FIBROMYALGIA

[Guest guest]

Re: Fibromyalgia

> Hi,

>

> Does anyone in this newsgroup have fibromyalgia?

>

> Cole

I think there are a lot of members who have been diagnosed with Fibromyalgia

on this list. I have had Fibromyalgia for the last 3 1/2 years, and Chronic

Fatigue Syndrome for the last 26 years.

lindaj@...

[Guest guest]

In a message dated 8/24/2002 7:19:11 PM Eastern Daylight Time,

cole@... writes:

> Hi,

>

> Does anyone in this newsgroup have fibromyalgia?

>

> Cole

>

Yes, I do. I have not been clinically diagnosed with it, but my doctor

agree's with me, as I have all of the symptoms.

Shelle

<A HREF= " http://www.colormepaisley.com/ " > </A>

[Guest guest]

We have been using Fz-Pz SMR for fibromyalgia.

> I have a client coming in next week who has episodes fibromyalgia.

>

> Naturally, I will be doing a full assessment, but does anyone have

any

> suggestions that are good approaches to this issue?

>

>

> Mark

[Guest guest]

I would also look at the back of the head for beta levels. If you see higher beta levels at, say Pz than at Fz, train beta down at the back. You may also see highly coherent beta in back or sometimes everywhere.

Pete

-----Original Message-----From: sally59372002 [mailto:kathyabbott@...]Sent: Thursday, September 26, 2002 12:41 AM Subject: Re: FibromyalgiaWe have been using Fz-Pz SMR for fibromyalgia.> I have a client coming in next week who has episodes fibromyalgia. > > Naturally, I will be doing a full assessment, but does anyone have any> suggestions that are good approaches to this issue?> > > Mark

[Guest guest]

Hi Roy:

Chapters 13 & 14 of Myofascial Pain and Fibromyalgia, - trigger Point management; E. S. Rachlin (MD- Physiatrist) Mosby, 1994, may be particularly helpful. We all pretty well know this stuff, but it can be particularly helpful if you can use some "medical" literature in that setting.

Good Luck,

Art

-----Original Message-----From: Dr. Roy Steinberg [mailto:roy@...]Sent: Friday, October 03, 2003 7:19 AM Subject: fibromyalgiaHi list mates, I volunteered to speak at a CAM panel at the University of Washington in November about chiropractic. As it turns out, the format is that the director of the panel chooses a condition, and the various CAM providers get their turns talking about management of this one specific condition for 10 minutes or so. It's fibromyalgia. She has prepared the audience with a paper (attached) that outlines the poor results of chiropractic care wen applied to this condition.I would appreciate any thoughts or publications regarding management of this condition.Roy-- Roy Steinberg DC DABCOSteinberg Consulting Services Inc.14136 NE 32nd PlaceBellevue WA 98007425-883-8783: voice425-556-0616: fax OregonDCs rules:1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated.2. Always sign your e-mails with your first and last name.3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed.

[Guest guest]

Hi Roy,

I was unable to find the attachment with the paper, but there are a variety of ways to deal with this criticism. Patients with FMS who are also seeing chiropractors frequently have a traumatic origin to their symptoms, and thus have co-musculoskeletal morbidity. It is a fact that many people with FMS will end up at chiropractor's offices, and this needs to be recognized first and foremost. The only remaining question is what is it the chiropractor should do for the FMS patient (who also may have some musculoskeletal injury that can be addressed successfully with chiropractic). This forum may be a good opportunity to remind your audience that chiropractors offer much more than stereotypical simple-minded bone popping; diagnosis, counseling (nutritional etc), and a variety of treatments including SMT are all seen at DCs offices.

Freeman -----Original Message-----From: Art Sent: Oct 4, 2003 2:59 PM"Dr. Roy Steinberg" , Subject: RE: fibromyalgia

Hi Roy:

Chapters 13 & 14 of Myofascial Pain and Fibromyalgia, - trigger Point management; E. S. Rachlin (MD- Physiatrist) Mosby, 1994, may be particularly helpful. We all pretty well know this stuff, but it can be particularly helpful if you can use some "medical" literature in that setting.

