RE: hello from newbie in Sheffield

[Guest guest]

Hi Katya,

...and welcome to the forum.

This may be a little too quick and easy to read but may remind you to

keep abreast of Vitamin D3 levels, if at all possible.

Vitamin D Council

May 19, 2011

On July 1, 2011, the Vitamin D Council is planning to begin a free

clinic for children with autism. My time will be free, the autism

assessment scales will be free, the blood tests will be free, and the

vitamin D for the kids will be free (due to the generosity of Ddrops).

We estimate 3-4 clinic visits will be needed. Anyone in the world with

a child with autism can call and get an appointment to see me. The

Vitamin D Council will sponsor this clinic as long as we can afford it,

which means as long as we have enough donors, members and especially

enough lifetime members. From now on, a lifetime membership also means

that such membership sponsors one autistic child to come to the free

clinic and we will encourage that family (if the donor wants) to call

and thank the donor in person.

I notice you mention low vit D3!

Dr Cannell is convinced that there is an epidemic of low vit D3.

best wishes

Bob

>

> hi

> I've been lurking a little while, beginning to digest the mine of info

in the Files, website and busy list ) I found this group from Marie's

recommendation.

>

> I've been on thyroid meds for about 10 yrs, Dr Myhill started me

on low dose thyroid when NHS said I was normal. I no longer see Dr

Myhill, but for many years my NHS GP has been prescribing me about

100mcg levythyroxine. I occasionally see a local private doctor who

prescribes me Armour thyroid, I take 1 grain a day.

>

> At one point I was on 175 mcg levythyroxine and felt much better and

was 4 stones lighter, but the NHS GP decided to reduce it so the numbers

fit, regardless of the symptoms

>

> Regrettably for me and his other patients, the nice reasonably-priced

private Doc is retiring soon, so I need to find a like-minded Doctor,

hopefully not too expensive !

>

> I don't get out and about much, as need bed rest frequently and use

mobility aids. I get Direct Payments from social services to pay for my

carer. So distance from Sheffield will be an issue.

>

> I also have ME/CFS moderate to severely at times ( diagnosed '96 but

had it longer), also Protein S Deficiency (rare blood clotting disorder)

for which I am eagerly awaiting a new anticoagulant treatment, wheat

allergy and myriad of other symptoms. Within the family several of have

skewed nutritional status, low vit D, low calcium, low magnesium etc.

>

> I spent Thursday in A+E being checked for angina, although I'm getting

the symptoms the trace and tests were OK. They did a CT scan to of heart

and lungs as suspected a clot on lungs ( there wasn't) but I had a

horrible reaction to the iodine contrast dye, wondering if that could be

related to thyroid problems.

>

> My 19 yr old daughter also has ME/CFS over 10 yrs, her recent TSH was

2.8 which GP says proves no problem. Although thyroid problems appear to

run in the family as my mum is also on treatment, only 25mcg. Our eldest

son has ME/CFS too, much considerably improved. our youngest, 15, has

asperger syndrome, and the dreaded fatigue, not sleeping well,and aches

and never-well-itis.

>

> Sorry for catalogue of ills, I try to be as positive as realistic and

take care to spend my limited energy as well as poss. I'm returning to

Uni in Sept to do a part-time 3 yr course, can take longer if necessary,

luckily the Uni is very near and have heard that disabled student

support is very good these days. Looking forward to getting some of my

life back.

>

> Being informed and assertive about our health is vital !

> However I find it hard to absorb all the detail, due to brain fog.

Will keep following the group and see what I can pick up.

>

> Thanks

> Katya

>

[Guest guest]

I've been lurking a little while, beginning to digest the mine of info in the

Files, website and busy list ) I found this group from Marie's

recommendation.

Hello

Katya and welcome to our forum where I hope you get all the help and support

you so obviously need.

I've been on thyroid meds for about 10 yrs, Dr Myhill started me on low

dose thyroid when NHS said I was normal. I no longer see Dr Myhill, but for

many years my NHS GP has been prescribing me about 100mcg levythyroxine. I

occasionally see a local private doctor who prescribes me Armour thyroid, I

take 1 grain a day. At one point I was on 175 mcg levythyroxine and felt much

better and was 4 stones lighter, but the NHS GP decided to reduce it so the

numbers fit, regardless of the symptoms.

