Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 I have been informed today that my GP will now only prescribe Armour on a private script. Is this part of the NHS cutbacks? Two questions; can he do this and is there anything I can do about it? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 You are entitled to free prescriptions for life on the NHS if you have hypothyroidism..... This is the problem with GPs getting to carry the purse for the NHS it will be a disaster... I have been informed today that my GP will now only prescribe Armour on a private script. Is this part of the NHS cutbacks?Two questions; can he do this and is there anything I can do about it?Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Get in touch with the PCT, while its still there!! NO its not part of the cuts, its the doctor trying to cut his drugs bill. You are entitled to stay on the medication if you can't tolerate the other stuff and you have to demand it rather than let the doc blindside you. Tell him that the levo doesn't work for you (ergo on Armour) and that he is condemming you to a short life of pain and suffering by denying you your meds. Also put in a complaint to the NHS about him!! I would!! Glynis I have been informed today that my GP will now only prescribe Armour on a > private script. Is this part of the NHS cutbacks? > Two questions; can he do this and is there anything I can do about it? > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 Thanks to all who responded. I have just had a phone conversation with the PCT. It seems very muddled from my GP surgary's end. One of the GP's at the surgary says I have never been prescribed Armour-this is untrue and said so-. The GP who prescribed Armour didnt record it in my notes. The PCT person refered to a letter from an endo I saw privatly and the PCT says if I have been prescribed Armour from him then I most probibly will have to pay for my script. I pointed out to her that I was on Armour when I went to see the endo and that I have a private script waiting to be collected. This private script is from my surgery not from the endo. Pct says Armour will only be prescribed in " exeptional " surcumstances. The surgary will get in touch with the endo, so the " experts " can decide if I should be on Armour. Told the PCT that I am an expert in regard to how I am experience my symptions, and that I feel better on Armour and that I have lost 1 1/2 stone in weight since being on Armour for 6 weeks. PCT says that, that wouldnt have any thing to do with the Armour and that I must be eating less. F****** patronising bitch. As if I wouldnt have noticed if my diet had changed!!!!! Anyway didnt get anywhere with the PCT, just came out with the usual:Armour not registred and no evedence that people do better on it. So am now waiting for the " experts " to decide. Any suggestions as to what I should do next? Am feeling a bit sorry for the GP who prescribed the Armour, hope he dosent get it in the neck. . > > > > Doctors ARE allowed to prescribe natural thyroid extract in the form of > Armour Thyroid, Erfa 'Thyroid', Nature Throid or Westhroid in the NHS, > > > > > > > > > I have been informed today that my GP will now only prescribe Armour on a > > private script. Is this part of the NHS cutbacks? > > Two questions; can he do this and is there anything I can do about it? > > > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 Hi Unfortunately, the British Thyroid Association have so much power they shower their influence over the whole medical world when it comes to all things thyroid, but sadly, a lot of the information they give is mainly misleading, and quite incorrect. The BTA wrote two Statements which they published on their web site about T4/T3 combination therapy versus levothyroxine-only therapy, and another one about Armour Thyroid versus levothyroxine-only therapy, and much of that information was deliberately misleading, and again, some downright incorrect. I wrote two rebuttals to the BTA sending a copy to each individual member of the BTA Executive Committee asking citing (between these two papers) over 250 references to the scientific evidence to show that the BTA was incorrect in their statements, and asked them to amend these Statements accordingly. This was in 2006 - and they never did amend their incorrect statements, and neither did they even have the courtesy to acknowledge receipt. you can check out my rebuttals that were sent to them on our web site - and copy of them off and send to your local Primary Care Trust pointing out to them that they TOO have misleading and incorrect information, and ask them TOO to amend their statements when they send these out to patients. You can find them here http://www.tpa-uk.org.uk/tpa_responds1.php .. Take out whatever is necessary copying the references too to back up your statements and ask them to respond to you in writing after they have read this. See also attached letter/Emails from the Medicines and healthcare Regulatory Agency (MHRA) stating that doctors CAN prescribe Armour Thyroid, Erfa 'Thyroid', Nature Throid, and Westhroid for those patients who cannot retain their normal health on levothyroxine-alone, but pointing out that because natural thyroid desiccated extract remains unlicensed, a doctor