Good Luck,

Art

-----Original Message-----From: Dr. Roy Steinberg [mailto:roy@...]Sent: Friday, October 03, 2003 7:19 AM Subject: fibromyalgiaHi list mates, I volunteered to speak at a CAM panel at the University of Washington in November about chiropractic. As it turns out, the format is that the director of the panel chooses a condition, and the various CAM providers get their turns talking about management of this one specific condition for 10 minutes or so. It's fibromyalgia. She has prepared the audience with a paper (attached) that outlines the poor results of chiropractic care wen applied to this condition.I would appreciate any thoughts or publications regarding management of this condition.Roy-- Roy Steinberg DC DABCOSteinberg Consulting Services Inc.14136 NE 32nd PlaceBellevue WA 98007425-883-8783: voice425-556-0616: fax OregonDCs rules:1. Keep correspondence professional; the purpose of the listserve is to foster communication and collegiality. No personal attacks on listserve members will be tolerated.2. Always sign your e-mails with your first and last name.3. The listserve is not secure; your e-mail could end up anywhere. However, it is against the rules of the listserve to copy, print, forward, or otherwise distribute correspondence written by another member without his or her consent, unless all personal identifiers have been removed.

[Guest guest]

Hi Miss,

I haven't been around much to post to our LL list and miss everyone

and hope all are doing well.

Miss, your email hits a personal note with me and I know that

stretching your body is very important when you have fibro; so

including the stretches with LL breathing can be very beneficial to

you. I hope others out there can give us some insight as well.

Take care,

Wanda.

>

> Will LL do anything for fibromyalgia? I have every wierd symptom

you can have with this thing.

>

> Any articles from newsletters in the past that may help?

>

> Has anyone heard from Laurie with regard to her daughter?

>

> I hope all is well.

>

> Hi Pat, enjoy your visitors.

>

> Thank you everyone,

>

> Take care,

>

> Miss

>

>

> ---------------------------------

> Finding fabulous fares is fun.

> Let FareChase search your favorite travel sites to find

flight and hotel bargains.

>

>

[Guest guest]

Fibromyalgia - LL WILL help with that as well as with eating AS MUCH fruits and

veggies as you can, and as much RAW as you can.

These things will help you a TON.

My daughter - thank you for asking -

she has HPV and mild dysplasia. They recommended laser surgery, but she also has

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stores!

[Guest guest]

Angel wrote:

> Does anyone think this sounds like fibro?

A lot of people with CFIDS have severe pain/stiffness that is not fibro.

Pain and stiffness are part of CFIDS. You can look into the Pall

protocol. It has helped a lot of people with pain and other symptoms.

Jeri <teewinot13@...>

@>--->---->-------------------<----<---<@

Dr. Pall's NO/ONOO- Theory/Treatment Discussion Group:

TenthParadigmSociety

@>----------<---------->-----------------------<----------<----------<@

The Tenth Paradigm - Dr. Pall's Website for CFS/MCS/FM/ETC.:

http://www.thetenthparadigm.org

@>----------<---------->-----------------------<----------<----------<@

MCS-Florida - For All Chemically Sensitive Floridians

MCS-Florida

[Guest guest]

From my reading a HUGE portion of CFS patients also have Fibro. Have your read

Dr. Teitlebaums book? ALSO, within the last year, LDN, low dose naltrexone has

found to help Fibro patients . I have taken LDN for three years---it lifted a

body weakness, and has kept me in good shape when it comes to pain.

God Bless,

Sara

>

> Hey all,

>

> I have been suffering from CFS/ME for as long as i can remember, although have

only been diagnosed for 4+ years now.

>

> Recently, roughly within the last year I am too tender to sit, to walk, to

lay, to have any contact what-so-ever. Its not just tender either, it is serious

pain, in lots of different places. My bf often tickles me and i have to shout to

tell him to stop, he doesnt understand that it really HURTS.

>

> Does anyone think this sounds like fibro? I have all the stiffness stuff etc.

It's just confusing because I've heard some peoples cfs/me turn into fibro, and

others have it alongside and then some drs say its the same illness. I don't

know how I should approach with my dr.

>

> I asked her once if it could be fibro she said quite possibly but no point me

putting that there just isnt any services for fibro sufferers. I really just

want some pian free time in the day, even an hour would be nice.

