Confused after NHS appointment yesterday

[Guest guest]

My appointment with an NHS Endo yesterday has left me confused and concerned

that I've got it all wrong. I had blood tests at the end of Dec 2010 (taken for

a pre op and I wasn't anticipating having them so they were taken 3 hrs after I

took my meds) that showed biochemical hyper with grossly high TPO antibodies.

Subsequently I dropped my T3 in increments from 40mcg to 20mcg which is what I

have been on since the end of Jan 2011. I also take 150mcg T4. As I have posted

before I started to feel breathless within 3 hrs of the first drop in T3 dose

and this symptom prevails along with aching limbs, fatigue, headaches etc.

So back to yesterday's appointment. I arrive for my appointment early, check in

and am immediately taken for a weigh in and blood pressure. I had just walked up

2 flights of stairs and have to admit my legs were aching and my heart racing.

My pulse was 105 but I don't know what my BP was. I was taken to the waiting

room and sat down and then immediately taken into the Endo as there were no

shows.

The Endo did speak as I entered with my husband but he didn't look up as he was

reading my notes. I had seen this man 5 years ago privately and I can say there

was an immediate difference in the way he greeted me. He wanted me to tell him

in my own words what was going on.

I'd written down key points regarding my symptoms and also had 13 questions. I

was not examined by him; I had thought a physical exam of my neck and reflexes

was the norm? Anyway the Endo worked his way through my questions and this is

where I get really confused.

It seems everything I've read from Dr Lowe and on this forum is the opposite of

what the Endo was saying. He won't test for adrenal fatigue as he doesn't

believe it's an issue and he dismissed the saliva tests out of hand. He also

said antibodies only need to be tested for once and after confirmation of

Hashimotos their levels were irrelevant. He said that the levels fluctuate over

a 10 year period and not on a day to day basis. I asked him if high levels of

TPO could affect the thyroid function and my wellbeing and he said no as the

TPO's didn't affect my meds or something to that end.

He wants to check for underlying lung or heart problems which is now worrying

me. I'd never considered there could be anything other than under treated hypo

at the root of this. He also wanted me to have blood tests and I said to him

that I thought you shouldn't have tests on the same day you had meds and he said

that as 7 hours had passed since I took my T3 that it was ok. He said if my T3

levels were still high we would have to decrease my dose.

So I came away a bit depressed to be honest. I had hoped that today would be the

first step to feeling better but instead it's back to the drawing board. I don't

know who to believe or trust and where to find the 'truth'. I don't understand

how I seem to be more 'hyper' on a lower dose of T3 ie faster pulse and racing

heart after climbing the stairs than I did on double the dose.

I woke up today feeling I've got a lot of research to do and I need to be able

to find info from sources GP's/Endo's will accept as credible. Can anyone help

me please?

Thank you.