Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 You need to start educating your GP Carole. Tell her that thyroid function tests ONLY shows the level of T4 and T3 in the blood, along with TSH. Thousands of sufferers of the symptoms of hypothyroidism are being told they don't have a problem with their thyroid because their TFT's are normal. Of course they don't have a problem with their thyroid gland, the problem lies elsewhere. We are not talking about how much thyroid hormone is in the BLOOD though. What we ARE talking about is that these tests don't/can't show whether the T4 (mainly inactive hormone) is being converted to T3 (the active hormone). T3 is needed by every cell in the body and brain to make them function. Your GP should KNOW (but obviously doesn't) that people with so called 'normal' TFT's, yet still complain of symptoms are suffering with a non-thyroidal problem, i.e. they have peripheral resistance to thyroid hormones at the cellular level. I would print off one of 's VERY important papers and ask her to read it http://www.tpa-uk.org.uk/pritchard1.pdf - and print this off and take with you http://www.tpa-uk.org.uk/greater_thyroid_system_table.pdf .. It is only by bringing such papers as these to your doctors attention that they will ever learn to start thinking out side of the box. CD will treat using synthetic T4/T3. I have not heard that he uses natural thyroid extract, but you should ask him. Tell him also that you are a member of Thyroid Patient Advocacy as he knows about the work we are doing, and Bob and I even went down to see him in Bristol with the results of our Patients Hypothyroid Survey which he was extremely interested in the results. Thyroxine is the main thyroid hormone secreted by the thyroid gland (approximately 85% - but it is mainly inactive) and the other 15% being triodothyronine (T3 - which is active). This amount of T3 is insufficient to keep the body functioning, so the T4 converts to T3 through the liver, kidneys, brain, skin and other thyroid hormone receptors throughout the body. However, for many of us, there are all sorts of problems/conditions that stop this conversion from taking place, so both the T4 and T3 lie in the blood with nowhere to go, causing toxicity symptoms. These patients often need T3 as a thyroid hormone replacement, sometimes in combination with T4 or natural thyroid extract. Patients with Hashimoto's should not take T4 - they need T3. Luv - Sheila thanks to Sheila for replying to a post after my taking a on genova urine test finding normal Ft4 and low FT3. Points noted. My GP tests tsh and Ft4, which show me as normal, and puts my hypo symptoms down to ME. so I doubt she will give me T3 even when shown the test result from genova, but I will ask to see the Prof C. D.. in Cardiff who is on the list here. Anyone know if he prescribes Natural Dessicated Thyroid or T3 ? is there anything else I can do to raise T3 naturally? Im taking the supplements and also know about the gluten free diet, but where does thyroxine fit in? should I go from the 12.5mcg thyroxine back to 50mcg again till I see endo? (I came down from 50mcg because of feeling worse and tsh 0.10 saying I was " overmedicated " ,) I am worried I will make T3 fall more and feel even worse if I raise dose back up. Anyone know if I would? ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Does the amount of T3 relative to T4 in the blood give any indication of whether there is a conversion problem? Similarly, does the amount of T3 relative to T4 shown in the 24-hour urine test give any indication of the same? Thanks, Miriam > You need to start educating your GP Carole. Tell her that thyroid function tests ONLY shows the level of T4 and T3 in the blood, along with TSH. > > Thyroxine is the main thyroid hormone secreted by the thyroid gland > (approximately 85% - but it is mainly inactive) and the other 15% being triodothyronine (T3 - which is active). This amount of T3 is insufficient to keep the body functioning, so the T4 converts to T3 through the liver, kidneys, brain, skin and other thyroid hormone receptors throughout the body. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Hi Sheila, thanks for all the info, your pretty amazing! certainly inspiring. Do you happen to know how long the waiting list is to see Prof CD by any chance? Im so excited at the possibility of some hel,p that Im getting real worried I wont get to see him before Im moved to England, and he is clearly an excellent choice. Carole > > You need to start educating your GP Carole. Tell her that thyroid function > tests ONLY shows the level of T4 and T3 in the blood, along with TSH. Old message deleted by moderator!!!!! Please remember to snip old messages...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 WAS this the correct link needed? http://www.thyroidmanager.org/Chapter6/Ch-6b-4.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 There are plenty of articles at Thyroidmanager.org so I'll have a browse, thanks. Miriam > Hi Miriam, > Sorry I can't remember the correct URL! but a search should find it . > > > > thyroid treatment > > From: miriam_hinch@... > > Date: Mon, 6 Jun 2011 10:05:19 +0000 > > Subject: Re: what do I do now. ? > > > > Thanks. I suppose that is Thyroidmanager.org not thyroidmanager.com? Quote Link to comment Share on other sites More sharing options...
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