Hope you are well. , Mom to - CVID, asthma, GERD Re: CONFERENCE Dayna Fladhammer wrote: > Just a question - > > was anything ever decided about a ribbon at the confrence? > for the past 2 conferences, we have used green ribbons around our name tag. Other groups use other colors. That's what Katy will be wearing. Don't know about anyone else. In His service, dale This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribe@groups<mailto:-unsubscribe@groups>. To search group archives go to: /messages<PedP\ ID/messages> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Dale, Did you compile a list of all attending the conference. If so would you share it with me?? I am scheduled to arrive Wed PM and will fly out on Sunday. Am coming solo, so would like to hook up with a few people..Think I may get lonely leaving my family, but so much need some time to myself. Re: CONFERENCE Dayna Fladhammer wrote: > Just a question - > > was anything ever decided about a ribbon at the confrence? > for the past 2 conferences, we have used green ribbons around our name tag. Other groups use other colors. That's what Katy will be wearing. Don't know about anyone else. In His service, dale This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 In a message dated 03/07/2005 00:53:41 GMT Daylight Time, julia.andnick@... writes: ditto Mandis Brilliant to Lorene for organising the conference and gettingthe people over - we need a Bob Geldorf to organise some national awarenessof how such a devastating problem can be significantly helped - why can't weget the testing and suppliments on the NHS (my father who has to foot thebill wants to know!...if they were diagnosed with Leukaemia they pay 000'sfor treatment) >>> well, somebody onthe EoH list was just suggesting that Bono (and of course Bob) should know that the vaccine sgoign to africa still have thimersol in. The Austim rates are rising. No good feeding the stavring only to poison them? Worth a shot, can you imagine a Autsim Aid concert, hooked up all around the world, candles and tapestries - cripes, makes me dizzy Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2005 Report Share Posted July 2, 2005 ditto Mandis Brilliant to Lorene for organising the conference and getting the people over - we need a Bob Geldorf to organise some national awareness of how such a devastating problem can be significantly helped - why can't we get the testing and suppliments on the NHS (my father who has to foot the bill wants to know!...if they were diagnosed with Leukaemia they pay 000's for treatment) xxxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Hi, Kitty, There were children there from age 6 and up. They had play exposures for them and made it fun. Games were played tying in ocd and fighting it. Oh and they gave out candy! Sandy Quote Link to comment Share on other sites More sharing options...
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