Re: T3 only back to Erfa

[Guest guest]

All I can say is that if this was me Lizzie, I would get back on

to synthetic T3 again and tell your endocrinologist exactly what you have done,

the reason you did it , the successful outcome and the honest reason you felt

you should experiment to try to go back onto the NDT plus T4 again, which you

have found is now not working, and that you want to go back onto the synthetic

T3 route as that is what you have found has given back the best of your health

to you. A good doctor would really appreciate that you have done this on your

own and come out on top and will work with you (as all doctors should

do). Doctors and patients HAVE to work together, otherwise there is no

point of having a doctor.

Good luck.

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of lizzielassi

Sent: 18 March 2011 13:54

thyroid treatment

Subject: T3 only back to Erfa

Hi Everyone,

Sorry I haven't been around much but do still read the posts.

I just wanted to let you all know how things were going.

I changed over to T3 only from 3 grains of Erfa back in October as I was still

suffering from those horrible deep aching cramp pains in my thighs. I thought I

may be suffering from reverse T3. Well I think I probably was as I got up to 90

mcg of T3 and settled after 14 weeks on 50 mcg.

Since I have an endo appointment in April and the consultant knows nothing

about my little T3 only trial I have decided to try to transfer back over to

Erfa as this is what he is prescribing for me and it took 6 months for me to

get it funded by the hospital.

I have gradually over the last 3 and half weeks dropped the T3 and have

introduced the Erfa back in grain by grain by dropping 12.5 mcg T3 for 1 grain

of Erfa (which contains 8 mcg T3). So this morning was the first day that I

have not taken any synthetic T3 and am just on 2 grains of Erfa. I feel a

little despondent as my legs are achy today and I am so worried that I may go

back downhill, I must add though that I did occasionally get the leg pains when

on T3 so whatever it is I hadn't managed to eradicate them completely.

Technically I am now taking 16mcg T3 and 70 mcg of T4. I am wondering if

perhaps I need to take another 1/2 grain of Erfa but am frightened of going too

fast as I know that the T4 is not converted yet and will still build up.

Any advice would be welcome.

Love Lizzie

[Guest guest]

Hi Sheila,

Thank you for your reply, but have I given it long enough on the switch back to

Erfa to see how things pan out?

Love Lizzie

>

> All I can say is that if this was me Lizzie, I would get back on to

> synthetic T3 again and tell your endocrinologist exactly what you have done,

> all doctors should do). Doctors and patients HAVE to work together,

> otherwise there is no point of having a doctor.

>

> Good luck.

>

>

>

>

>

> Hi Everyone,

>

> Sorry I haven't been around much but do still read the posts.

>

> I just wanted to let you all know how things were going.

>

> I changed over to T3 only from 3 grains of Erfa back in October as I was

> still suffering from those horrible deep aching cramp pains in my thighs. I

> thought I may be suffering from reverse T3. Well I think I probably was as I

> got up to 90 mcg of T3 and settled after 14 weeks on 50 mcg.

>

> Since I have an endo appointment in April and the consultant knows nothing

> about my little T3 only trial I have decided to try to transfer back over to

> Erfa as this is what he is prescribing for me and it took 6 months for me to

> get it funded by the hospital.

>

> I have gradually over the last 3 and half weeks dropped the T3 and have

> introduced the Erfa back in grain by grain by dropping 12.5 mcg T3 for 1

> grain of Erfa (which contains 8 mcg T3). So this morning was the first day

> that I have not taken any synthetic T3 and am just on 2 grains of Erfa. I

> feel a little despondent as my legs are achy today and I am so worried that

> I may go back downhill, I must add though that I did occasionally get the

> leg pains when on T3 so whatever it is I hadn't managed to eradicate them

> completely. Technically I am now taking 16mcg T3 and 70 mcg of T4. I am

> wondering if perhaps I need to take another 1/2 grain of Erfa but am

> frightened of going too fast as I know that the T4 is not converted yet and

> will still build up.

>

> Any advice would be welcome.

>

> Love Lizzie

>

[Guest guest]

Hi Everyone,

I just wanted to let you know that yesterday I decided that life was too short

to continue the experiment of returning to Erfa from T3 only. Although I was

only 3 weeks into the experiment my legs were aching more than they had done on

T3, my knee joints were hurting and this had almost settled down on T3 and my

tennis elbow which I had forgotten about had started to come back, I also felt a

little weird similar to when I originally first started Armour (heavy legged if

that makes any sense).

My main concern that is bothering me, am I going to miss out on the T1, T2 and

Calcitonin that Erfa provides and what are the longterm consequences of this?

I now have to construct an email to my endo telling him that I have done this T3

trial off my own back and I am very worried that he may discharge me for messing

about without his advice. In the long run it should work out easier because my

pharmacy can supply the T3 as my GP has prescribed it before when I was on

combination therapy, whereas I am having to get the Erfa from the hospital

pharmacy.

Please reassure me that I am doing the right thing.

Love Lizzie

> Probably not Lizzie, and if you feel you are happy to continue the

> experiment until the time you see your Endo. then at least you will know by

it is working for you or not.

> > Good luck.

>