Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 three cheers for Sheila and all the other campaigners - this is a great article and also helps explain to other members of my family that I'm not just looking up weird stuff on the internet - this is a genuine health matter. I am definitely going to write to the editor. Val > > REVIEW SECTION - PAGE 23 > > > > FOR TWELVE YEARS I WAS A VICTIM OF THE 'GREAT THYROID SCANDAL'. > > > > What a brilliant heading. > > Luv - Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Hear hear! I have never understood why thyroid disease has become the victim of such wrong treatment - imagine diabetics, for instance, having insulin witheld. It's high time the medical establishment stopped being so intransigent. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 You should send this as a 'Letter to the Editor' of the Mail on Sunday. You can send to letters@... sincerely hope that all who have been left either without a proper diagnosis because your thyroid function tests remain within the so called 'reference interval' or who managed to get a diagnosis and been treated with levothyroxine-only yet continued to suffer symptoms, and you have been denied any other thyroid hormone replacement i.e. the active thyroid hormone T3, will do your bit for our cause and write to the Editor of the Mail on Sunday and also write to Dr Vanderpump at the Royal Free Hospital, London. PLEASE DON'T LEAVE THIS TO OTHERS, BECAUSE THIS IS WHAT HAS HAPPENED IN THE PAST, AND WE GOT NOWHERE. Luv - Sheila I can identify completely with the article. My GP also glossed over my complaints and gave me the brush off for ten years. I tried to explain the exhaustion I felt and he said, " I know what you mean- when i get home from work exhausted I put my track suit on and go for a five mile run and when I get back I feel fantastic. " This is a young doctor who plays rugby speaking to a 64 year old woman. I said, " I can't lose weight " and he replied, " oh my wife keeps saying that too! You ladies are all the same! " with a patronising chuckle. " your blood result is normal so your problem is NOT your thyroid. " I had no option but to change my GP and I saw Dr Peatfield privately. I now take T4 and T3 and have never felt better. Something has got to be done as this is a national disgrace. Keep at it!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 Actually, your doctor is right. It is not your thyroid. It is the quite ignored post thyroid deficiency. But your doctor, nobody's doctor, investigates that possibility in spite of medical science: 1. In 1947, Kirk and Kvorning authored a paper claiming that some patients' symptoms of hypothyroidism are not mitigated by T4 alone. 2. In 1960-1, Goldberg authored two papers on euthyroid (your thyroid is OK) hypometabolism (you're dragging anyway), which required T3. 3. Circa 1970, Refetoff and Braverman each published papers on post thyroid functions of peripheral cellular hormone reception and of peripheral metabolism of T4 to T3. A more complete picture can be found in the files section. Just look up Greater Thyroid System. It shows the parts that endocrinology acknowledges and the parts that endocrinology ignores. Also please note that the Royal College of Physicians does not recommend any training in post thyroid functions. So the fact that your doctor lacks knowledge is understandable. Further, this apparent lack of understanding is enforced by the General Medical Council. Consequently, it takes a knowledgeable, ethical, and brave physician to treat post thyroid deficiencies - the mimics of hypothyroidism. Have a great day, > > I can identify completely with the article. My GP also glossed over my > complaints and gave me the brush off for ten years. > I tried to explain the exhaustion I felt and he said, " I know what you mean- when i get home from work exhausted I put my track suit on and go for a five mile run and when I get back I feel fantastic. " > This is a young doctor who plays rugby speaking to a 64 year old woman. > I said, " I can't lose weight " and he replied, " oh my wife keeps saying that too! You ladies are all the same! " with a patronising chuckle. " your blood result is normal so your problem is NOT your thyroid. " > I had no option but to change my GP and I saw Dr Peatfield privately. I now take T4 and T3 and have never felt better. > Something has got to be done as this is a national disgrace. > Keep at it!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 Hi An expanded view on resistance to thyroid hormone Refetoff The University of Chicago, Chicago, Illinois, USA. http://www.endocrine-abstracts.org/ea/0025/AbstractBook.pdf At least six major steps are required for secreted thyroid hormone to exert its action on target tissues: thyroid hormone transport into cells, intracellular activation of the prohormone thyroxine, transfer of the hormone from the cytoplasm to the nucleus, intact thyroid hormone receptors and intact nuclear and cytosolic machinery required for the mediation of thyroid hormone action. <><> The second defect, affecting the intracellular metabolism of thyroid hormone is caused by mutations in the selenocysteine insertion sequence binding protein 2 (SECISBP2 or SBP2) gene required for the synthesis of selenoproteins, including the three iodothyronine deiodinases. Eight such individuals, belonging to unrelated families, have been identified. They manifest, in addition to thyroid test abnormalities, defects of variable magnitude in the reproductive, muscular and immune systems. Most challenging is the approach to therapy, when simple hormonal substitution is ineffective. Quote from abstract by Sm Refetoff at this April's conference (as a speaker).... >> > Actually, your doctor is right. It is not your thyroid. It is the quite ignored post thyroid deficiency. But your doctor, nobody's doctor, investigates that possibility in spite of medical science:> > 1. In 1947, Kirk and Kvorning authored a paper claiming that some patients' symptoms of hypothyroidism are not mitigated by T4 alone.> > 2. In 1960-1, Goldberg authored two papers on euthyroid (your thyroid is OK) hypometabolism (you're dragging anyway), which required T3. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 ooh, I hope everyone sends something in and inundates them, even a couple of lines appreciating the article lets them know its been read. Ive sent in. Thankyou Sheila and the others who work so hard for us all. Carole > > You should send this as a 'Letter to the Editor' of the Mail on Sunday. Quote Link to comment Share on other sites More sharing options...
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