Re: What should be first steps.?

[Guest guest]

Hi M:

We always start with the adrenals first. You can start taking your adrenal

support, can you tell us what you have? Is it NAX or a different product? First

thing in the morning when you wake up have a glass of water with 1/2 teaspoon of

celtic sea salt or pink himalayan rock salt. These are unrefined salts which

provide the basic 84 trace minerals which our bodies desperately need. Throw out

the white table salt. You can repeat this process throughout the day for an

added boost for the adrenals.

You need a good vitamin B complex once or twice a day but not after 2 PM. I can

assume you are low in B-12, and iron but it would be great if we had blood labs

on that to make sure. B-12 is water soluble, so regardless you should start

taking 1000 mcgs twice a day. Vitamin C at 2000-4000 mgs a day (to bowel

tolerance) and 400 mgs of magnesium. It would help to also start with 200 mcgs

of selenim as well. Along with this a good multi vitamin with copper and zinc in

it....and we'll go from there.

Take your time and breathe, breathe, breathe... you'll get there and it may just

be fun along the way... :0)

Cheers,

JOT

[Guest guest]

Hi Marilyn,

I am sorry to hear of the difficulty and poor health your experiencing.

Firstly whilst I understand about foggy brain...keep reading and keep educating yourself.

sounds like you are hypothyroid yes. Sounds also like you have a problem with adrenal glands too. So check you dont have yeast infection also....can you get your doc to do more tests for anaemia such as B12, Ferritin CRP, cholesterol etc.

If you can afford £50 have a hair analysis its valuable information especially if you are self medicating. and it gives a great deal of information about supplements too.

Check out the info on TPA and the net re adrenal fatigue......I too will send you some info in that respect. However, you should do the self tests re adrenals.

Keep a diary of everything you do and how your feel and your recordings test results etc.

Check you dont have yeast infection then Support your adrenals for 1-2 weeks and then start your NDT.

Sally xx

[Guest guest]

I think it would be best to do the adrenal and thyroid tests first - (unless I've missed something - brain fog here too today). Anyway apologies if you've already done these. The adrenal test is a 24 hour saliva test and the thyroid test is 24 hour urine test, both available from Genova diagnostics and easy to follow instructions. You should do them before starting supplements. I found them an invaluable tool and can use them now as evidence with my doctors.http://www.gdx.uk.netI think I'm right in saying that they give TPA a discount and if you say that TPA is your pactitioner, they send the results direct to you - but someone else may know more about this.Apart from that a phone appointment with Dr P will put you straight.Best wishes, Alison>> > > Hi M:> > We always start with the adrenals first. You can start taking your adrenal support, can you tell us what you have? Is >

[Guest guest]

Hi Marilyn

First, you need to know that your case has been thoroughly

rejected by the NHS and that nobody is prepared to do anything for you before

going down the road of self diagnosing, self treatment and self monitoring. You

can start to do this by writing a letter to your GP and sending a copy to the

Head of Practice.

You start by telling the GP you are no longer prepared to put up

with suffering all of your symptoms and not being given any form of a correct

diagnosis and therefore refused any form of treatment that will help you regain

your normal health and that therefore, you feel the need to investigate this

yourself, hopefully, with the help of your GP.

First, list all of your symptoms and signs. Check these against

those in our web site www.tpa-uk.org.uk

under 'Hypothyroidism' and then the drop down Menu 'Symptoms and Signs'

Next, list all the members of your family who have a thyroid or

autoimmune disease as this runs down the family line.

Next, take your basal temperature for 4 or 5 mornings before you

get out of bed and before you have anything to eat or drink. List these if they

are 97.8 degrees F (or less) or 36.6 degrees C (or less). Such low temperatures

are an indication you could be suffering with hypothermia or hypothyroidism.

Next, list ALL the thyroid function tests you require and ask

when the results are returned that you are given a copy of these, together with

the reference range for each test done. The tests you require are TSH, free

T43, free T3 and tests done again to see whether you have antibodies to your

thyroid. These tests are called TPO and TgAb. Previous tests showing a negative

result show that there were no antibodies present at that time. Negative

results does not mean you will never have any, and you should be tested

occasionally to see whether your results do show you have antibodies.

You should also ask the GP to test to see whether specific

minerals and vitamins are showing low levels in the reference range. These

specific tests are for ferritin, vitamin B12, vitamin D3, magnesium, folate,

copper and zinc. Be prepared for your GP to tell you s/he sees no association

between these low levels and symptoms of hypothyroidism and print out the

attached document to enclose with this letter of requests, to show just some

references to the medical evidence to show that there is. Again, when the

results of these are returned, ask for the actual figures in the results

together with the reference range for each test done, and you can post these on

the forum so we can help with their interpretation.