You do not have to reduce your thyroid hormone replacement

because your doctor wants to see the figures in the bit of paper where HE wants

to see them. It is very important that if a certain dose is making you feel

better, your symptoms disappearing, your weight going down, that your doctor takes

these into consideration. According to " The Duties of a Doctor " by

the General Medical Council, one part clearly states that :

·

Work in partnership with

patients

o

Listen to patients and

respond to their concerns and preferences

o

Give patients the information

they want or need in a way they can understand

o

Respect patients' right to

reach decisions with you about their treatment and care

o

Support patients in caring

for themselves to improve and maintain their health

http://www.gmc-uk.org/guidance/good_medical_practice/duties_of_a_doctor.asp

One of the main problems that many of us have with our doctors,

is that many fail to treat their patients symptoms and treat, instead, bits of

paper. They tell you that your thyroid function test results are

" normal " if the results appear anywhere within the reference range,

without even knowing where the results should actually BE in the ref. range.

Never allow a doctor to tell you your results are 1normal. ALWAYS ask your

doctor for the actual results with the reference range for each of the tests

done and post them here - so we can help you with their interpretation.

What thyroid hormone replacement exactly are you taking right (synthetic

of natural or both) now and how long since this was increased/decreased?

Regrettably for me and his other patients, the nice

reasonably-priced private Doc is retiring soon, so I need to find a like-minded

Doctor, hopefully not too expensive !

I have a list of doctors who will prescribe synthetic T4/T3

combination, T3 alone and/or natural thyroid extract. I will send this list to

you privately. Ask y our GP for a referral to whichever one you would like to

see. You can be referred outside of your area, and if you decide to see a

private doc. you don't need a referral, except to Dr Skinner in Birmingham.

You know you can buy natural thyroid extract from recommended

and 'safe' Internet Pharmacies from outside of the UK. These pharmacies will sell

the brand 'Armour Thyroid', 'Nature Throid', 'Westhroid', 'Erfa 'Thyroid' and

the generics 'Thyroid-s' and 'Thiroyd' which are available without the need for

a prescription. This is a much cheaper way to purchase natural thyroid extract

than getting a private prescription. Go to our FILES section accessible from

the Home Page of this Forum web site. On the page that opens, scroll down to the

FOLDER 'Internet Pharmacies' and take your pick from there. Note that www.valuepharmaceuticals.com

show that they sell Armour Thyroid, but notice the word 'generic' . They

actually sell the excellent Canadian licensed Erfa 'Thyroid'. If you order from

there, just tick the little box to show " No Prescription Required " .

I also have ME/CFS moderate to severely at times ( diagnosed

'96 but had it longer), also Protein S Deficiency (rare blood clotting

disorder) for which I am eagerly awaiting a new anticoagulant treatment, wheat

allergy and myriad of other symptoms. Within the family several of have skewed

nutritional status, low vit D, low calcium, low magnesium etc.

Sadly, many NHS doctors will tell their patients that they don't

have a thyroid problem if their thyroid function tests are within the reference

range, they are taking levothyroxine, yet they still complain of symptoms - and

instead, are often told they are " suffering from a functional somatoform

disorder " - meaning, its all in your head. Then they try to prescribe you

antidepressants and/or give you a diagnosis of ME, CFS or FM. All of these have

been treated with the active thyroid hormone triiodothyronine (T3) very

successfully. We have to thank Professor Weetman for this, and as he is

Dean of Sheffield University, ex-President of the dear beloved British Thyroid

Association, head over the heads of all medical schools in the UK - doctors,

unfortunately for us, appear to believe every word he utters. This has done

such harm to over 250,000 sufferers of the symptoms of hypothyroidism (in the

UK alone) because they are not being given a choice of the thyroid hormone that

would make them well. Many need T3 because T4 (mainly inactive) has to convert

through the liver, kidneys, brain, skin and lots of other thyroid hormone

receptors throughout the body into the ACTIVE thyroid hormone T3. It is T3

every cell in your body and brain need to make them function.

