Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 Hi all, I have just been to see my GP and have been told some of the most cringeworthy things of all time, including that she has " yet to come across a patient who hasn't improved on T4 " . I really regretted not having a copy of the Mail on Sunday article.... Basically, I have been on the thyroid journey for 3 years now and have tried combinations of different medications and dosages, from T4 only to Armour and T4+T3 and have now got to the point where I want to trial T3 only. I am under Dr S's supervision who sent a letter to my GP saying that I should take 20mcg T3 for 3 weeks and then 40mcg of T4 after 6 weeks. 2 weeks in I am feeling better, but still have a few bad days. Brain fog wise I have improved immensely already, though. Soooo, I have been to my GP this morning who, after reading Dr S's letter said that she won't listen to anything he's saying because he's not an endocrinologist. She said what she will listen to is the letter from this Dr B I saw in the QE Birmingham, who quite a few members here have had bad experiences with as well and who said I am hyPERthyroid and my TSH is dangerously low. I tried to reason with her saying that suppression of TSH is quite normal on T3 and that if she insists to go by values alone, she should look at my FT3 and FT4 readings and not my TSH. She said that there are certain guidelines, blah di blah. She then quoted Dr B's qualifications and that what Dr B says is supported by the BTA and GMC... I said that I am well aware of the guidelines and that I have had 2 dreadful years of T4 only therapy and TSH measurements which have done nothing for me whatsoever and that I believe a one-fits-all approach simply doesn't work for me. That's when she laid into Dr S. I cannot remember the whole conversation exactly, but she was also contradicting herself a lot, but her best statement was: " I want you to go T4 only treatment and I want you be euthyroid by your TSH. I have yet to come across a patient who has not got better on T4. " Well, hello, I am sitting right in front of you!!! I said that I want to keep trialling T3 for a while and she agreed (hallelujah) but she also said she wants to do the T4 only if this doesn't work and she also thinks, as they all do, that I have CFS and need antidepressants... So fingers crossed T3 is what will work for me in the long run... By the way this is the same GP who after years of me suffering from stomach cramps and diarrhea which vanished on a gluten free diet, kept blaming my symptoms on stress and IBS. When she eventually agreed to send me to a gastroenterologist she said: " I will refer you, but if your bloods are negative there is NO WAY you have coeliac's disease and the gastro won't do an endoscopy anyway. " Well I have been to see the gastro and had the endoscopy done, the gastro was really sympathetic and said he has got loads of cases where the bloods are negative. In any case, I am still waiting for the results, but it turned out that I have a helicobacter infection anyway! So that would have gone undiscovered. Thanks GP. Sorry for the rant, but you know what it's like and venting my anger here really helps because I know I am not alone! Quote Link to comment Share on other sites More sharing options...
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