Ask for a referral to an endocrinologist of your choice as your

GP is not a specialist in endocrinology and you are entitled to a second

opinion. I will send you a list of doctors recommended by our members. You can

be referred outside of your area if you wish. This list I will send to you privately.

Last, ask that your letter of requests be placed into your

medical notes and keep a copy yourself in case you need to refer to this at a

later date.

ONLY if your NHS doctors refuse to take this matter further and

give you the help and support you so desperately need should you consider

taking your thyroid health into your own hands, but this is another matter, and

could result in you putting in a complaint. We can help you Marilyn, but it is

best to try to get the cooperation of your own doctors first.

Luv - Sheila

Should I get more tests done, and what should I

get tested.. Where is the best lab to get the tests done, what are the best

supplements, when should I start to take NDT... .??? I have lots of books and

info, but as I feel so unwell and foggy headed most of the time I would

appreciate a bit of advice.. I have a diagnoses of M.E. fibromyalgia , anxiety,

etc.. According to my hormone test I am through menopause.. There is a life out

there and I miss myself, I went missing nearly 20 years ago.. It's about time I

made an effort to get myself back.

Thank you for reading this .. Marilyn

1 of 1 File(s)

LOW MINERALS AND VITAMINS AND THE THYROID CONNECTION.doc

[Guest guest]

Hi JOT

As far as I am aware, there is no law against patients self

medicating in the UK, but there are laws about NHS doctors self prescribing. I

think that many doctors in the UK will work with their patient if their patient

decides the NHS medicine doesn't work for them, and it is OK to self prescribe

and ask an NHS doctor to monitor your treatment. There are some doctors

who don't like it because they feel their recommendations are being challenged

so some will try to tell their patients that if they continue to self-medicate,

they will no longer be prepared to look after them and that they should change

their doctor. If there are laws here in the UK against self diagnosis, self

treatment and self monitoring, hopefully, somebody will come and let us know. There

is an NHS web site where you can put in your symptoms to their search engine to

find a possible diagnosis and that is open to everybody. The GMC, in their

'Duties of a Doctor Registered with the GMC' state they should:

Work in partnership with patients

o

Listen to patients and respond to their

concerns and preferences

o

Give patients the information they want

or need in a way they can understand

o

Respect patients' right to reach

decisions with you about their treatment and care

o

Support patients in caring for themselves

to improve and maintain their health

…so I guess that says it all.

Luv - Sheila

Hi Sheila:

If someone decides to self treat thyroid/adrenals in the UK, does this mean

they have to get permission from the NHS to do so? Will the NHS just throw them

out completely and not treat them in other areas? like for instance, a broken

leg ? How does this work?

In Barry Peatfield's new book, he's going to discuss self treating, right?

Personally, I think this is the way of the future and everyone should learn

this valuable art, but how does the NHS interfere with the decision to self

treat? Do they have the power to withhold treatment in other areas?

Thanks,

JOT

> First, you need to know that your case has been thoroughly rejected by the

> NHS and that nobody is prepared to do anything for you before going down

the

> road of self diagnosing, self treatment and self monitoring. You can start

> to do this by writing a letter to your GP and sending a copy to the Head

of

> Practice.

[Guest guest]

Thanks Sheila, that makes things much clearer.

Cheers,

JOT

> As far as I am aware, there is no law against patients self medicating in

> the UK, but there are laws about NHS doctors self prescribing.

[Guest guest]

--- In thyroid treatment , " > Hi M:

> >

> > We always start with the adrenals first. You can start taking your

> adrenal support, can you tell us what you have? Is 

> >

>

Hello again

Thanks for your reply, I have ordered some Dr adrenal support, I have his

book, very interesting.. I am also taking Vit C 1000, magnesium pantathonate

and marine fish oils. Have had a bad couple of days again, received a letter

from Endo with latest results, not helpful to me , I have posted the results

earlier this evening.

As I said previously, i feel at a complete loss, with my health deteriorating so

quickly now, all my bloods very normal, I am doubting myself even though I have

a huge range of hypo symptoms. I really hope I can get moving with the help of

this web site and the lovely knowledgable people on here.

Marilyn +

[Guest guest]

>

> Hi

> What are your symptoms, what were the results of the hertoghe questionsnnaire?