>

> Any suggestions would be much appreciated. Especially about useful

tests/treatments

>

> Amy x

>

[Guest guest]

Hi Amy,

I had fibromyalgia for many years and really intense, my central nervous system

turned off my spinal stabilizers and so ended up unable to walk very far or

carry anything like shopping, or read a book because my muscles would tighten up

if I did not remain straight. I lived at the chiropractors - about 2-3 times a

week. I used to have to sleep on an egg shell carton shape foam mattress overlay

because my body hurt so much, especially neck and upper back. That went on for

about 2 years - previously mentioned in another post I used hyperbaric oxygen to

help me during this time. I don't have fibromyalgia anymore, and my spinal

stabilizers were turned back on with accupuncture, it took many years of lots of

physio and myotherapy to lengthen muscles and tendens out so I could stand up

straight again. Now I can walk and carry shopping etc. But that took many years

to repair and get my strength back. My fibromyalgia stopped when I was put on

antibiotics for chlamydia pn. It took nearly 5 years to get rid of chlamiudia -

it kept becoming immune to each antibiotic they gave me. But I don't think it

was chlamydia that caused the fibromyalgia - now I understand (see Dr

Myhill's documents below) it could have been an imbalance of gut bacteria and by

going on antibiotics for chlamydia the antibiotics I think killed an overgrowth

of certain bacteria in my gut.

See Dr Myhill's docments

http://www.drmyhill.co.uk/wiki/Fibromyalgia

and

http://www.drmyhill.co.uk/wiki/Fermentation_in_the_gut_and_CFS#Change_the_bugs_i\

n_the_gut

I have just recently (3 weeks ago) undergone Faecal bacteriotherapy treatment

ie use fresh live actively fermenting bugs from another human gut as referred to

in the article on " Fermentation in the gut " above. I live in Australia and that

is where Prof Borody is (also referred to in the above article), he runs

the Centre for Digestive Diseases in Sydney. I was prepared for the treatment by

taking antibiotics then underwent stool infusion daily for two weeks. My health

has improved out of sight - I have had cfs for 26 years and I am the healthiest

and fittest I have been for well over 15 years.

I do believe my cfs has been caused by an imbalance of gut bacteria from being

on antibiotics as a child for 10 years then getting a parasite in my gut whilst

in india, and it was 15 yrs before they found I had that parasite. So my gut

flora was a mess - mind you it has only taken 15 yrs to work all this out. Maybe

this could be your problem, an imbalance of gut bacteria.

I have also recently learnt that some of these bacteria do make nasty toxins and

it is these tixons that make us very ill, I believe that is where all the toxins

are coming from that cause ie brain fog, pain, depression, blocked methylation,

depleted hormones, high levels of mercury etc. etc.

I also underwent Dr Kenny De Meirlier's treatment but I just couldn't get the

good bacteria levels up so when I came of the antibiotics (which I felt

fantastic whilst taking them) I would go down hill again. Tried his treatment

twice but gave up in the end and hence I have now done the stool implant with

Prof Borody. This year my health has turned around dramatically doing all these

treatments for my gut flora. I walk 30-40 minutes a day now and I couldn't even

dawdle 100 metres at the beginning of the year. I am now starting to live a full

life again. But I am heavily supplemented and have also been on the Yasko

methylation protocol for 15 months. So every little bit has helped get my health

back. But I really believe it has all been caused because of the gut bacteria

imbalances.

>

> Hey all,

>

> I have been suffering from CFS/ME for as long as i can remember, although have

only been diagnosed for 4+ years now.

>

> Recently, roughly within the last year I am too tender to sit, to walk, to

lay, to have any contact what-so-ever. Its not just tender either, it is serious

pain, in lots of different places. My bf often tickles me and i have to shout to

tell him to stop, he doesnt understand that it really HURTS.

>

> Does anyone think this sounds like fibro? I have all the stiffness stuff etc.

It's just confusing because I've heard some peoples cfs/me turn into fibro, and

others have it alongside and then some drs say its the same illness. I don't

know how I should approach with my dr.

>

> I asked her once if it could be fibro she said quite possibly but no point me

putting that there just isnt any services for fibro sufferers. I really just

want some pian free time in the day, even an hour would be nice.

