RE: what is 'normal' for cortisol levels?

[Guest guest]

Susie,

That sounds very low as a start point..... It is supposed to double but twice

nothing is still nothing...... I think it's supposed to be nearer the 300 mark

to start with.......

The endo doesn't sound very interested. If you give him the results of a

saliva test, he will probably say he doesn't understand it, or that he doesn't

recognise it and if he is feeling particularly defensive, he will tell you that

you have wasted your money.....

(The answer to that is 'I earn more than you and I like wasting my money'...

he won't like that one at all )

Sorting out adrenals from a saliva test, is often just done on your own....

or with a doctor like Dr P.

>

> I've decided to do a saliva test for my adrenals, so that I can pass the info

on to my endo to request he treat me with cortisol if necessary. I wouldn't be

surprised if this is the case, as I'm so intolerant to all thyroid meds.

[Guest guest]

Thanks for your prompt response . I thought it was low. I did talk to him

about the saliva test previously and he said it was a good indication of how the

adrenals are doing. i think he thought from my reaction to thyroid meds that I

was very like addisons, but when he found out I'm not, he's been a bit more

dismissive. We'll see...

>

> Susie,

>

> That sounds very low as a start point..... It is supposed to double but twice

nothing is still nothing...... I think it's supposed to be nearer the 300 mark

to start with.......

>

> The endo doesn't sound very interested. If you give him the results of a

saliva test, he will probably say he doesn't understand it, or that he doesn't

recognise it and if he is feeling particularly defensive, he will tell you that

you have wasted your money.....

>

> (The answer to that is 'I earn more than you and I like wasting my money'...

he won't like that one at all )

>

> Sorting out adrenals from a saliva test, is often just done on your own....

or with a doctor like Dr P.

>

>

[Guest guest]

Whow - like that one - I earn more than you etc............................must add that one to my repertoire.

Actually Sheila - girls and boys - how about a phrase book - we could all add our little 'put downs' so we can use them at the right moment - keep them clean.

Book should be entitled: The Person who sits in front of you doesn't have a clue about thyroid dysfunction

My offer is: Excuse me how do you spell your name.................why says he or she? because if I find that down the line you are wrong - it will be you I hold personally responsible.

and another 'remember I pay your wages'

Mind you it will probably result in most of use getting banned/blacklisted but come on as a joke let's get this going to get it off our chests what we would really like to say.

Best wishes

Mandy

[Guest guest]

Susie, if your endocrinologists refuses to take into account the

results of your Genova 24 h our salivary test because he doesn't recognise this

laboratory outside of the NHS - have ready a printout of the Genova Quality Assurance

(see attached). He is unlikely to accept that you have an adrenal problem

unless he has done a short synacthen test or ATCH test - but these will only

test to see whether you have 's disease (too little or no cortisol

secretion) or Cushing's Syndrome (too high a level of cortisol section). The

NHS refuse to recognise ANY of the different stages of low adrenal reserve

leading to either of these conditions, which is quite appalling, because by not

doing so, they are allowing their patients to suffer full blown 's or

Cushing's without intervening to stop this at any time.

You are entitled to see the results of your previous Synacthen

test, so ask your GP to give these results to you, together with the reference

range. A doctor cannot withhold these results as they belong to you and he must

show you these under the Freedom of Information Act.

Remember that if your problems are not adrenal related, there

may be other conditions happening such as systemic candidiasis, mercury

poisoning due to amalgam fillings, low levels of ferritin, vitamin B12, vitamin

D3, magnesium, folate, copper and zinc - so check that none of these are the

cause of not being able to utilise thyroid hormone replacement properly.

Luv - Sheila

I've decided to do a saliva test for my

adrenals, so that I can pass the info on to my endo to request he treat me with

cortisol if necessary. I wouldn't be surprised if this is the case, as I'm so

intolerant to all thyroid meds.

At my last appointment with my endo, he said that I'd passed the synacthen test

with flying colours as my cortisol way more than doubled. I can't remember what

it started off as, but I know it was 100 and something, maybe 190. That sounded

fairly low to me. Am i right in that assumption? I know it's not the best test

to go by, but I just wanted to check so I could arm myself in advance with the

necessary arguments!

.._,___

1 of 1 File(s)

Genova Quality Assurance.pdf