Re: Slow Responder/Vicki

[Guest guest]

At 06:39 PM 1/25/07 +0000, you wrote:

>,

>Thanks for the good info! I agree--a doctor should welcome the

>chance to hear from Dr Druker or anyone of his caliber. I think my

>doctor will play ball--she is really smart, but just hasn't had a lot

>of experience with the illness or Gleevec.

Hi Vicki,

Many of us have moved on from our initial hem/oncs.......your's may be

fine, but this is about us and our CML and not about them. My present local

onc is in awe of Dr. Druker and always says " I hear he might get a Nobel

prize " ......he would never question what Dr. D wants whereas a previous onc

always challenged what he said (so I fired him).

>So, we will see. I think

>my insurance will even cover him. I have been looking at OHSU

>website and it looks fantastic. My husband is excited about the trip

>and so am I.

>

>By the way, my niece is attending UofO in Eugene--and my brother-in-

>law's father used to be Dean there--Dr Burton Moyer (back in the

>1970s), so it is a town we know and love! My father-in-law grew up in

>Coos Bay--sort of a family connection with Oregon, you might say, and

>now one more!

Eugene is a great town....and also has lots of alternative/complementary

medicine. Also, when you are an OHSU patient, you have good access to their

oncology pharmacist to ask about drug interaction, etc. Many people, even

doing very well, have seen Dr. D just for peace of mind! it is worth the

price.

Best to you,

C.

>Thanks again.

>Vicki

>

>

> > >, now that is a great idea! I have wanted to meet Dr Druker,

> > >just to thank him for his work--but to actually see him would be

> > >incredible. It is funny--my husband actually made a joke about that

> > >when I was first diagnosed, but then he later told me he thought it

> > >would be great to go see Dr Druker and just see what he thought. I

> > >think we might just do that! Thanks for the great brainstorming on

> > >my behalf! Your 2 cents worth is much appreciated, and may be worth

> > >much more than 2 cents!

> >

> > Vicki,

> > You could ask your present onc to make the referral and get the

>appointment

> > set up or you can actually call and do it yourself.............but

>you do

> > want a home 'onc', whether that it present one (if she will play

>2nd

> > fiddle!) or another one.......or even just a place to get blood

>work. I

> > live 100mi from Portland in Eugene, OR....I do have an onc

>here....who I

> > really never see. I have a standing order for bloodwork at a lab

>that is

> > faxed to OHSU and then I see Dr. D every 3 months (I have almost

>always

> > been on a trial). If you can't get into Dr. D soon enough to suit

>you, the

> > other 2 CML specialists (Mauro, and Deininger ?sp) are also great.

>Let me

> > know if you need a phone # at all.

> >

> > PS A good home onc welcomes the chance to co-Rx a patient with a

> > specialist like Dr. Druker....if she is offended it is her own

>insecurity.

> > Here is her chance to learn more about CML and Rx.

> >

> > C.

> >

>

> -->