>

> Any suggestions would be much appreciated. Especially about useful

tests/treatments

>

> Amy x

>

[Guest guest]

D-Lactic Acid, gut dysbiosis, and CFS (2009):

http://www.cfids-cab.org/rc/Sheedy.pdf

Carol W.

willis_protocols

[Guest guest]

Hi all,

Thought you might find this of interest.

http://articles.mercola.com/sites/articles/archive/2011/02/26/dr-john-lowe-on-th\

yroid-disease-part-1.aspx

best wishes

Mandy

[Guest guest]

I have a friend who's daughter is incapacitated by fibromyalgia, and I remember there were some previous posts re iodine and fibromyalgia, as well as some other supplements. Does anyone have info re this or could you point me to it? Thanks so much.

Sandy

[Guest guest]

serrapeptase is supposed to clear fibromyalgia>From: "calvathansa@..." <calvathansa@...>iodine Sent: Sunday, 6 November 2011, 12:33Subject: Re: Re: fibromyalgia

I have a friend who's daughter is incapacitated by fibromyalgia, and I remember there were some previous posts re iodine and fibromyalgia, as well as some other supplements. Does anyone have info re this or could you point me to it? Thanks so much.

Sandy

[Guest guest]

I had a severe case of it and started taking Iodoral, 4 12.5 tabs at a time.

Once daily , early in the day... I NOTICED THE FOG BEING GONE IN 2 DAYS, I

started going off of my meds and started on the supplements on the Brest Cancer

..org. site. It was all gone except the pain and some days I would have to rest

all day. I have recently had healing prayer and now have no symptoms...

M/OH

>

>

> ________________________________

> From: " calvathansa@... " <calvathansa@...>

> iodine

> Sent: Sunday, 6 November 2011, 12:33

> Subject: Re: Re: fibromyalgia

>

>

>  

> I have a friend who's daughter is incapacitated by fibromyalgia, and I

> remember there were some previous posts re iodine and fibromyalgia, as well as

> some other supplements. Does anyone have info re this or could you point me to

> it? Thanks so much.Sandy

>

[Guest guest]

Serrapeptase enzyme is also amazing for treating it. Its from the silk worm.

Eats away fibron in your body. Must buy enteric coated capsules though and only

take them on an empty stomach, at least 5 x 3 time a day. At least!

Re: Re: fibromyalgia

>

>

>  

> I have a friend who's daughter is incapacitated by fibromyalgia, and I

> remember there were some previous posts re iodine and fibromyalgia, as well as

> some other supplements. Does anyone have info re this or could you point me to

> it? Thanks so much.Sandy

>

[Guest guest]

I was diagnosed with FMS when I was 24 yrs old (and had it way before that). I

was given a handicap sticker when I was 25 yrs old because the dr's did not know

what to do.

I started the guaifensen protocol ( group) when I was 28 yrs old. It

allowed me to walk again without so much pain. I am now 37 yrs old and have

tried to go off it a number of times but after a few days, the pain is so bad.

I started the Iodine protocol a couple of years ago. It gave me some energy and

did help with the fibro-fog. I will stick with Iodine forever, because it is

helping me in small way -- but I'll take anything I can get

I was recently diagnosed with hypothyroid (and only diagnosed by using a certain

calculation, not using TSH). Since starting Cytomel (T3) I have even more

energy. I still live with pain everyday, but it's manageable.

Amy in MN

PS. I have 3 boys that are on the Autism spectrum and ADHD. I believe my 11 yr

old has FMS also. I have him on the iodine protocol too -- he seems to have more

energy.

> >

> >  

> > I have a friend who's daughter is incapacitated by fibromyalgia, and I

> > remember there were some previous posts re iodine and fibromyalgia, as well

as

> > some other supplements. Does anyone have info re this or could you point me

to

> > it? Thanks so much.Sandy

> >

>

[Guest guest]

