Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 No problem i think as i have been in such a similar situation its easier to give advice, whereas a GP who knows little about thyroid/adrenals and has never suffered themselves, just would not have a clue > > Hi Steve, > > Thanks for your advice and support. > > Thank goodness for this forum - I don't think my GP would have been able to give me any advice - he would have only offered me anti-depressants. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 HEAR! HEAR! Steve and ... it's a travesty how blatantly ignorant and arrogant physicians are, and how like sheep they are believing blindly without questioning the organisations they affiliate themselves with. Jacquie > No problem i think as i have been in such a similar situation its easier to give advice, whereas a GP who knows little about thyroid/adrenals and has never suffered themselves, just would not have a clue > > > > > > Hi Steve, > > > > Thanks for your advice and support. > > > > Thank goodness for this forum - I don't think my GP would have been able to give me any advice - he would have only offered me anti-depressants. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 I'll second that !!! Especially the arrogant bit !!! On one occasion (and there have been a few), I recall years ago a gynae/obstetrician so-called 'specialist' wanted to take me into surgery to 'slice' my ovaries as he put it as he thought I had polycystic ovaries. I said to the idiot wearing the dickey bow " Whooaaa, isn't there something less invasive you can do? " " Well we could do blood tests. " " Yes please. " I said. Guess what??? Blood tests proved negative. I ask you, not only was he prepared to give me a dangerous general anaesthetic, but to cut me open, slice my insides up and for what? I could write a book !!! If something doesn't work, they're so keen to cut that organ out (as has happened to me and now I know they were all hypo symptoms) or give you anti-depressants. And we call this a Health Service!!! Just my two penneth Rant over :)Jaki x On Mon, Jun 6, 2011 at 4:34 PM, falkowski_uk <jfalkowski@...> wrote: HEAR! HEAR! Steve and ... it's a travesty how blatantly ignorant and arrogant physicians are, and how like sheep they are believing blindly without questioning the organisations they affiliate themselves with. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2011 Report Share Posted June 13, 2011 Hi , I hope you don't mind, I deleted the second copy of your original message. If you have two copies of the same message, people can reply to either one and make it very difficult to follow the subsequent thread. best wishes Bob > > Hi All, > > It is two weeks since I changed my dose schedule to take T3 last thing at night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2011 Report Share Posted June 13, 2011 Hi Bob, Thanks for that - there seems to be a delay problem with the forum. I don't know if it is at my end or not. B > > I hope you don't mind, I deleted the second copy of your original > message. > > If you have two copies of the same message, people can reply to either > one and make it very difficult to follow the subsequent thread. > > best wishes > > Bob > > > > > > Hi All, > > > > It is two weeks since I changed my dose schedule to take T3 last thing > at night. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2011 Report Share Posted June 13, 2011 Hi , The delay is due to the moderation process. Sometimes a few minutes, others a little longer if no-one is currently available. We do our best to provide cover for most of the 'normal' day. Moderation keeps away spam and 'intruders'... best wishes Bob > > Hi Bob, > > Thanks for that - there seems to be a delay problem with the forum. I don't > know if it is at my end or not. > > B > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Hi All, It has been nealy three weeks since I changed my dose schedule and started taking my last T3 dose at bedtime. As I said before, my morning depression seems to have gone but other things have now surfaced. I am still feeling tired in the morning and wake up feeling achy and now I feel tired all day and evening as well. Last week I increased my morning dose with an extra 2.5mg T3 (I am sensitive to increases so I have to go slowly) but I did not feel any different. I will be increasing by another 2.5mg tomorrow. I used to take my meds at 6.00am, 8.00am, 11.00am, 2.00pm and 5.00pm. I now take them at 8.00, 11.30, 3.30, 6.00 and bedtime. Could it be that because I was taking all the meds between 6.00am and 5.00pm that the medication was too concentrated and that now it is more spaced out during the whole day and night it is evident that I need more and the dose I was taking before was not enough? My other half also changed his dosing schedule and takes his last T3 at beditme - he is having a wonderful time. He wakes up feeling good and feels ok during the day. I will keep with this schedule - I am sure it will work out better for me. