Sorry Mrs T, Your Blood Tests Look Normal or The Tragic Tale of a UK Thyroid Patient

[Guest guest]

This should be posted on the Main Thyroid Forum Bill. The Chat

forum is to send messages about any other subject other than thyroid. I have

forwarded it to the main thyroid group for all to read.

Luv - Sheila

From: thyroid treatment_Chat

[mailto:thyroid treatment_Chat ] On Behalf Of youngwill

Hi All, again, I wasn't sure which to post the following. Is anyone

from TPA quoted in the following article about a " Sorry Mrs T, Your Blood Tests

Look Normal or The Tragic Tale of a UK Thyroid Patient " ?

There appears to be familiar Christian names within the comments.

Butterflies and Phoenixes, was inspired by a past column I wrote for the website Dear Thyroid.

This is something I can really identify with as parts of my life have been

shaped by me having to reinvent myself and forcing myself to never give up. For

me the butterfly represents metamorphosis and the phoenix represents

perseverance and the determination to carry on no matter what, which is

something I have also recognized time and again in the inspiring people I have

had the privilege to feature in many of my articles.

Butterflies

and Phoenixes mission statement;

Rebrand

thyroid diseases and thyroid cancers, for ourselves. Change the publics

perception of how thyroid diseases and thyroid cancers affect patients and

families, financially, emotionally and physically. Misconceptions about thyroid

diseases and thyroid cancers are rampant. We come together to give this disease

a voice and a face, in our own words. By doing so, we hope to find healing,

raise awareness and eventually a cure.

50

Million Americans (women, teens and men) have a thyroid condition, primarily

hypothyroidism. 13 Million People have Graves Disease. 1.5 million Adults and

205,000 children have Hashimoto’s Thyroiditis. Over 37,000 new cases of

thyroid cancer are diagnosed each year. 13 Million People have an undiagnosed

thyroid disorder. 1 in 8 women during their lifetime will have some form of

thyroid disease. Thyroid cancers and thyroid diseases are growing at an

alarming rate amongst teens and young adults. This disease affects women, teens

and men. Because thyroid disease and thyroid cancer is less prevalent in men,

they feel as isolated and alone and scared as women and teens do.

More

often than not, doctors dismiss patients laments, chalking them up to a figment

of their imagination, when really, these patients are so sick, they cannot live

a healthy life because they can’t get a diagnosis and, or proper

treatment. The issues patients face, are as extensive once diagnosed. Worse,

insurance companies drop patients with private health insurance post-diagnosis

(with certain autoimmune thyroid diseases). Should a patient be lucky enough to

procure insurance, their medical bills and prescriptions are exorbitant,

rendering them financially destitute.

Dear

Thyroid is committed to being part of the solution. As a community, we invoke

change, one letter, one column, one image, one meet-up, one awareness band at a

time. We are a collective, unrelenting, unstoppable movement. Join us.

Bill