New and need advice

September 12, 2001

Hi. I too am not an expert. But I think Judy is

right on the mark. Get a competent OCD therapist who

specializes in children. It will make life a lot

easier and enable your son to boss back his OCD.

There are some good books that you can use as a

reference.

in MA

--- Judy Lovchik <jlovchik@...> wrote:

> I waited awhile to see if anyone else would be

> helping you, but I think they are pretty

> pre-occupied with today's tragedies. I'm not the

> best advice giver in the group, so be patient--help

> will be forthcoming.

>

> But for starters, you desperately need a competant

> OCD therapist for your child pronto. And a talented

> pediatric psychiatrist, in my opinion. (You will

> probably have to find these yourself--the school

> psychologists are rarely helpful. Look on the

> OCFoundation website or ask people on this list from

> Connecticut to recommend someone.) Your medical

> insurance may not cover these, but you need them.

> These resources will help you get on the road

> to recovery. There are books and stuff that people

> here will recommend, and they are very good. And

> stay on this list--reading what others have to say

> will be extremely helpful. There are also digest

> versions of this email list, and probably archives,

> so you can get up to speed more rapidly. The list

> moderators can help you with this.

>

> Don't expect the school personnel to be very

> knowledgeable, because usually they are not.

> Sometimes they are actually obstacles to your

> child's progress. You will have to learn to work

> with them and around them to get the help and

> accomodations he needs. Many people on this group

> have been through these experiences and will give

> you good practical advice in dealing with the

> school.

>

> Good luck--my prayers are with you.

>

> Judy in Baltimore

>

> need advice

>

> hi everyone! i am new too the group and i have

> never posted before. i

> live in connecticut and today i had a meeting with

> my son's teacher

> and social worker and psycholgist. it was

> originally supposed to be

> the teacher but those other people wanted too be

> in on it. well

> needless to say the meeting did not go well at

> all. allen who is 8

> years old is having a hard time. allen picks his

> skin alot and he has

> cut on his arm and legs. alot of people as if he

> has chicken poxs

> that is how bad it is. kids are teasing him too

> and i feel so bad for

> him. i can't put this child in long sleeves

> everyday because it is

> still warm out. i don't know what i can do too

> help him stop picking

> and making it worse. i need some advice on this.

> each time i tell him

> too stop doing it he just goes right back too it

> in a few minutes.

> thanks for your time.

>

__________________________________________________

December 12, 2001

Hi again, I read your messages in the wrong order

but I would like to try to help you with both

questions. I had CP for 2 years and I am recovering fine. I

know how hard is it and I imagine is even worse for a

12 years old... Anyway, - I really believe is

basketball what hurts the knee because easy swim is

recomended to help the CP condition and because the patella

doesn´t suffer inside the water but it suffers with the

impact on a basketball game. - Braces and tapes help

under supervision of a orthopedic dr but do not cure.

What cures CP is daily exercises (the right ones

controlled by a PT). When she can not walk is better that

she rest with the knee up on a table and it it is

swollen put some ice on it but be careful with the burn.

Never use ice for longer than 10 or 15 minutes. For

pain I usually take ibuprofen, 600 mg every time twice

a day that sometimes do not work at once! good

luck marga

December 12, 2001

I have read on many websites that Chondromalacia

has to be found from Surgery.. not just by Xrays or

MRI's.. Is this really true? I visited the post that was

on here about Patello Femural Syndrome and thats

what was said.

December 12, 2001

Well, I think the answer is " yes and no " . I think

that an MRI can show reasonably serious cases of

chondromalacia. An X-ray could only hint at it if the space

between the patella and the femur were reduced, but I'm

just guessing here. The point that I believe the

article was trying to make is that CP should only be a

surgical finding, not a diagnosis for anterior knee pain.

Degraded cartilage, in and of itself, does not cause pain.

Cartilage has no nerves, hence it cannot hurt. If it is

serious enough such that there is a lesion and there is

bone on bone contact, then there can be serious pain,

but that's coming from the bone (this would be the

result of either long term chondromalacia or blunt force

trauma to the knee). Anyway, in early cases, the source

of pain is unlikely to be direcly related to any

degradation in the patello-femoral joint's articular

cartilage. It is more likely to be irritation of the various

soft tissues in the knee (synovial walls, retinacular

tissues, etc ...) caused by a poofly tracking patella or

even tendonitis/tendinosis. I think what one

should take away from that article is that a blanket

diagnosis of either CP or PFS is not all that useful. Until

the specific source of the pain and it's

biomechanical causes are determined, a good course of treatment

is guess work at best. Sadly, that's all that a

great number of doctors give us and we should be aware

of that and seek better answers.