I believe that almost everyone who has Fibromyalgia either has undiagnosed or under treated hypothyroid. The iodine is your first line of defense but getting your thyroid treated properly could be the answer you have been looking for. Using natural thyroid - Naturethroid or Thyroid by Erfa is best - a lot of people who use Cytomel end up having trouble after being on it for several months. TSH is a test of pituitary hormone not thyroid, you want to know your Free T3 and Free T4 to know what is going on with your thyroid. You would be best checking in with a thyroid group to get some help learning about all of the intricacies there as there is so much with adrenals and low iron that goes into treating a chronic hypo condition such as yours likely is. I am on a thyroidless group that helps people who even still have their thyroids so they don't lose them to surgery or RAI. I have gotten so much help there, and am doing SO MUCH better between the use of natural hormones and iodine. I've lost about 25 pounds and have far less pain and fatigue. I'm now on my way up on iodine to see if I can get the great results for diabetes some have found. I believe my diabetes and high cholesterol (now gone) are also due to hypothyroid due to thyroidectomy due to lack of iodine in my diet. There is hope for your pain - I have been able to stop pain killers in the last few weeks after getting my poor adrenals some help. Life is getting better!On Nov 6, 2011, at 5:42 PM, amyv_edi wrote:

I was diagnosed with FMS when I was 24 yrs old (and had it way before that). I was given a handicap sticker when I was 25 yrs old because the dr's did not know what to do.

I started the guaifensen protocol ( group) when I was 28 yrs old. It allowed me to walk again without so much pain. I am now 37 yrs old and have tried to go off it a number of times but after a few days, the pain is so bad.

I started the Iodine protocol a couple of years ago. It gave me some energy and did help with the fibro-fog. I will stick with Iodine forever, because it is helping me in small way -- but I'll take anything I can get

I was recently diagnosed with hypothyroid (and only diagnosed by using a certain calculation, not using TSH). Since starting Cytomel (T3) I have even more energy. I still live with pain everyday, but it's manageable.

Amy in MN

PS. I have 3 boys that are on the Autism spectrum and ADHD. I believe my 11 yr old has FMS also. I have him on the iodine protocol too -- he seems to have more energy.

> >

> > Â

> > I have a friend who's daughter is incapacitated by fibromyalgia, and I

> > remember there were some previous posts re iodine and fibromyalgia, as well as

> > some other supplements. Does anyone have info re this or could you point me to

> > it? Thanks so much.Sandy

> >

>

Higginswww.becomingaspecialneedsadvocate@...

[Guest guest]

Hello,

Amy, I am also in MN and have Chronic Fatigue Syndrome and myofascial pain syndrome. I run email support groups for CFS and Fibro. I don't have a fibro diagnosis but it's very similar to CFS.

I won't tell you my whole history but I have been ill for 29 years. I was put on thyroid meds in '05 but was not told to increase the dosage fast enough or to also support my adrenals. I think I developed too much reverse T3 as a result.

A doc told me two years ago I had too much reverse T3 and to start using iodine.

I did. It gave me a bit more energy. I am telling you this because I now was diagnosed by a local doc and know I should have been taking T3 to clear the reverse T3 first. I am now.

It sounds like you might have the same issue. I agree that anyone with CFS or Fibro should have their Free T3 and reverse T3 tested. If those test ok they should try iodine for possible low thyroid.

Amy, If you are interested in corresponding on the side please email me directly.

God bless all those who suffer with illnesses where nobody could help.

I hope and pray we get answers through these groups.

In a message dated 11/6/2011 7:53:22 P.M. Central Standard Time, Luff2sail@... writes:

I believe that almost everyone who has Fibromyalgia either has undiagnosed or under treated hypothyroid. The iodine is your first line of defense but getting your thyroid treated properly could be the answer you have been looking for. Using natural thyroid - Naturethroid or Thyroid by Erfa is best - a lot of people who use Cytomel end up having trouble after being on it for several months. TSH is a test of pituitary hormone not thyroid, you want to know your Free T3 and Free T4 to know what is going on with your thyroid. You would be best checking in with a thyroid group to get some help learning about all of the intricacies there as there is so much with adrenals and low iron that goes into treating a chronic hypo condition such as yours likely is. I am on a thyroidless group that helps people who even still have their thyroids so they don't lose them to surgery or RAI. I have gotten so much help there, and am doing SO MUCH better between the use of natural hormones and iodine. I've lost about 25 pounds and have far less pain and fatigue. I'm now on my way up on iodine to see if I can get the great results for diabetes some have found. I believe my diabetes and high cholesterol (now gone) are also due to hypothyroid due to thyroidectomy due to lack of iodine in my diet. There is hope for your pain - I have been able to stop pain killers in the last few weeks after getting my poor adrenals some help. Life is getting better!

