Re: 'round and 'round the mulberry bush..... different strokes for different docs

[Guest guest]

Thanks Bob and Sheila. Bob, thanks so much for responding, but I think I am

missing something here... I can't understand how the study relates to what I

wrote about my thyroid and 'ocular migraines'?? I would be really grateful if

you could tell me how it relates to my situation because I don't really 'get'

it. Like Sheila, it has all gone over my head. Hope that you don't mind

explaining it a bit, especially if it would be helpful in my case.

PS - I spoke to the neuro-ophthamologist again to find out how she came to her

diagnosis of 'ocular migraine'. I found out that the 'ocular migraine'

diagnosis was not based on any physical symptoms and apparently I have perfect

eye health. The diagnosis was based on what they THINK is happening (Vasospasm

of the arterioles is what I think they said was happening), but I looked into it

further and apparently it is all on a theory that has not been proven (ie -

nobody has observed it yet). I didn't explain that very well, but it is

probably because it is 2am right now. I am up trying to finish some work

(someone gave me some simple typing to do). I cannot believe it, but when I

checked my typing this evening, in readiness for sending to them, I realised

that I had left out a large swag of the document I was typing. I would have

NEVER done something like that before, as I always was so thorough. What scares

me a bit, is that I checked and re-checked the document and I didn't SEE the

extra work that I had to do. How can that be possible! This sort of stupid

error making only started when all of this thyroid stuff started. I get quite

upset with myself and when I do dumb things like this it sort of scares me a

bit, especially because I used to be so 'with it'. I used to have a really

responsible job & used to have 20 things on the go at work at the same time and

could keep on top of it all, and now I can't even follow simple instructions

properly. I feel like part of my life has been robbed because I simply am not

the same cognitively as I was prior to all of this. I am lucky in many ways in

my life, but I was a very productive, thorough worker with great attention to

detail and now I am not. Nowadays, I try and do something simple like this and

I still can't get it right. ):

P

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If you could interpret this in understandable English Bob, it might perhaps make

sense. Way over my head.

Luv - Sheila

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> Hi P,

http://www.ncbi.nlm.nih.gov/omim/238310

Just a little to ponder...it's got me thinking here; I'm on folic acid !

to fix the brain 'damage'...

>

> ...will do some more reading...

>

> best wishes

>

> Bob

>

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.....I think that my thyroid is acting up again, because

after a period of weight loss (22 lbs since xmas) I am now starting to gain

weight again, my eyebrows are thinning even more (I will soon have a gap between

the top and the bottom of the hair in my left eyebrow.....my sleeping patterns

have gone a bit haywire in the last few days. I went to my GP to get an order

for a blood test, but he advised that he has received a notice from the health

authorities for ordering too many tests, so he has told me to wait 3 months

before getting my thyroid function tests done again. I think I need to go to

another doc so I can get my thyroid tested as I do NOT want to wait for this to

get worse.... On the specialist front, I saw a neuro-ophthamologist late last

week and she said that all of my weird visual symptoms (24hr a day visual snow,

flashes of light, concentric circles of lights around traffic lights, binocular

double and triple vision around green traffic lights, blobs of colour in dark

rooms etc) are all caused by..... wait for it...... ocular

migraines. P