Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 Hi, I posted some time ago when we first discovered my 17 year old daughter, then 15 had developed an underactive thyroid and goitre. I wonder cna soemone asdvise me now as I seem still confused about it all. Tara went on a regime of selenium and LDN(!.5) with occasional doses of iodine at 3 drops a day, and withing about 9 months all he rbloods had returned to well within ranges However she then stopped flollowing the regime as teenagers tend to do, and recently the goitre was enlarged again and she once again had dizzy fits. Her most recnt bloods show free t4 14 pmol/L (range 9-19). TSH 3.11 mU/L (0.35-4.94) Free T3 4.5 pmol/L (3.1 - 6.8) The Tpo antibody test is not yet back, seems to take weeks and weeks, but last time her antibodies were at 40, but ha dbeen down as low as 11. When referred to the endo. 2 years ago, he wanted to ensure the TSH level dropped really low and we got it down to 0.03 in August 2010. Im not sure how to help her next either for the goitre or the underactive. Xan anyone advise as Im thinking of putting her back on what worked before that is selenium, LDN(1.5) and iodine 3 drops. Ive also recently got her tsking vit.c.. So, can anyone advise us please? I just know the doc will want her on thyroxine and Im reluctant to do that unless absolutely necessary. If anyone cna help me understand the hashimotos link and what can influence goitre as well as TSH Id be very grateful as every time I think Ive grasped it I lose it again. Cheers Nuala Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 Stopping iodine is why the goiter has re-appeared. Iodine shrinks goiter. I'd get her back on iodine and take a look at the adrenals..Are they being supplemented? This may have to do with the dizziness. I'd also add in some Celtic Sea Salt...twice a day. 1/4 to 1/2 teaspoon in a glass of water...drink it all down and follow with 12 ounces of regular filtered water. Sea salt, magnesium, selenium, vitamin c are all part of the iodine protocol. The salt will also help the adrenals as adrenals need salt to properly function. Cheers, JOT I just know the doc will want her on thyroxine and Im reluctant to do that unless absolutely necessary. > If anyone cna help me understand the hashimotos link and what can influence goitre as well as TSH Id be very grateful as every time I think Ive grasped it I lose it again. > Cheers > > Nuala > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 Hello Nuala - it makes sense that if the iodine, selenium and LDN worked for Tara before that it might well help her again and I would not hesitate to start her on those supplements again. Especially as her TSH is 3.11 - in the US, Germany, Belgium, Sweden and Australia, she would have already been started on thyroid hormone replacement with such a high TSH. You should NOT have to wait for weeks and weeks to get the results of her tests to check whether she has thyroid antibodies or not. I would write to her GP and ask the GP to place a copy of your letter into her medical notes. First, list all of her symptoms and signs, check these against those in our web site www.tpa-uk.org.uk .. Next, tell her to take her basal temperature before she gets out of bed in a morning for 4 or 5 days and write these down also. Next, tell her to list all the members of her family who have a thyroid or autoimmune condition. Next, ask for the GP to do the following blood tests to check whether any of these minerals or vitamins are low in the reference range: ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc. If any of these ARE low, her thyroid hormone will be unlikely to get fully utilised at the cellular level until whatever she is low in is supplemented. Next, she should ask to be referred to an endocrinologist of her choice (she does not necessarily have to see the one at your local hospital). I have a list of good doctors that I will send to you. Write down the name and hospital address of the one she wishes her GP to refer her to. If your daughter is suffering the symptoms of hypothyroidism, whatever the cause, there are NO supplements that will take the place of the thyroid hormone replacement she will need. She will have to take thyroid hormone replacement for the rest of her life. She may well do absolutely fine taking levothyroxine only - she may be a good converted, as thyroxine is a prohormone that has to convert to the active thyroid hormone T3. If T4 doesn't work, then she will need some form of T3, either synthet5ic of natural thyroid extract. Last, ask for the results of her tests to check whether she has antibodies to her thyroid to be sent to her with immediate effect. The written word is something doctors will respect far more than a face to face consultation. Good luck, I hope this works - it does for a lot of our members. Luv - Sheila Hi, I posted some time ago when we first discovered my 17 year old daughter, then 15 had developed an underactive thyroid and goitre. I wonder cna soemone asdvise me now as I seem still confused about it all. Tara went on a regime of selenium and LDN(!.5) with occasional doses of iodine at 3 drops a day, and withing about 9 months all he rbloods had returned to well within ranges However she then stopped flollowing the regime as teenagers tend to do, and recently the goitre was enlarged again and she once again had dizzy fits. Her most recnt bloods show free t4 14 pmol/L (range 9-19). TSH 3.11 mU/L (0.35-4.94) Free T3 4.5 pmol/L (3.1 - 6.8) Quote Link to comment Share on other sites More sharing options...
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