CML is a disease

[Guest guest]

Hey Group: FYI~~my 2 cents

After being given 2-5 months morbid mortality in November 2003. . .

After going through HELL and being labeled " Queen of the Side Effects " . . .

After being told that CML is no longer a terminal disease, now its a Chronic

Disease with a newly diagnosed person having a 25 year median mortality. . .

After being told that Gleevec is a maintenance medication. . .

After being told that AMS & BMS are not either/or medications for Gleevec;

they are for survivors who have became intolerant or failed Gleevec therapy. . .

After knowing survivors die from a BMT; who were otherwise surviving on

Gleevec because GVHD is a KILLER. . .or living the Gleevec life again.

After being told that CML is a Chronic Disease, much like Diabetes, for which

there's no CURE. . .

After being told that CML is a Chronic Disease, much like Diabetes, for which

there's no CURE. . .

After reaching my maximum response, I know that my demise will be from one of

my other 20 fatal/terminal/chronic diseases. . .all of which I call Chronic

Illnesses. . .

I named CML~~ my 'bug'. . .

I named Gleevec~~ my 'gold' . . .

I named Plavix/Heart Disease~~my 'platinum'

I named Pain Medications/Orthopedic Diseases~~my 'silver'

After knowing in my heart that the CURE isn't the BMT. . .it will come from

SCT~~Stem Cell Transplant. I heard that our President is vetoing the bill again.

We need to appeal to our Senators so that they over-ride him. That way the

research and development into SCT can forge ahead.

In the meantime; I say Thanx God, Dr. Drucker~~Father of Gleevec, Dr.

Talpaz~~Father of CML (doing SC research at UMCCC, the only facility in the US),

Zavie, , , Anjana, , Skip, etc., for being there for me when I

had a question or concern; and I take my 'gold' because. . .

" I AM A SURVIVOR. . .I AIN'T FINISHED YET " ! ! !

HAPPY NEW YEAR. . .I have ALL in my prayers.

" K "

" I AIN'T FINISHED YET " !!!