Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 Hi Paolo, Yes, have these problems when on thyroxine only. As soon as I have some T3 it stops and I am fine. My symptoms when on thyroxine only is constipation and then the runs. I might not go for three, four or five days and then the next two I am constantly running to the toilet. Then I don't go for several more days and the pattern continues. I know it is the T3 because when I first started on T3 it stopped and I was perfectly normal. Then a few years later my GP insisted I stopped the T3. Within a few days of stopping it, I got the IBS symptoms again, which lasted for several months until I just had to start taking the T3 again. Straight away I was back to normal. Therefore there is no doubt in my mind that in my case it is the lack of T3 which was causing my problem. Incidentally when I had a private blood test done because the NHS would not test T3 because TSH was within range, it showed that my T3 was below range. Other things cleared up with taking the T3 but nothing so dramatically as my digestive system. Lilian Anyone else got any experience of this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 > > Hi Paolo, > > Yes, have these problems when on thyroxine only. As soon as I have some T3 it stops and I am fine. > ***** rest of old message deleted by moderator************ Thanks for the reply, any doctors or value experts out there? Last bloods: TSH - 11.021 Free T4 - 14.9 I've heard/read a lot about the magic of T3, how can I get this prescribed in Northern Ireland? I mean I expected a TFT would measure this, but it wasn't requested. I've had this since I was 15 and honestly feel it's had a bit part to play in my life despite 'treatment'. Any advice? I'm 30 now! P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 Hi Paolo, With a TSH of 11 is your doc considering a dose increase? if not then why not- this is ridiculously high- most healthy folk have a TSH of 1.0. What meds are you currently taking? The problem as always is that FT3 was not tested so it's hard to say if you have a need for T3 alone. I would suggest the you have a good read of the forum files to see if there are other factors such as adrenals, candida or vit and mineral deficiency that are complicating the issue. > thyroid treatment > From: pao1o@...> Date: Fri, 13 May 2011 10:07:00 +0000> Subject: Re: Diarrhea/IBS with hypo?> > > > >> > Hi Paolo,> > > > Yes, have these problems when on thyroxine only. As soon as I have some T3 it stops and I am fine.> > ***** rest of old message deleted by moderator************> > > Thanks for the reply, any doctors or value experts out there?> > Last bloods:> > TSH - 11.021> Free T4 - 14.9> > I've heard/read a lot about the magic of T3, how can I get this prescribed in Northern Ireland? I mean I expected a TFT would measure this, but it wasn't requested.> > I've had this since I was 15 and honestly feel it's had a bit part to play in my life despite 'treatment'. Any advice? I'm 30 now!> > P.> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 > > > Hi Paolo, > With a TSH of 11 is your doc considering a dose increase? if not then why not- this is ridiculously high- most healthy folk have a TSH of 1.0. What meds are you currently taking? > The problem as always is that FT3 was not tested so it's hard to say if you have a need for T3 alone. I would suggest the you have a good read of the forum files to see if there are other factors such as adrenals, candida or vit and mineral deficiency that are complicating the issue. > > I'd been on 100mg and 150mg alternating every day and he put the 100mg up to 125mg, I'm 6ft 1' and 13 stone. Can't help thinking that I should be on 150mg every day at least. New bloods due in 6 weeks or something after the increase. I kind of let my monitoring slip after a while after my mother passed away, was very unmotivated and stuff. Think that bothers me is that as a kid I was as fit as a butcher's dog, although I was very daydreamy in school. I got cortisol tested too, everything barring the TSH is in 'the normal range' (NHS). I'm just sick of struggling my way through days, I feel like I've not achieved my potential due to difficulty in concentrating etc. growing up and it's quite frustrating now. I've lacked motivation for as long as I can remember despite being quite intelligent and capable. Candida is something I think could be an issue, but again, I think this is too 'wishy washy' for my GP. I know how I feel. I want to get my TSH down to a level that I feel good on that is not necessarily 'in the normal range' somewhere, I think mine might need to be near the very top. Very frustrating. Thanks for the input. P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 > > > Hi Paolo, > With a TSH of 11 is your doc considering a dose increase? if not then why not- this is ridiculously high- most healthy folk have a TSH of 1.0. What meds are you currently taking? > The problem as always is that FT3 was not tested so it's hard to say if you have a need for T3 alone. I would suggest the you have a good read of the forum files to see if there are other factors such as adrenals, candida or vit and mineral deficiency that are complicating the issue. > > > > > > > > > > > I'd been on 100mg and 150mg alternating every day and he put the 100mg up to 125mg, I'm 6ft 1' and 13 stone. Can't help thinking that I should be on 150mg every day at least. New bloods due in 6 weeks or something after the increase. I kind of let my monitoring slip after a while after my mother passed away, was very unmotivated and stuff. Thing that bothers me is that as a young kid I was as fit as a butcher's dog, although I was very daydreamy in school. I got cortisol tested too, everything barring the TSH is in 'the normal range' apparently (NHS). I'm just sick of struggling my way through days, I feel like I've not achieved my potential due to difficulty in concentrating etc. growing up and it's quite frustrating now. I've lacked motivation for as long as I can remember despite being quite intelligent and capable. Candida is something I think could be an issue, but again, I think this is too 'wishy washy' for my GP. I know how I feel. I want to get my TSH down to a level that I feel good on that is not necessarily 'in the normal range' somewhere, I