Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 Hi. How long have you been on Gleevec? I've had two experiences with bone pain. When I first started taking Gleevec which was supposedly because of the Gleevec killing off lots of bad cells all at once. Then again when I was on 800 mg Gleevec when it was a side effect of Gleevec itself. It would subside when I took Gleevec vacations. It finally went away when I lost my response to Gleevec and started on Sprycel. I had it in my right hip and lower back. Sorry you're going through this. Nothing worked to take away my pain including ocycontin. The only thing that worked in one severe attack was intravenous Ativan. [ ] Bone Pain Good Morning Guys Just wanted to ask about bone pain. I had bone pain very early in the piece when first diagnosed. You all know the feeling, isolated that you can feel exactly where the pain is and then Comes and goes etc. Then disappears as gleevic works. However, this feeling has started up again. I haven't had any for such a very long time. Nearly a year. Then all of sudden I have had a week of isolated bone pain again. Right foot, left shin and left hip (not at the same time thank god.) Now gone. Possibly glivec doing its wonderful work. Has anyone experienced this type of bone pain again after a long time without the side effect? Your thoughts would be appreciated. 600mg glivec 0.001% Aussie Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 Over a year on 600mg Bone pain disappeared but yes I also could not get rid of the pain - went by itself Barb - you are correct - mine was also on my left side excluding my right foot Sue Quote Link to comment Share on other sites More sharing options...
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