Re: My T3 is being withdrawn

[Guest guest]

Dear

Delainne

You need to

start a complaint immediately. First, you should write a letter to the person

who decided to stop your prescription for Liothyronine and send a copy to your

GP and to the Head of Practice (remembering to keep a copy yourself).

The first

thing I would do is to remind them that according to 'Good Medical Practice:

Duties of a Doctor' registered with the General Medical Council http://www.gmc-uk.org/guidance/good_medical_practice/duties_of_a_doctor.asp

- it categorically states - amongst other duties:

Patients must be able to

trust doctors with their lives and health. To justify that trust you must show

respect for human life and you must:

• Make the care of

your patient your first concern

• Work in

partnership with patients

o Listen to patients and

respond to their concerns and preferences

o Give patients the

information they want or need in a way they can understand

o Respect patients' right

to reach decisions with you about their treatment and care

o Support patients in

caring for themselves to improve and maintain their health

You are personally

accountable for your professional practice and must always be prepared to

justify your decisions and actions.

Tell the

doctor that he should be aware that T3 has a very short half life in humans of

only 2 days. It peaks in the blood between 2 to 4 hours after taking it. Patients

should be warned not to take thyroid hormone tablets on the morning they have

their blood drawn for a thyroid function test - not even levothyroxine. This

came from Professor Weetman, ex-President of the British Thyroid

Association giving evidence as an Expert Witness at a GMC Hearing. Taking

thyroid hormone on the morning of the blood draw gives a flawed reading, and

therefore, the doctor stopping your T3 is causing you unnecessary distress and

risking your possible worsening health because he didn't even allow you to have

your blood tested properly - which should be done AFTER stopping the thyroid

hormone the day before.

Tell him

also that he has failed to treat you ethically, as he has not obtained your

valid consent to allow the removal of the thyroid hormone replacement that was

giving you back normal health.

Tell him

that there are over 250,000 citizens in the UK alone unable to regain their

normal health on levothyroxine-only and who need T3. There are many, many

conditions that stop T4-only from working and people with such conditions need

T3. Check out my rebuttal to the British Thyroid Association's Statements on

T4/T3 combination therapy versus T4-only.  You might like to show that to this

doctor http://www.tpa-uk.org.uk/tpa_responds1.php .

Ask for

another full thyroid function test to be done as a matter of urgency, as the

first one was flawed. Before the blood draw, DO NOT TAKE ANY THYROID HORMONE

THAT MORNING. You can take your thyroid hormone replacement immediately after

the blood drawn. ONLY if the doctor refuses to do another TFT will you need to

take this further.

Please

remember to ask the doctors concerned to place your letter into your medical

notes.

Luv - Sheila

Hi,I hope someone will have some advice for

me.I have secondary hypothyroidism and after 2 years of being fat and feeling

rubbish on 150 thyroxine,I convinced my endo to trial T3.

Then had 6 months on liothyronine,started feeling better.I dieted and lost

weight,my body hair grew normally again,periods became regular and the terrible

long term constipation improved almost completely.

Last month,I had a cortisol day curve test and when i got there after taking my

t3 they sprung a thyroid function test which they now say shows I'm way over

medicated.(haven't managed to get figures yet)They had tried to get me to swap

back to t4 before but now I have just recieved a letter saying I've got to go

back on 150 t4.

I wrote saying if it does the same jobI'll be over on that too so can't I just

reduce t3 and then test again without taking tablet 2 hours before but not

heard back.

My gp's really kicked up a fuss about giving me t3 and I found out it's because

it costs about £23 per month so don't think I'll get any help there.

[Guest guest]

Whenever I have an appointment with the doctor or hospital for whatever reason, I never take my thyroid medication that morning.

I once forgot and the consultant wanted me to do a blood test there and then. I made the excuse that I had a plane to catch and was already on the late side. That was the first thing that came into my head where you had to be one time. I promised I would get it done as soon as I got back.