Now, the Royal College and the BTA have made a Statement to say

there is no need for doctors to prescribe T3, because levothyroxine works for

everybody. They give no scientific evidence to back up their statements, which

is appalling, and what is more appalling, is that many doctors just take their

word for it, without even doing any basic research to see whether this is

correct or not. I can assure you, it is NOT correct and we have hundreds of

references to back this up.

I spent Thursday in A+E being checked for angina, although I'm

getting the symptoms the trace and tests were OK. They did a CT scan to of

heart and lungs as suspected a clot on lungs ( there wasn't) but I had a

horrible reaction to the iodine contrast dye, wondering if that could be

related to thyroid problems.

I am sorry to hear this Katya. I think many of us have ended up in

and E with such concerns, or at least experienced similar symptoms at home. Have

you considered that some other associated condition might be going along with

your symptoms of hypothyroidism. Please check the attached document carefully,

and ask your GP to test your levels of ferritin, vitamin B12, vitamin D3,

magnesium, folate, copper and zinc. If any of these are low in the reference

range (again, get these results yourself) then the thyroid hormone cannot be

fully utilised at the cellular level.

If your GP tries to tell you that there is no association with

low vitamin/mineral levels and thyroid disease, then show him the other

attached document which shows that there is.

My 19 yr old daughter also has ME/CFS over 10 yrs, her

recent TSH was 2.8 which GP says proves no problem. Although thyroid problems

appear to run in the family as my mum is also on treatment, only 25mcg. Our

eldest son has ME/CFS too, much considerably improved. our youngest, 15, has

asperger syndrome, and the dreaded fatigue, not sleeping well,and aches and

never-well-itis.

When requesting your blood tests, ask your GP also to test to

see whether you have antibodies to your thyroid. This runs in families. You

need to ask for TPO and TgAb. If these are positive, the antibodies see your

thyroid gland as public enemy number one and set about its slow destruction. Testing

positive for antibodies is called Hashimoto's thyroiditis - it is the cause of

your symptoms of hypothyroidism, but you are treated exactly the same as for

any other cause. Eventually, probably after years, you will have no thyroid

gland left. You should then ask your daughter, Mum and eldest son to get tested

to see whether they also have thyroid antibodies.

Sorry for catalogue of ills, I try to be as positive as

realistic and take care to spend my limited energy as well as poss. I'm returning

to Uni in Sept to do a part-time 3 yr course, can take longer if necessary,

luckily the Uni is very near and have heard that disabled student support is

very good these days. Looking forward to getting some of my life back.

Good for you in returning to University when you obviously feel

so bad with so little energy. All I can tell you is that there IS light at the

end of the tunnel and we will try to get you there.

Meanwhile, are you taking 200mcgs Selenium daily and vitamin C

1000/2000mgs daily, together with zinc, which is vital to help with the

conversion of T4 into T3.

Being informed and assertive about our health is vital !

However I find it hard to absorb all the detail, due to brain fog. Will keep

following the group and see what I can pick up.

Take baby steps Katya - just one step at a time. Go through this

message from the top. Deal with one problem at a time, and when you have done

that and understood it, move on to the next step. Any questions you have

meanwhile, just shout, and somebody will be along to help you.

Meanwhile, sorry for this long message - - this is what happens

when you were so ill on levothyroxine only therapy for so many years, and then

got your life back on natural thyroid extract which I have been prescribed by

my NHS doctor now for almost 8 years. It was a miracle, the first thing that

came back to me was my brain fog. I am now 100% well.

Luv - Sheila

2 of 2 File(s)

Why thyroid hormone stops working (2).doc

LOW MINERALS AND VITAMINS AND THE THYROID CONNECTION.doc

[Guest guest]

Hi Katya,

I asked Dr Porter that question (vit D3) in person?

best wishes

Bob

>

> >

> > He's correct Bob, look at the huge number of our members who eventually get

tested and find their levels of Vitamin D are VERY low. Vitamin D supplements

act like a wonder drug. Why don't doctors know about this?

> >

> > Luv - Sheila

> >

> >

> > Dr Cannell is convinced that there is an epidemic of low vit D3.

> >

> > best wishes

> >

> > Bob

> > .

> >

> >

> >

>