Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 hi sheila...great work you're doing getting this out into the public domain for discussion...seems the only way to get the medical profession (or any 'official organisation' come to that) to listen to the people they are there to help is by getting the media involved currently...we live in such a media-led society that even the last two prime ministers have suffered from a 'pavlov's dogs' style tendency to react to every issue brought up therein (whilst merrily ignoring the electorate - and the promises they have made to them - on every other count)... anyway, before i continue with an unrelated rant...i have felt physically and mentally exhausted since my early 20s and some years later was diagnosed with cfs...some years after that i was finally diagnosed with hypothyroidism - well, in fact, i diagnosed myself first with the basal temp. test and asked for more blood tests having been 'borderline' on some prev. tests a long time prev. which were never followed up on...have been on t4 ever since and felt no differently except for when i found a good website selling cytomel (t3) and self-medicated with that along with the t4...unfortunately i haven't known of a good supplier for a while but have just ordered some cynomel, which i know is an inferior brand, but i'm hoping will have some effect as i just feel terrible without some kind of t3 medication...unfortunately i would be no good as an example for your story (although i hope you had enough volunteers and got the story finished in the end anyway) as over the years i have sought some relief through illegal drugs (thereby ruining my credibility somewhat, i realise)...not ideal i know, but it's just a relief to feel good occasionally... would definitely advise against it of course...feeling sub-normal ordinarily and finding such instant relief can quickly lead to misuse... and then, of course, your doctor has another reason to blame for your lack of health (regardless of the fact that your symptoms have existed prior to and in between any drug use problems) and is even less willing to help find a solution...although here in the uk they are unable to help anyway as prescribing t3 is not nhs protocol - was impressed recently, however, when the locum doc i saw at my last appt. nodded in a glum kind of, 'i understand your problem' way when the first thing i said to him was, 'i know you can't help me with my main problem...' and went on to explain that i have an underactive thyroid and need the t3, but understood that he couldn't prescribe it...he was young though and not one of these old school arrogant docs who are used to their patients tipping their cap at them (or the modern equivalent) and completely ignore patient opinions and often symptoms as well!!...but, hopeful, nevertheless, i feel... anyway, sorry for banging on so, but am excited by your enthusiasm in taking on the medical prof. and trying to sort this problem...thoroughly agree with what you're doing and would like to reiterate again, for other potential readers, that in 20 years of feeling mentally and physically fatigued on pretty much a daily basis (and a worsening of symptoms with age) that the only periods in which i have felt any relief (apart from the ill-advised illegal drug use) is when i have been on a combination of t4/t3...the only (?!!!) worry then, of course, is that taking unsupervised meds, bought from online and potentially dangerous suppliers (so pot-luck if you get good ones, duff ones, or downright toxic ones) you don't know if you are taking the right amounts and whether you are doing so in the right ratio etc...unsatisfying all round really and an added expense too even if you do find a good supplier... heather Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Well , it's entirely up to you - you can continue to suffer with ill health because you don't trust us to give you the right information or recommendations, or you accept that there is no other option for you but to place your thyroid health into the hands of either one of our Medical Advisors or 'go it alone' with the help and support you will receive from all the members here and all the information that is in the FILES section of this web site. I can 100% reassure you that TPA would NEVER encourage any of our members to buy medication/supplements from potentially dangerous suppliers. All the suppliers in our list of Internet Pharmacies come highly recommend and we have been using them for years. These pharmacies are no more dangerous than going into Boots, or any other High Street Pharmacy in your own town. Yes, there are suppliers who use the Internet to sell duff or downright toxic substances, and they should be avoided like the plague, but please be assured our recommended pharmacies sell the top brands that have been thoroughly tried and tested. You get thyroid/adrenal tests done and post the results here so we can help with their interpretation. We have doctors who are members of our group. You DO NOT go and buy some drug yourself without first finding out what is the best drug/supplement you need to take. If you are talking about buying natural thyroid extract (because this is natural and contains all the thyroid hormones your body needs T4, T3, T2, T1 plus calcitonin), you go to the 'All Natural Thyroid Extract' FOLDER in our FILES section and read everything you need to learn about this product. Also read the document 'How to Use Natural Thyroid Extract written by both Dr Barry Durrant-Peatfield and myself. I do understand your worry, we have all been there, but to be honest, if you feel you are unable to trust TPA and the research we have done, I cannot see how we could help you. Sheila the only (?!!!) worry then, of course, is that taking unsupervised meds, bought from online and potentially dangerous suppliers (so pot-luck if you get good ones, duff ones, or downright toxic ones) you don't know if you are taking the right amounts and whether you are doing so in the right ratio etc...unsatisfying all round really and an added expense too even if you do find a good supplier... