Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Been to the doctors today, which seemed an utter waste of time. Someone had rung to say I needed to see the doctor about blood results. First thing he did was hunt for a pen and then produced one of those tick box forms for depression, which confused me as I had come for blood test results. I refused to fill it in telling him I didn't think I was depressed, but was getting hacked off with feeling ill. Anyway he said everything is fine and he doesn't know why I feel so rubbish. Then just sat there waiting for me to leave, so I did. On my way out of the surgery I asked at reception for a printout of the latest blood tests, saying the doctor told me to ask them to print one off for me, which she did. I wonder if these results are all ok and why have a ref range if some results above or below range are ignored? Currently on 50 mcg Levothyroxine TSH 1.4 (0.35 – 4.94) fT3 3.85 (3.6 – 6.5) fT4 11.7 (9 – 19.1) I had a lot of other bloods tested, here are some of them, which the Gp says are all normal Serum potassium 5.5mmol/L (3.5 - 5.3) Above average ESR 4.0mm/hr (9 - 19) Below average Heamoglobin 14.7g/dL (11.5 – 14.8) Haematocrit 0.457 (0.36 – 0.46) Folate 12.4ng/ml (1.8 - 18.3) Ferritin 42.6ng/ml (10 – 204) B12 2,000 (187 – 883) Above average – I knew this would be high as I had just had my B12 jab I really don't know where to go from here, I would be so grateful for any advice what I should do next. Thankyou Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Hi Tina, for how long have you been on only 50mcgs levothyroxine. This is a small dose. The average dose is between 125mcgs to 150mcgs, with some people needing doses as high as 300mcgs and even more. To be honest, I wouldn't waste my breath on this particular doctor because s/he clearly doesn't have an inkling of how the thyroid system works. If he believes that your free T3 ( the ACTIVE hormone) is OK sitting below the bottom of the reference range, and that your free T4, which is only a couple of points above the bottom of the reference range is OK, then he clearly needs to update his education by doing a little more research. Drop him a line - the written word always works better than face to face consultation, and send a copy to the Head of Practice and ask for your letter to be placed into your medical notes. List every symptom you have and every sign you are showing. Check these out on our web site www.tpa-uk.org.uk under Hypothyroidism. Take your basal temperature before you get out of bed in a morning for 4 or 5 days. If it is lower than 36.6 degrees C (97.8 degrees C) list these too. Let him know that YOU know (even if he does not) that for people who are not taking any thyroid hormone supplementation, the free T4 should be just above the middle of the reference range, which would mean that your fT4 level should be reading around 14/15 and that free T3 should be into the upper third of the reference range, which would mean that your fT3 should be around 4.8 to 5.0. For those who ARE taking thyroid hormone replacement, your free T4 should be in the upper third of the reference range with your free T3 the same. If you have members of your family who have a thyroid or autoimmune disease, list these. Ask that your blood be tested to see whether you have antibodies to your thyroid. The tests to ask for are TPO and TgAb. If you have not been tested for these, ask for blood tests to check your levels of vitamin D3, magnesium, copper and zinc. Zinc is very important. You might wish to tell him that YOU are aware that if any of these are low in the range, your thyroid hormone cannot be properly utilised at the cellular level. Your ferritin is too low at 42.6 - it should be between 70 to 90 for you to feel normal. You should get some elemental iron from your health food store and take as recommended with large doses of vitamin C i.e. 4/5000 mgs, or at least, to bowel tolerance. Tell him that you wish to get a second opinion from an endocrinologist of your choice and ask to be referred to one you choose from the private list I will send you. Some of these are NHS and others are private, but you can be referred outside of your area. Your GP is not a specialist in anything, he is a general practitioner only and you are entitled to a second opinion. Hope this helps. Luv - Sheila Been to the doctors today, which seemed an utter waste of time. Someone had rung to say I needed to see the doctor about blood results. First thing he did was hunt for a pen and then produced one of those tick box forms for depression, which confused me as I had come for blood test results. I refused to fill it in telling him I didn't think I was depressed, but was getting hacked off with feeling ill. Anyway he said everything is fine and he doesn't know why I feel so rubbish. Then just sat there waiting for me to leave, so I did. Currently on 50 mcg Levothyroxine TSH 1.4 (0.35 – 4.94) fT3 3.85 (3.6 – 6.5) fT4 11.7 (9 – 19.1) I had a lot of other bloods tested, here are some of them, which the Gp says are all normal Serum potassium 5.5mmol/L (3.5 - 5.3) Above average ESR 4.0mm/hr (9 - 19) Below average Heamoglobin 14.7g/dL (11.5 – 14.8) Haematocrit 0.457 (0.36 – 0.46) Ferritin 42.6ng/ml (10 – 204) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Hi Nadia There are MANY reasons and many medical conditions associated with thyroid disease that stop thyroid hormone from getting into the cells, where it does its work. I mention these over and over and over again - ad nauseum - people must be bored with the same old, same old but as each new member joins us, they need to know. The main condition responsible for stopping thyroid hormone from working, is, quite simply, a patients thyroxine dose is too low because the doctor or consultant refuses to increase it, because the serum thyroid function test results appear OK. Sometimes, the thyroxine dose is too high, yet patients still don't feel well. They continue to suffer. Some reasons for this: They may be suffering with low adrenal reserve. The production of T4, its conversion to T3, and the receptor uptake requires a normal amount of adrenal hormones, notably, of course, cortisone. (Excess cortisone can shut production down, however.) This is what happens if the adrenals are not responding properly, and provision of cortisone usually switches it on again. But sometimes it doesn’t. If the illness has been going on for a long time, the enzyme seems to fail. This conversion failure (inexplicably denied