On Nov 6, 2011, at 5:42 PM, amyv_edi wrote:

I was diagnosed with FMS when I was 24 yrs old (and had it way before that). I was given a handicap sticker when I was 25 yrs old because the dr's did not know what to do.I started the guaifensen protocol ( group) when I was 28 yrs old. It allowed me to walk again without so much pain. I am now 37 yrs old and have tried to go off it a number of times but after a few days, the pain is so bad.I started the Iodine protocol a couple of years ago. It gave me some energy and did help with the fibro-fog. I will stick with Iodine forever, because it is helping me in small way -- but I'll take anything I can get :)I was recently diagnosed with hypothyroid (and only diagnosed by using a certain calculation, not using TSH). Since starting Cytomel (T3) I have even more energy. I still live with pain everyday, but it's manageable.Amy in MNPS. I have 3 boys that are on the Autism spectrum and ADHD. I believe my 11 yr old has FMS also. I have him on the iodine protocol too -- he seems to have more energy.> > > > Â > > I have a friend who's daughter is incapacitated by fibromyalgia, and I > > remember there were some previous posts re iodine and fibromyalgia, as well as > > some other supplements. Does anyone have info re this or could you point me to > > it? Thanks so much.Sandy> >>

Higgins

www.becomingaspecialneedsadvocate@...

[Guest guest]

I believe that usually suggests that people do a liver cleanse for RT3, I did one and didn't have a problem, but who knows if I would have? I would try that before trying T3 only meds just because so many people have problems with them, and a liver cleanse can do you so much good for everything. I had fatty liver and my proteins/enzymes came down to normal with just a two week liver cleanse.

Higgins

http://becomingaspecialneedsadvocate.blogspot.com/

Re: Re: fibromyalgia

Hello,

Amy, I am also in MN and have Chronic Fatigue Syndrome and myofascial pain syndrome. I run email support groups for CFS and Fibro. I don't have a fibro diagnosis but it's very similar to CFS.

I won't tell you my whole history but I have been ill for 29 years. I was put on thyroid meds in '05 but was not told to increase the dosage fast enough or to also support my adrenals. I think I developed too much reverse T3 as a result.

A doc told me two years ago I had too much reverse T3 and to start using iodine.

I did. It gave me a bit more energy. I am telling you this because I now was diagnosed by a local doc and know I should have been taking T3 to clear the reverse T3 first. I am now.

It sounds like you might have the same issue. I agree that anyone with CFS or Fibro should have their Free T3 and reverse T3 tested. If those test ok they should try iodine for possible low thyroid.

Amy, If you are interested in corresponding on the side please email me directly.

God bless all those who suffer with illnesses where nobody could help.

I hope and pray we get answers through these groups.

In a message dated 11/6/2011 7:53:22 P.M. Central Standard Time, Luff2sail@... writes:

I believe that almost everyone who has Fibromyalgia either has undiagnosed or under treated hypothyroid. The iodine is your first line of defense but getting your thyroid treated properly could be the answer you have been looking for. Using natural thyroid - Naturethroid or Thyroid by Erfa is best - a lot of people who use Cytomel end up having trouble after being on it for several months. TSH is a test of pituitary hormone not thyroid, you want to know your Free T3 and Free T4 to know what is going on with your thyroid. You would be best checking in with a thyroid group to get some help learning about all of the intricacies there as there is so much with adrenals and low iron that goes into treating a chronic hypo condition such as yours likely is. I am on a thyroidless group that helps people who even still have their thyroids so they don't lose them to surgery or RAI. I have gotten so much help there, and am doing SO MUCH better between the use of natural hormones and iodine. I've lost about 25 pounds and have far less pain and fatigue. I'm now on my way up on iodine to see if I can get the great results for diabetes some have found. I believe my diabetes and high cholesterol (now gone) are also due to hypothyroid due to thyroidectomy due to lack of iodine in my diet. There is hope for your pain - I have been able to stop pain killers in the last few weeks after getting my poor adrenals some help. Life is getting better!

On Nov 6, 2011, at 5:42 PM, amyv_edi wrote:

I was diagnosed with FMS when I was 24 yrs old (and had it way before that). I was given a handicap sticker when I was 25 yrs old because the dr's did not know what to do.

I started the guaifensen protocol ( group) when I was 28 yrs old. It allowed me to walk again without so much pain. I am now 37 yrs old and have tried to go off it a number of times but after a few days, the pain is so bad.