think mine might need to be near the very top. Very frustrating. Thanks for the input. P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2011 Report Share Posted May 13, 2011 Hi Paolo, i went to my doctors last october complaining of sudden bowel changes of diarrhea and a very gassy smelly type stomach 4 months after giving up smoking and my doc referred me to a gastro specialist. I told him my symptoms and said i had put on a stone and i was given a colonoscopy and tested for microscopic colitis and they were normal and my bowels were fine, a week later i was told i had an underactive thyroid and they were going to retest me in 4 weeks time to see if my results would change. In the meantime i went to see a natural practitioner and she asked me what blood group i was and i said " 0 " she said a lot of o types have a dairy and gluten intolerance which can be triggered by giving up smoking. So i decided to cut down on milk and only have a bit in my coffee and i use soya milk and i try to eat as little gluten as i can until i can afford to get tested properly for these and have found my stomach is not as bad a it was. I do get days where it flares up but i find them days are the ones whrere i am feeling low within myself. I am still not on medication yet as i have chosen to try Ertha and waiting for it to arrive (i have Hashi " s) Several family members of mine all have this condition and take thyroxine and suffer similar symptoms so i am hoping they will subside if i can settle on Ertha. I have just joined this group so i am still learning myself, thought i would share my experience. Hope this helps love Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 It is very difficult to change only one factor at a time in the diet, so maybe it is not simply a reduction in gluten that is bringing some benefits. You might be experiencing some improvement because you are cutting out gluten, or it might be wheat which is a problem for you, or you might be better without grains, or maybe having less carbohydrate is improving your digestion. If you have dysbiosis (bad bugs in the gut) then reducing carbs will help as most bad bugs thrive on carbohydrate. I would suggest doing some dietary experiments to see which factors are involved. Obviously taking the right level of thyroid hormone will help optimise your digestion, but it is not the answer to everything. Miriam > Since I stopped eating gluten (after the blood tests), diarrhetic episodes have decreased a lot in frequency and I'm less windy...wondering what else it could be as constipation is the symptom associated with hypo. It was always put down to 'bad guts', but this has been an issue for a long long time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 None of your family should be taking levothyroxine only if they are suffering with Hashimoto's thyroiditis. They should be on a gluten free diet and treating their symptoms of hypothyroidism with some form of T3, either synthetic or in natural thyroid extract. Buy the book " Why do I still have Thyroid Symptoms when my Lab Tests are Normal " by Dr Datis Kharrazian which you can get cheaply through Amazon. Use the link on our web site www.tpa-uk.org.uk (in the right hand column under TPA News') to find the link and TPA will get 5%. After you have read it, you can then pass it around your family. Luv = Sheila Hi Paolo, i went to my doctors last october complaining of sudden bowel changes of diarrhea and a very gassy smelly type stomach 4 months after giving up smoking and my doc referred me to a gastro specialist. I told him my symptoms and said i had put on a stone and i was given a colonoscopy and tested for microscopic colitis and they were normal and my bowels were fine, a week later i was told i had an underactive thyroid and they were going to retest me in 4 weeks time to see if my results would change. In the meantime i went to see a natural practitioner and she asked me what blood group i was and i said " 0 " she said a lot of o types have a dairy and gluten intolerance which can be triggered by giving up smoking. So i decided to cut down on milk and only have a bit in my coffee and i use soya milk and i try to eat as little gluten as i can until i can afford to get tested properly for these and have found my stomach is not as bad a it was. I do get days where it flares up but i find them days are the ones whrere i am feeling low within myself. I am still not on medication yet as i have chosen to try Ertha and waiting for it to arrive (i have Hashi " s) Several family members of mine all have this condition and take thyroxine and suffer similar symptoms so i am hoping they will subside if i can settle on Ertha. I have just joined this group so i am still learning myself, thought i would share my experience. Hope this helps love Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Ali,With thyroid problems any kind of soya products should be avoided as they have a tendency to make it worse. Fermented soy (such as soy sauce) is OK though. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Hi Paolo, To go back to the original question I presented to my GP having had diarrhoea for months (wasn't that worried as I didn't lose any weight!) To cut a long story short my intestines were O.K but the bloods found I I was HypoT. On Levo for 3 years, although the bowel problems were here and there,the other hypo probs got worse the longer I took it. Found this site, read Dr Peatfields book - Your thyroid and how to keep it healthy, was lucky enough to see Dr Peatfield, started on NDT and adrenal support and am now much improved. Not quite there but working on it as it is still early days. Please try and read the book as it is very easy to read and informative, and gives you the whole picture. With regard to Doctors I think Shiela has a list of helpful Doctors. Regards, Tina. --- In thyroid treatment , " Paolo " <pao1o@...> > TSH - 11.021 > Free T4 - 14.9 > > I've heard/read a lot about the magic of T3, how can I get this prescribed in Northern Ireland? I mean I expected a TFT would measure this, but it wasn't requested. > > I've had this since I was 15 and honestly feel it's had a bit part to play in my life despite 'treatment'. Any advice? I'm 30 now! > > P. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.