by many endocrinologists) means the thyroxine builds up, unconverted. So it doesn’t work, and T4 toxicosis results. This makes the patient feel quite unwell, toxic, often with palpitations and chest pain. If provision of adrenal support doesn’t remedy the situation, the final solution is the use of the active thyroid hormone, already converted, T3 - either synthetic or natural. Then, we have systemic candidiasis. This is where candida albicans, a yeast, which causes skin infections almost anywhere in the body, invades the lining of the lower part of the small intestine and the large intestine. Here, the candida sets up residence in the warmth and the dark, and demands to be fed. Loving sugars and starches, candida can make you suffer terrible sweet cravings. Candida can produce toxins which can cause very many symptoms of exhaustion, headache, general illness, and which interfere with the uptake of thyroid and adrenal treatment. Sometimes the levels - which we usually test for - can be very high, and make successful treatment difficult to achieve until adequately treated. Then there is receptor resistance which could be a culprit. Being hypothyroid for some considerable time may mean the biochemical mechanisms which permit the binding of T3 to the receptors, is downgraded - so the T3 won’t go in. With slow build up of T3, with full adrenal support and adequate vitamins and minerals, the receptors do come on line again. But this can be quite a slow process, and care has to be taken to build the dose up gradually. And then there are Food allergies. The most common food allergy is allergy to gluten, the protein fraction of wheat. The antibody generated by the body, by a process of molecular mimicry, cross reacts with the thyroperoxidase enzyme, (which makes thyroxine) and shuts it down. So allergy to bread can make you hypothyroid. There may be other food allergies with this kind of effect, but information on these is scanty. Certainly allergic response to certain foods can affect adrenal function and imperil thyroid production and uptake. Then we have hormone imbalances. The whole of the endocrine system is linked; each part of it needs the other parts to be operating normally to work properly. An example of this we have seen already, with cortisone. But another example is the operation of sex hormones. The imbalance that occurs at the menopause with progesterone running down, and a relative dominance of oestrogen is a further case in point – oestrogen dominance downgrades production, transportation and uptake of thyroid hormones. This is why hypothyroidism may first appear at the menopause; the symptoms ascribed to this alone, which is then treated – often with extra oestrogen, making the whole thing worse. Deficiency in progesterone most especially needs to be dealt with, since it reverses oestrogen dominance, improves many menopausal symptoms like sweats and mood swings, and reverses osteoporosis. Happily natural progesterone cream is easily obtained: when used it has the added benefit of helping to stabilise adrenal function. Then, we must never forget the possibility of mercury poisoning (through amalgam fillings) - low levels of ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc - all of which, if low, stop the thyroid hormone from being utilised by the cells - these have to be treated. As Dr Peatfield says " When you have been quite unwell for a long time, all these problems have to be dealt with; and since each may affect the other, it all has to be done rather carefully. Contrary to cherished beliefs by much of the medical establishment, the correction of a thyroid deficiency state has a number of complexities and variables, which make the treatment usually quite specific for each person. The balancing of these variables is as much up to you as to me – which is why a check of morning, day and evening temperatures and pulse rates, together with symptoms, good and bad, can be so helpful. Many of you have been ill for a long time, either because you have not been diagnosed, or the treatment leaves you still quite unwell. Those of you who have relatively mild hypothyroidism, and have been diagnosed relatively quickly, may well respond to synthetic thyroxine, the standard treatment. I am therefore unlikely to see you; since if the thyroxine proves satisfactory in use, it is merely a question of dosage. For many of you, the outstanding problem is not that the diagnosis has not been made – although, extraordinarily, this is disgracefully common – but that is has, and the thyroxine treatment doesn’t work. The dose has been altered up and down, and clinical improvement is variable and doesn’t last, in spite of blood tests, which say you are perfectly all right (and therefore you are actually depressed and need this fine antidepressant). The above problems must be eliminated if thyroid hormone isn't working for you. Luv - Sheila My latest blood test results are in: TSH <0.01 (0.27-3.5) (usual for me) FT4 17 (9-22) FT3 8.6 (?? - 6.9) Ferritin (in march) was 68 (don't have latest result yet) I still feel crap and am getting progressively worse. I am taking: 100mcg T4, 20mcg T3 and 1 gr erfa in the morning (usually 7am) and 2 gr erfa around lunchtime. I sometimes forget the second dose (usually once a week but twice this week though). I have a slump around 1pm when not busy, and around 3-4pm when I am - regardless of whether I've taken my second dose or not. I am constantly tired, sometimes exhausted, very low blood pressure (recent afternoon reading during a 'slump' was 101/52), by basal temp the last 2 mornings was 36.2 and I have a host of emotional symptoms and very bad memory. I have made a follow up appt with Dr P for mid september and hopefully (money allowing) will do another adrenal stress profile - I did one 4 yrs ago and it was ok-ish but have had a baby since then and feel constantly stressed out by a variety of things including trying to run around after a nearly 3 year old with my energy levels!. I have another appt with my GP next week, when I'm sure she'll say I'm over medicated!! Anyway, just wanted a moan as feeling rubbish and totally fed up with it - this has been going on for a year now and I just want to feel well. Any comments always welcome. Nadia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Hi there, slumping is usually the ADRENALS. you need to test asap/!!!! Angel. Quote Link to comment Share on other sites More sharing options...
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