I started the Iodine protocol a couple of years ago. It gave me some energy and did help with the fibro-fog. I will stick with Iodine forever, because it is helping me in small way -- but I'll take anything I can get

I was recently diagnosed with hypothyroid (and only diagnosed by using a certain calculation, not using TSH). Since starting Cytomel (T3) I have even more energy. I still live with pain everyday, but it's manageable.

Amy in MN

PS. I have 3 boys that are on the Autism spectrum and ADHD. I believe my 11 yr old has FMS also. I have him on the iodine protocol too -- he seems to have more energy.

> >

> > Â

> > I have a friend who's daughter is incapacitated by fibromyalgia, and I

> > remember there were some previous posts re iodine and fibromyalgia, as well as

> > some other supplements. Does anyone have info re this or could you point me to

> > it? Thanks so much.Sandy

> >

>

Higgins

www.becomingaspecialneedsadvocate@...

[Guest guest]

,

Could you please share what thyroid group has helped you so much?

Rhonda

From: Brent Higgins

Sent: Sunday, November 06, 2011 7:53 PM

iodine

Subject: Re: Re: fibromyalgia

I believe that almost everyone who has Fibromyalgia either has undiagnosed or under treated hypothyroid. The iodine is your first line of defense but getting your thyroid treated properly could be the answer you have been looking for. Using natural thyroid - Naturethroid or Thyroid by Erfa is best - a lot of people who use Cytomel end up having trouble after being on it for several months. TSH is a test of pituitary hormone not thyroid, you want to know your Free T3 and Free T4 to know what is going on with your thyroid. You would be best checking in with a thyroid group to get some help learning about all of the intricacies there as there is so much with adrenals and low iron that goes into treating a chronic hypo condition such as yours likely is. I am on a thyroidless group that helps people who even still have their thyroids so they don't lose them to surgery or RAI. I have gotten so much help there, and am doing SO MUCH better between the use of natural hormones and iodine. I've lost about 25 pounds and have far less pain and fatigue. I'm now on my way up on iodine to see if I can get the great results for diabetes some have found. I believe my diabetes and high cholesterol (now gone) are also due to hypothyroid due to thyroidectomy due to lack of iodine in my diet. There is hope for your pain - I have been able to stop pain killers in the last few weeks after getting my poor adrenals some help. Life is getting better!

On Nov 6, 2011, at 5:42 PM, amyv_edi wrote:

I was diagnosed with FMS when I was 24 yrs old (and had it way before that). I was given a handicap sticker when I was 25 yrs old because the dr's did not know what to do.I started the guaifensen protocol ( group) when I was 28 yrs old. It allowed me to walk again without so much pain. I am now 37 yrs old and have tried to go off it a number of times but after a few days, the pain is so bad.I started the Iodine protocol a couple of years ago. It gave me some energy and did help with the fibro-fog. I will stick with Iodine forever, because it is helping me in small way -- but I'll take anything I can get :)I was recently diagnosed with hypothyroid (and only diagnosed by using a certain calculation, not using TSH). Since starting Cytomel (T3) I have even more energy. I still live with pain everyday, but it's manageable.Amy in MNPS. I have 3 boys that are on the Autism spectrum and ADHD. I believe my 11 yr old has FMS also. I have him on the iodine protocol too -- he seems to have more energy.> > > > Â > > I have a friend who's daughter is incapacitated by fibromyalgia, and I > > remember there were some previous posts re iodine and fibromyalgia, as well as > > some other supplements. Does anyone have info re this or could you point me to > > it? Thanks so much.Sandy> >>

Higgins

www.becomingaspecialneedsadvocate@...

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1869 / Virus Database: 2092/4601 - Release Date: 11/06/11

[Guest guest]

Nattokinase is likewise good. I make my own natto using organic adzuki beans

from Whole Foods. I avoid using soybeans as they're mostly GM. It is simple to

do (http://www.culturesforhealth.com/how-to-make-natto) and much cheaper than

buying serrapeptase which is a delicate enzyme and largely destroyed in the

stomach unless you take it on an empty stomach and/or use the enteric coated

capsules. WRT starter culture, I buy the packets of natto at oriental stores and

use it. To keep the cultured beans warm during the incubation period, I just the

dish atop the refrigerator. After about three or four days, it is normally ready

(sticky and gooey) and then I move the dish into the fridge.

