Re: Gonadotrophin Deficiency

[Guest guest]

Hi

I remember you posting a few weeks back. THis is your thread in case anyone

wants to refresh their memory:

thyroid treatment/messages/81241?threa\

ded=1 & m=e & var=1 & tidx=1

I am glad you are starting to get to the bottom of this.

> The local NHS have refused to do further investigations considering that there

is nothing wrong.

yes but now you have proof something is wrong, and have an expert who has said

so.

>> It looks like I will need to go back to my GP and get him to make this

referral. Given the previous very insulting way in which I have been treated, I

am very nervous about this.

see above - i think that now you have something concrete by an expert, this may

change their tune.

> Does anyone have any advice for me as to how to go about this. I do not want

them sayng that they cant make the referral or that as this is a private

diagnosis they can't accept it. Given the potential seriousness of the diagnosis

I sincerely hope that they will not do this. But I would really appreciate any

advice

well you have proven them wrong there - is something wrong an an expert in the

field has said so. i take it he's written to your duaghter's GP? i would go

back and see them and see what they say - i appreciate you've had awful

experiences with them but if he or she doesn't refer your duaghter, then that is

surely negligence? remind him of htis? perhaps their previous stance was

because 'nothing was wrong' but you now know there is so i'd go back and see

them first. as you state this is a sersious condition so i would go back and

see the gp first - you may not need to worry?

may be a good idea to change GP too?

chris

>

> Dear All,

>

> At last we have some abnormal bloodtest results - this shows Gonadotrophin

Deficiency. She has low FSH and LH levels and also a low serum oestradiol

concentration. All abnormally low for a child of 13.

>

> She has been seen by a Paediatric Professor in Endocrinology who has now

retired from the NHS and works privately.

>

> The local NHS have refused to do further investigations considering that there

is nothing wrong.

>

[Guest guest]

Dear Even Private doctors are able to write back to our GPs.. Would the starting point be for your private professor to write back to your GP explaining his findings and the next steps needed to test to assist in diagnosis and a recommendation of an expert who has the knowledge to do this..

Get him to sent you a copy of the letter...and then make an appointment with the GP for a week after you receive the letter and ask him to discuss it at the appointment.Tracey

On Sat, Jul 2, 2011 at 2:57 PM, m.kidson60@... <m.kidson60@...> wrote:

[Guest guest]

Hi Tracey,

Thanks. Yes, he has already copied his letter to my GP - the main letter is to

another private Dr who has been fighting my daughter's corner. The letter

includes the details of the endocrinologist the Professor wants my daughter to

see.

I shan't be waiting a week - I was going to go down on Monday!

I expect the main issue here is one of the referral system and how tied the GP's

hands are by the PCT as to whether he can make the direct referral or as to

whether it has to go through the local paediatricians. I need to know in case

they start to give me some spurious information as they have before.

I will ring PALS on Monday as well.

>

> > **

> >

> >

> > Dear All,

> >

> > At last we have some abnormal bloodtest results - this shows Gonadotrophin

>

[Guest guest]

Hi

> see above - i think that now you have something concrete by an expert, this

may change their tune.

I hope so!

> well you have proven them wrong there - is something wrong an an expert in the

field has said so. i take it he's written to your duaghter's GP? i would go

back and see them and see what they say - i appreciate you've had awful

experiences with them but if he or she doesn't refer your duaghter, then that is

surely negligence? remind him of htis? perhaps their previous stance was

because 'nothing was wrong' but you now know there is so i'd go back and see

them first. as you state this is a sersious condition so i would go back and

see the gp first - you may not need to worry?

>

Thanks for this - I expect that I am worrying about nothing. I am just very,

very nervous about going to see them. They were not far off charging me under

the mental health act.

> may be a good idea to change GP too?

There is only one other GP Practise in the small market town that I live. Last

time I approached them they were full - too many people had moved from the

practice that I am at! That says alot doesn't it! I will check again with them.

Thanks.

[Guest guest]

Hi , you can't go far wrong if you put all your requests

down in writing. Send a letter to your GP with a copy to the Head of Practice

and ask for your letter of requests to be placed into your daughter's medical

Records. Doctors always take more notice of the written word, where they can

often deny a face to face discussion took place. I would write in your letter

that because the NHS have refused to do further investigation into your

daughters problems that you have seen a Paediatric professor in Endocrinology

who has recommended that she has a MRI scan to rule out an adenoma or

craniopharyngioma and that you need him/her to give her a referral as soon as

possible to a the particular specialist he recommended at Birmingham Children's

Hospital (give this specialists name).

Tell the GP that you hope to hear from him as soon as possible

as naturally, this is very worrying for both you and your daughter and that

this should be investigated as a matter of urgency.

Make sure that you write at the bottom of your letter " Ccd

to Head of Practice " . I would post this letter to the GP concerned as a

Recorded Delivery so you have receipt of postage in case your surgery denies

receiving it. Keep a copy the letter yourself in case you need to refer to it

at a later date.

Good luck, and please don't let these idiots bully you, or your

daughter. Be assertive and stand your ground.

Luv - Sheila

Dear All,

At last we have some abnormal bloodtest results - this shows Gonadotrophin

Deficiency. She has low FSH and LH levels and also a low serum oestradiol

concentration. All abnormally low for a child of 13.

She has been seen by a Paediatric Professor in Endocrinology who has now

retired from the NHS and works privately.

The local NHS have refused to do further investigations considering that there

is nothing wrong.

The Professor is recommending that she have a MRI scan to rule out an adenoma

or craniopharyngioma and that she should be referred to someone he knows at

Birmingham Children's Hospital.

It looks like I will need to go back to my GP and get him to make this

referral. Given the previous very insulting way in which I have been treated, I

am very nervous about this.

Does anyone have any advice for me as to how to go about this. I do not want

them sayng that they cant make the referral or that as this is a private

diagnosis they can't accept it. Given the potential seriousness of the

diagnosis I sincerely hope that they will not do this. But I would really

appreciate any advice.

Thank you.

I am very worried about this, but also relieved as it seems that we have

something to explain my daughter's symptoms, not least her daily severe

headaches.

[Guest guest]

Do let us know how you get on

best regards

chris

>

> Hi

>

> > see above - i think that now you have something concrete by an expert, this

may change their tune.

>

> I hope so!

[Guest guest]

Hi Sheila,

Thank you very much for your very sound advice. A letter will be a far better

option before I go to see the GP.

> Hi , you can't go far wrong if you put all your requests down in

> writing. Send a letter to your GP with a copy to the Head of Practice and

> ask for your letter of requests to be placed into your daughter's medical

> Records. Doctors always take more notice of the written word, where they can

> often deny a face to face discussion took place.

I will let you know how I get on.

Very best wishes,

[Guest guest]

Hi

> Do let us know how you get on

>

I will indeed.

Thank you for your help.

Very best wishes,