hello from newbie in Sheffield

[Guest guest]

hi

I've been lurking a little while, beginning to digest the mine of info in the

Files, website and busy list ) I found this group from Marie's recommendation.

I've been on thyroid meds for about 10 yrs, Dr Myhill started me on low

dose thyroid when NHS said I was normal. I no longer see Dr Myhill, but for many

years my NHS GP has been prescribing me about 100mcg levythyroxine. I

occasionally see a local private doctor who prescribes me Armour thyroid, I take

1 grain a day.

At one point I was on 175 mcg levythyroxine and felt much better and was 4

stones lighter, but the NHS GP decided to reduce it so the numbers fit,

regardless of the symptoms

Regrettably for me and his other patients, the nice reasonably-priced private

Doc is retiring soon, so I need to find a like-minded Doctor, hopefully not too

expensive !

I don't get out and about much, as need bed rest frequently and use mobility

aids. I get Direct Payments from social services to pay for my carer. So

distance from Sheffield will be an issue.

I also have ME/CFS moderate to severely at times ( diagnosed '96 but had it

longer), also Protein S Deficiency (rare blood clotting disorder) for which I am

eagerly awaiting a new anticoagulant treatment, wheat allergy and myriad of

other symptoms. Within the family several of have skewed nutritional status,

low vit D, low calcium, low magnesium etc.

I spent Thursday in A+E being checked for angina, although I'm getting the

symptoms the trace and tests were OK. They did a CT scan to of heart and lungs

as suspected a clot on lungs ( there wasn't) but I had a horrible reaction to

the iodine contrast dye, wondering if that could be related to thyroid problems.

My 19 yr old daughter also has ME/CFS over 10 yrs, her recent TSH was 2.8

which GP says proves no problem. Although thyroid problems appear to run in the

family as my mum is also on treatment, only 25mcg. Our eldest son has ME/CFS

too, much considerably improved. our youngest, 15, has asperger syndrome, and

the dreaded fatigue, not sleeping well,and aches and never-well-itis.

Sorry for catalogue of ills, I try to be as positive as realistic and take care

to spend my limited energy as well as poss. I'm returning to Uni in Sept to do a

part-time 3 yr course, can take longer if necessary, luckily the Uni is very

near and have heard that disabled student support is very good these days.

Looking forward to getting some of my life back.

Being informed and assertive about our health is vital !

However I find it hard to absorb all the detail, due to brain fog. Will keep

following the group and see what I can pick up.

Thanks

Katya