Hashimoto's Encephalopathy

[Guest guest]

Thanks for the info. I have hashimotos and low free T3. My Dr. just

prescribed liothrionine(sp?), but haven't taken it yet. I had severe setbacks

and rebound anxiety from taking a steroid(methylprednisolone) for an inflamed

sore throat! I don't think I could do steroids! I also have severe

vestibular problems daily. Diagnosed as endolymphatic hydrops at UCLA. My

doc wants me to do heparin from my Hemex results. I don't know what to do!

C.

[Guest guest]

Hi jack,

Dr. Lee, in his book What your doctor won't tell you about Menopause,

has devoted a chapter to the thyroid and its reaction to the estrogen

dominance occurring in our world here in America. The overabundance of

petroleum products (read: plastics), the over-hormonizing of our foods and

HRT cause the thyroid to either decrease almost into atrophy or to flare

without check. Provide your pateint with both the name of his book and the

website addresses of the two websited that deal with the liquid meat portion

of the food-hormonizing.... this combination of information (with its

resultant change of behaviors) has helped several of my pateints restore

balance into their universe.

Good luck to your patient. Sunny

Sunny Kierstyn, RN DC

Fibromyalgia Care Center of Oregon

59 Santa Clara St.,

Eugene, Oregon, 97404

541-689-0935

>From: JPedersenDC <chirodoc1@...>

>oregon dcs < >

>Subject: Hashimoto's encephalopathy

>Date: Sun, 19 Dec 2004 22:51:13 -0800

>

>

>http://www.thyroid-info.com/articles/hashimotos-encephalopathy.htm

>

>the daughter of a friend of mine has this....the 13th person in the US

>to be so Dx'd....

>

>any ideas?

>

>J. Pedersen DC

>

>

>

>

>OregonDCs rules:

>1. Keep correspondence professional; the purpose of the listserve is to

>foster communication and collegiality. No personal attacks on listserve

>members will be tolerated.

>2. Always sign your e-mails with your first and last name.

>3. The listserve is not secure; your e-mail could end up anywhere. However,

>it is against the rules of the listserve to copy, print, forward, or

>otherwise distribute correspondence written by another member without his

>or her consent, unless all personal identifiers have been removed.

>

[Guest guest]

Jack;

There are many cases of Hashimoto's thyroiditis that have been successfully

treated with NeuroModulation Technique (www.nmtseminars). I have treated a

number of these cases with documented resolution indicated by normalization

of TSH levels and thyroid antibodies. In one case TSH dropped from 75 to

normal range in a few months. I have treated many other such cases where

TSH levels were at mid 20's and we were able to get them to normal range in

several months. This was done with NMT and in a few cases we also used

Standard Process thyrotrophin. Hashimoto's encephalopathy is just another

facet of the condition that effects a small percentage of patients but

reflects the same sort of immune system confusion.

Consider letting your friend know about NMT. I would be happy to suggest a

few experienced NMT practitioners that may be close to her location. The

allopathic medical approach is simply to suppress symptoms with steroids and

hope for remission.

Best regards,

Les

Hashimoto's encephalopathy

http://www.thyroid-info.com/articles/hashimotos-encephalopathy.htm

the daughter of a friend of mine has this....the 13th person in the US

to be so Dx'd....

any ideas?

J. Pedersen DC

OregonDCs rules:

1. Keep correspondence professional; the purpose of the listserve is to

foster communication and collegiality. No personal attacks on listserve

members will be tolerated.

2. Always sign your e-mails with your first and last name.

3. The listserve is not secure; your e-mail could end up anywhere. However,

it is against the rules of the listserve to copy, print, forward, or

otherwise distribute correspondence written by another member without his or

her consent, unless all personal identifiers have been removed.

[Guest guest]

Wondering if there is anyone on this forum who knows anything about this and in

particular whether there is a top doctor in this field in the UK.

This relates, not to me thankfully, but to the daughter of a work colleague who

is in her late 20s. Cysts were found on her thyroid, but she made an informed

decision to decline treatment at that stage because she was pregnant. She had

the baby - no problem, but when the baby was about 4 months old (last September)

she was admitted to hospital as an emergency via the Mental Health Crisis Team,

basically 'out of it', fitting and unable to speak. Her GP had been treating

her for PND and she was on Prozac.