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 hey?...i don't recall saying i didn't trust your advice at all...quite the opposite...i agree with everything you say....all i was saying that prior to knowing about your group and having done my own research, i bought t3 supplements from sites that i found (which luckily turned out to be ok)....if i'd known about your group at the time i would have used your 'safe list.' ....yes, it would be handy actually to get some feedback on dosage etc., but i do find my doc likes to be a bit secretive about results, only telling me they are 'within range' which isn't much help and it is only tsh level tesults anyway...any doc i see at my surgery is unhelpful if i ask for tests for actual t4/t3 levels etc....like i say, when i ring for results, they don't even give me a number for the tsh levels...although i'm hopeful about a new locum doc who's just arrived but he's only there for a year unfortunately...will see how it goes with him... cheers, heather > > I can 100% reassure you that TPA would NEVER encourage any of our members to > buy medication/supplements from potentially dangerous suppliers. All the > suppliers in our list of Internet Pharmacies come highly recommend and we > have been using them for years. These pharmacies are no more dangerous than > going into Boots, or any other High Street Pharmacy in your own town. Yes, > there are suppliers who use the Internet to sell duff or downright toxic > substances, and they should be avoided like the plague, but please be > assured our recommended pharmacies sell the top brands that have been > thoroughly tried and tested. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 HI Welcome to the group! I'm glad you found us and don't have to worry about buying from unscrupulous suppliers anymore. As Sheila say, we have everything in our Files section and we having been using the same suppliers for years. If you have any problems, just shout. By law, you should be given your Thyroid Function Test results going right back to when they first started testing you. Perhaps you should write to your medical practice requesting they send you these, or request that you get them yourself and any notes they have written about you on you medical records. There will be a charge involved (few practices act in goodwill anymore!) I suggest you get your TFT's and then let us know what your latest ones are should you need more help more. GPs are prone not to know how to interpret TFTs. I spent an hour teaching one of mine and he still couldn't get it! Love Jacquie > > hey?...i don't recall saying i didn't trust your advice at all...quite the opposite...i agree with everything you say....all i was saying that prior to knowing about your group and having done my own research, i bought t3 supplements from sites that i found (which luckily turned out to be ok)....if i'd known about your group at the time i would have used your 'safe list.' ....yes, it would be handy actually to get some feedback on dosage etc., but i do find my doc likes to be a bit secretive about results, only telling me they are 'within range' which isn't much help and it is only tsh level tesults anyway...any doc i see at my surgery is unhelpful if i ask for tests for actual t4/t3 levels etc....like i say, when i ring for results, they don't even give me a number for the tsh levels...although i'm hopeful about a new locum doc who's just arrived but he's only there for a year unfortunately...will see how it goes with him... > cheers, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Hi , no doctor in this land can any longer be secretive regarding your results. Under the Data Protection Act 1998, you have a legal right to apply for access to health information held about you. This includes your NHS or private health records held by a GP, optician or dentist, or by a hospital , so quite clearly, the results of any tests you have had done within the NHS are YOURS. All you need to do is to ask your doctor for whatever results you need together with the reference range for those particular tests - see http://www.nhs.uk/chq/pages/1309.aspx?categoryid=68 & subcategoryid=160 .. Some of us find the best way to get our results or other information kept on our records is to write a very short note and either post it or deliver it to the surgery asking for the information you need to be made available and either sent to you (put in a sae to enable them to do this) or to leave them at reception for you to pick up. There should be no problem with this. Good luck! Luv - Sheila i do find my doc likes to be a bit secretive about results, only telling me they are 'within range' which isn't much help and it is only tsh level tesults anyway...any doc i see at my surgery is unhelpful if i ask for tests for actual t4/t3 levels etc....like i say, when i ring for results, they don't even give me a number for the tsh levels...although i'm hopeful about a new locum doc who's just arrived but he's only there for a year unfortunately...will see how it goes with him... cheers, heather Quote Link to comment Share on other sites More sharing options...
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