Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Hello, You guys advised me to have an Salivary Adrenal Stress test, but on the Genova discounts page it doesnt actually list one of this name. Can I presume you mean *adrenal stress profile*? My candida questionaire result was 68 and so I shall also get that checked, prersume again that's the *candida antibody profile*? What are the other tests listed and are any of them an all in one test or should I have one of each done on it's own merits? Thyroid Screen Thyroid Hormones - T3 & T4 Adrenal Stress Profile Candida Antibody Profile Reverse T3 Before you answer can I ask you to take a quick look at my first post with subject *New and seeking diagnosis* a few days back. Sorry if the questions seem a bit dense but I tend to work best in black or white I also have a friend who has now gone down with terrible anxiety/depression issues after 3 long years of adrenal/immune system breakdown which no one seems to know why. I am now suspecting undiagnosed thyroid issues and maybe I should get them to take the *proper* tests as advised here, again should it be *all* of them? Here is a summary I posted a few years back on a CVID forum *********************** She Had brain haemorrhage when she was 18 (25 years ago) they operated, which was successful and she has been on phenytoin (300mg) and 400mg tegretol twice daily, since then without any real problems, managing to live a reasonably full and healthy life. Mid 2006 her body temperature started to drop, often to below 36c, where she would get very cold, and sometimes shivers. They gave her antibiotics for a few weeks in hospital and it did not seem to help, though her temperature did go back up after a fashion. It now keeps dropping (sometimes down to 34.5) and we cant seem to find out why, but is definitely worse during (normal: ie making decisons etc) stressful situations. She has had scans etc and her adrenal glands (the knobbly bit on top) was quite small, so the doctor thought maybe this was the problem and started her on Cortisol till her levels came back up......this all happened over a period of the last 6 months or so, all the time her immune system was at zero, and she would come out, stay out for six weeks, catch something else and end up back in hospital for two or three months (this has gone on for four years now, with 70% of the time in hospital) so we're not sure we are on the right track, but with her system this low the stats could mean many things. Anyway I have frantically been searching the net and came across B12 deficiency problems ( we are both veggies but eat good foods) it turns out in addition to problems with being veggie, the phenytoin also knocks B12 for six. Eventually managed to get the doc to properly check her B12 levels (not just the ordinary blood test) this reveals her B12 levels are very low at 105, so at last we have something real to look for. It may or may not be the cause of her problems, but it's something to go on at least. Doc has put her on injections for the last week but the levels had only gone up to 135, he has now doubled the dose for another 3 or 4 days, aiming for 200. She had a stressful situation last week and her temp dropped again, but she is now around 36.4 again. In the last 6 or 7 months she has been in isolation hospital for about 5 months in all, on and off, up to 6 weeks at a time. She picks up, goes home and then catches something else that knocks her for six. Then back into hospital for another few weeks. This time it was a severe asthma attack. Just to clarify to all concerned we do eat and drink very healthily (Vegetarian), and also have recommended daily allowance of omega 3 via flaxseed oil, Vitamin C, Vitamin E Lots of pure fruit juices, none to excess. Very aware of our bodies and keen to live good, wholesome lives inside and out where possible, with plenty of fresh air and walks. We are quite confident it's not a dietary/lifestyle problem. We are aware the phenytoin is a real problem these days, but sadly her consultant had not been in touch for about 5 years (he'd left), and of course she lost touch as well, until I came along two years ago. I got her back to seeing the consultant and we tried to wean her off the phenytoin gradually. She was on 350mg split twice a day (plus 400mg tegretol twice daily). Dropped it to 300 for a few weeks and all appeared OK, dropped it again to 250mg and she started getting weird neurological problems, so we went settled for 300mg and she appears fine on that basis for a good few months, although since then she has also presented with this possible adrenal problem (any connections I wonder?).............We do appreciate she really must try and get off the phenytoin, but it is a very slow process I fear, unless anyone knows different? During this current problem, which by the way seems to stem from some form of adrenal crisis, she has often presented with anaemia. Various doses of iron supplement appear to make very little difference, so presumably that's not the problem. Endocrinologist put her on cortisol for four weeks and this also apparently made little difference. The latest we have is the B12 deficiency. Her B12 is very slowly creeping back up with the injections to around 200. This increase is making no difference to her low temperature though. She is currently maintaining B12 levels as normal. The consultant (Endocrinologist) seems to feel all her stats are at normal ranges now, but having said that he had no idea about the B12 until pushed. The same consultant has been dealing with her consistently and we are really none the wiser now, and he does seem to have tried everything, He really doesn't know what to try next or who to pass the case on to. I have booked her in to immunotherapy specialists to help her allergy/asthma problems but this is a long term treatment and we're none too sure there is any connection. Currently she has been in hospital for 2 months with a consistent temperature of 35.8 to 35.9. Occasional blips to 36.0 but doesn't last longer than a day and so she needs to stay in hospital in isolation. Latest news is the haematologist has discovered her antibodies are low and diagnosed CVID (Common Variable Immunodeficiency) and treatment will start straight away so obviously no results yet. ************************************************ This was posted after the first year, and we're now at the fourth year and still no further on really. Sadly she has now had a complete breakdown due to serious anxiety/depression issues and again I suspect this is a consequence of her illness rather than being *the illness*. We now cannot talk or MSN because she just gets hyper and almost feels like she is having a heart attack. She is currently going through the range of antidepressants etc trying to find one that works. What do you think? Shall I get her to take the tests, and which ones again? Thanks Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2011 Report Share Posted June 14, 2011 Anybody please answer this? > > Hello, > > You guys advised me to have an Salivary Adrenal Stress test, but on the Genova discounts page it doesnt actually list one of this name. Can I presume you mean *adrenal stress profile*? My candida questionaire result was 68 and so I shall also get that checked, prersume again that's the *candida antibody profile*? What are the other tests listed and are any of them an all in one test or should I have one of each done on it's own merits? > > Thyroid Screen > Thyroid Hormones - T3 & T4 > Adrenal Stress Profile > Candida Antibody Profile > Reverse T3 > > Before you answer can I ask you to take a quick look at my first post with subject *New and seeking diagnosis* a few days back. Sorry if the questions seem a bit dense but I tend to work best in black or white > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 is money no object? yes adrenal stress profile = adrenal stress test >prersume again that's the *candida antibody profile*? yes The thyroid screen is 24 hr urinary thyroid, correct me if i'm wrong, and shows how much T4 and T3 you used/produced over 24 hours, versus the T3+T4 test, which is a snapshot of your blood levels of both at a particular time? Some people have Reverse T3 dominance, which the test of the same name shows http://www.stopthethyroidmadness.com/reverse-t3/ the tests soon add up when you start doing them like this....this probably doesn't help you but i had all these tests and many more (bar adrenal stress profile and RT3) done for about 400Euro, but i went to a foreign clinic chris > > You guys advised me to have an Salivary Adrenal Stress test, but on the Genova discounts page it doesnt actually list one of this name. Can I presume you mean *adrenal stress profile*? My candida questionaire result was 68 and so I shall also get that checked, prersume again that's the *candida antibody profile*? What are the other tests listed and are any of them an all in one test or should I have one of each done on it's own merits? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 i'd also get the testosterone saliva test if money were no object! chris > > Anybody please answer this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 Sorry what is the question? i'd also get the testosterone saliva test if money were no object!chris>> Anybody please answer this?> Quote Link to comment Share on other sites More sharing options...
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