Our local hospital couldn't do anything for her so she was moved to the

neurological ward of the nearest teaching hospital. Brain scans have shown

nothing physically untoward, but eventually she was diagnosed with some form of

auto immune encephalitis. Various treatments have been tried, including

chemotherapy, without success. She is basically still in the same state as

when she went in, even though this teaching hospital is taking advice from

another hospital.

In the middle of all of this, her thyroid has been removed, but that has not

improved her condition in any way.

There was talk of rehab, but as she is basically asleep/semi-conscious all the

time and has no memory, the family have been told there is no point. The

hospital say they can do no more and so she is going home to be cared for 24/7

by her parents,which means her Dad giving up work. Her husband has his hands

full working and bringing up two children and I suspect will fade out of the

picture.

I just have this nagging thought...this couldn't all be to do with her thyroid,

could it? Her thyroid issues and overall physical and mental conditions have

always been treated entirely separately by the hospital.

Does anyone have any thoughts?

D

[Guest guest]

>

> Wondering if there is anyone on this forum who knows anything about this and

in particular whether there is a top doctor in this field in the UK.

>

> This relates, not to me thankfully, but to the daughter of a work colleague

who is in her late 20s. Cysts were found on her thyroid, but she made an

informed decision to decline treatment at that stage because she was pregnant.

She had the baby - no problem, but when the baby was about 4 months old (last

September) she was admitted to hospital as an emergency via the Mental Health

Crisis Team, basically 'out of it', fitting and unable to speak. Her GP had

been treating her for PND and she was on Prozac.

>

> Our local hospital couldn't do anything for her so she was moved to the

neurological ward of the nearest teaching hospital. Brain scans have shown

nothing physically untoward, but eventually she was diagnosed with some form of

auto immune encephalitis. Various treatments have been tried, including

chemotherapy, without success. She is basically still in the same state as

when she went in, even though this teaching hospital is taking advice from

another hospital.

> Nudge

> In the middle of all of this, her thyroid has been removed, but that has not

improved her condition in any way.

>

> There was talk of rehab, but as she is basically asleep/semi-conscious all the

time and has no memory, the family have been told there is no point. The

hospital say they can do no more and so she is going home to be cared for 24/7

by her parents,which means her Dad giving up work. Her husband has his hands

full working and bringing up two children and I suspect will fade out of the

picture.

>

> I just have this nagging thought...this couldn't all be to do with her

thyroid, could it? Her thyroid issues and overall physical and mental

conditions have always been treated entirely separately by the hospital.

>

> Does anyone have any thoughts?

>

> D

>

[Guest guest]

The best thing for this might be low dose naltrexone (ldn). This is a drug that is used for getting junkies off heroine. A doctor in New York (Bihari, I think) found out that the junkies he was treating for AIDS were doing very well in spite of their past life style. He investigated this anomally and found out the ldn is very good for people with auto-immune disorders. You should google this and join the ldn support group.

Judging from what you say all this may be related to thyroid problems but in view of her state, the absolute priority would seem to be stopping the auto-immune attack on her brain.

I have always been worried that this could happen to me because I have Hashimoto's disease. My back-up plan was to use LDN.

This drug has already had drug trials carried out on it for toxicological and pharmacological effects. It can also be bought off the Internet. (It's highly unlikely that you will get a prescription from a NHS doctor). I can mail an address to you directly if you want.

I have someone in my family who suffers from un-explained auto-immune attacks on his kidneys. He has had several very long attacks. He is the only person in the UK that has this condition who has survived to adulthood. His specialist has said that if the treatment that he is currently using stops working, the next step is ldn.

I suggest that you also investigate going gluten free. This seems to stop auto-immune attacks of the thyroid. But this is may be not so urgent. Good luck and hope this helps.

MacGilchrist

[Guest guest]

Hi Sheila what a sad story to read.

My personal thoughts are that I agree wholeheartedly with you that the Overall physical and mental conditions in a patient ARE always been treated separately by the doctors. And "Whoa betide" a patient or family who gets the wrath from a consultant or GP when they start asking questions!

My heart goes out to the poor lass and do hope her family have strength conviction and belief that their care is possibly the best care.

Links below may be of some use to you. When I was researching this last year I came across a few links that interested me and below is Dr Utiger at the ATA in 2004 on the subject of "Hashimoto's Encephalopathy and the Brain." "Does Hashimoto's Enphaclopthy Exist?" Apparently Encephalopathy is NOT a recognised manifestation of thyroid dysfunction with the possible exception of "Myxedema coma." Link below...

http://site.blueskybroadcast.com/Client/ata_vancouver/ata_utiger/launch.html

Details of a "Professor Tom , Consultant Neurologist"

The Walton Centre for Neurology and Neurosurgery, Liverpool, UK.

