Re: Re: my story-Skip-Zavie

February 11, 2007

In a message dated 2/10/2007 8:19:10 P.M. Eastern Standard Time,

zmiller@... writes:

Hi Lynne,

If you need to inform your doctors about the AMN drug, you are going to the

wrong doctors. They should be informing you about the new drugs that are out

there. You need to be seen by a doctor who specializes in CML.

Skip didn't have to tell his doctor about AMN107.

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

Dear Zavie, I believe you. However, my doctor told me that the onus is on me

to find out what is out there!!! Yes, I could not believe it either. Another

trip to see Dr. Mauro may be just what I need. I am getting so fed up. The

doctor I am seeing is a sweet, sweet guy, and I love being his patient, but he

is very pro-bmt. I am not. I think I pushed some buttons while I was there

he did not like. He is only at the hospital one day a week, and that is to

see just 3 patients and I one of them. Looks like Boston may be another option,

as he says it should be, if I don't go see Mauro. But, as usual, you are

correct when you say I have the wrong doctor. Yeah, I feel the egg on my face,

hahaha!

I just received some VERY good advice.....to meditate on the answer. Pray

for it and reach for it.

Thanks for being there...Lynne A.

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