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 , this is your longest post that I could retrieve. Perhaps you should continue with this one because you have several going with the same title and it's a bit of a muddle for us and the moderators. Love Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Depression and zombie mornings Hi All, It has been nealy three weeks since I changed my dose schedule and started taking my last T3 dose at bedtime. As I said before, my morning depression seems to have gone but other things have now surfaced. I am still feeling tired in the morning and wake up feeling achy and now I feel tired all day and evening as well. Last week I increased my morning dose with an extra 2.5mg T3 (I am sensitive to increases so I have to go slowly) but I did not feel any different. I will be increasing by another 2.5mg tomorrow. I used to take my meds at 6.00am, 8.00am, 11.00am, 2.00pm and 5.00pm. I now take them at 8.00, 11.30, 3.30, 6.00 and bedtime. Could it be that because I was taking all the meds between 6.00am and 5.00pm that the medication was too concentrated and that now it is more spaced out during the whole day and night it is evident that I need more and the dose I was taking before was not enough? My other half also changed his dosing schedule and takes his last T3 at beditme - he is having a wonderful time. He wakes up feeling good and feels ok during the day. I will keep with this schedule - I am sure it will work out better for me. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Hi I took the liberty of moving your post to your original thread. It sounds like you need more T3 so increase your dose and spread them throughout the day perhaps in 6 increments. Listen to your gut as to how much, etc. So glad to hear your husband is doing well at least... he will just have to be patient with you because you still have a way to go but keep up the good spirits... there is light at the end of the tunnel. At least you are not waking up depressed anymore which is one tremendously good thing. Hang in there! Love Jacquie Hi All, It has been nealy three weeks since I changed my dose schedule and started taking my last T3 dose at bedtime. As I said before, my morning depression seems to have gone but other things have now surfaced. I am still feeling tired in the morning and wake up feeling achy and now I feel tired all day and evening as well. Last week I increased my morning dose with an extra 2.5mg T3 (I am sensitive to increases so I have to go slowly) but I did not feel any different. I will be increasing by another 2.5mg tomorrow. I used to take my meds at 6.00am, 8.00am, 11.00am, 2.00pm and 5.00pm. I now take them at 8.00, 11.30, 3.30, 6.00 and bedtime. Could it be that because I was taking all the meds between 6.00am and 5.00pm that the medication was too concentrated and that now it is more spaced out during the whole day and night it is evident that I need more and the dose I was taking before was not enough? My other half also changed his dosing schedule and takes his last T3 at beditme - he is having a wonderful time. He wakes up feeling good and feels ok during the day. I will keep with this schedule - I am sure it will work out better for me. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Hi , You just need to keep experimenting until you get your times and your dose right. If you dont feel its enough increase it. You will know when you take too much (as your sensitive anyhow you know what it feels like) Sally xx Hi All,It has been nealy three weeks since I changed my dose schedule and started taking my last T3 dose at bedtime.As I said before, my morning depression seems to have gone but other things have now surfaced.I am still feeling tired in the morning and wake up feeling achy and now I feel tired all day and evening as well. Last week I increased my morning dose with an extra 2.5mg T3 (I am sensitive to increases so I have to go slowly) but I did not feel any different. I will be increasing by another 2.5mg tomorrow.I used to take my meds at 6.00am, 8.00am, 11.00am, 2.00pm and 5.00pm. I now take them at 8.00, 11.30, 3.30, 6.00 and bedtime. Could it be that because I was taking all the meds between 6.00am and 5.00pm that the medication was too concentrated and that now it is more spaced out during the whole day and night it is evident that I need more and the dose I was taking before was not enough?My other half also changed his dosing schedule and takes his last T3 at beditme - he is having a wonderful time. He wakes up feeling good and feels ok during the day. I will keep with this schedule - I am sure it will work out better for me. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2011 Report Share Posted July 6, 2011 Hi All This is an update on my last post. I have managed to alter my dosing schedule and am now taking my last T3 a bedtime. This has gone well and I now no longer feel depressed in the morning. However, I still feel tired and zombiefied. Three weeks ago I added 2.5mg T3 to my morning dose of 1 grain NDT. That seemed to go well – I did not feel any difference. A week later I added another 2.5mg T3 – I think that went well but I still felt tired and zombiefied in the mornings and somewhat tired the rest of the day. A week later I added 2.5mg of T3 to my 11.30 dose as well but started to feel weird around 2.30 - and this lasted till about 5.00. This could have been the increase so I did not take any more meds for the rest of the day. On the same day, last thing at night, I sorted out my dose for the next morning – this dose I keep on my bedside table. I took the dose in the morning and later, my 11.30 dose. When I went upstairs around 12.00 noon to get the bedside dose ready for the next day, I realised that the night before I had put two 5mg