The full online version of this page can be found at http://www.cafamily.org.uk/medicalinformation/conditions/azlistings/h19.html

http://www.cafamily.org.uk

0808 808 3555 - helpline@...Free Contact a Family helpline for parents & families ( Textphone: 0808 808 3556 )10am-4pm Mon-Fri / 5:30 - 7:30pm Mon

Cheers

Jaki

Wondering if there is anyone on this forum who knows anything about this and in particular whether there is a top doctor in this field in the UK. This relates, to the daughter of a work colleague who is in her late 20s. Cysts were found on her thyroid, but she made an informed decision to decline treatment at that stage because she was pregnant. She had the baby - no problem, but when the baby was about 4 months old (last September) she was admitted to hospital as an emergency via the Mental Health Crisis Team, basically 'out of it', fitting and unable to speak. Her GP had been treating her for PND and she was on Prozac. Our local hospital couldn't do anything for her so she was moved to the neurological ward of the nearest teaching hospital. Brain scans have shown nothing physically untoward, but eventually she was diagnosed with some form of auto immune encephalitis. Various treatments have been tried, including

chemotherapy, without success. She is basically still in the same state as when she went in, even though this teaching hospital is taking advice from another hospital. NudgeIn the middle of all of this, her thyroid has been removed, but that has not improved her condition in any way. There was talk of rehab, but as she is basically asleep/semi-conscious all the time and has no memory, the family have been told there is no point. The hospital say they can do no more and so she is going home to be cared for 24/7 by her parents,which means her Dad giving up work. Her husband has his hands full working and bringing up two children and I suspect will fade out of the picture. I just have this nagging thought...this couldn't all be to do with her thyroid, could it? Her thyroid issues and overall physical and mental conditions have always been treated entirely separately by the hospital.

Does anyone have any thoughts?D

[Guest guest]

HI

Could this have anything to do with the 1918 Spanish Flu outbreak which is

similar to the latest swine flu outbreak. They were playing about with the 1918

flu virus and I have often wondered if this escaped from the lab and caused this

swine flu.

Apart from that and along with Spanish influenza ENCEPHALITAS LETHARGICA broke

out and they became like statues and nobody could communicate with them, and all

they could do was to put them in mental institutions.

There were also survivers who developed Parkinson type symptoms.

I looked all this up once as it was about the time my Mother had her mastoid

infection that led on as I think to her brain tumour.

Looking into research about this it was thought that a streptococci infection

caused an autoimmune reaction that affected a protein in the brain.

They also say that cases can still occur today, but that was a terrible epidemic

worldwide and just after the 1st world war.

With myself and before I was ever put on Thyroxine I was put on Tryptafen da and

passed out twice, and a brain scan done at the time indicated that something was

wrong that my local hospital could not diagnose, so I was taken to Atkinson

Morley where I was said to have a form of epilepsy (temporal lobe), so more

drugs were prescribed which caused me to take an overdose about 6-8 weeks later.

Then all drugs were stopped, but then and due to what these drugs had done to me

I refused any more drugs so was given 6 lots of ECT treatment which caused loss

of memory. Just how much memory was obliterated I don't know, but the former

Husband at the time would mention things that I had no memory of (unfortunatley

it did not remove the upsetting memories).

I am trying to point out the aweful effect that drugs can have especially when

no accurate diagnoses is made.

Apart from this episode and since I have become very cautious of a Doctors

prescription, and may well have to pretend to take some if pushed.

My memory is fine today though except getting carried away with one job and

forgetting another (brain fog) or unable to concentrate on two things at a time.

Another thought about the cysts you mention could they have been caused by

calcium deposits, you can get calcium deposits anywhere including the brain.

I also wonder if calcium deposits caused my lung problems in childhood as

nothing can be seen on X-ray.

I think all these problems that a thyroid patient has should be treated under

one roof, as what one specialist does or prescribes may well upset something

else, and treatment should be ok'd by all specialists concerned.

Last of all why was no treatment given to her after the birth, and could Prozac

have caused further damage, and hope somebody can come up with a means of

helping her.

Kathleen (all the best to the family concerned)

> > Wondering if there is anyone on this forum who knows anything about this and

in particular whether there is a top doctor in this field in the UK.

> > D

> >

>