must take full responsibility for this. There are many Primary Care Trusts throughout the UK (my own included) that fund the prescription of thyroid extract. Your PCT needs to be brought up to date with the facts and told they should NOT be passing on information from any organisation/association that has not been backed up to show the medical evidence/research/clinical trials, and that they should responsibly checked out the BTA Statement first, before giving such incorrect information out. Let us know the outcome of this , but don't let them cause you continuing ill health because they can't be bothered to do their homework, and because they decided it was simply easier for them to copy what an association (who should know better), have written. This shows the complete arrogance and ignorance of such organisations/associations - it's frightening. If your GP prescribed Armour and you got this with an NHS prescription, you should be able to continue to get this on NHS prescription. it is entirely up to a GP whether or not they decide whether to prescribe this for you and they take on the responsibility themselves, a PCT has to decide whether or not they will fund such a medication within the NHS, but they need to have their FACTS 100% correct if they are refusing to fund it , and they should not refuse to fund it when they are basing their information in misleading and incorrect statements. This is why you need to copy out my rebuttals and highlight the parts that need to be drawn to their attention. If your endocrinologist has recommended Armour for you, ask that he arranges for the hospital pharmacy to get this for you, many endocrinologists do this for their patient if their GP refuses to give them an NHS prescription. The one thing I cannot understand is that if a doctor refuses an NHS prescription because a drug remains unlicensed and they use the excuse that their medical insurance doesn't cover them should anything go wrong, then they surely should not be prepared to prescribe it through a private prescription as the same rules would apply surely. If they are getting " experts " to decide whether or not you should be given a prescription or not for Armour, and these so called " experts " decide not to allow you this - you will need to get everything they state, (in writing) and backed with reference to the scientific evidence. You already have the evidence to show the BTA is wrong, and evidence that the MHRA state that the specific branded NDT therapy can be used for patients who don't do well on T4. They should be taking their argument up with the MHRA and tell the MHRA they are giving out misleading and incorrect information, and let the two of them fight it out. This is all so ridiculous, and so damaging to patients who NEED NDT and who are unable to survive without NDT. Do let me know how things go , and good luck! Luv - Sheila Thanks to all who responded. I have just had a phone conversation with the PCT. It seems very muddled from my GP surgary's end. One of the GP's at the surgary says I have never been prescribed Armour-this is untrue and said so-. The GP who prescribed Armour didnt record it in my notes. The PCT person refered to a letter from an endo I saw privatly and the PCT says if I have been prescribed Armour from him then I most probibly will have to pay for my script. I pointed out to her that I was on Armour when I went to see the endo and that I have a private script waiting to be collected. This private script is from my surgery not from the endo. Pct says Armour will only be prescribed in " exeptional " surcumstances. The surgary will get in touch with the endo, so the " experts " can decide if I should be on Armour. Told the PCT that I am an expert in regard to how I am experience my symptions, and that I feel better on Armour and that I have lost 1 1/2 stone in weight since being on Armour for 6 weeks. PCT says that, that wouldnt have any thing to do with the Armour and that I must be eating less. F****** patronising bitch. As if I wouldnt have noticed if my diet had changed!!!!! Anyway didnt get anywhere with the PCT, just came out with the usual:Armour not registred and no evedence that people do better on it. So am now waiting for the " experts " to decide. Any suggestions as to what I should do next? Am feeling a bit sorry for the GP who prescribed the Armour, hope he dosent get it in the neck. . > > > 2 of 2 File(s) FACTS ABOUT NATURAL THYROID EXTRACT.doc MHRA confirmation re Natur1.doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 Thanks Sheila, some how I dont think I will get anywhere, no matter what I say. Though I will write to the GP who over ruled the GP who was willing to prescribe Armour. I have sent your " letter to MP " off. Must say I am feeling defeted at present, and cant see the point in writing to anyone, dont feel anything will change. Keep up the good work you do for me and the rest of us. Thanks so much. . > > Hi > > Unfortunately, the British Thyroid Association have so much power they > shower their influence over the whole medical world when it comes to all things thyroid, but sadly, a lot of the information they give is [Ed] Quote Link to comment Share on other sites More sharing options...
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