Re: anyone else with thyroid resistance ?

[Guest guest]

Hi Mark, I haven't started T3 yet. Just waiting - Dr P has also said I'll need to go on it so I'm just waiting for the pills to arrive and to see Dr P in 2 weeks time. He said I just don't have enough cortisol to convert T4 to T3 - I don't know if that's the same as resistance. Will be interested to hear how you get on. What dose are you starting on? Are you on NAX aswell or hydrocortisone?Best wishes Alison>> Hi,> > Dr P has started me on T3 only for thyroid resistance, just wondering if there is anyone else out there with a similar experience?>

[Guest guest]

Hi Mark, I changed to T3 9 months ago because of thyroid resistance. I'd

recommend Nick T3 website for advice on changing to T3.

http://thyroid-rt3.com/

Judy

>

> Hi,

>

> Dr P has started me on T3 only for thyroid resistance, just wondering if there

is anyone else out there with a similar experience?

>

> Cheers,

>

> Mark

>

[Guest guest]

I take both NDT with additional 40mcgs of T3....its fab....do it slowly and gently and split the dose I think is the secret with T3...find your own personal best way of taking it. Dont be frightened of it, it really helps..Sally xx Oh and I agree about the web site below....xx

I'd recommend Nick T3 website for advice on changing to T3. http://thyroid-rt3.com/> Dr P has started me on T3 only for thyroid resistance, just wondering if there is anyone else out there with a similar experience?

[Guest guest]

Hi Alison,

Thanks for replying. I am on 3 NAX every morning, HC and I'm on 12.5mcg of T3.

So far no effects good or bad (except the HC which I already knew makes me

tired). This week I up the dose to 25mcg...

But actually it doesn't sound like you have resistance, just conversion

problems!

Cheers,

Mark

>

> Hi Mark, I haven't started T3 yet. Just waiting - Dr P has also said

> I'll need to go on it so I'm just waiting for the pills to arrive and to

> see Dr P in 2 weeks time. He said I just don't have enough cortisol to

> convert T4 to T3 - I don't know if that's the same as resistance. Will

> be interested to hear how you get on.

[Ed]

[Guest guest]

Thanks Judy. Actually I am not " changing " but starting for the first time

straight on T3 (never had thyroid hormones before).

CHeers,

Mark

>

> Hi Mark, I changed to T3 9 months ago because of thyroid resistance. I'd

recommend Nick T3 website for advice on changing to T3.

> http://thyroid-rt3.com/

[Ed]

[Guest guest]

Hi Sally,

Thanks for the advice. I think my problem is more that I am impatient and want

to increase the dose faster! But I know that is a bad idea, so I am following Dr

P's advice. Actually the main website I have been using is:

http://www.drlowe.com/

which I recommend if no one has seen it. I think Dr Lowe recommends T3 only for

thyroid resistance. Have you got a standard hypothyroidism as well as

resistance?

Cheers,

Mark

>

>

>

>

>

> I take both NDT with additional 40mcgs of T3....its fab....do it slowly and

> gently and split the dose I think is the secret with T3...find your own

personal

> best way of taking it.  Dont be frightened of it, it really helps..Sally xx 

Oh

> and I agree about the web site below....xx

>

>  

>  I'd recommend Nick T3 website for advice on changing to T3.

> http://thyroid-rt3.com/

>

>

> > Dr P has started me on T3 only for thyroid resistance, just wondering if

there

> >is anyone else out there with a similar experience?

>

[Guest guest]

You are not alone Mark, there are many, many sufferers of the

symptoms of hypothyroidism who are suffering with thyroid hormone resistance at

the cellular level and who need 3 only. Be guided by Dr P, and read

Pritchard's papers in our web site, you will find them all under 'Information

for Physicians' www.tp-auk.org.uk

Luv - Sheila

Dr P has started me on T3 only for thyroid resistance, just wondering if there

is anyone else out there with a similar experience?

Cheers,

Mark

[Guest guest]

Hi Mark,

Yes that is always a problem...patience...tehe. I think most of us could do with more and since we know it will help us feel better of course there is an incentive to improving ASAP...!! tehe. But patience is most definately the key word here...and you know that so sit on your hands and let your body do what it has to do in its own good time....its like waiting for Christmas when your a kid. xx

Yes I know that site. Excellent.