> > >

> > > >

>

Hello Again

I have just completed a couple of questionnairs, all sooo long, my eyes are

really tired now..! The Hertoghe one reveals that I could possibly be low in

several hormones, ie;ACTH,aldesterone,calcitonin,cortisol,epo,progesterone..and

Probabaly low in; DHEA ESTROGEN, MELOTONIN, PREGNENOLONE, TESTOSTERONEAND

THYROID HORMONES.. I dont really understand it, its an awful lot to take in.

I have just started the Dr s adrenal reviver, I have always taken at least

1000 vit c for as long as i can remember.. I have also seen a good naturpathic

doctor and taken heaps of very good vitamins.

I had some improvement when I was on the anti candida diet, its pretty hard

going though long term. I have looked at some of the files on this site that

give info on candida as well.

My symptoms are extremely long, I feel quite neurotic listing them all, but

thats how it is I am afraid...

muscle pain stiffness and weakness, especially hips, legs, shoulders

numbness sort of feeling in toes and on left side onle..!

extreme fatigue, but often have difficulty sleeping

feeling of being very unwell..!! (can fluctuate daily)

migraine/headaches

cold feet and hands/even in nice weather i always have little blanket over my

feet and legs when watching tv..!! (old lady!!)

ibs symptoms /constipation mainly, then may have a week or so when I am not

itchy dry skin/dry patches on face/sore dry eys,somtimes quite puffy

patches of eczema type rash/use hydrocortisone on it

sore throat/swallowing a bit difficult at times

night sweats..could be my age, but been like it now 10+years

anxiety and panic, only in last 2..3 years awful, even at night.

shortness of breath, sometimes use ventolin...

I could list lots of other things... My blood work has been normal except for a

few low t4 results.. but aseveyone keeps telling me tis is not the whole

picture.

I have seen a couple of Neuros as I have a muscular problem that causes

weakness, but they have said that my symptoms are not related to that, I think

the muscular condition has deteriated because of the underlying thyroid/adrenal

problem..

I have just written a letter as advised by Shiela, to my GP, and I have a follow

up with the endo in August. I am going to be more prepared this time, they are

always so nice as well, (except the odd one) but 'nice' is not getting anything

done for me.

Sorry I have written soooo much, but as I am new on here i seem to want to get

everything out.. I have seen Dr P, and Dr S... BOTH VERY NICE.. I was hoping for

alot more guidance when things went wrong, so I gave up , probabaly too easily.

Very hard when you ahve been so poorly for such a long time, I should of

persisted and maybe I would not be as bad as I am today..

When I have something a bit more concrete as in lab results, doctors replies

etc, I will post again.. I have another quetion thing here to that I printed

from the files..! so i will see what that turns up.

What are your symptoms, and where are you at with your treatments etc.. How long

have you been ill for????

Best wishes

Marilyn

[Guest guest]

Hi Marilyn

Thanks for providing extra info -very interesting.

did the hertoghe questionnaire mention growth hormone?

have you had b12 levels checked?

>I dont really understand it, its an awful lot to take in.

do you need to understand it? could it be time to pass this over to an expert

and get treatment?

>My blood work has been normal except for a few low t4 results.. but aseveyone

keeps telling me tis is not the whole picture.

wonder if that could indicate pituitary problems? when did all this start?

have you asked about pituitary problems? MRI scan?

> I have just written a letter as advised by Shiela, to my GP, and I have a

follow up with the endo in August. I am going to be more prepared this time,

they are always so nice as well, (except the odd one) but 'nice' is not getting

anything done for me.

but what are they checkikng? vitamin A, Vit D3, copper, iron, etc?

> Sorry I have written soooo much, but as I am new on here i seem to want to get

everything out..

that's what it's here for!

> When I have something a bit more concrete as in lab results, doctors replies

etc, I will post again.. I have another quetion thing here to that I printed

from the files..! so i will see what that turns up.

ok. is it worht making an appointment with Belgium anyway, so you have this as

an option? It's a long waiting list. i don't wish to sound negative but it

doesn't sound like the endo you're seeing is going to be able to help yuou? i

doubt very much that the nhs tests you've had are anywhere near as comprehensive

as the belgian ones. it's all very well saying " we 've testsed you and can't

find anytihng wrong- it must be in your mind " if they've not tested the right

things, which was my experience. there will be other hormonal clinics like the

wimpole clinic maybe ask them if they ccan help?

if you do have the deficiencies indicated by the questionnare above, do you

think that the NHS will treat you for them or consider them bad enough to be

treated?

> What are your symptoms, and where are you at with your treatments etc.. How

long have you been ill for????

oh mine are varied, i don't think they'd be very helpful to share as i'm male

and 32. not been right for a long time but last 3 yrs were the worst.

best regards

chris