Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 For some reason, the link that I posted doesn't seem to work so here is another one that shows the abstract incase anyone wants to see it: http://www.hubmed.org/display.cgi?uids=15224366 > > Hi Everyone, > > I've been debating whether or not to post this because I don't want > to scare anyone unnecessarily. The last thing I want to do is scare > people, especially those who are already a little worried but I do > want to emphasize how important it is to have a doctor that knows > their stuff and how important it is to understand the risks involved > in the decisions we take. > > There have been lots of people who have taken Gleevec breaks. Some > of these people had no choice but to take a break because they either > had very low counts or some other issue that warranted the temporary > break. There have also been people who have taken voluntary breaks > which were against their doctors advice. > > For most of the people that have taken breaks, there haven't been any > negative repercussions and I want to stress that, especially for > those who had little or no choice when taking their break however I > do want to mention that there are risks involved in taking breaks > which is why many doctors are now using blood cell boosters to raise > low counts when possible which avoids some of the risks that a > Gleevec break can cause. > > I have an abstract > ( http://www3.interscience.wiley.com/cgi- > bin/abstract/109084458/ABSTRACT?CRETRY=1 & SRETRY=0 ) that shows how > two patients went into blast crisis after taking a 2 week break from > Gleevec which demonstrates the risk pretty strongly I would say but > again, I'm not posting this to scare anyone, just to inform you that > there are options and there are risks with everything we do. > > Take care, > Tracey > dx Jan 2002 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Tracey: This is not scary, this is being informed. Thanks for sending it. I am one of those who took a break, out of necessity. I have to go to see my oncologist today, so I will print out that information and give it to him. Thanks for your post. With warm regards, Matt ville, FL DX January of 2005 Gleevec Since May 2005 Father of 3 mtmaynor@... In a message dated 1/16/2007 3:14:37 P.M. Eastern Standard Time, traceyincanada@... writes: Hi Everyone, I've been debating whether or not to post this because I don't want to scare anyone unnecessarily. The last thing I want to do is scare people, especially those who are already a little worried but I do want to emphasize how important it is to have a doctor that knows their stuff and how important it is to understand the risks involved in the decisions we take. There have been lots of people who have taken Gleevec breaks. Some of these people had no choice but to take a break because they either had very low counts or some other issue that warranted the temporary break. There have also been people who have taken voluntary breaks which were against their doctors advice. For most of the people that have taken breaks, there haven't been any negative repercussions and I want to stress that, especially for those who had little or no choice when taking their break however I do want to mention that there are risks involved in taking breaks which is why many doctors are now using blood cell boosters to raise low counts when possible which avoids some of the risks that a Gleevec break can cause. I have an abstract ( _http://www3.http://www3.http://wwwhttp_ (http://www3.interscience.wiley.com/cgi-) bin/abstract/bin/abstrabin/abstrbin/abst & <WBR>SRETRY=0 ) that shows two patients went into blast crisis after taking a 2 week break from Gleevec which demonstrates the risk pretty strongly I would say but again, I'm not posting this to scare anyone, just to inform you that there are options and there are risks with everything we do. Take care, Tracey dx Jan 2002 Quote Link to comment Share on other sites More sharing options...
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