I have a conversion problem it seems.....although I will try time and again to reduce the T3 and see if I can...maybe as my body 'heals' itself this MAY improve...I am hoping anyhow! tehe. Sally xx

Thanks for the advice. I think my problem is more that I am impatient and want to increase the dose faster! But I know that is a bad idea, so I am following Dr P's advice. Actually the main website I have been using is:http://www.drlowe.com/which I recommend if no one has seen it. I think Dr Lowe recommends T3 only for thyroid resistance. Have you got a standard hypothyroidism as well as resistance?> Â > Â I'd recommend Nick T3 website for advice on changing to T3. > http://thyroid-rt3.com/> >

[Guest guest]

12.3mcgs T3 is a very baby dose. How long have you been taking this

dose and when has it been recommended that you increase this to 25mcgs?

Luv - Sheila

Hi Alison,

Thanks for replying. I am on 3 NAX every morning, HC and I'm on 12.5mcg of T3.

So far no effects good or bad (except the HC which I already knew makes me

tired). This week I up the dose to 25mcg...

But actually it doesn't sound like you have resistance, just conversion

problems!

Cheers,

Mark]

[Guest guest]

Hi Mark

I'd be interested to know what your results were? Are you going to be taking

any other meds?

chris

>

> Cheers Sheila, nice to know and I will look forward to reading that stuff.

>

> Mark

[Guest guest]

Hi

All of my thyroid results are in the middle of the reference ranges and no

antibodies - i.e. I am euthyroid. I will dig them out if you want the numbers.

My cortisol and DHEA showed up low on a saliva test:

Cortisol:

Sample 1: 9.5 (12-22)

Sample 2: 5.0 (5.0-9.0)

Sample 3: 4.6 (3.0-7.0)

Sample 4: 1.5 (1.0-3.0)

Total Daily Cortisol: 20.6 (21-41)

Mean DHEA: 0.2 (0.4-1.47)

DHEA to Cortisol Ratio: 0.97 (2.0-6.0)

Cheers,

Mark

> >

> > Cheers Sheila, nice to know and I will look forward to reading that stuff.

> >

> > Mark

>

[Guest guest]

That's fine Mark - you might even find that you need even more

than 100mcgs T3. if ever you reach a stage when you find yourself suddenly

suffering with palpitations, sweating, getting dizzy, feeling 'spaced out' and

generally hypERthyroid symptoms between 2 to 3 hours after taking an increase

in the morning, then don't take any more that day, and the following day, go

back to the dose you were on before the latest increase. This is the way your

body finds out exactly how much T3 it actually needs. As the dose gets higher,

you might find it better to take your T3 in three or even four doses throughout

the day.

Luv - Sheila

I have only been taking it for 5 days! After the first week I am to double the

dose, then I have another appointment. I have read that some people with

thyroid resistance go as far as 100mcgs. It will be interesting to see how far

I have to go over the coming months.

Cheers,

Mark

[Guest guest]

Hi

Further tp my last reply, this morning got my first ever rT3 results and it is

high, so looks like I've got a rT3 problem. For your info:

ENDOCRINOLOGY

TOTAL THYROXINE(T4) 118 nmol/L 59 - 154

THYROID STIMULATING HORMONE 2.00 mIU/L 0.27 - 4.2

FREE THYROXINE 20.0 pmol/l 12.0 - 22.0

FREE T3 5.0 pmol/L 3.1 - 6.8

IMMUNOLOGY

THYROID ANTIBODIES

Thyroglobulin Antibody 14.5 IU/mL 0-115(Negative)

Please note amended reference range due to

change in methodology.

Method used for Anti-Tg: Roche Modular

Thyroid Peroxidase Antibodies 12.6 IU/mL <34 (Negative)

SPECIAL PATHOLOGY

REVERSE T3 *0.42 ug/l 0.09 - 0.35

Cheers,

Mark

>

> Hi Mark

>

I'd be interested to know what your results were? Are you going to be taking

any other meds?

>

> chris

[Ed]

[Guest guest]

Are you taking Thyroxine only supplement?

If so this can commonly cause a raised T4 and raised rT3.....

Its likely you need some supplement with T3 contained in it.

Sally xx

Further tp my last reply, this morning got my first ever rT3 results and it is high, so looks like I've got a rT3 problem. For your info:ENDOCRINOLOGYTOTAL THYROXINE(T4) 118 nmol/L 59 - 154THYROID STIMULATING HORMONE 2.00 mIU/L 0.27 - 4.2FREE THYROXINE 20.0 pmol/l 12.0 - 22.0FREE T3 5.0 pmol/L 3.1 - 6.8IMMUNOLOGYTHYROID ANTIBODIESThyroglobulin Antibody 14.5 IU/mL 0-115(Negative)Please note amended reference range due tochange in methodology.Method used for Anti-Tg: Roche ModularThyroid Peroxidase Antibodies 12.6 IU/mL <34 (Negative)SPECIAL PATHOLOGYREVERSE T3 *0.42 ug/l 0.09 - 0.35

[Guest guest]

Hi Mark, then I'm sure you see a big difference in your health. It's still a

good website for T3 info though. Judy

> Thanks Judy. Actually I am not " changing " but starting for the first time

straight on T3 (never had thyroid hormones before).