bits of T3 in the pot and had taken both of them, as well as the 1 grain NDT for the morning dose. That totalled 20mg T3 as well as the T3 in the NDT in the space of 4 hours! I felt scary dreadful all afternoon. My pulse was very high and all over the place; my head felt like bursting, I felt weak, trembly and sick. I obviously did not take any more meds that day. My other half wanted to take me to A & E. Since then I have gone back to my original dose of 1 grain NDT first thing and 40mg of T3 in four separate doses – the last at bedtime. I am really upset that I am not able to increase my T3 so that I don't feel tired and zombiefied in the morning and tired during the day. I take 7.5mg HC first thing and 5mg HC at 11.30 and 2.5mg HC at 3. I also take various vitamins and minerals. I am now scared of experimenting and think that feeling zombiefied in the morning and somewhat tired during the day is infinitely preferable to the very scary feelings of increasing my dose. If anyone has any suggestions on what I can do, I would be grateful. B p.s. my other half is doing great on taking his dose last thing at night, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2011 Report Share Posted July 6, 2011 Hi , Dont feel dispondant...and do experiment dont be scared. OK sometimes we upset our pulse rate a little, but no harm will come to you unless you do it over many years and I doubt that would be the case. So what you did was perfectly OK and what you did to resolve it was perfectly correct. I am though a bit confused about the doseage of T3 you are taking 1 grain of NDT but 40mcgs of T3? or is it ? Perhaps you could confirm what it is total T3 you take in a day. I would try increasing your NDT and see if that helps you rather than T3 it is very potent. The other thing is do you take your NDT first thing before food and chew it and leave it in your mouth to absorb? might be worth a try. eLeave at least 30mins before you eat after taking it. OK 20mins at the very least.!! No you dont have to feel that way, we just have to figure out why you do and how to resolve it....dont give you...cant you smell your success? OK so stick with it keep experimenting sometimes you hit on the good success but occasionally its back to the drawing board. Best wishes, Sally xxx I am now scared of experimenting and think that feeling zombiefied in the morning and somewhat tired during the day is infinitely preferable to the very scary feelings of increasing my dose.If anyone has any suggestions on what I can do, I would be grateful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2011 Report Share Posted July 7, 2011 Hi i remember helping you with your dosing last time By just having a quick read of your post(im at work) i would possibly say that you are not on enough HC or its possibly your adrenals causing you to feel tired all the time. Did you ever get a saliva test and post the results ? and/or we could really do with you tracking some temperatures down. Every 3 hours after awake 3 times a day to see how your adrenals are coping ? and lastly do you have any iron labs, Ferritin and/or full iron panel ? Steve > > Hi All > > This is an update on my last post. > > I have managed to alter my dosing schedule and am now taking my last T3 a bedtime. ************Old message deleted by moderator. It's ok, I sit here all night just to shorten posts, we never sleep Please trim posts to leave just a few lines of the message you are replying to.*************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Hi , it really does strike me that you are taking too many 'little' doses of T3 at too many times during the day. The usual recommendation when taking T3 is to split the dose twice a day. This is because T3 has a very short half life of 2 days in humans, but you start to feel the effect of it leaving your system in about 6 to 8 hours - that's why we suggest taking the first dose at breakfast time (you can take T3 with food) and the second dose about 2.00/3.00p.m. which literally keeps your tank topped up and you don't get that afternoon 'slump' when you feel like going to sleep. Taking such small doses will not give you that 'good' energetic feeling, and I am not convinced that taking T3 at night is a good thing because the 'good, energetic' feeling you get will be lost because you will be sleeping through it. However, taking T4 at night when you go to bed has been shown to be good, because people apparently do sleep better with nighttime dosing and they feel more energised in the morning when they wake. Perhaps you should be taking your Erfa at night and take your synthetic T3 during the day. Some of the associated conditions that go along with being hypothyroid that can stop the thyroid hormone from being propetly absorbed are: Low adrenal reserve - systemic candidiasis, mercury poisoning caused through amalgam fillings, low levels of serum ferritin, vitamin b12, vitamin B3, magnesium, folate, copper and zinc. Your doctor will test these last 7. If any are low, you will need to supplement what ever is low to bring your levels up to where they should be. Hope this helps, but don't keep changing your dosage, or you will never know where you are and try to keep your dosing schedule as simple as possible, otherwise, like your experience the other day, you run the risk of taking too much at one dose. you did right however in not taking any more that day. Luv - Sheila > > On the same day, last thing at night, I sorted out my dose for the next morning – this dose I keep on my bedside table. I took the dose in the morning and later, my 11.30 dose. When I went upstairs around 12.00 noon to get the bedside dose ready for the next day, I realised that the night before I had put two 5mg bits of T3 in the pot and had taken both of them, as well as the 1 grain NDT for the morning dose. That totalled 20mg T3 as well as the T3 in the NDT in the space of 4 hours! I felt scary dreadful all afternoon. My pulse was very high and all over the place; my head felt like bursting, I felt weak, trembly and sick. I obviously did not take any more meds that day. My other half wanted to take me to A & E. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 I do not mean to argue Sheila but as we know everybody is different. For me personally T3 works ALOT better split into 6 smaller doses a day compared to when i tried 2 doses a day! Possibly because of my adrenals ? And taking T3 just before my head hits the pillow is probably the best thing i have ever done regarding my T3 schedule, as i no longer drag myself out of bed and into work for 10 o clock, im up with energy and awake at half past 8 every morning now. Val from the NTH groups says that its natural for T3 to be at its peak/highest at 12 midnight. Steve > > > Hi , it really does strike me that you are taking too many > 'little' doses of T3 at too many times during the day. The usual > recommendation when taking T3 is to split the dose twice a day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 >For me personally T3 works ALOT better split into 6 smaller doses a day compared to when i tried 2 doses a day! Possibly because of my adrenals ? Maybe you use it up really fast and if you take 2 big doses a day, you go too high for a while? but by taking little and often, maybe you keep a steady dose, a bit like people with hypoglycemia who need to eat 6 small meals a day instead of 2-3 big ones? that is probably stating the obvious though.... chris > > I do not mean to argue Sheila but as we know everybody is different. For me personally T3 works ALOT better split into 6 smaller doses a day compared to when i tried 2 doses a day! Possibly because of my adrenals ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Hi All, Thank you for your feed-back - I do appreciate your comments. > > Hi , it really does strike me that you are taking too many > > 'little' doses of T3 at too many times during the day. The usual > > recommendation when taking T3 is to split the dose twice a day. I am extremely sensitive to medication and found that I was only able to increase my T3 to 40mg if I split it into 4 doses. I also find that taking the last dose of T3 at night seems to lift my morning depression. I added 2.5mg HC this morning but it did not feel right. I find it helps me to 'stress dose' with Isocort which seems to be gentle for me. These past couple of weeks I seem to have lost my way - so I have gone back to the dose I was taking last month. I only tried to change my dosing schedule and amount because I wanted to be out of the house at 9.00am one or two days a month - but I have decided that mornings are not for me and I may be able to do afternoons only for my voluntary work. I am having a new kitchen fitted on the 18th July so I will not do any more 'experiments' with my medication until I am fully over the disruption. I will print off the suggestions I have received and take another look at them next month. It is wonderful to be able to get feedback from the forum - can you imagine going to a GP and asking him for his thoughts on dose schedule changes? Thank you all for your advice. B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 No i tried the same dosage with 50 in the morning and 50 in the afternoon, im pretty sure it was too harsh on my adrenals as i already take quite a big HC dose (42.5) and T3 " uses " up hc. So there was just not enough HC or was too taxing on my adrneals. However i do eat little and often, but this is unrelated to T3 and more to my BG issues Steve > Maybe you use it up really fast and if you take 2 big doses a day, you go too high for a while? but by taking little and often, maybe you keep a steady dose, a bit like people with hypoglycemia who need to eat 6 small meals a day instead of 2-3 big ones? that is probably stating the obvious though.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Ignore my first post i missread lol damn trying to skim at work! Yeh you are exactly right i have a very fast matabolism and when i took too big doses i was using it up too fast, most prbably using up whatever HC was around causing me to end up feeling tired or needing more hc than usual. I also have BG issues and do eat small and often. Steve > > >For me > personally T3 works ALOT better split into 6 smaller doses a day compared to > when i tried 2 doses a day! Possibly because of my adrenals ? > > Maybe you use it up really fast and if you take 2 big doses a day, you go too high for a while? but by taking little and often, maybe you keep a steady dose, a bit like people with hypoglycemia who need to eat 6 small meals a day instead of 2-3 big ones? that is probably stating the obvious though.... > > chris Quote Link to comment Share on other sites More sharing options...
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