Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Hi, I have been getting increasingly tired again, am taking 6 grains of Erfa for a couple of months and have gradually increased since last July when I started to take it; I have noticed the HypoT symptoms coming back again, pains in joints and a bit of 'brain fog', tiredness and sleeping too much. I am really wondering how much do I have to put the Erfa up to to feel o.k. again as I don't know what the upper limit is? Or do you think I need T3? I have noticed these symptoms coming back over the last month or so. thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Hi Becky, If you were OK on NT I cant see how it would lose its efficacy.... just increasing it hopefully surely isn't the answer..... Have you checked that everything else is ok, B12, D3, Folate, Ferritin, Adrenals, Copper, Zinc....... If one of these was low to start with, it could be that taking the NT has fully depleted it.... for example, T3, taxes the adrenals I'd be looking at everything else before blindly increasing the NT. something might be stopping you converting the t4 in the NT ?... What are your levels of reverse T3 like? How much free t3 do you have? . > > Hi, I have been getting increasingly tired again, am taking 6 grains of Erfa for a couple of months and have gradually increased since last July when I started to take it; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 What other medication/supplements are you taking. You may well have one (or more) of the many associated conditions that goes hand in hand with the symptoms of hypothyroidism and you need to go through each one of them, eliminating each one before going on to the next possibility. These must NOT be guessed at - ask your GP to test for any of the following (at least those tests the NHS will do) and if they don't, then you need to beg, borrow or steal to get them tested to find the culprit. Often a cause for continuing symptoms is too little thyroid hormone replacement because doctors are afraid to increase the dose, but this is obviously not the cause of your particular problem, though what many sufferers do not know is that quite often, the dose of thyroid replacement they are taking can be too high, and they continue to suffer Dr Peatfield gives some of the following reasons for this: You may be suffering with low adrenal reserve. The production of T4, its conversion to T3, and the receptor uptake requires a normal amount of adrenal hormones, notably, of course, cortisone. (Excess cortisone can shut production down, however.) This is what happens if the adrenals are not responding properly, and provision of cortisone usually switches it on again. But sometimes it doesn’t. If the illness has been going on for a long time, the enzyme seems to fail. This conversion failure (inexplicably denied by many endocrinologists) means the thyroxine builds up, unconverted. So it doesn’t work, and T4 toxicosis results. This makes the patient feel quite unwell, toxic, often with palpitations and chest pain. If provision of adrenal support doesn’t remedy the situation, the final solution is the use of the active thyroid hormone, already converted, T3 - either synthetic or natural. Then, we have systemic candidiasis. This is where candida albicans, a yeast, which causes skin infections almost anywhere in the body, invades the lining of the lower part of the small intestine and the large intestine. Here, the candida sets up residence in the warmth and the dark, and demands to be fed. Loving sugars and starches, candida can make you suffer terrible sweet cravings. Candida can produce toxins which can cause very many symptoms of exhaustion, headache, general illness, and which interfere with the uptake of thyroid and adrenal treatment. Sometimes the levels - which we usually test for - can be very high, and make successful treatment difficult to achieve until adequately treated. Then there is receptor resistance which could be a culprit. Being hypothyroid for some considerable time may mean the biochemical mechanisms which permit the binding of T3 to the receptors, is downgraded - so the T3 won’t go in. With slow build up of T3, with full adrenal support and adequate vitamins and minerals, the receptors do come on line again. But this can be quite a slow process, and care has to be taken to build the dose up gradually. And then there are Food allergies. The most common food allergy is allergy to gluten, the protein fraction of wheat. The antibody generated by the body, by a process of molecular mimicry, cross reacts with the thyroperoxidase enzyme, (which makes thyroxine) and shuts it down. So allergy to bread can make you hypothyroid. There may be other food allergies with this kind of effect, but information on these is scanty. Certainly allergic response to certain foods can affect adrenal function and imperil thyroid production and uptake. Then we have hormone imbalances. The whole of the endocrine system is linked; each part of it needs the other parts to be operating normally to work properly. An example of this we have seen already, with cortisone. But another example is the operation of sex hormones. The imbalance that occurs at the menopause with progesterone running down, and a relative dominance of oestrogen is a further case in point – oestrogen dominance downgrades production, transportation and uptake of thyroid hormones. This is why hypothyroidism may first appear at the menopause; the symptoms ascribed to this alone, which is then treated – often with extra oestrogen, making the whole thing worse. Deficiency in progesterone most especially needs to be dealt with, since it reverses oestrogen dominance, improves many menopausal symptoms like sweats and mood swings, and reverses osteoporosis. Happily natural progesterone cream is easily obtained: when used it has the added benefit of helping to stabilise adrenal function. Then, we must never forget the possibility of mercury poisoning (through amalgam fillings) - low levels of ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc - all of which, if low, stop the thyroid hormone from being utilised by the cells - these have to be treated. As Dr Peatfield says " When you have been quite unwell for a long time, all these problems have to be dealt with; and since each may affect the other, it all has to be done rather carefully. Contrary to cherished beliefs by much of the medical establishment, the correction of a thyroid deficiency state has a number of complexities and variables, which make the treatment usually quite specific for each person. The balancing of these variables is as much up to you as to me – which is