Peace & gratitude, Dean

============================================================

>

> Serrapeptase enzyme is also amazing for treating it. Its from the silk worm.

Eats away fibron in your body. Must buy enteric coated capsules though and only

take them on an empty stomach, at least 5 x 3 time a day. At least!

> Re: Re: fibromyalgia

> >

> >

> >  

> > I have a friend who's daughter is incapacitated by fibromyalgia, and I

> > remember there were some previous posts re iodine and fibromyalgia, as well

as

> > some other supplements. Does anyone have info re this or could you point me

to

> > it? Thanks so much.Sandy

> >

>

[Guest guest]

Sure, it is thyroidless . It was through them that I found this group, they are completely behind the iodine protocol.

Higgins

http://becomingaspecialneedsadvocate.blogspot.com/

Re: Re: fibromyalgia

I believe that almost everyone who has Fibromyalgia either has undiagnosed or under treated hypothyroid. The iodine is your first line of defense but getting your thyroid treated properly could be the answer you have been looking for. Using natural thyroid - Naturethroid or Thyroid by Erfa is best - a lot of people who use Cytomel end up having trouble after being on it for several months. TSH is a test of pituitary hormone not thyroid, you want to know your Free T3 and Free T4 to know what is going on with your thyroid. You would be best checking in with a thyroid group to get some help learning about all of the intricacies there as there is so much with adrenals and low iron that goes into treating a chronic hypo condition such as yours likely is. I am on a thyroidless group that helps people who even still have their thyroids so they don't lose them to surgery or RAI. I have gotten so much help there, and am doing SO MUCH better between the use of natural hormones and iodine. I've lost about 25 pounds and have far less pain and fatigue. I'm now on my way up on iodine to see if I can get the great results for diabetes some have found. I believe my diabetes and high cholesterol (now gone) are also due to hypothyroid due to thyroidectomy due to lack of iodine in my diet. There is hope for your pain - I have been able to stop pain killers in the last few weeks after getting my poor adrenals some help. Life is getting better!

On Nov 6, 2011, at 5:42 PM, amyv_edi wrote:

I was diagnosed with FMS when I was 24 yrs old (and had it way before that). I was given a handicap sticker when I was 25 yrs old because the dr's did not know what to do.

I started the guaifensen protocol ( group) when I was 28 yrs old. It allowed me to walk again without so much pain. I am now 37 yrs old and have tried to go off it a number of times but after a few days, the pain is so bad.

I started the Iodine protocol a couple of years ago. It gave me some energy and did help with the fibro-fog. I will stick with Iodine forever, because it is helping me in small way -- but I'll take anything I can get

I was recently diagnosed with hypothyroid (and only diagnosed by using a certain calculation, not using TSH). Since starting Cytomel (T3) I have even more energy. I still live with pain everyday, but it's manageable.

Amy in MN

PS. I have 3 boys that are on the Autism spectrum and ADHD. I believe my 11 yr old has FMS also. I have him on the iodine protocol too -- he seems to have more energy.

> >

> > Â

> > I have a friend who's daughter is incapacitated by fibromyalgia, and I

> > remember there were some previous posts re iodine and fibromyalgia, as well as

> > some other supplements. Does anyone have info re this or could you point me to

> > it? Thanks so much.Sandy

> >

>

Higgins

www.becomingaspecialneedsadvocate@...

No virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1869 / Virus Database: 2092/4601 - Release Date: 11/06/11

[Guest guest]

I am betting Lea Ann and others will have a lot of information for

you. Meanwhile, I wish you and your wife well and pray for her

comfort.

Velda

On 12/14/2011 7:49 PM, Jim Parsze wrote:

Hi Everyone,

I just recently purchased a vitamix and

am interested in a raw food diet to improve my health.

My wife has fibromyalgia, muscle and

joint pain,chronic fatigue, insomnia. I was wondering if

anybody has this condition and how they have improved this

condition by improving it with a raw food diet and smoothies.

Are there any vitamix recepies that you

recomend for this condition? Any certain foods that we should

put in our smoothies everyday to help?

I have been making a green smoothie

everyday but her coniditon does not seem to be improving much

Any helpful information would be

appreciated

Thanks

Jim