Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 I couldn't agree more Mandy -the more people know what is going on the more worried they will become for all the reasons you gave . The patients who become well without their " blood tests ' and using T3 -which was the only thing that lifted my brain fog-should eventually prove them wrong . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 I know someone like this. Takes 75mcg levothyroxine - has done for years - tested annually - no idea what is tested or her levels - says she has no symptoms, but never goes anywhere or does anything, is overweight, obviously has water retention issues and has no eyebrows - not at all. However, she would say she is fine and had no symptoms before diagnosis or since. She thinks I'm mad! D > > At the weekend I went to a school reunion and sat next to someone who said she had been diagnosed with hypothyroidism and was taking thyroxine although she didn't have any symptoms. It was simply diagnosed through a random blood test. I wish I had been more nosey and asked her how much she was now taking! > Miriam > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 Because many of them are ignorant and arrogant because they know little to nothing about the workings of the greater thyroid function, so they bluff it off with their stupid remarks, which makes them look perhaps even more arrogant and ignorant than they really are. We should collect all these sayings and make up a little ditty about them and get it published on our web site - any takers - we could give all sufferers a laugh, which, let's face it, they deserve. Luv - Sheila Since I've started reading about the thyroid epidemic I assumed endocrinologists were genuinely unaware that thyroid replacement would make their patients feel better. But then I read Holmes' thryoid book, in which she quotes an endocrinologist saying " Thyroxine makes people feel great (placebo effect) " , and that this placebo effect will wear off after about a year. I've never heard of a placebo that takes a year to wear off? The same doctor is quoted by the BBC as warning that thyroid replacement for anyone found " normal " by the TSH " test is " dangerous " . And then on " Stop the Thyroid Madness " the following story is quoted: " At the hospital, patient was discussing being put on thyroxine medication by another doctor in spite of a normal T4 result (they don't test T3 in England nor do they prescribe anything other than T4-only) along with clear clinical presentation of hypothyroidism, including problems in her liver, cholesterol, iron levels and female hormone function. Hospital doctor says she never should have been put on thyroid medication with a normal T4 result. She replies: " Then how come I have made so much improvement and felt so much better? " His reply: " Heroin can make you feel better but we don't prescribe that! " " Why do Endocrinologists seem so determined to ignore what their patients say? I don't understand it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 Same here!! I have met / spoken to lots of people who tell me how marvelous their doctor is and how they are hypo and don't have any symptoms - then go on to tell me about the pain they suffer, their hair falling out or getting thin, cholesterol spots on their eyelids, tiredness and all the rest of the symptoms - but according to their doctors its NOT their thyroid (of course)!! Glynis > However, she would say she is fine and had no symptoms before diagnosis or since. She thinks I'm mad! > > > > At the weekend I went to a school reunion and sat next to someone who said she had been diagnosed with hypothyroidism and was taking thyroxine although she didn't have any symptoms. Quote Link to comment Share on other sites More sharing options...
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