why a check of morning, day and evening temperatures and pulse rates, together with symptoms, good and bad, can be so helpful. Many of you have been ill for a long time, either because you have not been diagnosed, or the treatment leaves you still quite unwell. Those of you who have relatively mild hypothyroidism, and have been diagnosed relatively quickly, may well respond to synthetic thyroxine, the standard treatment. I am therefore unlikely to see you; since if the thyroxine proves satisfactory in use, it is merely a question of dosage. For many of you, the outstanding problem is not that the diagnosis has not been made – although, extraordinarily, this is disgracefully common – but that is has, and the thyroxine treatment doesn’t work. The dose has been altered up and down, and clinical improvement is variable and doesn’t last, in spite of blood tests, which say you are perfectly all right (and therefore you are actually depressed and need this fine antidepressant). The above problems must be eliminated if thyroid hormone isn't working for you. Sheila Hi, I have been getting increasingly tired again, am taking 6 grains of Erfa for a couple of months and have gradually increased since last July when I started to take it; I have noticed the HypoT symptoms coming back again, pains in joints and a bit of 'brain fog', tiredness and sleeping too much. I am really wondering how much do I have to put the Erfa up to feel o.k. again as I don't know what the upper limit is? Or do you think I need T3? I have noticed these symptoms coming back over the last month or so. thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 HI, The following was sent to me by craik45, I think he meant to send it to the forum so it's a cut and paste job... Actually, thinking about it, I never got on with Erfa, I do much better with nature throid. x _____________________________________________ Hi Becky I tried Erfa last year and was quite stunned on how bad I felt on it after moving over from 2.5 grains of Nature Throid. Almost caused a crash when I was out driving and realised that it was completely not working for me and came off it at once. All thyroid supplementation is both different and subtle.Each is different and if you feel the hypo signs coming back then go back to that which works. Hope you find what works for you. Best wishes > > Hi, I have been getting increasingly tired again, am taking 6 grains of Erfa for a couple of months and have gradually increased since last July when I started to take it; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 Hi , I have been taking my morning temperature as per Dr test for about two weeks and it has been consistently low i.e. 34 and 35 whereas the normal temp would be 37 degrees. I do take B vitamins, iron, calcium etc., but if it is a low functioning thyroid as per the temperature I suppose I will have to keep increasing the Erfa, I started Erfa last July and have gradually increased it, the reason being symptoms have come back and so I increase it, they go away once I increase the Erfa, but this keeps going on and I am wondering when it is going to stop and stabilise? Thanks. > Hi Becky, If you were OK on NT I cant see how it would lose its efficacy.... just increasing it hopefully surely isn't the answer..... > > Have you checked that everything else is ok, B12, D3, Folate, Ferritin, Adrenals, Copper, Zinc....... If one of these was low to start with, it could be that taking the NT has fully depleted it.... for example, T3, taxes the adrenals > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 Sounds the easiest thing in the world to do Becky - just keep increasing your dose of NDT to take away your symptoms - but it just doesn't work like that. Problem is, you don't appear to be utilising the thyroid hormone properly, and there is a reason why you are not. As I have said before, you need to know why. Are you actually doing anything suggested in previous messages to find out the possible cause? Increasing your Erfa again and again will eventually lead to your body objecting strongly and giving you some very nasty symptoms because of toxicity caused by the excess thyroid hormone. You need to get up to date thyroid function tests done to help us see exactly what is going on. Sheila Hi Sheila, I forgot to mention (because I am so busy) that I have been checking my morning temperature before I do anything else and it has been consistently low for over a couple of weeks since I have been checking it usually 34 or 35 when the normal temp is 37 degrees. I suppose this shows low metabolic function. In the past I have had the HypoT symptoms return so I just put the Erfa up and they disappear again, but I am getting a bit concerned because I still have to keep putting it up since last July every so often and I am now on 6 grains, and why doesn't it seem to stabilise on say 3 grains? How high will I have to go to remain on the same dose for say 2 years or something, or will I just have to keep increasing it? _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2011 Report Share Posted April 10, 2011 Hi Sheila, yes I do agree I need to find a doctor that is going to look after my thyroid so that I can have the appropriate blood tests etc., so far I am doing this all on my own. I am looking at the list to see the doctors in London although it would be good to have a personal recommendation from someone who has seen a doctor in the London area. My mother is also interested in finding someone who specialises in endocrinology as she is having a lot of joint pains on 150 mcg synthetic thyroxine and is thinking of switching to NDT but would like a doctor to supervise this. I am a bit wary of some doctors as I have had not good luck with some of them in the past and I don't want to spend a lot of money and be disappointed and be worse off for money. It is very difficult to see my G.P. as he only works at the surgery for three days in the week and is one of the most popular G.P.'s and if you book in advance you have to wait three weeks to see him, he was the only doctor who knew about the Inflammatory Arthritis I had last year and he over saw the whole thing in sending me to a Rheumatologist etc. I suppose I'll just have to get on the phone tomorrow and ring a few doctors on the list and go from there. > Sounds the easiest thing in the world to do Becky - just keep increasing > your dose of NDT to take away your symptoms - but it just doesn't work like > that. Problem is, you don't appear to be utilising the thyroid hormone Sheila Quote Link to comment Share on other sites More sharing options...
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