[Guest guest]

Great to hear, thanks!

Mark

>

> Hi Mark, then I'm sure you see a big difference in your health. It's still a

good website for T3 info though. Judy

>

> > Thanks Judy. Actually I am not " changing " but starting for the first time

straight on T3 (never had thyroid hormones before).

>

[Guest guest]

Hi Sally,

No don't worry I have never taken one and am on T3 only.

Cheers,

Mark

>

>

>

> Are you taking Thyroxine only supplement?

>  

> If so this can commonly cause a raised T4 and raised rT3.....

> Its likely you need some supplement with T3 contained in it.

>  

> Sally xx

>

> Further tp my last reply, this morning got my first ever rT3 results and it is

> high, so looks like I've got a rT3 problem. For your info:

>

> ENDOCRINOLOGY

>

> TOTAL THYROXINE(T4) 118 nmol/L 59 - 154

> THYROID STIMULATING HORMONE 2.00 mIU/L 0.27 - 4.2

> FREE THYROXINE 20.0 pmol/l 12.0 - 22.0

> FREE T3 5.0 pmol/L 3.1 - 6.8

>

> IMMUNOLOGY

>

> THYROID ANTIBODIES

> Thyroglobulin Antibody 14.5 IU/mL 0-115(Negative)

> Please note amended reference range due to

> change in methodology.

> Method used for Anti-Tg: Roche Modular

> Thyroid Peroxidase Antibodies 12.6 IU/mL <34 (Negative)

>

> SPECIAL PATHOLOGY

>

> REVERSE T3 *0.42 ug/l 0.09 - 0.35

>

[Guest guest]

Hi Mark; There are a number of us about with thyroid resistance, At the

moment I take 125 mcg T3 daily. I did develop rt3 problems on Thryoid S/T3 last

year and went on T3 only in October. (I use the mexican Cynomel). Whilst

clearing my rT3 I got up to 175 mcg T3 very briefly with no hyper symptoms at

all. After clearing I leveled out at 125mcg T3. I noted that you don't have

rt3 but can I suggest you have a look at the rt3-t3 site. It is a fountain of

information particularly for those of us that need high doses of thyroid meds.

I was fortunate enough to see the lovely Dr. Peatfield a few years ago and

certainly credit him and this site for giving me back my life. You won't go

wrong by following his guidelines.

Kind regards

Jane

> >

> > Hi Mark, then I'm sure you see a big difference in your health. It's still a

good website for T3 info though. Judy

> >

> > > Thanks Judy. Actually I am not " changing " but starting for the first time

straight on T3 (never had thyroid hormones before).

> >

>

[Guest guest]

Great and interesting to hear, thanks Jane.

Mark

>

> Hi Mark; There are a number of us about with thyroid resistance, At the

moment I take 125 mcg T3 daily. I did develop rt3 problems on Thryoid S/T3 last

year and went on T3 only in October. (I use the mexican Cynomel). Whilst

clearing my rT3 I got up to 175 mcg T3 very briefly with no hyper symptoms at

all. After clearing I leveled out at 125mcg T3. I noted that you don't have

rt3 but can I suggest you have a look at the rt3-t3 site. It is a fountain of

information particularly for those of us that need high doses of thyroid meds.

>

> I was fortunate enough to see the lovely Dr. Peatfield a few years ago and

certainly credit him and this site for giving me back my life. You won't go

wrong by following his guidelines.

>

> Kind regards

> Jane

[Guest guest]

Hi Mark

not sure if Im resistant or not. I took smaller doses of thyroxine and my TSH

went down instead of up so somethings wrong, just not clear what yet, also have

adrenal exhaustion and low T3 so think Im probably in there somewhere!

Carole

>

> Hi,

>

> Dr P has started me on T3 only for thyroid resistance, just wondering if there

is anyone else out there with a similar experience?

>

> Cheers,

>

> Mark

>

[Guest guest]

Hi there, the TSH will go down if on the right dose of thyroid medicines. if it go`s up then this is a sign that you may be under medicated. or their could be some other reason.! Angel.