Guest guest Posted July 2, 2011 Report Share Posted July 2, 2011 Dear All, At last we have some abnormal bloodtest results - this shows Gonadotrophin Deficiency. She has low FSH and LH levels and also a low serum oestradiol concentration. All abnormally low for a child of 13. She has been seen by a Paediatric Professor in Endocrinology who has now retired from the NHS and works privately. The local NHS have refused to do further investigations considering that there is nothing wrong. The Professor is recommending that she have a MRI scan to rule out an adenoma or craniopharyngioma and that she should be referred to someone he knows at Birmingham Children's Hospital. It looks like I will need to go back to my GP and get him to make this referral. Given the previous very insulting way in which I have been treated, I am very nervous about this. Does anyone have any advice for me as to how to go about this. I do not want them sayng that they cant make the referral or that as this is a private diagnosis they can't accept it. Given the potential seriousness of the diagnosis I sincerely hope that they will not do this. But I would really appreciate any advice. Thank you. I am very worried about this, but also relieved as it seems that we have something to explain my daughter's symptoms, not least her daily severe headaches. Quote Link to comment Share on other sites More sharing options...
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