December 12, 2001

Hi there, I have had bad knees probably since I

was 12, I have a ton to write, so if you would like

to chat...here's my

e-mail... Jen_Psalms231@.... Anytime..Jenna

December 19, 2001

Hi Bren Swimming - I have been told to

AVOID breast-stroke because the " kicking " action of the

legs is tough on the knees. Crawl strokes (front and

back) are OK I believe. Because the tape worked

wonders your child's prospects are good I believe. You

need to get your daughter to a GOOD PT as soon as

possible and she will advise excercises to strengthen

muscles which will pull her patellae into

alignment. It's tough to get a 12 yr old to excercise I know!!

but I think that's what you have to do. Basketball

DOESN'T sound like a good idea at the moment. Once the

muscles are strengthened she should be ok for

sport. The OS is certainly worth seeing, but PT's give

better advice on excercise! Please don't " sorta

ignore " knee pain in your daughter. It's one of THE most

debilitating conditions we can get. Joe

March 24, 2003

Welcome Carole,

My son Seth is on the waiver program too, and I had NO idea they could be

removed for not having severe medical problems. Can you talk with your local

office of mental retardation, ARC, UCP or any service like that? What state

are you in Carole? I hope someone on the list has some insight for you.

Gail :-)

Gail-Mom to Seth 7 ds/asd/pica, jo 10 the gymnast, 12 the

pianist, 25 beautiful but a pain, Jen 27 the wallet breaker, Grandma to

Errick 7 ALL boy and wife to , my hero.

<< Am new to this list. Have been reading posts for about a month and

have learned so much, just haven't felt I have much to contribute.

My name is Carole and I have a 12 year old son who has DS.

He was diagnosed with PDD-NOS just two years ago. I had felt for a

long time that there was something else going on, but finally found

someone to listen to my concerns and not blame Ben's behaviors and

rituals on his being nonverbal.

Ben has many medical problems associated with his DS and has been on

a Medicaide Waiver program for the last several years. I just

received notification that he is being removed from the waiver

program because his medical needs are not severe enough. I plan on

appealing the ruling but need some guidance on just what I need to

do.

Our case worker has only met Ben once and has been less than helpful

when other questions have come up. So am not looking for much

support from her. Has anyone had any experience with an appeal?

Any suggestions would be greatly appreciated.

Carole/Ben >>

March 27, 2003

In a message dated 3/24/2003 2:30:25 AM Eastern Standard Time,

cjfistler@... writes:

> Our case worker has only met Ben once and has been less than helpful

> when other questions have come up. So am not looking for much

> support from her. Has anyone had any experience with an appeal?

> Any suggestions would be greatly appreciated.

Hi Carole,

I'm afraid I don't have any advice for you on the waiver program, but

just wanted to welcome you to the group. Tell us more about Ben. How is

his school program going? Do you have other children as well?

Donna

October 23, 2007

In message <ffjn5d+81ioeGroups> you wrote:

> Hi k-friends, My name is Joe and I am a new member. I need some

> guidance here. I have been making the k-tea and the babies are being

> produced however, There is little fizz to the brew and the ph holds at

> 6. The only batch thats has dropped to 3 is one I left out about over

> an 8/9 week period. It actually formed its own scoby and turned to

> vinegar. Why don't the others drop their ph in the usual 10 days. The

> temperature is about 70+. They start at a ph of 6 and just dont

> change, but they do produce new scoby's and the tea tastes mildly

> fermented with little fizz. Thanks for the help.

Welcome ph! :-)

Reading your post above - your problem with the brew seems to be a

lack of yeasts that eat the sugar and produce the acidity and some fizz.

So your aim has to be to stimulate the yeasts in your brew.

Len Porzio's site below shows you how to do this.

http://www.geocities.com/kombucha_balance/

Very simply - if you are not much of a reader -

Make sure you use enough sugar in your brew. I use about 100g sugar per

litre, which is about a heaped 1/3 cup per quart and at least 2 teabags or

a generous dessertspoon of leaves.

Take your starter liquid from the bottom of the brew which is richest in

yeasts.

It takes a little while and patience to get to your perfect brew that is

just tailor made for YOU. You deal hear with an alive culture which you

will get to know better as the weeks roll by, how much to feed it to make it

happy and produce a good brew for you. Seasons and temperatures also play

an important part. Cooler seasons - longer brewing, emphasising the bacteria

side of the brew, hotter seasons - shorter brewing, stimulating the yeast

side of the brew. That's only a very general sort of guideline.

During the brewing process it is good to try your brew from day 7 (about)

until you arrive at a taste and acidity that that is your 'necksize'.

Have fun. I'm going off to try my new brew now. It should be ready today!

Kombucha Greetings,

Margret from cool, but sunny UK :-)

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October 23, 2007