Lilian

Lilian

[Guest guest]

HI LILIAN

Having seen that we should not take thyroid medication in the morning before our

blood tests. I have always taken mine before the blood tests, so what difference

would it make to T4, as T4 is said to have a longer life than T3, and could this

have anything to do with why my GP took A TSH blood test when I had been off T4

for several months with the TSH blood test done after being back on T4 for only

a few days.

Kathleen

>

> Whenever I have an appointment with the doctor or hospital for whatever

reason, I never take my thyroid medication that morning.

>

> Lilian

>

> Lilian

>

[Guest guest]

HI, Delainne, you could buy T3 from the internet, look in files for details, or you could try natural thyroid. it is obvious you need the T3. many of us buy natural or T3 this way. angel.

[Guest guest]

>

> Dear Delainne

>

> You need to start a complaint immediately. First, you should write a letter

> to the person who decided to stop your prescription for Liothyronine and

> send a copy to your GP and to the Head of Practice (remembering to keep a

> copy yourself).

I have already written an e-mail to the endo responsible and am hoping to see

best GP in practice about it tuesday or wednesday.I will take a copy of the

email for GP.

>

>

> Tell the doctor that he should be aware that T3 has a very short half life

> in humans of only 2 days. It peaks in the blood between 2 to 4 hours after

> taking it. Patients should be warned not to take thyroid hormone tablets on

> the morning they have their blood drawn for a thyroid function test - not

> even levothyroxine. This came from Professor Weetman, ex-President

> of the British Thyroid Association giving evidence as an Expert Witness at a

> GMC Hearing. Taking thyroid hormone on the morning of the blood draw gives a

> flawed reading-

I have already Quoted Prof Weetman on this ,thankyou,I got it from this site!

>

> Ask for another full thyroid function test to be done as a matter of

> urgency, as the first one was flawed. Before the blood draw, DO NOT TAKE ANY

> THYROID HORMONE THAT MORNING. You can take your thyroid hormone replacement

> immediately after the blood drawn. ONLY if the doctor refuses to do another

> TFT will you need to take this further.

> Will do ,thank you.

> Please remember to ask the doctors concerned to place your letter into your

> medical notes.

>

Thanks Sheila and to Lillian,I will never take my thyroid replacement before

any appointment again.

Will let you know how I get on.

Kind regards,Delainne.

>

>

>

[Guest guest]

I would personally do everything within my power to get the

endo. on my side. If he gives you misleading or downright incorrect information

about either synthetic T3 or natural thyroid extract (which mine originally

did), then print off the FACTS and send them to him/her asking for

him/her to read it and then to rethink. All the information you need is either

in our web site www.tpa-uk.org.uk or in

the FILES available in this forum web site http://health./grouop/thyroid treatment

However, if your endo. refuses to accept the FACTS, then you

need to find another doctor who cares about giving back normal health to his

patients. There is absolutely no point in wasting your time and energy on a

doctor who refuses to even meet you halfway.

Luv - Sheila

>

> HI, Delainne, you could buy T3 from the internet, look in files for details,

or you could try natural thyroid. it is obvious you need the T3.

Thanks for that,Angel.I wonder,do you remain under the " care " of an

endo and just tell them what medication you are buying or do you dispence with

their services altogether ?I would be worried about being without an endo as I

have a pituitary condition which needs life long monitoring.Also,how much is t3

monthly? Any idea?

Thanks again for your time,Delainne.

[Guest guest]

>

> I would personally do everything within my power to get the endo. on my

> side.

Thanks again Sheila,I'll keep you informed.

Take care,Delainne.

>

>

>

> Thanks for that,Angel.I wonder,do you remain under the " care " of an endo and

> just tell them what medication you are buying or do you dispence with their

> services altogether ?I would be worried about being without an endo as I

> have a pituitary condition which needs life long monitoring.Also,how much is

> t3 monthly? Any idea?

> Thanks again for your time,Delainne.

>

[Guest guest]

hi there , i don`t use T3 so not sure how much it costs . i use a natural thyroid called thyroid-S which I order from America . angel.