Re: Risk versus quality of life

[Guest guest]

Thankyou Tony -that was very well put . Yes I think endos should give up on

scare stories -their job {and they are paid very well by us their employer] is

to help patients . If they were all given a copy of GMC guidelines it would

remind them of how they are surposed to act -perhaps informing the patients on

the health risks if they are denied treatment? As far as GMC guidelines goes

these endos seem to be putting GPs in a very difficult position -at least those

GP " s who understand all this ?

[Guest guest]

I was told recently by an 'expert' that I was hyper because of supressed

TSH..... I was ready for him.... I reeled off a long list of hyper symptoms

and told him I had none of these.... In fact I asked him what symptoms I had

that showed hyper and the only thing he could come up with was low TSH....

What???? a pituary gland secretion tells him I'm hyper....? Ha Ha Ha

He backed down.

x

>

> I can go along with this, I asked my endo what the actual risk was

[Guest guest]

make sure your minerals are at a good level and particularly magnesium this is essential to prevent AF.

"Experts ... stressed that the risk was low". So, what it actually means is that the normal person's risk of getting atrial fibrillation is say 5 in a 100 (I don't know the actual figure) if not on ibuprofen but if they take ibuprofen daily the risk increases to 7 in 100.The endos in my view use atrial fibrillation as a scare tactic (along with bone density loss) without ever attempting to provide any quantification of what the alleged risk is. In reality, I suspect it's in the same category as for ibuprofen where 40% sounds very significant but in fact isn't a big deal when put into proper context.

[Guest guest]

This is like so many things we read in the papers these days. "Pickle doubles your risk of cancer". If you read the small print it is for a specific type and it doubles from 1/1000 to 2/1000 - still a risk worth taking if you like pickle! (Random stupid example picked out of thin air, but someone somewhere will probably do a study on it sooner or later, lol). When you put the numbers in context, these figures, which sound terrifying on the face of it, are really not as big as they sound. Statistics - the thrid kind of lie.

"Experts ... stressed that the risk was low". So, what it actually means is that the normal person's risk of getting atrial fibrillation is say 5 in a 100 (I don't know the actual figure) if not on ibuprofen but if they take ibuprofen daily the risk increases to 7 in 100.The endos in my view use atrial fibrillation as a scare tactic (along with bone density loss) without ever attempting to provide any quantification of what the alleged risk is. In reality, I suspect it's in the same category as for ibuprofen where 40% sounds very significant but in fact isn't a big deal when put into proper context.

[Guest guest]

How right you are Tony.    I am an obese 71 year old diabetic.     At a recent appointment with endo (who had pupil with him), he remarked to her about my suppressed TSH that " we all know it increases the risk of heart attack and osteoporosis " to which she nodded in agreement.

He then proceeded to tell me that I was within the NICE guidelines to have bariatric surgery if I want it.   No talk about the risks of that considering my age and being diabetic.       

I would say the risks of bariatric surgery were far greater than having my TSH suppressed.    LilianOn 5 July 2011 08:27, tandcpace <tandcpace@...> wrote:

Both my wife and daughter have suppressed TSH. It is frequently suggested that this gives rise to an increased risk of atrial fibrillation and endos use this to argue that the TSH shouldn't be allowed to go this low. 

[Guest guest]

And of course always check who funded the study...if its a drug company then it will always be biased and many of the results will be removed from the article....so there was a study done on ANTI-DEPRESSANTS.....I cant remember the exact numbers here but the anti-depressants helped 30% of the study population and so we are told antidepressants are good.

Just as a note placebo is thought to work in 30% of cases.

In this study 45% of the study population improved.....taking a sugar pil. Yes a placebo. That is more people improved who had depression using a sugar pill than those who took antidepressants.

The information was not reported in that way...the sugar pill bit was removed from the article.

Now how many docs prescribe a sugar pill for those who have depression? I would hazard a guess at nil zero none. And yet it is proven to be more effective?! They throw this science at us but its baloney....firstly if it dont suit them they change it and when it does suit them they throw it in our face...but how many studies are actually reported for what they are? very ffew I imagine since most studies are funded by drug companies....so why would they?

I do remember again cant remember details of a medical scientist whose conscience got the better and they outed this problem and they suffered as they lost their job and couldnt get another. It is tough being honest....and its tough finding out the truth....as we are finding out!

Sally xx

This is like so many things we read in the papers these days. "Pickle doubles your risk of cancer". If you read the small print it is for a specific type and it doubles from 1/1000 to 2/1000 - still a risk worth taking if you like pickle! (Random stupid example picked out of thin air, but someone somewhere will probably do a study on it sooner or later, lol). When you put the numbers in context, these figures, which sound terrifying on the face of it, are really not as big as they sound. Statistics - the thrid kind of lie.

[Guest guest]

Hi Sally the researcher was Aubrey Blumsohn who went against Professor

Eastell-I think at Sheffield University . His blog is very intereting [google in

his name] The telephone conversation he recorded is very very interesting.

[Guest guest]

Thank you ,

I am impressed with your memory, but also isnt that the great thing about these forums...went you have an empty brain someone (thank you again ), will give you the information with which to fill the space....much appreciated and I will check it out. I find that stuff facinating.

Sally xx

Hi Sally the researcher was Aubrey Blumsohn who went against Professor Eastell-I think at Sheffield University . His blog is very intereting [google in his name] The telephone conversation he recorded is very very interesting.